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  • The Blog Log

    Hi all.

    Lots of members keep, or have kept, a blog of their cancer experience. The blogs are a really valuable resource and provide a great deal of information which can help others facing similar situations, so I thought it would be good to make a place on the forum where we can list them, along with a short description.

    If you have a cancer related blog (or a non-cancer related one), which you would like people to know about, post a link to it in this thread, and I'll edit this first post to include all of them.


    Members' Blogs

    BJL - 2xHDC at IU.
    CancerSux - Stage IIIc poor prognosis nonseminoma + mets with yolk sac, seminoma and teratoma. 4xBEP, 1.4xVIP, platinum resistant and RPLND to date (kept by caregiver).
    DaninTas - Non-seminoma, Orchidectomy, 1xBEP, 3xEP.
    Davepet - 2nd TC & 3xBEP
    DMBwife - Stage IIIC pure yolk sac. Main tumor in abdomen, with mets in lungs and liver. Diagnosed 2/1/2009 Passed away 1/11/11.
    DoubleZero - Seminoma, nonseminoma, radiation, BEP
    Elloitt - Refractory seminoma, but platinum sensitive - 4xBEP, radiation, HDC
    julesTO - BEP, RPLND, Chylous Ascites
    kirstenms - It's not for the faint of heart or those just diagnosed. It's a read at your own risk blog. It does however have a lot of information for those with advanced tc or those in need of further treatment after BEP.
    Kurtis - A couple gets through HDC at IU.
    LessThanNuts - 3xBEP
    Mingus - An American undergoing BEP chemo in Estonia, Northern Europe
    sean sean - Cancer ranting!
    Sister_Army - No additional information given
    Smartie - 3xBEP in the UK, neutropaenic sepsis, survivorship
    Stgreed - No additional information given
    stormie - A blog about my writing life and about life in general. Most recent post is about taking my son [...] to a procedure he needed to have pre-op.
    SP - 4xEP, RPLND
    The Rambutan - 3xHDC & RPLND at the Peter Mac Cancer centre in Melbourne, Australia.
    underdog521 - A cycle of BEP
    Vinny - 4xBEP, IIIC nonseminoma with teratoma, post-chemo RPLND @IU, lung lobe resection of teratoma through VATS one year post-RPLND.



    .
    Last edited by Smartie; 04-27-13, 12:33 PM.
    Nick

    Embryonal Carcinoma; Seminoma. Marker negative.
    August 2001: Right I/O .
    August - December 2001: Surveillance .
    December 2001: Relapse - Stage III. Mets in lymph nodes and lung.
    December 2001 - March 2002: 3xBEP .
    Complications: Neutropaenic sepsis during cycles 1 & 3. I/V antibiotics and isolation.

    March 2012 - Ten years since finishing chemo.

    Survivorship Blog is here

  • #2
    Here's mine: http://doublezeroami.blogspot.com/

    Jan 2009: RHS (Seminoma) & RT
    Mar 2010: LHS (Embryonal Carcinoma)
    Sep 2010: Relapse & 3 x BEP
    Mar 2015: Five years "nut free"
    http://doublezeroami.blogspot.com

    Comment


    • #3
      Thanks DZ. I'll add you to the list (of two so far!)

      It's just occurred to me...could everyone give a couple of words about the content of their blog (eg tumour type, treatment, whatever seems appropriate), to help reader decide which one to click on?

      Ta.
      Nick

      Embryonal Carcinoma; Seminoma. Marker negative.
      August 2001: Right I/O .
      August - December 2001: Surveillance .
      December 2001: Relapse - Stage III. Mets in lymph nodes and lung.
      December 2001 - March 2002: 3xBEP .
      Complications: Neutropaenic sepsis during cycles 1 & 3. I/V antibiotics and isolation.

      March 2012 - Ten years since finishing chemo.

