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Starting 3xBEP and looking for advice

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  • Jacob
    started a topic Starting 3xBEP and looking for advice

    Starting 3xBEP and looking for advice

    Hi Everyone,

    I am starting 3x bep on Monday and I was hoping those here that went through that can provide some advice.

    My doctor recommended not getting a port or picc and start with regular infusion. Does this even have a chance of working for 3 cycles? Almost all Bep experiences I read involve a port or a picc.

    If anyone can share some tips on what they did to help alleviate some of the issues associated with chemo, I would appreciate it.

    How concerned should I be regarding hearing loss? Did anyone here experience this? I am terrified of losing my hearing.


    The doctor mentioned that chemo comes out of the pores and I should avoid skin to skin contact with others for 24 hours after treatment. During the long week, no hugging my wife or kids? How about putting in and removing contact lenses, is that a problem?

    Thank you for your help and expertise.
    Jacob
    Last edited by Jacob; 07-07-17, 07:46 AM.

  • Trekga
    replied
    JACOB: Glad you are doing okay.

    Leave a comment:


  • Ykspalli
    replied
    I didn't have a line installed, didn't even have the option for that. At the end of 3rd BEP-cycle it was hard finding veins and had to call anesthetic doc to install the IV during the last half of the last long week and the bleo-drops. I still have a sore and hard vein on my left hand after almost 2 months. Every time I think of a needle or IV-thingy I get an uncomfortable physical feeling and a sensation of veins going deeper into my body.
    Physically the whole chemo was surprisingly easy, mental side was another story.
    Edit: Oh, and I got a temporary hearing loss and some pretty annoying tinnitus but either I've got used to it or it's gone completely.
    I hope you have smooth sailing!

    Leave a comment:


  • Jacob
    replied
    Originally posted by TC Mom View Post
    My son is in his 2nd of 4 cycles and this one has been much harder on him than the last. He breezed through the first with only some moderate nausea, well controlled with meds, on days 3-8. After that he was perfectly fine. For cycle 2 he pretty much slept through days 4 & 5 and he's just now starting to feel some better on day 10. He's barely eaten in a week. But it seems everyone is different. Enjoy these good days, but just be prepared that it may not go as well next time - but we can hope.
    I am preparing for the worst and taking it one day at a time.
    Savoring each day I make it through with minimal side effects

    Leave a comment:


  • TC Mom
    replied
    My son is in his 2nd of 4 cycles and this one has been much harder on him than the last. He breezed through the first with only some moderate nausea, well controlled with meds, on days 3-8. After that he was perfectly fine. For cycle 2 he pretty much slept through days 4 & 5 and he's just now starting to feel some better on day 10. He's barely eaten in a week. But it seems everyone is different. Enjoy these good days, but just be prepared that it may not go as well next time - but we can hope.

    Leave a comment:


  • Jacob
    replied
    Waiting to start day 3.

    So far so good. Slept well last night and feel refreshed. No nausea yet so keeping fingers crossed.

    Would be nice if I can feel this way through all cycles.

    Thanks for all the great advice

    Leave a comment:


  • dcalandrelli
    replied
    I've noticed for most the first cycle is the easiest, but my worst cycle was my first. Each cycle had different side effects and the most unpleasant came cycle 1. Each cycle hit me though, but you may get lucky and get the worst over with early.

    Leave a comment:


  • Daniel_Eye
    replied
    My first cycle was the easiest, starting the second one it hit me hard.

    Leave a comment:


  • DriestBread
    replied
    Hey Jacob,

    I went through BEPx3 with a port and from what the doctor told me it was a lot easier. they didn't mention to me anything about clotting before putting it in either.

    As for the hearing, I have faint ringing in my ears that still hasn't gone away (finished on 1/10/17) but unless I'm in a room with complete silence I hardly notice it anymore. I was also told to use the double flush technique and we also ought Clorox wipes for the toilet just to be extra cautious. I was told that the drugs could come through up to 48 hours after being given chemo So we were pretty cautious til that period was over with anything sexual. But hugging was fine! And great point about being around sick people/kids, my white counts dropped significantly after each cycle where I had to have nupogen injections in between each 21 days. If you end up needing these i reccomend taking Claritin a few days leading up to the shot, as well as a couple days after as it is supposed to help with the bone pain, and did significantly for me (I did not know this tip before my first shot) glad your first day went well!

    Leave a comment:


  • Jacob
    replied
    Wow thank you Daniel I appreciate the thorough and well though out advice. This is why these forums are so so valuable. Thank you all for being here.

