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wannalive
08-20-06, 01:45 AM
Hello everyone
I'm bekir 28
I found here from google, unfortunately I had pain last week and diagnosed for my left testis and it will be removed next thursday.
I also have coughing since than, i think i'm at a later stage and lungs infected
I had started smoking last year, slowly now smoking half a package in last 3-4 months, may be this had a trigger effect, noone can know

my uncle had leucemia, passed away at 30s (they say may be testicle as well?)
mothers brother has tumor in his brain, still alive after long years, and mothers father and mother are relatives, son of uncle, daughter of aunt

I had a small harder testis since childhood, so i didn't notice that as a problem
now i have a huge problem, i'm trying to keep calm but very diffucult
now i'm reading but i need some quick answers to decide what to do on monday.

here i have friends but no family, so i want to ask if I need strong support during removal and chemotherapy ?

second I'll go to St Luc Hospital but I found in france there is an important Institute, IGR, http://www.igr.fr.
Can anyone recommend me if I have to go there for better handling, they have partnership with MD Anderson, could be better?
I'll ask this to my doctor on monday as well, after anestesist appointment..

I waill also call them on monday, but I'm overloaded now :(

Thank you very much who can help me
i'll inform my diagnose on monday, blood tests should be ready by then

Bekir

dadmo
08-20-06, 05:50 AM
Bekir:
Welcome to the forum. The first thing you should know is that testicular cancer is curable even in it's later stages. On Thursday you will find that the removal of the bad testicle is a very simple, the doctors will make a 4-6 inch incision at the belt line, on the side where the testicle has to be removed. Then they simply pull it through the opening and snip it and the tubing off. That will all be sent for evaluation. In this country ithe operation is often done in the morning and you are sent home that same day. In my sons case they did the operation in the early evening and we brought him home early the next morning.
It isn't until they examine the testicle do blood work, some scan and xrays that they can tell if you will need further treatment. Let's assume that you have to get chemo. It will be difficult, you will lose your hair and you will feel sick. My son said the sickness felt like a bad weekend at college. They have medication you can take that helps with the sickness. You wanted to know if you need support, it's a good thing to have but many people do go through this alone. I know it won't be the same as having someone there, but we will be here for you.
Your doing the right thing looking for an expert, to help you with that this link (http://tcrc.acor.org/experts.html) will take you to a list of experts. You should take some time and read everthing you can on the pages that the link takes you to. The information is great and will help you make some informed decisions. Good luck.

Scott
08-20-06, 08:23 AM
Welcome, Bekir. You'll need minimal logistical support for the orchiectomy: someone should drive you home from the hospital, and you'll need some assistance for the first week or so.

As for further treatment after that surgery, we won't really know what's in store until you have results of blood tests and imaging tests of your chest and abdomen. I wouldn't assume your coughing is related to cancer before you have a CT scan.

The Testicular Cancer Resource Center lists a number of testicular cancer experts in Europe. Check this link (http://tcrc.acor.org/experts.html#world).

wannalive
08-20-06, 07:32 PM
Hello every one

thank you for messages

today i went to emergency again for xray
i was so afraid of lungs but nothing is on xrays, then i'm relieved
because i thought i had bigger problem, coughing is really exceptionally deep and sounds like plague, no blood but occasional green stuff
[Edit : I learned later that treatment and efficiency rate doesnot change much even TC jumped to lungs]

now i think this is due to my holiday and cold beers clubs etc.
[I had bronchitis, antibiotics after surgery didn't work it out completely so I took a different type for another week later, Co-trimoxazole EG]

Emergency Doc recommends operation here, probably quicker than going back to Turkey and also to decide after test results
and you wrote that i can handle myself, so probably i'll choose that
[No problems totally, I brought some snack and water, I had tv and mp3 player]

