Announcement

Announcement Module
Collapse
No announcement yet.

Happening so quickly, I have a couple of questions

Page Title Module
Move Remove Collapse
X
Conversation Detail Module
Collapse
  • Filter
  • Time
  • Show
Clear All
new posts

  • Happening so quickly, I have a couple of questions

    I am 46 years old. And I have a family history of prostate cancer, but I have never been diagnosed with cancer before.
    So, in May I went to my gp with a pain in my left testicle. I found a lump and pointed to the location and he touched it and said yep it's a hard lump. So he stopped with the exam and scheduled the bloodwork and an ultrasound.
    He said the bloodwork looked ok but the ultrasound shows cysts in my left one and a pea sized tumor in the right. He referred me to a urologist. When I met the new Dr, he walks in and said his name and then my 3 options. Really that quick! So we decided to do a radical orchiectomy of the right one. They said they couldn't do it until the end of August, but we found a closer date of July 31.
    Ok so here are my questions. I asked these from the nurses, but really didn't think they were hearing me.
    First question: my pain is in my left one, but not my right one at all. They say it is a phantom pain that will go away when the right one is removed. Anyone go through this?
    Second question, they say get special underwear for after the surgery, what kind should I get?
    Last thing, I am now having continual pain like in having stomach cramps, for of like when you have been hit in the testicles. I Aleve but when it wears off it seems to hurt more because I got used to no pain. Any tips on that?
    Last edited by Bandc416; 07-01-18, 03:31 PM.

  • #2
    Phathom pain from left to right or right to left? Could it happen sure if you had 1 removed. But reading you havent so from the sounds of it the cyst is causing you pain not phatom pain if i am readimg it correctly. Sounds like they had no clue that is just my humble opinion.
    2nd questions a jock strap should be all you need for support after surgery.
    Jan 2012- U/S mass in Left testicle
    Feb 2012- I/O performed to remove cancer
    Mar 1,2012- pathology pure seminoma
    Mar 7, 2012 PET SCAN stage IIa
    April 2012 Mayo clinic carbolite.
    May 2012 carbolite failed, started BEP x3
    August 7th 2012- BEP complete
    April 2013 CT/PET show relapse
    May 2013 RPLND
    Aug 2013 Relapse again Started VIeP x2
    Oct 2013 HDC AUTOLOGOUS
    Dec 2013 HDC completed CT/PETSCAN 1.1 cm x .8 cm right lower lung lobe
    Feb 2014 confirmed false positive all clear FINALLY !
    Jan 2015 1 year cancer free Pet/CT scan
    Jan 2016 2 years cancer free "Pet/CT scan
    Jan 2017 3 years cancer free "Pet/CT scan
    Jab 2018 4 years cancer free "Pet/CT scan, labs, xrays

    Comment


    • #3
      Thanks eodtech2001
      The left one hurts (has cysts) and the right one has the tumor no pain.

      Comment


      • #4
        I never had pain just a heavy feeling and it was hard as a rock. My clue started with nite sweats and a numb feeling feeling on the inside of my thigh right where my boy hanging next to my thigh. Then i had the heavy feeling in it, but like i said never pain
        Last edited by eodtech2001; 07-01-18, 05:19 PM.
        Jan 2012- U/S mass in Left testicle
        Feb 2012- I/O performed to remove cancer
        Mar 1,2012- pathology pure seminoma
        Mar 7, 2012 PET SCAN stage IIa
        April 2012 Mayo clinic carbolite.
        May 2012 carbolite failed, started BEP x3
        August 7th 2012- BEP complete
        April 2013 CT/PET show relapse
        May 2013 RPLND
        Aug 2013 Relapse again Started VIeP x2
        Oct 2013 HDC AUTOLOGOUS
        Dec 2013 HDC completed CT/PETSCAN 1.1 cm x .8 cm right lower lung lobe
        Feb 2014 confirmed false positive all clear FINALLY !
        Jan 2015 1 year cancer free Pet/CT scan
        Jan 2016 2 years cancer free "Pet/CT scan
        Jan 2017 3 years cancer free "Pet/CT scan
        Jab 2018 4 years cancer free "Pet/CT scan, labs, xrays

        Comment


        • #5
          Phantom pain makes no sense. That's something you may get after the orchie...but not before.

          Typically tc itself is painless. I never had pain with mine and I had a pretty decent sized tumor.

          I have an occasional recurrent epidydimal cyst in my remaining guy and it does cause some pain. So I would say that pain can be expected with a cyst.

          The stomach pain may be from stress. I would mention it to the doc because it could be any number of things.

          - Matt
          March 4th 2014: [AFP = 2.5; bHCG = 6; LDH = 618]
          March 13th: Left IO 100% Classic Seminoma
          6.3 x 5.1 x 3.8 cm, no invasion of anything
          LDH never fully normalized
          Stage: IS
          Watchful Waiting
          May 1st: promoted to Stage IIB with two PET active tumors in the para-aortic lymph nodes 2.5 & 2.4 cm
          May 12th: started 3xBEP
          Neupogen during Cycle 2 and 3
          July 8th: Last Bleo shot of Cycle 3 -- chemo completed !
          August 4th: Post Chemo CT/PET scan
          September 4th: Port removed
          July 10th 2018: 4 YEARS ALL CLEAR !

