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I can't believe this, do I am idiot ?

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  • I can't believe this, do I am idiot ?

    Today I had the report of the PARTIAL orchiectomy: Mixed germ tumor: 95% embryonal carcinoma, mature teratoma 5%, size 1.6 cm x 1.2 cm.
    Stage pT1 nX M0,

    two years ago I had a TOTAL orchiectomy in my left, and it was a seminoma with retetestis invasion, two sessions of chemo carboplatin with weeks of distance.

    This is what the oncologist says:

    You have to do radiotherapy: and now what worries me: means i will lose testosterone. And now I am asking me: to do this thing, is the same to have a total orchiectomy with a prosthesis, than a died testicle...
    This, by words of the oncologist: it is for two reasons: to stop the 80, 90% of a new tumor and to stop a potential ''maybe possible'' tumor inguinal (lymphatic??) ganglions.
    Guys, I need your opinions and help again please, a lot of you, are an expert, and I need a professional than can give me other options.
    I want my testicle and testosterone, I don't want this thing guys.
    Maybe other DR can have another plan.


    thank you a lot

  • #2
    Cancer is serious. You need to take it seriously. There's no bargaining here. You treat it. If you need a total orch., you cut it out. If you need chemo, you do chemo. We're here to support you, but you have to treat this head on. I wish you the best. I'm sure it'll be okay.

    Best,
    Uno
    11/16/16 Went to primary care complaining of testicular pain. Wrongly diagnosed with epididymitis. Told not to worry, it'll go away on its own.
    12/8/16 Diagnosed with TC in left testicle.
    12/9/16 Left I/O.
    1/5/17 Tumor Markers officially back to normal -- Stage 1A with 70% EC.
    1/26/17 Robotic RPLND using left MSKCC template as primary treatment.
    2/2/17 Pathology results: pN0. No current evidence of cancer. They say I still have a 10% relapse chance.

    Comment


    • #3
      You'll need to be properly staged before doing any treatment. Chest, abdomen and pelvic ct scan and tumor markers should be done next. In any case I would highly advise against radiation with the high percentage of embryonal. It is quick to spread elsewhere and radiation may be a wasted treatment.
      11/16- Pain/lump in R testicle 11/16- US finds multiple masses 11/16- Right I/O path multifocal largest nodule 2.1cm 100% EC with LVI/rete testis invasion. 12/16- Ct/markers normal stage 1b 12/16- Ct/markers normal 1/17- rplnd pN1 2 nodes 1.8/1.4 cm EC Stage IIA 2/20 ct/markers clear! 3/1/17 started androgel 1.62% for low T, feeling better every day!

      Comment


      • #4
        Testosterone treatment might sound scary but it really isn't that big of a deal. Many of us are on it. I'm on injections, I pretty much forget all about TC and my testosterone levels for months at a time. My injections are every 10 weeks.
        6/5/15: bHCG 27,AFP 8.66, LDH 361, 5.6cm lymph node - Stage IIC
        6/16/15: Left I/O 85% EC, 10% chorio, 5% yolk sac opinion 2 (mayo) 90% EC, 10% yolk sac
        7/7/15: bHCG 56, AFP 42, LDH 322
        7/13/15 - 9/18/15: 4xEP
        10/1/15: bloodwork normal, ct scan shows 2 lymph nodes 1.0cm
        10/26/15: 2nd opinion on CT results - lymph nodes normal. Surveillance!
        4/6/16: 1.7cm X 1.5cm lymph node found with markers normal.
        4/20/16: RPLND @ IU - teratoma only!
        1/9/17 all clears up to this date!

        Comment


        • #5
          Private'
          Like others say, TRT works. I've been on it for almost 7 years now (lost second in March 2010), and can happily say that everything works as normal. Unlike biwi, I've been on daily gel treatment since day one. And no negative issues to report at all.