I checked links, thank you very much
I will go there after tests, if I need medication etc.
[ I went there and there is difference in prognosis, in france they recommend you chemo if node > 3cm, however in Bru if node >5 cm.
I read that 3 cm is newer understanding for better coverage and
I am a good example for that, I had 4,5 cm node and a small node
in lungs area, which will be missed by radiation] [this is for seminoma]

thank you for all the support
I needed to talk to someone and get answers, especially experienced people

Take care
Bekir

dadmo
08-20-06, 08:04 PM
Please update us as you get information. We might be able to help you with some of the medical talk and treatment options. Good Luck

wannalive
08-21-06, 02:54 PM
hello

today i got blood tests but markers are not finished yet
others are ok

doc says sperm banking is better after removal as sperm count should be low now but should increases geometrically after removal of tumor
[ I have normal count that is measured almost 4 wk later]

however I have a weird seizure on my right ball yesterday and now again
I afraid of jumping to that one as well, did anyone has similar feeling ?
[update: this has passed after few days]

I'll call doc again tomorrow for sperm banking but are sperms healthy ?
[no problem]

I've also seen anesthesia doctor for discussion of my history for anesthesia,
I asked for half body anesthesia and this is accepted, I don't want to sleep

thank you for any information

IowaBrian
08-21-06, 03:11 PM
Well my uro told me it takes 3 months for sperm to get from start to finish so yes it does or should increase with biggest gains 3 months after surgery.
As for going to sleep don't worry about it they will give you something that will make you feel great and after abut 3 minutes you won't feel or remember anything. You wake up about 45 minutes later and stay in recovery for about 30 minutes then back to your room. I think you would have to have very good reason for them not to use general and I wouldn't want to be awake for it anyway, some things are better to sleep through.
brian

wannalive
08-25-06, 09:13 AM
hello

I\m just back from hospital, yesterday I give my best wishes to my left ball and received a new protez.

I was awake during surgery and secretly peek at my surgery from the lights mirror like glass :)
I've seen from first cut until taking our the testicle, quite interesting but you have to have a strong stomach.
than during change of serum they change the mirror angle and green cloth height

the protez gave me the biggest problem like pain, and no problems with the cut area. The pain relived after a dose of pain killer at 9PM

A funny thing happened after the operation is doctor and the nurse whi are both woman was checking my right and left balls if everything allright,
and then I was still able to feel the touch but not pain, anyway my penis start to stand up, without my knowledge of course and everybody was laughing, I understand this when they remove the green cloth and they ask me to check the protez :))

I smiled and was happy to see budy still working ;)

anyway now I'm waiting for 8 september until then I'll have the CT and analyse of tumor and rest for 10 days at home :)
I got 100 movies from a friend to waste my time with :)

hopefully this will be all and I don't need any further therapy but who knows
I'll post my diagnose for sure

Take care everybody

dadmo
08-25-06, 09:23 AM
Getting the bad one removed may cure you. Let's hope so. At least you got the ball rolling.

Scott
08-26-06, 11:49 AM
At least you got the ball rolling.Ouch. :rolleyes:

Fish
08-26-06, 04:21 PM
I'm glad to hear your surgery went well.

Don
08-27-06, 07:03 PM
I was awake during surgery and secretly peek at my surgery from the lights mirror like glass :)
I've seen from first cut until taking our the testicle, quite interesting but you have to have a strong stomach.




I Guess you do have a pretty strong stomach...I think I would have passed out if I saw that.... Glad to hear everything went well

wannalive
08-28-06, 12:41 PM
Hi
I have 2 questions

Generally people notice swelling or lump however
I had pain during driving on a hot day, anyway unusual way of notice

I was wearing swimming short which made high temperature at testis area (synthetic fabric) after the pain starts I notice some lessening by air conditioning and cooling and no pain when I dont drive for 5 days, then constant mild pain started

Also as I mentioned I had small testicle from begining, I think type of maldescending or problem in development.

1) Did anyone had similar start and any idea of what could be the source and next actions?

