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"30,000 Euros", and a hope to meet some of y'all!

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  • "30,000 Euros", and a hope to meet some of y'all!

    Hello, Testofriends:

    I've talked to lots of you on here over the past two years, and figured some of you might think this was cool or funny or encouraging or at least eyebrow-raising. And it might give me the rare opportunity to meet some of y'all and hang out.

    I know I'm not the only guy on here to write music after their TC ordeal, but I figured I'd add to the choir. My band has a new record coming out next week, and one of the tracks mentions my chemo/insurance probs/RPLND stuff. It might be the only pop song you'll hear that uses the words "embryonal carcinoma." Check it out:
    ...and here's an interview that talks about the song a bit in the middle:

    Also, if you're going through a tough time in chemo, recovery, surveillance, etc., or you just want to hang out with a fellow cancer survivor and drink a beer and tell bad uniball jokes, I'm on tour for the next two months, so hit me up and we'll hang. I can guest you in to the shows too, if you're low on cash. Here's a list of dates.

    Apr 27 New Brunswick, NJ @ Random House Apr 28 Bloomfield, CT @ Dennis House
    May 01 Allentown, PA @ Consolidated Cardboard
    May 02 Baltimore, MD @ JHU-The Lab
    May 03 Montclair, NJ @ Meatlocker
    May 05 New York, NY @ Babycastles
    May 06 Holliston, MA @ Gandylot
    May 07 Boston, MA @ Middle East
    May 08 Providence, RI @ AS220
    May 09 Bangor, ME @ Coespace
    May 10 Quebec City, QC @ Le Sous Soul du Cercle
    May 11 Montreal, QC @ La Vitrola
    May 12 Ottawa, ON @ Bar Robot
    May 13 Toronto, ON @ Smiling Buddha
    May 14 Hamilton, ON @ Casbah
    May 15 Columbus, OH @ Velvet Knuckle
    May 17 Baltimore, MD @ E.M.P. Collective
    May 18 Richmond, VA @ Love Jail
    May 19 Charlotte, NC @ The Milestone
    May 21 Birmingham, AL @ Disco
    May 25 Jacksonville, FL @ Jack Rabbits
    May 26 Orlando, FL @ Will's Pub
    May 28 Tallahassee, FL @ The Wilbury
    Jun 3 Galveston, TX @ GAR
    Jun 8 Tucson, AZ @ PoMoRo
    Jun 9 Phoenix, AZ @ Trunk Space
    Jun 10 La Puente, CA @ Bridgetown DIY
    Jun 11 O.C., CA @ Secret show in the woods
    Jun 14 Reno, NV @ Park Place
    Jun 15 Davis, CA @ Südwerk
    Jun 16 Oakland, CA @ The Hole
    Jun 17 Santa Cruz, CA @ Beefhaus
    Jun 20 Toronto, ON @ NXNE
    Jun 22 Brighton, UK @ Sticky Mike's Frog Bar
    Jun 23 Bristol, UK @ The Louisiana
    Jun 25 Glasgow, UK @ 13th Note
    Jun 27 York, UK @ Odd Horizon
    Jun 28 Norwich, UK @ Gringo's
    Jun 30 Leicester, UK @ Candy Dust
    Jul 07 Berlin, DE @ IPA Bar
    Jul 12 Zwickau, DE @ Künstplantage

    ...with more added soon, but that's a good start.

    See you at a show, maybe! High five, hope all y'all are well,


    JAN.2015- mild pain/swelling in RT, spread to abd., GP misdiagnosed as orchitis. (SEE A UROLOGIST, GUYS!)
    JUN27- Diagnosed
    JUN28- AFP ~250, bHCG ~90, LDH ~1.6x
    JUL01- Right orch.; 4x3 cm tumor, 90% EC, 10% yolk), CT shows 2.8cm met in abdom. + smallish mediastinum mets including one 7mm; staged III-A
    JUL06- 3xBEP start
    JUL07- AFP ~225, bHCG ~110, LDH ~2.3x, LDH qualifies as stage III-B, upped to 4xBEP
    JUL28- AFP ~25, bHCG ~15, LDH normal
    AUG17- AFP, bHCG, LDH normalized by 3rd cycle
    SEP21- 4xBEP done, no complications; a few +2cm masses remain in retroperitoneum
    DEC02- RPLND, necrosis + bit of mat. tera., retrograde
    JAN. 2016- Surveillance, exercise, working, SIGUE!
    NOV. 2017- Retrograde improves. Still not normal but better.
    FEB. 2018- 26 MONTHS ALL CLEAR.

  • #2

    Any chance that Austin TX will make the list ?

    ....After all we are the "Music Capitol" of Texas !

    - Matt
    March 4th 2014: [AFP = 2.5; bHCG = 6; LDH = 618]
    March 13th: Left IO 100% Classic Seminoma
    6.3 x 5.1 x 3.8 cm, no invasion of anything
    LDH never fully normalized
    Stage: IS
    Watchful Waiting
    May 1st: promoted to Stage IIB with two PET active tumors in the para-aortic lymph nodes 2.5 & 2.4 cm
    May 12th: started 3xBEP
    Neupogen during Cycle 2 and 3
    July 8th: Last Bleo shot of Cycle 3 -- chemo completed !
    August 4th: Post Chemo CT/PET scan
    September 4th: Port removed
    July 10th 2018: 4 YEARS ALL CLEAR !


    • #3
      Love the song. I could potentially go to the show in Charlotte, NC even though it's a couple hour drive for me.


      • #4
        Really good song!! Thanks for sharing!!! Unfortunately you are not near our city on your tour! Good Luck!


        • #5
          Great song! Would go to a show if you were closer to Knoxville, TN & Birmingham, AL is just far enough drive to make it overnighter.
          Son Grant
          dx 12/21/16 at age 17

          BEP x3
          Post Chemo CT Scan on 3/28/17 still showed a few nodes over 2 cm
          2nd Post Chemo CT Scan on 4/27/17 showed all nodes still over 2cm
          Post Chemo RPLND 5/8/17: Periaortic Teratoma, Intraaorticaval Teratoma, and Paracaval Teratoma found.