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  • Resources for Uninsured/Underinsured

    http://www.ufscc.ufl.edu/Patient/con...urces&id=18850

    http://www.patientadvocate.org/

    http://news.cancerconnect.com/

    http://news.cancerconnect.com/cancer...ancial-issues/

    http://news.cancerconnect.com/wp-con...stateguide.pdf (this link isn't working right now, but I'm hoping it will be back up, soon, because it's GREAT)
    Kat
    sigpic_______________________________________________
    Caregiver
    DX 5/15/09
    Left orchiectomy 5/22/09
    60% embryonal, 40% seminoma, w/ VI, LI, T2 (CS-IB)
    CTs clear, X-rays clear, blood markers normal
    L-RPLND 7/14/09, San Antonio
    3 nodes positive, 100% embryonal, N1 (PS-IIA)
    2 rounds BEP August 24, 2009, Austin
    Enlarged lymph nodes Oct 09, Dec 09, Jan 10, Apr 10
    All clear 10/01/10

  • #2
    Great stuff Kat. Thanks
    Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

    Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

    Comment


    • #3
      That's a great list of resources. Thank you for sharing! Sadly, too many people find themselves having to worry about precisely this on top of worrying about the cancer itself.
      TC1: 1996, right orchiectomy, seminoma stage I 3.5 cm mass, radiation therapy (peri-aortic & pelvic 27.3 Gy)
      TC2: 2008, left orchiectomy, seminoma stage IA 5 cm mass, left & right prostheses, AndroGel TRT, surveillance at MSKCC

      Comment


      • #4
        Great thread!

        These are fantastic resources. I have converted this thread to a sticky. Many thanks for posting this, Kat!
        "Life moves pretty fast; if you don't stop and look around once in a while, you could miss it." -Ferris Bueller
        11.22.06 -Dx the day before Thanksgiving
        12.09.06 -Rt I/O; 100% seminoma, multifocal; Stage I-A; Surveillance; Six years out! I consider myself cured.

        Comment


        • #5
          Thanks Kat... excellent links!!!
          Best,

          Zsolt


          Friendship is born at that moment when one person says to another; "What! You too? I thought I was the only one." - C.S Lewis

          “Experience: that most brutal of teachers. But you learn, my God do you learn.” - C.S. Lewis


          Mass found 11/20/08
          Left I/O 11/25/08
          Pathology: Seminoma, Stage 1
          Surveillance: All Clear since

          Comment


          • #6
            Kat,

            What a great resource. I also found some local organizations that helped me out. One of them actually paid one month's mortgage.

            Mary Ann
            CaregiverSon Josh 23yr Dx 3/5/08 IIIC NonSeminoma affected lung, kidney liver back & tumor/clots in vena cava & celiac artery 3/7/08 L I/O 3/30/08 PostOp surgery 4XEP (VP16 & Cisplatin) 3/12-5/25 LDH > 5000 & AFP 145 (3/5 pre-op) LDH 563 & AFP 4 (5/26 after 4Xchemo) off blood thinners 3/18/09 Surveillance per Dr E 8/4/08 *1/2012 ALL CLEAR!

            Self 1/29/09 dx thyroid cancer metastasized to right lung 2/10 thyroid removd 4/17 rx RA131 5/11/10 &7/16/10. 1/12survellience

            Comment


            • #7
              Texas Residents

              Please note, if you are a resident of the state of Texas, and you do not have insurance, AND you cannot afford your treatment, MD Anderson Cancer Center can totally hook you up. If you do not have insurance, but you can afford SOME of your treatment, you can place a deposit, and they will set you up on a payment plan.

              TEXAS RESIDENT: CANNOT AFFORD TREATMENT:
              "If the cost of your care is beyond your financial means and you are a Texas resident, you may request an Application for Supplemental Financial Assistance from your Patient Access representative. Eligibility for Supplemental Financial Assistance is based on the Federal Poverty Index."
              http://www.mdanderson.org/patient-an...g/billing.html


              RESIDENT OR NOT/CAN AFFORD SOME OF YOUR TREATMENT:
              "If you are not covered by insurance, your Patient Access representative will provide prior to treatment an estimate of the cost of your care. This estimate will include anticipated hospital, clinic, and physician charges, based on the recommended treatment plan. Please be aware that our estimate may vary from actual treatment cost due to a variety of factors. You are responsible for the full cost of your care.

              All self-pay patients are asked to sign an agreement to pay for services received. You also will be asked to provide a deposit in advance covering the estimated cost of your treatment. If your estimate has been paid in full in advance, you may be eligible for a discount from the actual charges. For more information, please contact your Patient Access representative.

              If your treatment plan changes during the course of your care, you may be asked to agree to a new estimate. You also may be asked to increase your deposit."
              http://www.mdanderson.org/patient-an...g/billing.html
              Kat
              sigpic_______________________________________________
              Caregiver
              DX 5/15/09
              Left orchiectomy 5/22/09
              60% embryonal, 40% seminoma, w/ VI, LI, T2 (CS-IB)
              CTs clear, X-rays clear, blood markers normal
              L-RPLND 7/14/09, San Antonio
              3 nodes positive, 100% embryonal, N1 (PS-IIA)
              2 rounds BEP August 24, 2009, Austin
              Enlarged lymph nodes Oct 09, Dec 09, Jan 10, Apr 10
              All clear 10/01/10

              Comment


              • #8
                I recently participated in a cancer discussion group that had as a guest speaker a representative from Carol G. Simon Cancer Center at Morristown Memorial Hospital (located in Morristown, New Jersey) who described New Jersey's Cancer Education and Early Detection (NJCEED) Program (http://www.state.nj.us/health/cancer/njceed/index.shtml). This program provides free cancer diagnostic screening for very low-income individuals who cannot otherwise afford screening. The hospital has means, at least for the time being, of providing follow-up care in case of positive test results for some specific cancers on a case-by-case basis. The contact phone number at Morristown Memorial Hospital for inquiries about the program there is 973-971-6581 .
                TC1: 1996, right orchiectomy, seminoma stage I 3.5 cm mass, radiation therapy (peri-aortic & pelvic 27.3 Gy)
                TC2: 2008, left orchiectomy, seminoma stage IA 5 cm mass, left & right prostheses, AndroGel TRT, surveillance at MSKCC

                Comment


                • #9
                  Florida?