2) Today I read more from http://www.startoncology.net and a bit disappointed by long term side effects of treatments,

Could you explain your experience of side effects and how it resulted, because I had the impression people report good results only

I feel bad today :(
I want to minimize risk to fertility and sex life at least for one or 2 decade
any recommendations like avoid chemo if possible etc.

I'll ask second opinion to Cancer institue in France just incase, I contacted oncology department already.

Thanks

Fish
08-28-06, 02:03 PM
Depending on your pathology and stage that you caught the TC (based on tumor markers, CT scans, Xray results), you might not need any more treatment.

So don't assume anything until you have all the results in. You might be cured already.

Best wishes and let us know when you get any more information.

Ras Joe
08-28-06, 06:47 PM
As Fish noted you may already be cured. In my second time with TC because of the type (seminoma) the I/O is all that my doctors want to do at this time because the cure rate I was given with what I had done (only I/O this time) was 90%. Take it easy until you know exactly what is going on-- stress can only do you harm at this point. Not like it is easy avoiding stress in these situations-- I have had some serious anxiety since I have been on surviellance. The not stressing part is way easier said than done!! :eek:

wannalive
08-30-06, 04:39 PM
Hi

I had bad mood last days, I should keep my head up
even I had worse I'm luckey to have TC than something worse
Thank you Fish and Ras Joe for support

The reason of my mail is, I start to have backpain from this morning
I noticed from morning. In fact it was a cold night and I had a thin covering
although I had thick pyjama. this was more on left side

The location is lower back, beneath rib cage, and feels like front of the spine
and tonight I have on the right side same location

Did any of you have this kind of pain?
And do you you think this is a sign that I should inform the doctor quickly?

my CT scan is planned for next week wednesday
[Edit: they found almost 5 cm enlarged node at that exact location]

---------------
some update on my condition

I had some swelling in my surgery area, and hardening 1 cm below the skin from monday evening
at midnight I was thinking about internal bleeding, 4 days after surgery
I had other indications of this, light head confusion, skin color change short of breath but I was not sure
so I take a shower and wait for the morning, I was afraid to sleep as if I could pass away during sleep but I said I'm just too anxious

I called her in themorning but she was in operation, I start to wait leaving a note, however I go there around 11 assuming she is out,
the nurse who I met earlier and luckely turkish one asked me if I'm fine
after getting the news she called the doctor herself again and she saw me
after half an hour

She says it is a lesion and I should rest, nothing more
I asked if she can check my blood tension, it was 150/80
it should be low for bleeding however this shows I'm just afraid, stressed
I think this is normal if you are alone at home and your body is changing

Thanks for any info
Bekir

wannalive
08-30-06, 04:51 PM
I forgot to say

:rolleyes: I also have little memory problems since last week
I cannot remember some details, and some occasional little pain
at the lower back of head

I assume these are related to stress
but want to mention here
it is better to let it out

Bekir

Fish
08-31-06, 06:20 PM
Hi:

You will have a fair amount of swelling and hardening at your incision site. The hardening is a healing ridge and is normal. I think Scott posted a link that described this. Maybe he will repost it. You will most likely suffer from a lot of symptoms that are stress related - forgetting things, noticing extra pains. That's also normal after a cancer diagnosis. If the stress gets too bad, consider seeing a counselor. Also if you're not accostumed to sitting/laying a lot, that could be causing some back pain.

Best wishes.

Scott
08-31-06, 06:23 PM
I think Scott posted a link that described this. Maybe he will repost it.The description of the "healing ridge" on this page (http://hernia.tripod.com/vocab.html#HR), although it's from a site about hernia operations, explains what to expect.

wannalive
08-31-06, 08:23 PM
Hello
Thank you for the information, I didn't know about this

Doctor recommend me to put an ice bag (or something cold) for an hour everyday to reduce swelling, wrapped in a towel of course.
Somebody might find this useful as well

regarding other things I hope so :)

i just finished Armstrongs My journey back to life and starting Every second counts, he surely has his own way but many feelings are similar

Take care

wannalive
09-10-06, 05:36 PM
I think I'm next in line for zapping
I made a phone call to doctor to learn that I have appointment with a radiologist at the end of this month.
I know all tests are clean, it should be seminoma but my doctor is too busy to tell this. Girr Dr Wes*, he thinks I'm an easy case and he is already finished with me, but I'm living with anxiety, headache and also fighting with my bronchitis and he cannot spare 15 minutes to explain me what is going on.

