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  • Some good news

    Hi all,

    I am pleased to announce that my wife gave birth yesterday morning to 2 twin baby boys. Babies and mom are all doing well. And finally, she no longer has 4 times as many balls as I do.

    -Uno
    Both boys Twin B Twin A
    11/16/16 Went to primary care complaining of testicular pain. Wrongly diagnosed with epididymitis. Told not to worry, it'll go away on its own.
    12/8/16 Diagnosed with TC in left testicle.
    12/9/16 Left I/O.
    1/5/17 Tumor Markers officially back to normal -- Stage 1A with 70% EC.
    1/26/17 Robotic RPLND using left MSKCC template as primary treatment.
    2/2/17 Pathology results: pN0. No current evidence of cancer. They say I still have a 10% relapse chance.

  • #2
    Top news and congrats!
    24 year old diagnosed 6/11/16
    Pre/o markers 9/11/16 - HCG 15, AFP 210, LDH 539
    Pre/o CT Clear
    Non-seminoma (80% embryonal carcinoma, 10% yolk sac tumour, 5% chorea carcinoma, 5% seminoma)
    Post-op markers - 14/12/16 - HCG 35, AFP 1050, LDH 430
    Post-op CT with one enlarged lymph node - 1.5x1cm
    Borderline stage 2B/3B
    BEPx3 started 15/12/16 (Borderline BEPx4 - Advise of Dr. E to only do 3 rounds)
    CT and markers clear - in remission - 28/2/16

    Comment


    • #3
      Congratulations!
      3/01/17 - Found lump on right testicle
      4/21/17 - Went to ER. 4x3.7x2.5 cm tumor in right testicle
      4/22/17- Pre/op LDH 194, AFP 41, HCG 46, CT scan clear, X-ray clear
      4/27/17 - Right I/O. Non-seminoma with LVI. 70% EC, 20% Yolk Sac, 10% Teratoma
      5/16/17 - Markers normalize, CT clear. Stage 1B
      5/22/17 - Start 1xBEP

      Comment


      • #4
        congrats! You will have your hands full!
        6/5/15: bHCG 27,AFP 8.66, LDH 361, 5.6cm lymph node - Stage IIC
        6/16/15: Left I/O 85% EC, 10% chorio, 5% yolk sac opinion 2 (mayo) 90% EC, 10% yolk sac
        7/7/15: bHCG 56, AFP 42, LDH 322
        7/13/15 - 9/18/15: 4xEP
        10/1/15: bloodwork normal, ct scan shows 2 lymph nodes 1.0cm
        10/26/15: 2nd opinion on CT results - lymph nodes normal. Surveillance!
        4/6/16: 1.7cm X 1.5cm lymph node found with markers normal.
        4/20/16: RPLND @ IU - teratoma only!
        5/10/17 all clears up to this date!

        Comment


        • #5
          Congratulations!

          Comment


          • #6
            Awesome news indeed!!!!!

            Mike
            Oct. 2005 felt lump but waited over 7 months.
            06.15.06 "You have Cancer"
            06.26.06 Left I/O
            06.29.06 Personal Cancer Diagnosis Date: Got my own pathology report from medical records.
            06.30.06 It's Official - Stage I Seminoma
            Surveillance...
            Founded the Testicular Cancer Society
            6.29.13 Summited Mt. Kilimanjaro for 7th Cancerversary

            Comment


            • #7
              Congrats, man, that's awesome, enjoy it!!

              Comment


              • #8
                How are your two little boys doing? What a miracle!!! Your "ball" comment makes me laugh out loud!
                17 year old Grant dx 12/21/16
                pre/o markers 12/21/16- HCG:1065.15,AFP:298.8,LDH:1119
                pre/o CT Scan 12/22/16 normal
                r/o 12/22/16
                Post r/o Elevated Markers with INCREASE 4 weeks post r/o;
                PATHLOGY: mixed maligent germ cell 8.6 x 6.2 x 5.9 cm

                -80% Embryonal, 10% Yolk Sac, 5% Teratoma, 5% Choriocarcinoma w/LVI within Spermatic Cord and invasion into Rete Testis
                2nd CT scan on 1/24/17 3 nodes 2 over 2.5, one over 3.5
                BEP x 3 1/27/17
                Post Chemo CT Scan on 3/28/17 still showed a few nodes over 2 cm
                2nd Post Chemo CT Scan on 4/27/17 showed all nodes still over 2cm
                Post Chemo RPLND 5/8/17: pathlogy Teratoma , 3 large masses removed

                Comment


                • #9
                  Congratulations on your beautiful blessings!
                  Mom to Zachary - dx. at the age of 15
                  ~2.22.17 - Horrible pain in scrotum for 2 hours
                  5.10.17 - Diagnosis
                  Baseline tumor markers: BhCG: 43,882 AFP: 138 LDH: 328

                  5.16.17 - Left Radical orchiectomy

                  CT Scans and Oncology: scheduled for May 31st

                  Comment


                  • #10
                    Congratulations!! We also ended up with twins boys after TC!! They are almost eight months old now and starting to crawl... Enjoy them now while they are stationary

                    Comment


                    • #11
                      Congratulations!!

                      Comment


                      • #12
                        Good luck to you and your family!

                        Comment


                        • #13
                          Thanks, guys. Trekga, theyre doing okay. One is still in the NICU. They say that he'll be okay, but he needs a little more time with some extra support. RickandSabri, congrats to you too! You made it to 8 months. From this perspective, that sounds like one heck of an accomplishment.
                          11/16/16 Went to primary care complaining of testicular pain. Wrongly diagnosed with epididymitis. Told not to worry, it'll go away on its own.
                          12/8/16 Diagnosed with TC in left testicle.
                          12/9/16 Left I/O.
                          1/5/17 Tumor Markers officially back to normal -- Stage 1A with 70% EC.
                          1/26/17 Robotic RPLND using left MSKCC template as primary treatment.
                          2/2/17 Pathology results: pN0. No current evidence of cancer. They say I still have a 10% relapse chance.

                          Comment


                          • #14
                            UNOTESTICULO~ Will keep your son & your family in my thoughts. Having a NICU baby and one at home can be tough.
                            17 year old Grant dx 12/21/16
                            pre/o markers 12/21/16- HCG:1065.15,AFP:298.8,LDH:1119
                            pre/o CT Scan 12/22/16 normal
                            r/o 12/22/16
                            Post r/o Elevated Markers with INCREASE 4 weeks post r/o;
                            PATHLOGY: mixed maligent germ cell 8.6 x 6.2 x 5.9 cm

                            -80% Embryonal, 10% Yolk Sac, 5% Teratoma, 5% Choriocarcinoma w/LVI within Spermatic Cord and invasion into Rete Testis
                            2nd CT scan on 1/24/17 3 nodes 2 over 2.5, one over 3.5
                            BEP x 3 1/27/17
                            Post Chemo CT Scan on 3/28/17 still showed a few nodes over 2 cm
                            2nd Post Chemo CT Scan on 4/27/17 showed all nodes still over 2cm
                            Post Chemo RPLND 5/8/17: pathlogy Teratoma , 3 large masses removed

                            Comment

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