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  • Testicular Cancer Society & TC-Cancer Forums

    Over a decade ago TC-Cancer and the forums were started by a testicular cancer survivor and his buddy. For 10 plus years they have voluntarily maintained the site in concert with the critical support of the voluntary moderators. However, in recent months their ability to continue to provide the resources needed for the day-to-day operation of the site declined.

    In July 2014 the Testicular Cancer Society enthusiastically agreed to assume responsibility for the site and the forums. This move was made in order to strengthen TC-Cancer by having it be supported by an organization instead of individuals.

    Some of you may know me but for others, my name is Mike Craycraft and I am testicular cancer survivor and founder of the Testicular Cancer Society as well as a clinical pharmacist. I first came to the forums during my diagnosis in 2006 and have been a member since 2008. Although I never frequently posted, I have used the forums as a tool to find answers to help others and to find answers to my own questions for many years. I understand the importance of the forum and the power of collective knowledge they hold to help pave the road for future survivors and caregivers. I also realize how important it is to preserve the forums and to assure they will be here for those newly affected by the disease and for those whose disease has unfortunately returned. These reasons are why the Testicular Cancer Society became involved.

    We have been aggressively trying to get the forums updated and the newest platform was installed about 10 days ago. We have also made minor changes like removing the Google ads, and updating the main site navigation so that is properly functioning in modern browsers. Besides that we are not looking at making any major changes, except for some minor content changes as we review the individual pages of the main site.

    Like I mentioned before, I am very committed to ensuring these forums are a staple for the testicular cancer community for years to come. I have been referring people to here for years and do not see a reason that this should change.

    If you do have any questions or concerns then please feel free to send me a private message, email me at mike[at]tc-cancer.com or call 513-696-9827 and I will address your needs the best I can.

    Thanks,
    Mike Craycraft
    Oct. 2005 felt lump but waited over 7 months.
    06.15.06 "You have Cancer"
    06.26.06 Left I/O
    06.29.06 Personal Cancer Diagnosis Date: Got my own pathology report from medical records.
    06.30.06 It's Official - Stage I Seminoma
    Surveillance...
    Founded the Testicular Cancer Society
    6.29.13 Summited Mt. Kilimanjaro for 7th Cancerversary

  • #2
    First off, thank you Mike for everything you do. Secondly, I have no PC filter so sometimes I come across very blunt. But it is in no way a reflection of how valuable this website is to me and everyone else that comes here for help and support. If I could sit on this site 24/7 to learn and help I would. It has gotten to the point that nothing works or it appears that way, and then there is no way of knowing what may or may not be going on behind the scenes. I just know Its frustrating to know end when you try and post and you get all kind of warning and alert messages.
    Please continue to do amazing things to help those with TC.

    Norman Willis
    Jan 2012- U/S mass in Left testicle
    Feb 2012- I/O performed to remove cancer
    Mar 1,2012- pathology pure seminoma
    Mar 7, 2012 PET SCAN stage IIa
    April 2012 Mayo clinic carbolite.
    May 2012 carbolite failed, started BEP x3
    August 7th 2012- BEP complete
    April 2013 CT/PET show relapse
    May 2013 RPLND
    Aug 2013 Relapse again Started VIeP x2
    Oct 2013 HDC AUTOLOGOUS
    Dec 2013 HDC completed CT/PETSCAN 1.1 cm x .8 cm right lower lung lobe
    Feb 2014 confirmed false positive all clear FINALLY !
    Jan 2015 1 year cancer free Pet/CT scan
    Jan 2016 2 years cancer free "Pet/CT scan

    Comment


    • #3
      Hi Norman,

      I can understand your frustration. I spent 18 years working in hospitals and there is nothing more frustrating than trying to do something to help someone yet your infrastructure prohibits you from doing your best.

      I promise that we will do whatever we can to be attentive and get things corrected in a timely manner so please stick with us.

      Thanks Again,
      Mike
      Oct. 2005 felt lump but waited over 7 months.
      06.15.06 "You have Cancer"
      06.26.06 Left I/O
      06.29.06 Personal Cancer Diagnosis Date: Got my own pathology report from medical records.
      06.30.06 It's Official - Stage I Seminoma
      Surveillance...
      Founded the Testicular Cancer Society
      6.29.13 Summited Mt. Kilimanjaro for 7th Cancerversary

      Comment


      • #4
        Thank you.

        Comment


        • #5
          HI Mike

          Is James still involved or has he past the reigns over to you?

          Also since the system was hacked and put back together its not been the same - slow saving and somethings just don't work - will you be looking at these things?
          Last edited by Kiwi; 10-19-14, 06:01 AM.
          >>>>>>>>>
          TC1: May 2001 / Right orchiectomy / seminoma stage 1 / Radiation
          TC2: July 2008 / Left orchiectomy / seminoma stage 1 / X2 Prostheses / Reandron (long term Testosterone injections)

          Comment


          • #6
            Also since the system was hacked and put back together - some things just don't seem to work (like trying to edit the above post), will things like that be getting a look at? also the system is often slooooowwwww to save posts.
            >>>>>>>>>
            TC1: May 2001 / Right orchiectomy / seminoma stage 1 / Radiation
            TC2: July 2008 / Left orchiectomy / seminoma stage 1 / X2 Prostheses / Reandron (long term Testosterone injections)

            Comment


            • #7
              Hi Kiwi,

              James has kind of stepped away but of course I hope that he finds the time to return. The other moderators are all still here too but I am taking the lead on any of the technical/platform issues. We have updated to the most recent version of vBulletin but there are always going to be some little bugs. If you notice something then feel free to send me a message on here or you can email me at mike@tc-cancer.com Obviously, the more details the better but I will take a look into it.
              Oct. 2005 felt lump but waited over 7 months.
              06.15.06 "You have Cancer"
              06.26.06 Left I/O
              06.29.06 Personal Cancer Diagnosis Date: Got my own pathology report from medical records.
              06.30.06 It's Official - Stage I Seminoma
              Surveillance...
              Founded the Testicular Cancer Society
              6.29.13 Summited Mt. Kilimanjaro for 7th Cancerversary

              Comment


              • #8
                Mike,

                Things were better for a while for me, but I've started having issues again with server error messages while composing posts (the auto-save works for a while and then stops working, giving an error each time it tries). Additionally, when I've then gone on to post the reply, I get another error message, but the reply seems to still get shown in the thread.

                Possibly related to these errors, or possibly independent of this, I've noticed that some threads seem to show incorrect details of last post in the forum overview. For instance the details of latest posts to JohanusEU's thread in the Post-Orchidectomy section appear different in the overall forum view vs. the section view, neither of which seem to show the latest post (for me, at least). Not urgent, but hope you can help resolve these niggles.

                Thanks,
                - T
                30 Jul 14: Discovered lump
                31 Jul 14: GP referral to specialist
                4 Aug 14: Clinical diagnosis of tumour, blood samples taken, CT scans, USS (confirming ~2cm tumour)
                8 Aug 14: Left radical orchidectomy (plus test results back: CT normal, no mets; blood markers slightly elevated: AFP 14.16, HCG 4.9, LDH 149)
                29 Aug 14: Pathology results: Stage 1A Mixed Non-Seminomatous Germ Cell Tumour (composition: Yolk-sac Tumour and Mature Teratoma)

                24 Sep 14: Started precautionary adjuvant 1xBEP
                23 Oct 14: All clear; on surveillance

                Comment

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