          Comment


          • #6
            Thanks guys, I'm thinking the cyst are what is causing the pain, but u don't think he will address it until after the right one comes out. All I can do is hope that it does or I will have to have a second operation instead of just taking care of it all at once. I haven't even processed steps after surgery yet.

            Comment


            • #7
              You can have pain with TC, my son had immense pain and could barely walk by the time he felt brave enough to approach me. His testicle was baseball sized from swelling large tumor. Per my husband and Urologist (I never looked). So yes, pain is not common, but it is does occur. Hopefully, you get answers, and relief from pain.
              Son Grant
              dx 12/21/16 at age 17

              BEP x3
              Post Chemo CT Scan on 3/28/17 still showed a few nodes over 2 cm
              2nd Post Chemo CT Scan on 4/27/17 showed all nodes still over 2cm
              Post Chemo RPLND 5/8/17: Periaortic Teratoma, Intraaorticaval Teratoma, and Paracaval Teratoma found.

              Comment


              • #8
                I had pain like being kicked in the balls. It was an infraction. Unfortunately infraction in the testicle almost always gets misdiagnosed as TC. So you end up loosing a ball.

                Comment


                • #9
                  I didn't have phantom pain, but definitely it seems like the pain is all over the place... A bit like picking out glasses, after trying on a couple of pairs it's hard to work out which ones you like, it all seems the same... Normal underwear can work fine, but what really helped me was getting comfortable trackpants with lots of room!
                  July 2016 - Left I/O
                  December 2016 - BEPx3
                  All clear for 1 year!

                  My Testicular Cancer Support Kit
                  First Oncologist Visit Checklist
                  3 Things I Wish I Knew Before I Started Chemo
                  3 Reasons Why People Disappear From Your Life During Cancer
                  Simplify Cancer Podcast

                  Comment


                  • #10
                    Originally posted by vpirh View Post
                    I had pain like being kicked in the balls. It was an infraction. Unfortunately infraction in the testicle almost always gets misdiagnosed as TC. So you end up loosing a ball.
                    That's what I'm afraid of, the one comes out and it's not TC and I am left with a left one that hurts all the time. Then what?

                    Comment


                    • #11
                      In that case I believe that surgery could remove the cyst.

                      Right now the primary concern is to get the cancer out of their and then determine/take the next step.

                      - Matt
                      March 4th 2014: [AFP = 2.5; bHCG = 6; LDH = 618]
                      March 13th: Left IO 100% Classic Seminoma
                      6.3 x 5.1 x 3.8 cm, no invasion of anything
                      LDH never fully normalized
                      Stage: IS
                      Watchful Waiting
                      May 1st: promoted to Stage IIB with two PET active tumors in the para-aortic lymph nodes 2.5 & 2.4 cm
                      May 12th: started 3xBEP
                      Neupogen during Cycle 2 and 3
                      July 8th: Last Bleo shot of Cycle 3 -- chemo completed !
                      August 4th: Post Chemo CT/PET scan
                      September 4th: Port removed
                      July 10th 2018: 4 YEARS ALL CLEAR !

                      Comment


                      • #12
                        Except you don’t know if it is cancer until you take the ball out.

                        Comment


                        • #13
                          It is very rare for the U/S to misdiagnose TC. Can it happen, sure, but of the thousands of guys who have posted here, I would guess there are less than a dozen.

                          For the record, I didn't wear any underwear at all post surgery, loose sweatpants were what I lived in. Anything else was uncomfortable.

                          Also, I think I would be pushing for surgery sooner than a month from now, even if it means changing docs, that is just a long time away.

                          Dave
                          Last edited by Davepet; 07-02-18, 02:56 PM.
                          Jan, 1975: Right I/O, followed by RPLND
                          Dec, 2009: Left I/O, followed by 3xBEP

                          Comment


                          • #14
                            I did ask for an earlier time, they wanted the end of August. Now its end of July.

                            Comment


                            • #15
                              I would probably see if there is a urologist that does surgeries out of a same day surgery center. Work it backwards, call a couple of surgrey centers and ask them what urologist have privileges there. Then call that urologist office directly. I know with me i went in at 7am and was having the I/O by 10am. Sorry but a month is in my opinion way to long to wait.
                              Another thought is if your a veteran walk into the nearest VA hospital and they will have that thing out in record time for the VA. Thay is 1 good thing about the VA ERs they dont play around with cancer.
                              Jan 2012- U/S mass in Left testicle
                              Feb 2012- I/O performed to remove cancer
                              Mar 1,2012- pathology pure seminoma
                              Mar 7, 2012 PET SCAN stage IIa
                              April 2012 Mayo clinic carbolite.
                              May 2012 carbolite failed, started BEP x3
                              August 7th 2012- BEP complete
                              April 2013 CT/PET show relapse
                              May 2013 RPLND
                              Aug 2013 Relapse again Started VIeP x2
                              Oct 2013 HDC AUTOLOGOUS
                              Dec 2013 HDC completed CT/PETSCAN 1.1 cm x .8 cm right lower lung lobe
                              Feb 2014 confirmed false positive all clear FINALLY !
                              Jan 2015 1 year cancer free Pet/CT scan
                              Jan 2016 2 years cancer free "Pet/CT scan
                              Jan 2017 3 years cancer free "Pet/CT scan
                              Jab 2018 4 years cancer free "Pet/CT scan, labs, xrays

                              Comment

                              Working...
                              X