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Thanks Nuts. A great addition.
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Nick
Embryonal Carcinoma; Seminoma. Marker negative.
August 2001: Right I/O .
August - December 2001: Surveillance .
December 2001: Relapse - Stage III. Mets in lymph nodes and lung.
December 2001 - March 2002: 3xBEP .
Complications: Neutropaenic sepsis during cycles 1 & 3. I/V antibiotics and isolation.
March 2012 - Ten years since finishing chemo.
Survivorship Blog is here -
I strongly disagree. Also, it's hilarious.Originally posted by LessThanNuts View PostHusband Shaun diagnosed March 2010. AFP 4571, HCG 3340.
6cm x 6cm x 8cm retroperitoneal mass + 1cm nodule in right lung.
Stage IIIb, Intermediate Risk.
Left I/O March 9/10: 75% EC, 20% Teratoma, 5% Yolk Sac + Seminoma.
3xBEP + 1xEP March 15 - May 21/10: markers normal.
Bilateral RPLND July 28/10: 9.5 x 7 x 4.5cm mass, teratoma only.
Chylous Ascites Aug/Sep.
November 2012 All Clear
Continuously monitoring 0.9 x 1.7cm omental nodule (possible fat necrosis)
www.teamshaun.wordpress.comComment
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I concur with Jules - it is great and I LOVE LOVE the humor. Thanks for sharing it and being so open and honest with the world.
Tracy
Cancer pharmacologist, caregiver blog here
Wife to Kel, dx 12/30/11 Stage IIIc (poor) embyronal, AFP 13700, 10x11 cm retroperitoneal mass, 1 cm^2 lung met
Left I/O 12/31/10.
4xBEP 1-4/11, AFP=22, 5*7 RP mass, tx failed
1.5 x VeIP 5-6/11; tx failed, AFP/b-hCG rising
Salvage RPLND @Indy 6/29/11, metastatic mixed germ cell tumor with yolk sac, seminoma and teratoma
Remission! AFP steady since 9/2011; 2+ years ALL CLEARComment
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I love the "about me" section.... where do you find the time??
Wow!!!
Best,
Zsolt
Friendship is born at that moment when one person says to another; "What! You too? I thought I was the only one." - C.S Lewis
“Experience: that most brutal of teachers. But you learn, my God do you learn.” - C.S. Lewis
Mass found 11/20/08
Left I/O 11/25/08
Pathology: Seminoma, Stage 1
Surveillance: All Clear sinceComment
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Don't ask...I was spread fairly thin before the TC diagnosis, so I'm not sure how I'm going to balance this all out now. We've put the foster care on temporary hiatus (kind of...we did have a couple kids last weekend, but that was before I started chemo), I'm able to accomplish a lot of writing and layout for work while doing my chemo (Yay wireless!), and my fire chief knows I'm taking some time off. EMT class went well after my first chemo treatment, and it looks like they're going to let me do my clinicals in 4-hour shifts and almost entirely in the ER (rather than the ambulance). I know I'm spreading myself thin, but I'm trying to cut down on a bunch of that stuff!Originally posted by Aegean View PostI love the "about me" section.... where do you find the time?? Wow!!!
Thanks to the rest of you for the kind words. I deal with everything - tragic, sad, fearful - with humor, so that's how I'm approaching TC. It's made it easy for everyone but my wife (who, I suspect, knows that I just laugh at stuff when I'm scared. She's a clever one).I'm not totally crazy, I'm just half-nuts.
http://lessthannuts.blogspot.com
Diagnosed 8/31/11
I/O 9/1/11 (Less than 18 hours after diagnosis)
Found it had spread to lymph nodes
BEPx3 - finished 11/29/11
CT scan follow-up 12/23/11
Bone scan follow-up 12/27/11
ALL CLEAR 12/27/11Comment
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Feel free to add mine too.
LessThanNuts, love yours too! Funny funny funny.
Young Adult Cancer Survivorship by Steve Pake
April is Testicular Cancer Awareness Month!
www.stevepake.com
Feb 2011, Stage IIB, 4xEP, RPLND, PTSD
My Survivorship Thread | All of my Blogs
CONTACT ME ANYTIME!
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Thank you for adding you voice, Steve. A great blog, which will be a great source of information to other survivors.Nick
Embryonal Carcinoma; Seminoma. Marker negative.
August 2001: Right I/O .
August - December 2001: Surveillance .
December 2001: Relapse - Stage III. Mets in lymph nodes and lung.
December 2001 - March 2002: 3xBEP .