I asked for my file to go to another institue I mentioned earlier, now I'm sure to get a second opinion as I read through risk of radiology to develop another cancer after 10-20 years.

anyway, could you write about radiation experiences,
can you go to work? I read some people got sick leave due to fatigue
can you actually work mentally, focus on your office work?
Can I drive a car before and after (for 10-15 minutes only)

and why I'm in the high risk group being younger than 30?
Does anyone have any statistics about this?
I'm thinking of skipping this and taking a close follow up, if this seminoma I can take radiation when I'm sure it is growing right?

Thank you all for any bit of help and understanding

Bekir

PS. today I had EKG just by chance (nurse noticed slight irregularity during pulse count after blood pressure measurement) and recommended me to go to MD, anxiety is not a nice friend
:eek:

Ras Joe
09-10-06, 07:12 PM
if this seminoma I can take radiation when I'm sure it is growing right? ; anxiety is not a nice friend:eek:

That is the plan with me as far as the seminoma is concerned, we are holding off on the radiation. It will only be used if there is anything that is active. I also agree with your other observation concerning anxiety. You will probably want to deal with the anxiety if you are planning on surveillance because it can be very stressful having the orchiectomy as your only treatment. I hope you feel better.

Fish
09-10-06, 07:12 PM
Hi:

Until recently, the standard protocol for all seminoma patients was radiation treatments. Now, there has been a move toward surveillance for selected patients. Some doctors, however, remain committed to radiation. There have been some studies to try to determine which patients have the greatest risk of recurrence. Several factors have been correlated with that risk.

Higher risk for recurrence =
1. Age younger than 35 (don't know why, this is just based on statistics of other seminoma patients)
2. Tumor larger than 4cm
3. Tumor invasion of blood vessels, lymphatic vessels, or rete testis

Of course, someone could have all three of these and still not have a recurrence, it's just statistics.

If you go on surveillence and have a recurrence with a lymph node less that 3 cm in size, I think you could have radiation, larger than 3cm would probably mean chemo.

The ultimate odds of being cured are the same whether you choose surveillence or radiation. I think the chances of developing a radiation-related cancer are less than they were 20 years ago, but that is still a factor to consider.

I chose surveillence after my seminoma, because I only wanted to get radiation if I was certain I needed it.

Best wishes.

dadmo
09-12-06, 06:10 AM
The reason for a higher recurrence rate, for both chemo and radiation, for patients under 35 is that they are expected to live longer. If you’re 60 and it takes 30 years for the radiation to bite you the odds are something else will get you alone the way.

QuantumSheep
09-12-06, 09:52 AM
A few interesting things about radiation and risk factors:

Dr. Bosl at Sloan Kettering told me that there is a growing school of thought that vascular invasion present with a seminomatous tumor in fact does not increase the risk of recurrence; he said that there are no reproducable results that back up those conclusions. I'm not sure if this also applies to lymphatic invasion. So more doctors, Dr. Einhorn included, seem to be saying that surgery alone cures approximately 80% of patients with a seminomatous tumor across the board, regardless of vascular invasion.

As far as radiation being linked to secondary cancers, here's something that's important to remember: If a study comes out and says that xx% of patients experienced some sort of secondary cancer attributed to radiation 15 years after treatment, then those studies are dealing with radiation technology that's 15 years old. It stands to reason that the technology is that much safer these days, although obviously there's no way to know the data 15 years in the future. Dr. Bosl also told me that when a secondary cancer develops in a patient, it's very difficult to conclusively state that the patient would not have developed that cancer without the radiation treatment.

