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  • #16
    Thanks Nuts. A great addition.
    Nick

    Embryonal Carcinoma; Seminoma. Marker negative.
    August 2001: Right I/O .
    August - December 2001: Surveillance .
    December 2001: Relapse - Stage III. Mets in lymph nodes and lung.
    December 2001 - March 2002: 3xBEP .
    Complications: Neutropaenic sepsis during cycles 1 & 3. I/V antibiotics and isolation.

    March 2012 - Ten years since finishing chemo.

    Survivorship Blog is here

    Comment


    • #17
      Originally posted by LessThanNuts View Post
      it's in my signature...although it's not terribly motivational.
      I strongly disagree. Also, it's hilarious.
      Husband Shaun diagnosed March 2010. AFP 4571, HCG 3340.
      6cm x 6cm x 8cm retroperitoneal mass + 1cm nodule in right lung.
      Stage IIIb, Intermediate Risk.
      Left I/O March 9/10: 75% EC, 20% Teratoma, 5% Yolk Sac + Seminoma.
      3xBEP + 1xEP March 15 - May 21/10: markers normal.
      Bilateral RPLND July 28/10: 9.5 x 7 x 4.5cm mass, teratoma only.
      Chylous Ascites Aug/Sep.
      November 2012 All Clear
      Continuously monitoring 0.9 x 1.7cm omental nodule (possible fat necrosis)

      www.teamshaun.wordpress.com

      Comment


      • #18
        I concur with Jules - it is great and I LOVE LOVE the humor. Thanks for sharing it and being so open and honest with the world.
        Tracy
        Cancer pharmacologist, caregiver blog here

        Wife to Kel, dx 12/30/11 Stage IIIc (poor) embyronal, AFP 13700, 10x11 cm retroperitoneal mass, 1 cm^2 lung met
        Left I/O 12/31/10.
        4xBEP 1-4/11, AFP=22, 5*7 RP mass, tx failed
        1.5 x VeIP 5-6/11; tx failed, AFP/b-hCG rising
        Salvage RPLND @Indy 6/29/11, metastatic mixed germ cell tumor with yolk sac, seminoma and teratoma
        Remission! AFP steady since 9/2011; 2+ years ALL CLEAR

        Comment


        • #19
          I love the "about me" section.... where do you find the time?? Wow!!!
          Best,

          Zsolt


          Friendship is born at that moment when one person says to another; "What! You too? I thought I was the only one." - C.S Lewis

          “Experience: that most brutal of teachers. But you learn, my God do you learn.” - C.S. Lewis


          Mass found 11/20/08
          Left I/O 11/25/08
          Pathology: Seminoma, Stage 1
          Surveillance: All Clear since

          Comment


          • #20
            Originally posted by Aegean View Post
            I love the "about me" section.... where do you find the time?? Wow!!!
            Don't ask...I was spread fairly thin before the TC diagnosis, so I'm not sure how I'm going to balance this all out now. We've put the foster care on temporary hiatus (kind of...we did have a couple kids last weekend, but that was before I started chemo), I'm able to accomplish a lot of writing and layout for work while doing my chemo (Yay wireless!), and my fire chief knows I'm taking some time off. EMT class went well after my first chemo treatment, and it looks like they're going to let me do my clinicals in 4-hour shifts and almost entirely in the ER (rather than the ambulance). I know I'm spreading myself thin, but I'm trying to cut down on a bunch of that stuff!

            Thanks to the rest of you for the kind words. I deal with everything - tragic, sad, fearful - with humor, so that's how I'm approaching TC. It's made it easy for everyone but my wife (who, I suspect, knows that I just laugh at stuff when I'm scared. She's a clever one).
            I'm not totally crazy, I'm just half-nuts.
            http://lessthannuts.blogspot.com

            Diagnosed 8/31/11
            I/O 9/1/11 (Less than 18 hours after diagnosis)
            Found it had spread to lymph nodes
            BEPx3 - finished 11/29/11
            CT scan follow-up 12/23/11
            Bone scan follow-up 12/27/11
            ALL CLEAR 12/27/11

            Comment


            • #21
              Feel free to add mine too.

              LessThanNuts, love yours too! Funny funny funny.
              Young Adult Cancer Survivorship by Steve Pake
              April is Testicular Cancer Awareness Month!
              www.stevepake.com
              Feb 2011, Stage IIB, 4xEP, RPLND, PTSD
              My Survivorship Thread | All of my Blogs
              C
              ONTACT ME ANYTIME!

              Comment


              • #22
                Thank you for adding you voice, Steve. A great blog, which will be a great source of information to other survivors.
                Nick

                Embryonal Carcinoma; Seminoma. Marker negative.
                August 2001: Right I/O .
                August - December 2001: Surveillance .
                December 2001: Relapse - Stage III. Mets in lymph nodes and lung.
                December 2001 - March 2002: 3xBEP .
                Complications: Neutropaenic sepsis during cycles 1 & 3. I/V antibiotics and isolation.

                March 2012 - Ten years since finishing chemo.