Complications: Neutropaenic sepsis during cycles 1 & 3. I/V antibiotics and isolation.
March 2012 - Ten years since finishing chemo.
Survivorship Blog is hereComment
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I love your idea of blog sharing. It will be really helpful and nice to see what others have to say.Codi wife to Don
Don diagnosed 10-6-11
Right Orchiectomy 10-6-11
Pure Seminoma with extensive vascular invasion
Stage 1B
Tumor is 3.0 x 2.4 x 2.4 cm
Tumor Markers BHCG and AFP normal, LDH 172
Chest X-Rays and Abdominal CT Scan 10-12-11 Clear
Chest and Brain CT Scans 11-4 Clear
Chemo, 1 dose of Carboplatin 11-9-11
Post Chemo labs, 11-17-11, Look Good
1-29-12, All Clear
6-11-12 Labs look good, Scans three enlarged lymph nodes in the abdomen
10-24-12 Surveillance on lymph nodes
sigpicComment
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Here is Nicks. He had some great entries. Started at high dose treatment.
Stage IIIC pure yolk sac. Main tumor in abdomen, with mets in lungs and liver. Diagnosed 2/1/2009 Passed away 1/11/11.
Husband diagnosed March 1st, 2009 * Stage III * Yolk-Sac * Mets in Abd, liver, and lung * 4XBEP 3/09-5/09 * HDC 07/09-08/09* HDC Fail 9/09 * PET Scan shows tumor isolated in abdomen * RPLND 9/09 * Remission 10/09 * Oral Etoposide * Relapse 1/10 * Gemzar/Taxol started 2/8/10 * Failed 4/10* ARQ197 Clinical trial 04/10 * Fail * Next Clinical Trial 7/10. Brain tumors=trial cancelled. Whole Brn rad. 7/10. Seizures. Salmonella 8/10. Cyberknife 9/10. Mouth tumors diag. 11/10. Passed away 1/11/11Comment
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I have a blog about my writing life and about life in general. My most recent post on there is about taking my son who has been just diagnosed with testicular cancer, to a procedure he needed to have pre-op. (April 2012)
~Anne~
Blog About Life And Writing
Son, Matt, age 27
Dx'd stage 2b (June 2012)
Left rad orchiectomy,
Seminoma, 4.2 cm
LVI, 4 lymph node involvement
Finished radiation (25 sessions)
PET scan--Aug.'12
Follow up w/ dr.--Sept.'12
Follow up w/dr.--Dec.
PET scan--Feb. 2013
Follow up w/ dr.--Feb. 2013Comment
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Hi Erin.
Nick's blog is a fitting tribute to the mighty battle he fought and is a valuable resource for those facing a similar struggle. Thank you for listing it here.Nick
Embryonal Carcinoma; Seminoma. Marker negative.
August 2001: Right I/O .
August - December 2001: Surveillance .
December 2001: Relapse - Stage III. Mets in lymph nodes and lung.
December 2001 - March 2002: 3xBEP .
Complications: Neutropaenic sepsis during cycles 1 & 3. I/V antibiotics and isolation.
March 2012 - Ten years since finishing chemo.
Survivorship Blog is hereComment
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Hi stormie.
Thank you for adding your blog to our growing list. Your perspective on things adds to the diversity of the list.Nick
Embryonal Carcinoma; Seminoma. Marker negative.
August 2001: Right I/O .
August - December 2001: Surveillance .
December 2001: Relapse - Stage III. Mets in lymph nodes and lung.
December 2001 - March 2002: 3xBEP .
Complications: Neutropaenic sepsis during cycles 1 & 3. I/V antibiotics and isolation.
March 2012 - Ten years since finishing chemo.
Survivorship Blog is hereComment
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Great blogs listed here. Thanks for sharing!Comment
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Can't believe Michael hasn't shared his. It's not for the faint of heart or those just diagnosed. It's a read at your own risk blog. It does however have a lot of information for those with advanced tc or those in need of further treatment after BEP.
4/2/11 ER,coughing up blood
mets on lungs,liver & lymph nodes
bHCG over a million
4/5/11 liver bio
100% pure chorio
4/14/11 left I/O
4/25/11 BEP
7/18/11 markers are so low we bypass last dose of bleo and do only EP
8/29/11I'm 40!! bHCG is up
8/31/11 on a plane to IU
9/13/11 to IU for HDC and Stem cell trans
12/5/11 HDC failed
12/15/11 began Gem/Tax
Gem/tax ended
trial at MSK FOL/FOX
6/28/12 out of trial bHCG 2288
next up Radio frequency ablation (RFA)Comment
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