Just something to consider.

wannalive
09-12-06, 06:41 PM
Hello

thank you for your replies, I'l tell you more as I got information and about to give a decision for a final check.

I went to MD again for my pulse, but before that I had trouble sunday night
I didn't take sleeping pill as I tried something different. it was like hot flash at 4 to 6 am, and all monday I ahd to breath deeply, have sequeze at the hearth, headache and perceptual changes, and a bit dizzyness.

I got to the doctor at 9 PM by that time headache reduced to a little, heart feels better but still need to breath deeply.

He said I got hyperventilation syndrom because of stress and taking deep breaths, unfortunately on sunday a person tought me a method of taking deep breaths as a tai chi method for relaxing, so I take may be 100 deep breaths before sleeping may be that was a initiator or just by chance I got this condition

also having the randesvous to the doctor already reduced symptoms which was a kind of relieve for me psychologically for anxiety.

he said heart rate is perfectly fine and I got some blood pressure 14,5-15 to 8 therefore he has given me betablocker for control of blood pressure
which he says will help me to keep calm by feeling ok (otherwise it is a vicious circle that you make your self worse) and warn me to sleep well
I had sleep only 6-7 hrs a day since 2 weeks which is less than my 8hrs average

this is to inform people warn about tai chi or deep breathing, it may worsen your condition. dont do it too much.

take care everybody

PS. http://www.answers.com/topic/hyperventilation-syndrome

wannalive
09-15-06, 05:52 PM
Hi

today I went to the hospital to get my reports to go to the institute. as I mentioned before about this, fortunately/unfortunately my doctor was there and got information about my actions and asked for a meeting.

I got one of beta blocker to keep my calm when I see this is coming, I'm so angry to him, he says not seeing him is a mistake of nurses etc anyway
he explained me CT was reviewed and tumor is found. During scan they implied no problem because there was not a second scan, which they do if there is problem in the first one (or blurring, but he said they noticed this tumor later, because last week he told me there is nothing urgent and worry about, but now he is arranging RT so quickly)

He said my biopsy is not finished or ongoing for another test? Is it possible to test for 3 weeks? I'm extremely furious to this slow and informationless hospital and doctor.

I got an intermediate report by a hard talk, this was against hospital rules?

Anyway this is in french but most of it is technical, I appreciate if somebody take the challenge and try to understand this report by a translation program altavista etc.

But first I'll write Scan report,
why is my case not abdominal but back side around spine ?
and I have pain again after stopping taking paracetamol for my bronchitis, this thing hurts sometimes.

thank you if somebody help me understand this, at least the CT diagnose and if there is something strange/not common.

Bekir

Indication:
Bilan d'extension d'un cancer testiculaire
Technique:
Scanner realise en mode helicodial avec injection de produit de contraste
Resultat:
A l'etage thoracique
Presence d'un ganglion peri centimetrique en sous carinaire.
Presence d'un nodule millimetrique scissural droit (petite scissure). Presence d'un nodule milimettrique postero basal gauche.
A l'etage abdominal
Les parenchymes hepatique et splenique sont sans particularite. Presence d'une masse tissulaire hypo rehaussante contenant des calcifications de 46x34mm accolee au psoas gauche a la hauteur de L3 (metastases ganglionnaires en premiere hypothese)
Presence d'une adenopathie contenant une calcifation en lombo aortique infra centimetrique.


Now this is the biopsy report
they are checking again? Is second check common ?
this is not final level as I said.