                Survivorship Blog is here

                Comment


                • #23
                  I love your idea of blog sharing. It will be really helpful and nice to see what others have to say.
                  Codi wife to Don
                  Don diagnosed 10-6-11
                  Right Orchiectomy 10-6-11
                  Pure Seminoma with extensive vascular invasion
                  Stage 1B
                  Tumor is 3.0 x 2.4 x 2.4 cm
                  Tumor Markers BHCG and AFP normal, LDH 172
                  Chest X-Rays and Abdominal CT Scan 10-12-11 Clear
                  Chest and Brain CT Scans 11-4 Clear
                  Chemo, 1 dose of Carboplatin 11-9-11
                  Post Chemo labs, 11-17-11, Look Good
                  1-29-12, All Clear
                  6-11-12 Labs look good, Scans three enlarged lymph nodes in the abdomen
                  10-24-12 Surveillance on lymph nodes
                  sigpic

                  Comment


                  • #24
                    Here is Nicks. He had some great entries. Started at high dose treatment.

                    Stage IIIC pure yolk sac. Main tumor in abdomen, with mets in lungs and liver. Diagnosed 2/1/2009 Passed away 1/11/11.

                    http://www.caringbridge.org/visit/nickseaman
                    Husband diagnosed March 1st, 2009 * Stage III * Yolk-Sac * Mets in Abd, liver, and lung * 4XBEP 3/09-5/09 * HDC 07/09-08/09* HDC Fail 9/09 * PET Scan shows tumor isolated in abdomen * RPLND 9/09 * Remission 10/09 * Oral Etoposide * Relapse 1/10 * Gemzar/Taxol started 2/8/10 * Failed 4/10* ARQ197 Clinical trial 04/10 * Fail * Next Clinical Trial 7/10. Brain tumors=trial cancelled. Whole Brn rad. 7/10. Seizures. Salmonella 8/10. Cyberknife 9/10. Mouth tumors diag. 11/10. Passed away 1/11/11

                    Comment


                    • #25
                      I have a blog about my writing life and about life in general. My most recent post on there is about taking my son who has been just diagnosed with testicular cancer, to a procedure he needed to have pre-op. (April 2012)

                      http://www.anneskal.wordpress.com
                      ~Anne~

                      Blog About Life And Writing

                      Son, Matt, age 27
                      Dx'd stage 2b (June 2012)
                      Left rad orchiectomy,
                      Seminoma, 4.2 cm
                      LVI, 4 lymph node involvement
                      Finished radiation (25 sessions)
                      PET scan--Aug.'12
                      Follow up w/ dr.--Sept.'12
                      Follow up w/dr.--Dec.
                      PET scan--Feb. 2013
                      Follow up w/ dr.--Feb. 2013

                      Comment


                      • #26
                        Hi Erin.

                        Nick's blog is a fitting tribute to the mighty battle he fought and is a valuable resource for those facing a similar struggle. Thank you for listing it here.
                        Nick

                        Embryonal Carcinoma; Seminoma. Marker negative.
                        August 2001: Right I/O .
                        August - December 2001: Surveillance .
                        December 2001: Relapse - Stage III. Mets in lymph nodes and lung.
                        December 2001 - March 2002: 3xBEP .
                        Complications: Neutropaenic sepsis during cycles 1 & 3. I/V antibiotics and isolation.

                        March 2012 - Ten years since finishing chemo.

                        Survivorship Blog is here

                        Comment


                        • #27
                          Hi stormie.

                          Thank you for adding your blog to our growing list. Your perspective on things adds to the diversity of the list.
                          Nick

                          Embryonal Carcinoma; Seminoma. Marker negative.
                          August 2001: Right I/O .
                          August - December 2001: Surveillance .
                          December 2001: Relapse - Stage III. Mets in lymph nodes and lung.
                          December 2001 - March 2002: 3xBEP .
                          Complications: Neutropaenic sepsis during cycles 1 & 3. I/V antibiotics and isolation.

                          March 2012 - Ten years since finishing chemo.

                          Survivorship Blog is here

                          Comment


                          • #28
                            Here is my new blog. Www.lionstrongbt.blogspot.com

                            Comment


                            • #29
                              Great blogs listed here. Thanks for sharing!

                              Comment


                              • #30
                                Can't believe Michael hasn't shared his. It's not for the faint of heart or those just diagnosed. It's a read at your own risk blog. It does however have a lot of information for those with advanced tc or those in need of further treatment after BEP.

                                http://www.caringbridge.org/visit/michaelatkins
                                4/2/11 ER,coughing up blood
                                mets on lungs,liver & lymph nodes
                                bHCG over a million
                                4/5/11 liver bio
                                100% pure chorio
                                4/14/11 left I/O
                                4/25/11 BEP
                                7/18/11 markers are so low we bypass last dose of bleo and do only EP
                                8/29/11I'm 40!! bHCG is up
                                8/31/11 on a plane to IU
                                9/13/11 to IU for HDC and Stem cell trans
                                12/5/11 HDC failed
                                12/15/11 began Gem/Tax
                                Gem/tax ended
                                trial at MSK FOL/FOX
                                6/28/12 out of trial bHCG 2288
                                next up Radio frequency ablation (RFA)

                                Comment

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