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where can I find guidelines for follow-up care?

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  • where can I find guidelines for follow-up care?

    Hopefully, time to be thinking about that!

  • #2
    Go to the NCCN.org website, register for free, and you can download the NCCN Guidelines for testicular cancer, which will tell you what kind of follow-up you'll need based on stage and treatment. Glad you're there!!!
    Young Adult Cancer Survivorship by Steve Pake
    www.stevepake.com
    https://www.facebook.com/yacancerbysteve/
    Feb 2011, Stage IIB, 4xEP, RPLND, PTSD
    My Survivorship Thread | All of my Blogs
    C
    ONTACT ME ANYTIME!

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    • #3
      Any other ideas? All I could find was guidelines for llB seminoma treated with RT. His was 3X BEP. No mention for that.

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      • #4
        I have the 2015 version, no idea if it was revised, on page 19 table 4 it lists the recommendations for stage IIb post chemo.

        Dave
        Jan, 1975: Right I/O, followed by RPLND
        Dec, 2009: Left I/O, followed by 3xBEP

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        • #5
          Yeah, it isn't the easiest chart to read, but once you understand it, it makes sense.
          6/5/15: bHCG 27,AFP 8.66, LDH 361, 5.6cm lymph node - Stage IIC
          6/16/15: Left I/O 85% EC, 10% chorio, 5% yolk sac opinion 2 (mayo) 90% EC, 10% yolk sac
          7/7/15: bHCG 56, AFP 42, LDH 322
          7/13/15 - 9/18/15: 4xEP
          10/1/15: bloodwork normal, ct scan shows 2 lymph nodes 1.0cm
          10/26/15: 2nd opinion on CT results - lymph nodes normal. Surveillance!
          4/6/16: 1.7cm X 1.5cm lymph node found with markers normal.
          4/20/16: RPLND @ IU - teratoma only!
          9/18/2017 all clears up to this date!

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          • #6
            OK, I've had time to check, the current version seems to be 2.2017 (adopted 12/8/16, go figure). The tables are still on page 19. Table 3 is for non bulky stage IIa &b, post rads or chemo, table 4 is for bulky stage IIb&C plus stage III post chemo.

            Hope that helps.

            Dave
            Last edited by Davepet; 12-23-16, 10:45 PM.
            Jan, 1975: Right I/O, followed by RPLND
            Dec, 2009: Left I/O, followed by 3xBEP

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            • #7
              Dave, what does the H&P refer to?

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              • #8
                I believe that the H&P stands for "History and Physical".

                It's just a checkup/physical with the Onc. My Onc. usually asks me questions about anything that happened since the last checkup, how I feel currently, if I have any questions, concerns, etc. Palpates my nodes, checks my ears, breathing, etc She also examines the remaining guy.

                - Matt
                March 4th 2014: [AFP = 2.5; bHCG = 6; LDH = 618]
                March 13th: Left IO 100% Classic Seminoma
                6.3 x 5.1 x 3.8 cm, no invasion of anything
                LDH never fully normalized
                Stage: IS
                Watchful Waiting
                May 1st: promoted to Stage IIB with two PET active tumors in the para-aortic lymph nodes 2.5 & 2.4 cm
                May 12th: started 3xBEP
                Neupogen during Cycle 2 and 3
                July 8th: Last Bleo shot of Cycle 3 -- chemo completed !
                August 4th: Post Chemo CT/PET scan
                September 4th: Port removed
                July 8th 2017: 3 YEARS ALL CLEAR !

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                • #9
                  I was baffled by that also, thanks, Matt.
                  Jan, 1975: Right I/O, followed by RPLND
                  Dec, 2009: Left I/O, followed by 3xBEP

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