    As for me:

    Day one is done. I am feeling great. No issues with the stick or the meds going in. Aside from a slight light-headed feeling for a few minutes I was absolutely great.
    Between all the drinking I did plus the fluids they gave me, I spent almost equal time in the bathroom as in the infusion room .

    When I came home I felt the onset of nausea, popped a zofran and it disappeard.

    So overall positive first day so looking forward to more of these. (Aside from the sleeping, I woke up at 2 am and haven't falling back asleep. It's now 3:30am)

    Leave a comment:


  • Daniel_Eye
    replied
    HI Jacob

    As of today, it has been 5 days since I had my port removed, after completing the 3 cycles of BEP. I don't do needles well. Especially when it is something that is going to be done on a constant basis. When I went in to have my port removed, a young lady put the IV into my arm and 5 days later I still have a bruise the size of a half dollar. I had one small blockage towards the end of my treatment but my RN used a slightly stronger blood thinner than the heparin that you get each treatment and cleared it out without a problem. I'm glad I opted for the port, rather than getting stuck every time. If you can tolerate it then, by all means, avoid the procedure to have it put in and taken out. It is not really that bad at all though. The removal took the surgeon all of about 8 minutes, the installation takes longer, I think it was about an hour or slightly longer. My oncologist preferred not to have me do it but, it was ultimately my choice and I know that since I don't do needles well, anything that will help ease the treatment, I felt I wanted. This helped me a lot.

    As far as hearing loss goes, that is more of an issue if you did the 4xEP because the cisplatin is what does it. I had some tinnitus going into chemo from all the years of music, guns etc. It got a bit worse but I don't really notice it all that much. Your doctor can send you in for an audiology exam to get a baseline hearing test.

    I was informed about some skin contact but only in terms of sexual intimacy. Because chemo can travel through any type of body excretion, she warned that if I was to get someone pregnant the baby and mother would have serious complications. Other than that I didn't get any type of skin to skin warning. You do want to make sure you wash your hands and stay away from sick people. Your immune system is going to be severely depressed and one infection can mean a weeklong stay in the hospital and postponement of your treatment till you're better.

    Make sure you tell your caregivers at the hospital/treatment center everything that is going on with you before, during and after chemo. If you have hair on your head, expect it to start falling out by the mid to end of the last week of your first cycle (week 3). Since you're going to get a lot of fluid especially on your long weeks, you're going to be urinating a lot. This will, unfortunately, keep you up at night and you will feel most tired those long weeks.

    The good news is that after all of this crap, you will be a lot better and if you caught it early enough you probably won't need surgery (we hope!). I got my all clear about 3 weeks ago and in a few months, you will too. Just stick to the game plan and come on here and communicate with others. Lastly, I can recommend going to any support groups available to you during and after treatment. This helped me a lot because, if you think you have it bad....trust me on this, there are others who have it much worse. The people I met in those groups really changed my outlook on life and it helped me move forward and same with this forum.

    Best of luck,
    ​Daniel

    Leave a comment:


  • Jacob
    replied
    Thank you all for the great advice. Starting my journey through hell tomorrow. See you all on the other side!

    Leave a comment:


  • Trekga
    replied
    Wishing the best. Stay hydrated when out of the clinic/hospital. Walk daily if possible.

    Leave a comment:


  • JoeTheAstronaut
    replied
    Hey man, I did without picc or port, can't compare but it was fine, painful, but hey, this is cancer so it's to be expected I guess... My hearing seems to be ok, no problems with wife and kid, lots of hugs, just flushed the toilet and twice after me and went back to condoms ;-)

    Leave a comment:


  • singa76
    replied
    In my case the doctor recommended the use of a port. Since on day one of my 3xBEP the surgery room was too busy, we opted for a picc in order not to loose a day. Doctor said that the picc is fine for limited amount of time and the 5 days was still ok. She completely ruled out the possibility of doing it through regular infusion since she said BEP is too toxic for the veins of the arm. I did not know about the higher risk of blood clot with port/picc, it was not mentioned to me, but indeed I was on injection of blood thinners for the entire period and for other 4 weeks after the last cycle. It is very important that they give you a lot of liquid all the time (day and night) in order to keep your kidneys as clean as possible. I had to go to the toilet every 1-2 hours for 5 days, it was not very convenient during the night, but I think this was very crucial. In my hospital, they asked me to write down the amount of urine that I was doing, and I remember that it was about 5-6 liters per day. No problem for me with hearing loss. All the best for Monday.

    Leave a comment:

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