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  • Some good news

    Hi all,

    I am pleased to announce that my wife gave birth yesterday morning to 2 twin baby boys. Babies and mom are all doing well. And finally, she no longer has 4 times as many balls as I do.

    -Uno
    Both boys Twin B Twin A
    11/16/16 Went to primary care complaining of testicular pain. Wrongly diagnosed with epididymitis. Told not to worry, it'll go away on its own.
    12/8/16 Diagnosed with TC in left testicle.
    12/9/16 Left I/O.
    1/5/17 Tumor Markers officially back to normal -- Stage 1A with 70% EC.
    1/26/17 Robotic RPLND using left MSKCC template as primary treatment.
    2/2/17 Pathology results: pN0. No current evidence of cancer. They say I still have a 10% relapse chance.

  • #2
    Top news and congrats!
    24 year old diagnosed 6/11/16
    Pre/o markers 9/11/16 - HCG 15, AFP 210, LDH 539
    Pre/o CT Clear
    Non-seminoma (80% embryonal carcinoma, 10% yolk sac tumour, 5% chorea carcinoma, 5% seminoma)
    Post-op markers - 14/12/16 - HCG 35, AFP 1050, LDH 430
    Post-op CT with one enlarged lymph node - 1.5x1cm
    Borderline stage 2B/3B
    BEPx3 started 15/12/16 (Borderline BEPx4 - Advise of Dr. E to only do 3 rounds)
    CT and markers clear - in remission - 28/2/16

    Comment


    • #3
      Congratulations!
      26 Cleveland, OH
      3/01/17 - Found lump on right testicle
      4/21/17 - Went to ER. 4x3.7x2.5 cm tumor in right testicle
      4/22/17- Pre/op LDH 194, AFP 41, HCG 46, CT scan clear, X-ray clear
      4/27/17 - Right I/O. Non-seminoma with LVI. 70% EC, 20% Yolk Sac, 10% Teratoma
      5/16/17 - Markers normalize, CT clear. Stage 1B
      5/22/17 - Start 1xBEP

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      • #4
        congrats! You will have your hands full!
        6/5/15: bHCG 27,AFP 8.66, LDH 361, 5.6cm lymph node - Stage IIC
        6/16/15: Left I/O 85% EC, 10% chorio, 5% yolk sac opinion 2 (mayo) 90% EC, 10% yolk sac
        7/7/15: bHCG 56, AFP 42, LDH 322
        7/13/15 - 9/18/15: 4xEP
        10/1/15: bloodwork normal, ct scan shows 2 lymph nodes 1.0cm
        10/26/15: 2nd opinion on CT results - lymph nodes normal. Surveillance!
        4/6/16: 1.7cm X 1.5cm lymph node found with markers normal.
        4/20/16: RPLND @ IU - teratoma only!
        9/18/2017 all clears up to this date!

        Comment


        • #5
          Congratulations!

          Comment


          • #6
            Awesome news indeed!!!!!

            Mike
            Oct. 2005 felt lump but waited over 7 months.
            06.15.06 "You have Cancer"
            06.26.06 Left I/O
            06.29.06 Personal Cancer Diagnosis Date: Got my own pathology report from medical records.
            06.30.06 It's Official - Stage I Seminoma
            Surveillance...
            Founded the Testicular Cancer Society
            6.29.13 Summited Mt. Kilimanjaro for 7th Cancerversary

            Comment


            • #7
              Congrats, man, that's awesome, enjoy it!!

              Comment


              • #8
                How are your two little boys doing? What a miracle!!! Your "ball" comment makes me laugh out loud!
                17 year old son Grant dx 12/21/16
                pre/o markers 12/21/16- HCG:1065.15,AFP:298.8,LDH:1119
                pre/o CT Scan 12/22/16 normal
                r/o 12/22/16
                Post r/o Elevated Markers with INCREASE 4 weeks post r/o;
                PATHLOGY: mixed maligent germ cell 8.6 x 6.2 x 5.9 cm

                -80% Embryonal, 10% Yolk Sac, 5% Teratoma, 5% Choriocarcinoma w/LVI within Spermatic Cord and invasion into Rete Testis
                2nd CT scan on 1/24/17 3 nodes 2 over 2.5, one over 3.5
                BEP x 3 1/27/17
                Post Chemo CT Scan on 3/28/17 still showed a few nodes over 2 cm
                2nd Post Chemo CT Scan on 4/27/17 showed all nodes still over 2cm
                Post Chemo RPLND 5/8/17: Periaortic Teratoma, Intraaorticaval Teratoma, and Paracaval Teratoma found.