Description macroscopique
Le testiqule measure 4x2,5x2cm. L'epididyme mesure 4,2 cm de long. Au pole inferieur du testicule, on distingue une tumeur blanche de 1,8x1,4 cm. Juste en avant de la tumeur, on distingue un petit hyste de 4 mm, liquidien. Les prevelevement ont ete effectues de la maniere suivante: 1-3 : tumeur4 : prelevement a distance avec epididyme5 : cordon et deferent

Description microscopique
La tumeur interesse des plages de cellules de grande taille, au cytoplasme amphophile et aux noyaux volumineux, souvent munis d'un nucleole saillant. Entre ces amas de cellules tumorales, on observe de nombreuses cellules inflammatoires polymorphes essentiellement constitues de plasmacytes. Les cellules neoplasiques n'arrivent pas au contact de l'albuginee. Le rete testis n'est pas envahi. Au pourtour de la tumeur, lestubes seminiferes sont soit sans particularite, soit atrophiques. Cependant, on distingue tres focalement des tubes seminiferes presentant des spermatogonies volumineuses, aux noyaux denses et au cytoplasme clair et abondant, faisamt suspecter des cellules germinales malignes (prelevements 3 et 5). Le kyste en avant de la tumeur est delimite par un epithelium cylindrique et la presence de cils au pole apical.

Conclusion
Seminome de 18x14 mm sans contact avec l'albuginee, sans envahissement du rete testis. Suspicion de cellules germinales malignes dans certains tubes seminiferes. Presence d'un kyste epididymaire. La recherce de PLAP est en cours.






:confused:

Fish
09-15-06, 06:47 PM
Can you translate the report into english. My crude translation seems like they are reporting a small nodule in the lung base and in the right small fissure, which are probably nothing, maybe related to your bronchitis.

But it looks like there is something in the abdomen that is cause for concern.
It looks like the testicluar tumor was a pure seminoma. Without invasion of the tunica albuguinea or the rete testis. However, I don't see anything about vascualr or lymphatic invasion.
I think they also found an epididymal cyst, which is of no concern.

But if I could read the report in English it would be very helpful. Bablefish was not very helpful because of the medical jargon.

Keep in mind, seminoma is much more responsive to treatment that other cell types.

wannalive
09-16-06, 01:39 PM
Hello

I found there are two things
1) 46x34mm hardening of a tissue at L3 (my spinal backbone!)
there is a term ganglion which has 2 meanings
[Edit: Ganglion means also lymph node, so this is normal ]

Is it possible to have attack on nerve centers?
This is frantic to know my sensory nerve lump is under attack, doctor didn't tell me something in detail, just recommended radiotherapy.

2) Enlargement of Lymph node described by adenopathy, which has aortic hardening as well, which is less than a centimeter
location is not mentioned, may be at L3 again ?

This may help your consideration
Bekir

Adenopathy
Swelling or abnormal enlargement of the lymph nodes.

Ganglion (medical dictionary)
1. A group of nerve cells forming a nerve center, especially one located outside the brain or spinal cord. Also called neuroganglion.
2. A benign tumorlike cyst containing mucopolysaccharide-rich fluid enclosed within fibrous tissue and usually attached to a tendon sheath in the hand, wrist, or foot. Also called myxoid cyst, synovial cyst.

Fish
09-18-06, 09:14 AM
Hi:

Even in translation, this report is confusing for me.

Enlargement of Lymph node described by adenopathy, which has aortic hardening as well, which is less than a centimeter

I'm not sure what they mean by this, especially the relationship between the aorta and the lymph node. I guess you'll have to sit down and make your doctor answer some questions. Sorry I couldn't be more help.

Best wishes.

wannalive
09-21-06, 02:48 PM
Hi
ganglion is the lymph node,
but my case is not clear yet, probably I'll take 4 cycle EP
for stage 2B (or 3B) seminoma

I still don't know how I have hardening at this big size but not hard to classify directly as a tumor. I thought tumor develops slowly from a cell.
I'll ask tomorrow to the doctor.

I started smoking last year and increased up to 1/2 package in the last 6 months.
I have a doubt that tumor started due to cancerogenics in cigarette
Does anyone have an idea?

I though you should accumulate certain amount of it or expose to long time
before having an effect, but may be I was prone to tumor due to atropic testis ?