      Survivorship Blog is here

      Comment


      • #4
        You might need to be a member to view this, but try & let me know:
        http://csn.cancer.org/user/112994/view/blog
        It is my experience with my 2nd TC & 3xBEP as it happened this year.
        Jan, 1975: Right I/O, followed by RPLND
        Dec, 2009: Left I/O, followed by 3xBEP

        Comment


        • #5
          Thanks Dave, I've added your blog. It looks like you do need to be a member to view.

          Cheers.
          Nick

          Embryonal Carcinoma; Seminoma. Marker negative.
          August 2001: Right I/O .
          August - December 2001: Surveillance .
          December 2001: Relapse - Stage III. Mets in lymph nodes and lung.
          December 2001 - March 2002: 3xBEP .
          Complications: Neutropaenic sepsis during cycles 1 & 3. I/V antibiotics and isolation.

          March 2012 - Ten years since finishing chemo.

          Survivorship Blog is here

          Comment


          • #6
            Shaun's blog

            Hi there,

            Shaun's blog is in my signature -- I'm happy to add it to the list in the hopes it might help.

            Great idea!

            J
            Husband Shaun diagnosed March 2010. AFP 4571, HCG 3340.
            6cm x 6cm x 8cm retroperitoneal mass + 1cm nodule in right lung.
            Stage IIIb, Intermediate Risk.
            Left I/O March 9/10: 75% EC, 20% Teratoma, 5% Yolk Sac + Seminoma.
            3xBEP + 1xEP March 15 - May 21/10: markers normal.
            Bilateral RPLND July 28/10: 9.5 x 7 x 4.5cm mass, teratoma only.
            Chylous Ascites Aug/Sep.
            November 2012 All Clear
            Continuously monitoring 0.9 x 1.7cm omental nodule (possible fat necrosis)

            www.teamshaun.wordpress.com

            Comment


            • #7
              Thanks Jules!
              Nick

              Embryonal Carcinoma; Seminoma. Marker negative.
              August 2001: Right I/O .
              August - December 2001: Surveillance .
              December 2001: Relapse - Stage III. Mets in lymph nodes and lung.
              December 2001 - March 2002: 3xBEP .
              Complications: Neutropaenic sepsis during cycles 1 & 3. I/V antibiotics and isolation.

              March 2012 - Ten years since finishing chemo.

              Survivorship Blog is here

              Comment


              • #8
                Originally posted by Smartie View Post
                Thanks Dave, I've added your blog. It looks like you do need to be a member to view.

                Cheers.
                Yeah I figured as much, it's another good site to visit, though. Lots of good folks to talk to about all types of cancer.They also have a live chat page, if you are into that sort of talk.

                Dave
                Jan, 1975: Right I/O, followed by RPLND
                Dec, 2009: Left I/O, followed by 3xBEP

                Comment


                • #9
                  http://jasonejourney.blogspot.com

                  Refractory Seminoma but platinum sensitive................
                  Co-warrior
                  Dx Left I/O 2/08 100% pure seminoma
                  4-1-08 17fractions XRT 25.5 gy
                  9-4- 09 RELAPSE 4XBEP
                  12/09 01/10 3/10 All Clear, Fractured Pelvis
                  4-29-10 RELAPSE
                  5-11-10Partial Sacrectomy
                  5-19-10 1X Carbo, Cytoxan
                  5-23-10 15 fractions of XRT 25.5
                  6-14-10 Fractured Sacrum
                  8-10-10 1st Cycle HDC (clinical trial @ MDA)
                  10/8/10 REMISSION
                  11-30-10 2nd Cycle HDC
                  12/10- 9/12 ALL CLEAR

                  http://jasonejourney.blogspot.com

                  Comment


                  • #10
                    Thanks Elliott. Another great addition.
                    Last edited by Smartie; 10-16-10, 05:41 AM.
                    Nick

                    Embryonal Carcinoma; Seminoma. Marker negative.
                    August 2001: Right I/O .
                    August - December 2001: Surveillance .
                    December 2001: Relapse - Stage III. Mets in lymph nodes and lung.
                    December 2001 - March 2002: 3xBEP .
                    Complications: Neutropaenic sepsis during cycles 1 & 3. I/V antibiotics and isolation.