                  Does anyone know of any orgnizations that work in Florida. Frank no longer has Medicaid and he still needs to get his CT scan and chest x-ray done for the next 4 years.
                  Frank
                  Diagnosed 01-2009
                  Right I/O 02-2009
                  Stage lll Seminoma, spread to lung and lymph nodes
                  Chemo started 03-16-2009 (3 x BEP)
                  5/18/2009 First All Clear
                  7/21/2010 All Clear continues
                  10/27/2010 All Clear
                  01/26/2011 All Clear
                  04/20/2011 All Clear
                  04/19/2012 All Clear
                  12/31/2012 All Clear
                  2/25/2013 Going to be a first time father - Girlfriend due 8/2013

                  Comment


                  • #10
                    Yes. I would contact the University of Florida Shands Cancer Center. Here is their website on "financial resources":
                    http://www.ufscc.ufl.edu/Patient/con...urces&id=18850
                    If U of F can't help you out, I would contact the Patient Advocate Foundation:
                    http://www.patientadvocate.org/
                    U of F also has a social worker program, where you can be assigned a social worker to help you figure out your options: http://www.ufscc.ufl.edu/Patient/con...urces&id=32423
                    If none of these options pan out for you, send me a PM and I'll see what else I can find for you in Florida.
                    Kat
                    sigpic_______________________________________________
                    Caregiver
                    DX 5/15/09
                    Left orchiectomy 5/22/09
                    60% embryonal, 40% seminoma, w/ VI, LI, T2 (CS-IB)
                    CTs clear, X-rays clear, blood markers normal
                    L-RPLND 7/14/09, San Antonio
                    3 nodes positive, 100% embryonal, N1 (PS-IIA)
                    2 rounds BEP August 24, 2009, Austin
                    Enlarged lymph nodes Oct 09, Dec 09, Jan 10, Apr 10
                    All clear 10/01/10

                    Comment


                    • #11
                      More things that I've been accumulating.

                      http://www.cancer.gov/cancertopics/c...inancial-legal

                      http://www.canceradvocacy.org/resources/financial.html

                      http://www.gistsupport.org/financial...ce-sources.php

                      [Pennsylvania only] http://www.pennmedicine.org/health-s...ssistance.html

                      [Mayo] http://www.mayoclinic.org/billing-rs...cialassistance

                      http://www.cancertrialshelp.org/

                      [Florida] http://www.fcinewhope.com/index.php
                      Kat
                      sigpic_______________________________________________
                      Caregiver
                      DX 5/15/09
                      Left orchiectomy 5/22/09
                      60% embryonal, 40% seminoma, w/ VI, LI, T2 (CS-IB)
                      CTs clear, X-rays clear, blood markers normal
                      L-RPLND 7/14/09, San Antonio
                      3 nodes positive, 100% embryonal, N1 (PS-IIA)
                      2 rounds BEP August 24, 2009, Austin
                      Enlarged lymph nodes Oct 09, Dec 09, Jan 10, Apr 10
                      All clear 10/01/10

                      Comment


                      • #12
                        Mo'

                        http://www.coverageforall.org/

                        http://covertheuninsured.org/

                        http://www.doh.state.fl.us/Family/cancer/links.html [Florida]

                        http://findahealthcenter.hrsa.gov/ [Florida]

                        http://www.kff.org/uninsured/access.cfm

                        http://www.moffitt.org/totalcancercare [Florida, and research info]
                        Kat
                        sigpic_______________________________________________
                        Caregiver
                        DX 5/15/09
                        Left orchiectomy 5/22/09
                        60% embryonal, 40% seminoma, w/ VI, LI, T2 (CS-IB)
                        CTs clear, X-rays clear, blood markers normal
                        L-RPLND 7/14/09, San Antonio
                        3 nodes positive, 100% embryonal, N1 (PS-IIA)
                        2 rounds BEP August 24, 2009, Austin
                        Enlarged lymph nodes Oct 09, Dec 09, Jan 10, Apr 10
                        All clear 10/01/10

                        Comment


                        • #13
                          A contribution from Frank'sMom! This looks promising...

                          http://www.thesamfund.org/
                          Kat
                          sigpic_______________________________________________
                          Caregiver
                          DX 5/15/09
                          Left orchiectomy 5/22/09
                          60% embryonal, 40% seminoma, w/ VI, LI, T2 (CS-IB)
                          CTs clear, X-rays clear, blood markers normal
                          L-RPLND 7/14/09, San Antonio
                          3 nodes positive, 100% embryonal, N1 (PS-IIA)
                          2 rounds BEP August 24, 2009, Austin
                          Enlarged lymph nodes Oct 09, Dec 09, Jan 10, Apr 10
                          All clear 10/01/10

                          Comment


                          • #14
                            CancerConnect state guide

                            Hi Kat,

                            I work at CancerConnect and came across your post. I'm so glad you found some of the resources helpful!

                            Just wanted to let you know that the updated URL for the state guide you were looking for is: http://news.cancerconnect.com/wp-con...stateguide.pdf

                            Best Regards,
                            Paul
                            http://cancerconnect.com/members/paul
                            Last edited by cancerconnect; 05-14-11, 03:30 AM.

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