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How enlarged was your testicle when diagnosed? To help others to give an example

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  • How enlarged was your testicle when diagnosed? To help others to give an example

    Dear readers,

    I know the approximate size of a testicle. Furthermore I know there are differences between the testicles and individuals. But, my hypochondriac kept me asking: how enlarged were the testicles of you or people you know diagnosed with testicular cancer?
    Did this swelling kept growing over time? Was this during one night, and how enlarged was the testicle "before and after"?

    Perhaps this will inform others, how enlarged it might be (besides all other symptoms ofcourse).
    This to keep my objectivity, and don't feel them every single day for enlargement. Which I am currently doing!

    I hope I can get some serious feedback.
    Thanks,

    Mark.

  • #2
    Testicles do not always enlarge with TC. My first tc was found due to an injury that had caused my testicle to enlarge, but never returned to normal, my second tc, my testicle actually seemed smaller & very mis-shapened.

    Afraid there is no hard & fast rule for this.

    Dave
    Jan, 1975: Right I/O, followed by RPLND
    Dec, 2009: Left I/O, followed by 3xBEP

    Comment


    • #3
      I agree with Dave. My son discovered a lump while grooming "downstairs". There was no change in size. He waited 2 weeks before he saw an urologist and got a US done then i/o, outcome seminoma stage 1.
      Whereas, a work colleague was diagnosed with nonseminoma, 1 year prior to my son's diagnosis, only because he was accidently hit himself and his testicle had swollen up afterwards and was painful, he was diagnosed with stage 3, with mets in the lung and brain, he did BEP and was operated on in these areas. He is all clear now. My son is still on active surviellance and also more than thankfully, all clear.
      Mother of Son (Son's date of birth: August 1987. Age at diagnosis 27, now 28)

      1 July 2015: Son discovered small knot in left testicle, no pain. Waited and observed.
      10 July 2015: Appointment with urologist. ultrasound: 1.7 cm tumor, blood work: AFP - 1.62 (5.50), bHCG- <0.1 (<2.0), LDH159 U/l (135-225), 2.65 umol/s/l (2.25-3.75) .
      14 July 2015: Hospital, same diagnosis.
      15 July: 2015 l/O, Pathology: Stage 1A 100% Seminoma.
      16 July 2015: CT - Clear
      October 2015: Blood work - Normal range
      January 2016: Bloodwork - Normal Range
      Febuary 2016: CT - Clear

      July 2016 - One year clear!!

      Active Surveillance recommended by hospital Doctors, His Urologist .
      Via email by Dr. Nichols and Dr. Einhorn

      Comment


      • #4
        I agree. I found mine, not because it enlarged as if anything it had shrunk slightly, but because it went noticeably hard as a stone and lost sensation.

        Comment


        • #5
          I found mine because it swelled up pretty quickly and was rock hard. At that point it was around 5 cm. By the time it was removed 4 months later it was over 6 cm.

          The 4 month delay was because I was misdiagnosed with Orchitis.

          - Matt
          March 4th 2014: [AFP = 2.5; bHCG = 6; LDH = 618]
          March 13th: Left IO 100% Classic Seminoma
          6.3 x 5.1 x 3.8 cm, no invasion of anything
          LDH never fully normalized
          Stage: IS
          Watchful Waiting
          May 1st: promoted to Stage IIB with two PET active tumors in the para-aortic lymph nodes 2.5 & 2.4 cm
          May 12th: started 3xBEP
          Neupogen during Cycle 2 and 3
          July 8th: Last Bleo shot of Cycle 3 -- chemo completed !
          August 4th: Post Chemo CT/PET scan
          September 4th: Port removed
          January 11th 2017: 2 & 1/2 YEARS ALL CLEAR !

          Comment


          • #6
            Originally posted by JeskiM69 View Post
            I found mine because it swelled up pretty quickly and was rock hard. At that point it was around 5 cm. By the time it was removed 4 months later it was over 6 cm.

            The 4 month delay was because I was misdiagnosed with Orchitis.

            - Matt
            Hi Matt. Was 6.3cm in Lenght and 5.2 in Width?
            My left testicle is now 5cm x 2.5-3cm x ??

            6.3 by 5.2 would be a huge difference compared to mine for example. I am aware of other symptoms with testicular cancer, and that there don't have to be enlargement. A lump, hardness and other symptoms may occur.

            I am talking about enlargement now, because what I read about the cases with enlargement is that there is a really noticeable difference. Therefore, it may calm my mind and stop prodding.

            Comment


            • #7
              I found mine because of a noticable mass no swelling.

              Comment


              • #8
                6.3 x 5.1 x 3.8 cm when it was removed.

                It was rock hard. I felt heaviness down in the scrotum as it was pulling down. A little bit of pain and some lower back pain (that we were never sure was from the TC or not). The cremasteric reflex was not able to pull the testicle up like it normally would...It was stuck hanging low. My other symptoms at the time was fatigue/tiredness and night sweats. It was constantly growing....never shrinking.