                Comment


                • #9
                  Congratulations on your beautiful blessings!
                  Mom to Zachary - dx. at the age of 15 - Stage IIIC mixed germ cell
                  5.10.17 - Initial diagnosis
                  Baseline markers: BhCG: 43,882 AFP: 138 LDH: 328

                  5.16.17 - Left Radical orchiectomy (total tumor size 7x5x4cm)
                  5.31.17 - CT Scan showed mets to retroperitoneal LNs (5.7x6.4x9.4cm, 1.7x2.6x3.5cm, 3.1x4.5x6.1cm)
                  PATH: Mixed germ cell (75% teratoma, 15% embryonal ca, 8% yolk sac tumor, & 2% trophoblastic tumor) Spermatic cord margin, neg. Germ cell neoplasia in situ present.

                  Post-op markers: BhCG: 73,837 AFP: 38 LDH: 412

                  BEP#1 6.9.17 BhCG:77,721, AFP 34
                  BEP#2 7.3.17 BhCG: 210, AFP: 6
                  BEP#3 7.24.17 BhCG: 19 AFP: 3
                  BEP#4 8.14.17 BhCG: 4.59 AFP: 5

                  8.28.17 BhCG 2.46, AFP 6
                  9.7.17 BhCG 1.78, AFP 3

                  RPLND 9.14.17 - path report showed 100% teratoma in nodes removed! ALL CLEAR!

                  Comment


                  • #10
                    Congratulations!! We also ended up with twins boys after TC!! They are almost eight months old now and starting to crawl... Enjoy them now while they are stationary

                    Comment


                    • #11
                      Congratulations!!

                      Comment


                      • #12
                        Good luck to you and your family!

                        Comment


                        • #13
                          Thanks, guys. Trekga, theyre doing okay. One is still in the NICU. They say that he'll be okay, but he needs a little more time with some extra support. RickandSabri, congrats to you too! You made it to 8 months. From this perspective, that sounds like one heck of an accomplishment.
                          11/16/16 Went to primary care complaining of testicular pain. Wrongly diagnosed with epididymitis. Told not to worry, it'll go away on its own.
                          12/8/16 Diagnosed with TC in left testicle.
                          12/9/16 Left I/O.
                          1/5/17 Tumor Markers officially back to normal -- Stage 1A with 70% EC.
                          1/26/17 Robotic RPLND using left MSKCC template as primary treatment.
                          2/2/17 Pathology results: pN0. No current evidence of cancer. They say I still have a 10% relapse chance.

                          Comment


                          • #14
                            UNOTESTICULO~ Will keep your son & your family in my thoughts. Having a NICU baby and one at home can be tough.
                            17 year old son Grant dx 12/21/16
                            pre/o markers 12/21/16- HCG:1065.15,AFP:298.8,LDH:1119
                            pre/o CT Scan 12/22/16 normal
                            r/o 12/22/16
                            Post r/o Elevated Markers with INCREASE 4 weeks post r/o;
                            PATHLOGY: mixed maligent germ cell 8.6 x 6.2 x 5.9 cm

                            -80% Embryonal, 10% Yolk Sac, 5% Teratoma, 5% Choriocarcinoma w/LVI within Spermatic Cord and invasion into Rete Testis
                            2nd CT scan on 1/24/17 3 nodes 2 over 2.5, one over 3.5
                            BEP x 3 1/27/17
                            Post Chemo CT Scan on 3/28/17 still showed a few nodes over 2 cm
                            2nd Post Chemo CT Scan on 4/27/17 showed all nodes still over 2cm
                            Post Chemo RPLND 5/8/17: Periaortic Teratoma, Intraaorticaval Teratoma, and Paracaval Teratoma found.

                            Comment


                            • #15
                              Sorry for the late update here, but I've had my hands full. Both babies at home and doing well. One still on oxygen, but home. Both growing well. Both have descended testes (I asked a lot of times).
                              11/16/16 Went to primary care complaining of testicular pain. Wrongly diagnosed with epididymitis. Told not to worry, it'll go away on its own.
                              12/8/16 Diagnosed with TC in left testicle.
                              12/9/16 Left I/O.
                              1/5/17 Tumor Markers officially back to normal -- Stage 1A with 70% EC.
                              1/26/17 Robotic RPLND using left MSKCC template as primary treatment.
                              2/2/17 Pathology results: pN0. No current evidence of cancer. They say I still have a 10% relapse chance.

                              Comment

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