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  • Getting ultrasound soon..worried

    Hello everyone, I'm a 20 year old college student from Pennsylvania and am just starting the diagnosis process.12 days ago I found a lump on the bottom/outer side of my right testicle. Its only about the size of a grain of rice, or maybe the tip of a pen and does not hurt at all. Went to see my doctor yesterday, at first he was mostly checking the blood supply, vas deferens, and epididymis which I had already thoroughly felt and it was all normal and he agreed, since it was all soft like it should be and not swollen. He couldn't find the lump on my testicle, so I showed him where it was and he acknowledged where it was and said he'd schedule me for an ultrasound with a urologist and call me when he gets the appt scheduled (any idea how long this usually takes to get in, hoping its within a week?) I also kinda feel like he acted a bit weird about it. lacked emotion really like he isnt too concerned about it, but at the same time he instantly recommended an ultra sound. I understand its not his area of expertise tho so thats why I get an ultrasound from specialist.

    After my appt I also noticed a small lump, maybe slightly larger than the other one and more of a round shape on the back of the same testicle. At first I thought I was just feeling part of the epididymis but its fairly hard and I dont feel the same thing on my left testicle. If its TC is it common to have 2 fairly small lumps in different parts of the testicle? Also what are other things that could maybe be more likely based off what I've described rather than TC? if these were cysts or something else they'd probably hurt right? Thats why I just have this weird gut feeling since the day I found the first lump that I had TC.

    Finally any tips for when I'm getting the ultrasound? I've read stories that a lot of doctors overlook TC because its so rare. Especially because I'm in a fairly low pop/rural area so for example the closest hospital in which I'll be going to is in a town that has a 15,000 population, so I'm sure the urologist probably has a lot less experience than a big city doctor would. I'm also worried that if its TC it may be harder to diagnose because the lumps are smaller. Am I wrong? Should he be able to easily diagnose whats going on?

    Will update as I get more info.

  • #2
    Do you test blood work? AFP,Bhcg, LDH? These tumor marks can be helpful somehow.

    As you mentioned, my son was also overlooked in his cases at beginning.but only one week later we could find a second urologist and ultrasound , just for your information.


    Amy, Ryan’s mum
    Son Ran, 24 years old, 25th May 2018 diagnosed NSGCT. 28th May 2018 right orchiectomy. Pathology:50% EC, 30% Teratoma,20% Yolk sac. CTs: 1 retroperitoneal lymph node 0.7mm Tumor markers: AFP 497, bhcg 19, LDH normal Normalized after R/O. Stage 1, surveillance 17th September 2018, Bhcg elevated up to 5.6 AFP and LDH normal, CT stable. 4th November bhcg up to 28, AFP and LDH normal. BEPx3 started and 2nd January 2019 BEP finished with Tumor markers normalized. 13th February 2019 CT scan showed 1 retroperitoneal lymph node enlarged up to 1.1 cm with normal tumor markers. RPLND : 03/14 2019@IU Dr.Cary Pathology report: one lymph node from 57 is Teretoma .Back to surveillance 05/02/19 Blood work all normal


    • #3
      So far was only recommended to get an ultrasound, I'm sure if the urologist thinks it looks like TC I'll get blood test for tumor markers.


      • #4
        So sorry. I would hope they can get you in for an u/s ASAP. The u/s will 95% dx TC. Keep us updated. Ask any questions. Kudos to you for seeking medical care immediately!!!
        Son Grant
        dx 12/21/16 at age 17

        BEP x3
        Post Chemo CT Scan on 3/28/17 still showed a few nodes over 2 cm
        2nd Post Chemo CT Scan on 4/27/17 showed all nodes still over 2cm
        Post Chemo RPLND 5/8/17: Periaortic Teratoma, Intraaorticaval Teratoma, and Paracaval Teratoma found.


        • #5
          I can't answer all your questions but I will say If it is at all possible for you to call around to see which urologist can see you and get your ultrasound right away I would recommend that.
          My husband did that and one of the offices said go to the ER today and be seen. So he did and I feel that was THE best decision for two reasons.One, he was diagnosed (as much as can be prior to surgery) and had follow up appointment set up all within that day so the waiting was less (waiting is one of the worst parts about this whole thing!) and two, he had a fast growing form that was caught early. Had we waited much longer that might not have been the case. Hang in there, keep advocating for yourself, and remember if it is TC it is curable
          2/7/18- Husband diagnosed
          2/12/18- I/O- Stage 1b 99% embryonal carcinoma 1%seminoma/yolk -CT's clear -All markers in normal range
          3/12/18-4/1/18 Adjuvant BEPx1
          4/12/19- ONE YEAR ALL CLEAR


          • #6
            Update: Ultrasound appt has been scheduled for Friday. Seems like its years away.....

            And also ye Im not as worried about whether or not its TC as weird as that may be. I had a pretty major panic attack when I initially found the lump but TC is like the cancer to have I guess with a 95% survival rate right? Im more worried about the doctors making errors. If it ends up being TC I definitely plan on going to a larger hospital that is an hour away. I just have a feeling a urologist where im from has very little experience regarding TC.
            Last edited by DustinV; 10-24-18, 10:57 AM.


            • #7
              You sound like you are doing everything perfectly. Always listen to your gut. It is pretty straight forward treatment and you shouldn't have a problem with care in a large and well know facility.
              This link might be helpful for seeing who is the best in your area
              2/7/18- Husband diagnosed
              2/12/18- I/O- Stage 1b 99% embryonal carcinoma 1%seminoma/yolk -CT's clear -All markers in normal range
              3/12/18-4/1/18 Adjuvant BEPx1
              4/12/19- ONE YEAR ALL CLEAR


              • #8
                I live in New Jersey and had all my treatment at penn in Philadelphia. If it turns out to be tc see dr David Vaughn. I did 3 BEP and rplnd by dr Daniel lee at penn and they were awsome.


                • #9
                  continued my thread at this link when the forum was broke for me>