                If you are worried about yours then you really need to get to a Urologist and get an Ultrasound done. Comparing your symptoms/enlargement to others will not lead to diagnosis or non-diagnosis of TC.

                - Matt
                March 4th 2014: [AFP = 2.5; bHCG = 6; LDH = 618]
                March 13th: Left IO 100% Classic Seminoma
                6.3 x 5.1 x 3.8 cm, no invasion of anything
                LDH never fully normalized
                Stage: IS
                Watchful Waiting
                May 1st: promoted to Stage IIB with two PET active tumors in the para-aortic lymph nodes 2.5 & 2.4 cm
                May 12th: started 3xBEP
                Neupogen during Cycle 2 and 3
                July 8th: Last Bleo shot of Cycle 3 -- chemo completed !
                August 4th: Post Chemo CT/PET scan
                September 4th: Port removed
                January 11th 2017: 2 & 1/2 YEARS ALL CLEAR !

                Comment


                • #9
                  Mine wasn't enlarged, just felt weird and uncomfortable for a while like wearing underwear too tight. Found a lump in the shower and went to the doctor.

                  Don't second guess yourself, just get it checked out!! It's quick and you'll know for sure

                  Comment


                  • #10
                    I too note changes that were 'rock hard', not enlargement. To the point with my sack of 1 remaining testicle and an assortment of cysts and globules - as everything is and remains 'squishy' I have no worries and believe the US of 5 years ago. Plus the yearly feel-out by Doc. And she is cute so there is some added stress with the yearly feel-out, .

                    Comment


                    • #11
                      As I read these replies (many thanks) I feel more safe about my testicles. I've been to my GP several times with my testicles, but he said my balls feels ok.
                      My left feels smooth all over, is a little bit "squishy" when I am under the shower or it is nice and warm downstairs.

                      At my right one I felt a really small "bump" near the epididymis, and got it checked out by my GP. He couldn't even feel it, and it was close to the epididymis. He said he felt the whole testicle round, but that he didn't feel it. And we took some time together so I trust him.
                      I suspect it is the appendix, or just the epididymis itself, but because of my awkward position to feel it, and sometimes not it is the epididymis itself. I need a referral from my GP to an urologist, but he said they feel so completely fine, it is not necessary.

                      I of course will keep doing my monthly self-exams to make sure there are no changes. And if there are, I will go to my GP directly.
                      The problem was that I keep doubting about uncertain things as what is defined by "squishy"? And how Enlarged was it?

                      I will now try to leave them alone for a month (I previously touched them every day, now every week).
                      Many thanks.

                      Mark

                      Comment


                      • #12
                        Basically, if you have two testicles, then the best thing is to see if there are differences - if one feels alien compared to the other, then get it checked out. When I found my lump, even though it was small it was totally obviously different to the other testicle, and just immediately felt like there was something wrong. It was rock hard and unyielding, like feeling a knuckle in there.

                        - T
                        30 Jul 14: Discovered lump
                        31 Jul 14: GP referral to specialist
                        4 Aug 14: Clinical diagnosis of tumour, blood samples taken, CT scans, USS (confirming ~2cm tumour)
                        8 Aug 14: Left radical orchidectomy (plus test results back: CT normal, no mets; blood markers slightly elevated: AFP 14.16, HCG 4.9, LDH 149)
                        29 Aug 14: Pathology results: Stage 1A Mixed Non-Seminomatous Germ Cell Tumour (composition: Yolk-sac Tumour and Mature Teratoma)

                        24 Sep 14: Started precautionary adjuvant 1xBEP
                        23 Oct 14: All clear; on surveillance

                        Comment


                        • #13
                          Talis, that is a really good description. To add to it, make a firm fist. With your other hand push on your knuckles, if that is what your testicle or any part of it feels like get it checked asap! Now push on the fleshy palm below in your fist and you find a small range of 'squishy', the slightly firmer (depending on how firm your fist) is what my remaining testicle feels like, the globules less firm.

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                          • #14
                            Swelling and the feeling of something hard inside (like a small golf ball almost...)

                            Comment


                            • #15
                              Mine was a tiny lump, hard as a rock on the surface of the testicle. 100% pure EC
                              Age 31 - Portland, OR
                              01NOV16- Pain in right testicle, palpable mass
                              13NOV16- R I/O. Markers normal
                              06NOV16 - CT scan clear
                              27NOV16- Stage Ia non-seminoma, 1.3cm, 100% EC, no LVI
                              09DEC16 - Started 1xBEP. Neutropenic at day 15; Worst part for me was bleo (allergic).
                              03JAN17- Ended 1xBEP; start surveillance
                              18MAR17-2nd pathology report shows 90% EC , 10% seminoma

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