I'll keep posting

Scott
09-21-06, 04:36 PM
I started smoking last year and increased up to 1/2 package in the last 6 months.
I have a doubt that tumor started due to cancerogenics in cigarette
Does anyone have an idea?As noted on this page (http://www.cancer.org/docroot/PED/content/PED_2_3X_Do_I_Have_Testicular_Cancer.asp?sitearea= PED), "Smoking is a risk factor for cancers of the lung, mouth, larynx, bladder, kidney, and several other organs." It is not a known risk factor for testicular cancer.

wannalive
09-22-06, 02:00 PM
Hello
Thank you scott, that's a small relieve. also I found somewhere that non-seminoma is more related to cancerogenics in several industries
and seminoma for more office people.

Now I have few questions question. My first hospital close to my house lost my trust for long prognosis time, forgetting my appointment and worng diagnose to radiation but finally I found my way to IGR.fr for chemo

and they changed their decision also here. I suspect because I told them about other prognosis probably chemo.

Anyway now I have to take EPx4 from 2 Oct and I doubt to be outpatient in here or go to another hospital.

Do you think there are still important decisions that should be taken during chemo and I better look for better place
or this is just infusion and no important decision will be given during chemo.

and second question about my sickness level.
Do I need somebody to help or can I do what ever I need ?
I'll arrange somebody to check me accordingly.

And third, doctors say 3xBEP or 4xEP have same effect but one of them recommend EP to preserve my longs, but BEP is also possible
Do you have any information about this. I found one article from Sloan Kettering from 1994 that these have same effect, even EP is slightly better for side effect.

thank you for support

lastly, today I explain cancer diagnose to my managers at work, without primary source
I don't want this public but people will recognize that I'm going through a mediacation. Do you know any other disease that have similar symptoms to cover this ?

ironically this is the same day that I tell them that I decide to continue at this office and not go back to turkey. I'm not expat anymore.

Take care

PS. actually in france size of tumor was decision for chemo >3 cm
but here they decide chemo due to a small enlargement around lung level.
without that they would go for radiation for a tumor less than 5 cm?
mine is between 3 and 4.

Davie
09-22-06, 02:45 PM
I've just posted this to another link.

Yes, bleomycin can be toxic for the lungs, but Dr. Einhorn commented that
4EP is far more toxic than 3BEP because of "cumulative platinum related neurotoxicity, anorexia, nausea, and ototoxicity as well as the small risk of leukemia with etoposide at higher total dosage"

wannalive
09-27-06, 01:25 PM
Hello

I got my hospital reservation for 4 October in Leuven KUL, and run out of the first hospital with anger and frustration.

Davie thank you for the links, really usefull
Doctor in Leuven also recommend 4xEP as the one in Paris, I agree with them,
at least one risk item less for me.

I informed my close friends and they will check me every day,
but I'll be alone except afternoons.

It is diffucult to explain them that I have cancer (not mentioned testicle)
the effect is strong on some of them, I ask them to keep in our group of 5
and girlfriends/wifes

I cut my hair to 5 mm already and they say it is a nice cut ?
I hope it is but I don't think so
I'll make it bald when it starts to fell off

My bronchitis strike back, so I start to use penicilinx3g/d
It should be finished until chemo, says doctors because
body cannot fight due to low blood count.
this is 3rd antibiotic this bacteria is getting and hopefully the last.

Now I have to check different type of catherer, permanent and removable
after each cycle. Each has prons and cons they say.
I hope they have info at trcr :confused:

I'll keep posting

wannalive
10-04-06, 06:00 PM
Hi

I'll be out for some time to get my cure
I hope I can connect to internet and feel well enough to post

otherwise I'll come back after 1st round

I packed 3kgs before chemo to reduce the effect,
we will see what happens

wish me luck
Bekir

dadmo
10-04-06, 06:33 PM
Good luck with the next round of treatment.

Fish
10-05-06, 07:28 AM
Bekir:

Best of luck with your treatment.

wannalive
10-09-06, 02:58 AM
Hi
I found a computer here in a waiting room
3 days passed,

I'll continue in next forum
I belong to there for some time :rolleyes:

bekir