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where can I find guidelines for follow-up care?

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  • where can I find guidelines for follow-up care?

    Hopefully, time to be thinking about that!

  • #2
    Go to the website, register for free, and you can download the NCCN Guidelines for testicular cancer, which will tell you what kind of follow-up you'll need based on stage and treatment. Glad you're there!!!
    Young Adult Cancer Survivorship by Steve Pake
    April is Testicular Cancer Awareness Month!
    Feb 2011, Stage IIB, 4xEP, RPLND, PTSD
    My Survivorship Thread | All of my Blogs


    • #3
      Any other ideas? All I could find was guidelines for llB seminoma treated with RT. His was 3X BEP. No mention for that.


      • #4
        I have the 2015 version, no idea if it was revised, on page 19 table 4 it lists the recommendations for stage IIb post chemo.

        Jan, 1975: Right I/O, followed by RPLND
        Dec, 2009: Left I/O, followed by 3xBEP


        • #5
          Yeah, it isn't the easiest chart to read, but once you understand it, it makes sense.
          6/5/15: bHCG 27,AFP 8.66, LDH 361, 5.6cm lymph node - Stage IIC
          6/16/15: Left I/O 85% EC, 10% chorio, 5% yolk sac opinion 2 (mayo) 90% EC, 10% yolk sac
          7/7/15: bHCG 56, AFP 42, LDH 322
          7/13/15 - 9/18/15: 4xEP
          10/1/15: bloodwork normal, ct scan shows 2 lymph nodes 1.0cm
          10/26/15: 2nd opinion on CT results - lymph nodes normal. Surveillance!
          4/6/16: 1.7cm X 1.5cm lymph node found with markers normal.
          4/20/16: RPLND @ IU - teratoma only!
          9/27/2018 all clears up to this date!


          • #6
            OK, I've had time to check, the current version seems to be 2.2017 (adopted 12/8/16, go figure). The tables are still on page 19. Table 3 is for non bulky stage IIa &b, post rads or chemo, table 4 is for bulky stage IIb&C plus stage III post chemo.

            Hope that helps.

            Last edited by Davepet; 12-23-16, 10:45 PM.
            Jan, 1975: Right I/O, followed by RPLND
            Dec, 2009: Left I/O, followed by 3xBEP


            • #7
              Dave, what does the H&P refer to?


              • #8
                I believe that the H&P stands for "History and Physical".

                It's just a checkup/physical with the Onc. My Onc. usually asks me questions about anything that happened since the last checkup, how I feel currently, if I have any questions, concerns, etc. Palpates my nodes, checks my ears, breathing, etc She also examines the remaining guy.

                - Matt
                March 4th 2014: [AFP = 2.5; bHCG = 6; LDH = 618]
                March 13th: Left IO 100% Classic Seminoma
                6.3 x 5.1 x 3.8 cm, no invasion of anything
                LDH never fully normalized
                Stage: IS
                Watchful Waiting
                May 1st: promoted to Stage IIB with two PET active tumors in the para-aortic lymph nodes 2.5 & 2.4 cm
                May 12th: started 3xBEP
                Neupogen during Cycle 2 and 3
                July 8th: Last Bleo shot of Cycle 3 -- chemo completed !
                August 4th: Post Chemo CT/PET scan
                September 4th: Port removed
                July 10th 2018: 4 YEARS ALL CLEAR !


                • #9
                  I was baffled by that also, thanks, Matt.
                  Jan, 1975: Right I/O, followed by RPLND
                  Dec, 2009: Left I/O, followed by 3xBEP