                    March 2012 - Ten years since finishing chemo.

                    Survivorship Blog is here

                    Comment


                    • #11
                      http://bep-chemo.blogspot.com/

                      trying to map out what a bep cycle's like.

                      Hope it helps.
                      2011:
                      4/26 ~ Left I/O Stage 3A, Good Risk, 100% EC
                      5/23-7/25 ~ 3xBEP
                      6/20 ~ AFP 2.9, HCG <2, LDH normal! All levels normalized!
                      7/25 ~ CT Scan: Largest Abdominal node 1.3 x1.1cm, Largest pulmonary nodule 7mm. Doc consulted Einhorn, rec. follow-up scan.
                      9/16 ~ AFP 2.0, HCG <5. Moved states and now under Dr. Vaughn's care at UPenn's Abramson Cancer Center.
                      10/24 ~ CT Scan: ALL CLEAR
                      12/05 ~ AFP 2.0 HCG <5

                      2012:
                      2/06 ~ AFP 1.9 HCG <5

                      bep-chemo.blogspot.com

                      Comment


                      • #12
                        Great contribution, underdog. Thank you.
                        Nick

                        Embryonal Carcinoma; Seminoma. Marker negative.
                        August 2001: Right I/O .
                        August - December 2001: Surveillance .
                        December 2001: Relapse - Stage III. Mets in lymph nodes and lung.
                        December 2001 - March 2002: 3xBEP .
                        Complications: Neutropaenic sepsis during cycles 1 & 3. I/V antibiotics and isolation.

                        March 2012 - Ten years since finishing chemo.

                        Survivorship Blog is here

                        Comment


                        • #13
                          http://cancer-tbrooks0197.blogspot.com/

                          Stage IIIc poor prognosis nonseminoma + mets with yolk sac, seminoma and teratoma.
                          4xBEP, 1.4xVIP, platinum resistant and RPLND to date.
                          (kept by caregiver)
                          Tracy
                          Cancer pharmacologist, caregiver blog here

                          Wife to Kel, dx 12/30/11 Stage IIIc (poor) embyronal, AFP 13700, 10x11 cm retroperitoneal mass, 1 cm^2 lung met
                          Left I/O 12/31/10.
                          4xBEP 1-4/11, AFP=22, 5*7 RP mass, tx failed
                          1.5 x VeIP 5-6/11; tx failed, AFP/b-hCG rising
                          Salvage RPLND @Indy 6/29/11, metastatic mixed germ cell tumor with yolk sac, seminoma and teratoma
                          Remission! AFP steady since 9/2011; 2+ years ALL CLEAR

                          Comment


                          • #14
                            Thanks for sharing your amazing blog. I'll add it to the list!
                            Nick

                            Embryonal Carcinoma; Seminoma. Marker negative.
                            August 2001: Right I/O .
                            August - December 2001: Surveillance .
                            December 2001: Relapse - Stage III. Mets in lymph nodes and lung.
                            December 2001 - March 2002: 3xBEP .
                            Complications: Neutropaenic sepsis during cycles 1 & 3. I/V antibiotics and isolation.

                            March 2012 - Ten years since finishing chemo.

                            Survivorship Blog is here

                            Comment


                            • #15
                              You can add mine if you'd like...it's in my signature...although it's not terribly motivational.
                              I'm not totally crazy, I'm just half-nuts.
                              http://lessthannuts.blogspot.com

                              Diagnosed 8/31/11
                              I/O 9/1/11 (Less than 18 hours after diagnosis)
                              Found it had spread to lymph nodes
                              BEPx3 - finished 11/29/11
                              CT scan follow-up 12/23/11
                              Bone scan follow-up 12/27/11
                              ALL CLEAR 12/27/11

                              Comment

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