          Jan 2009: RHS (Seminoma) & RT
          Mar 2010: LHS (Embryonal Carcinoma)
          Sep 2010: Relapse & 3 x BEP
          Mar 2015: Five years "nut free"
          http://doublezeroami.blogspot.com

          Comment


          • #6
            I do know that radiation can kill sperm production, which is why they shield them even with dental xrays, but I cannot recall reading anything about T production. Does anyone have good info on that?

            Dave
            Jan, 1975: Right I/O, followed by RPLND
            Dec, 2009: Left I/O, followed by 3xBEP

            Comment


            • #7
              Originally posted by Davepet View Post
              I do know that radiation can kill sperm production, which is why they shield them even with dental xrays, but I cannot recall reading anything about T production. Does anyone have good info on that?

              Dave

              Dave my oncologist said you won't have T, and Lawrence H. said if is in a low dos a 40% won't need, but i don't know if he refers from the testicle

              Comment


              • #8
                Originally posted by privateuser View Post
                Today I had the report of the PARTIAL orchiectomy: Mixed germ tumor: 95% embryonal carcinoma, mature teratoma 5%, size 1.6 cm x 1.2 cm.
                Stage pT1 nX M0,

                two years ago I had a TOTAL orchiectomy in my left, and it was a seminoma with retetestis invasion, two sessions of chemo carboplatin with weeks of distance.

                This is what the oncologist says:

                You have to do radiotherapy: and now what worries me: means i will lose testosterone. And now I am asking me: to do this thing, is the same to have a total orchiectomy with a prosthesis, than a died testicle...
                This, by words of the oncologist: it is for two reasons: to stop the 80, 90% of a new tumor and to stop a potential ''maybe possible'' tumor inguinal (lymphatic??) ganglions.
                Guys, I need your opinions and help again please, a lot of you, are an expert, and I need a professional than can give me other options.
                I want my testicle and testosterone, I don't want this thing guys.
                Maybe other DR can have another plan.


                thank you a lot


                I have I/O for my right testis one month ago.it is 100% embryonal carcinoma. At the same time my left testis also has a 6mm suspected tumor. The doctor did not allow me to do a partial orchiectomy. How come you can do a PARTIAL Orchiectomy?

                Currently my doctor suggest me to wait and see the left testis. If the tumor size increased from 6mm to 1cm, he would recommend me to do 2 cycles of BEP cheomotherapy. Although the drug of BEP is hard to be absorbed by the testis, it can control the tumor size. It may make tumor disappear.
                30/12/16 2.5cm on right testis, 6mm on left testis.( B-HCG 0.34 <2,AFP 4.5 <7)

                24/01/17 Right I/O
                (Pure embryonal carcinoma, no lymphovascular, no invasion of tunica albuginea, rate testis, epididymis, spermatic cord. )

                14/02/17 AFP 2<7, 6mm on left testis
                17/02/17 Survelliance
                06/03/17 CT scan (Visible lymph nodes in the mediastinum . probable benign reactive appearance)

                Comment


                • #9
                  Originally posted by Joe.shupe22 View Post
                  You'll need to be properly staged before doing any treatment. Chest, abdomen and pelvic ct scan and tumor markers should be done next. In any case I would highly advise against radiation with the high percentage of embryonal. It is quick to spread elsewhere and radiation may be a wasted treatment.
                  Agree, high percentage of EC should treat with BEP chemotherapy instead of radiation.

                  30/12/16 2.5cm on right testis, 6mm on left testis.( B-HCG 0.34 <2,AFP 4.5 <7)

                  24/01/17 Right I/O
                  (Pure embryonal carcinoma, no lymphovascular, no invasion of tunica albuginea, rate testis, epididymis, spermatic cord. )

                  14/02/17 AFP 2<7, 6mm on left testis
                  17/02/17 Survelliance
                  06/03/17 CT scan (Visible lymph nodes in the mediastinum . probable benign reactive appearance)

                  Comment

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