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TC survivor on NPR

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  • TC survivor on NPR

    Yo y'all, just figured i'd post this here in case anyone was bummed out and liked music and wanted to see a recovery case for encouragement. I'm about two years post BEP, about 20 months post RPLND, all good, and this is going down, so...yeah, life gets better, y'all. Hang in there. http://www.npr.org/2017/09/10/549489...lities-we-carr
    JAN.2015- mild pain/swelling in RT, gradual spread to abd., GP misdiagnosed as orchitis. (SEE A UROLOGIST, GUYS!)
    JUN27- "You have cancer."
    JUN28- AFP ~250, bHCG ~90, LDH ~1.6x
    JUL01- Right orch.; 4x3 cm tumor, 90% EC, 10% yolk), CT shows 2.8cm met in abdom. + smallish mediastinum mets including one 7mm; staged III-A
    JUL06- 3xBEP begins
    JUL07- AFP ~225, bHCG ~110, LDH ~2.3x, LDH spike pushes me into stage III-B, upped to 4xBEP
    JUL28- AFP ~25, bHCG ~15, LDH normal
    AUG17- AFP, bHCG, LDH normalized by 3rd cycle; docs stick to 4-cycle plan for safety
    SEP21- completed 4xBEP, no major complications
    DEC02- RPLND, necrosis + bit of mat. tera., retrograde
    JAN. 2016- Surveillance, jogging, working, pushups, SIGUE!
    FEB. 2017- 14 MONTHS ALL CLEAR.

  • #2
    This was inspirational! My husband has a similar story. Diagnosed 2 months ago, is starting BEP x3 in a couple days. With a possible RPLND 2 months after chemo is over depending on his scans. This gives me a little light at the end of the tunnel that things will eventually be great again. AND that this nightmare will be over one day.

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    • #3
      Glad you are doing well.
      17 year old son Grant dx 12/21/16
      pre/o markers 12/21/16- HCG:1065.15,AFP:298.8,LDH:1119
      pre/o CT Scan 12/22/16 normal
      r/o 12/22/16
      Post r/o Elevated Markers with INCREASE 4 weeks post r/o;
      PATHLOGY: mixed maligent germ cell 8.6 x 6.2 x 5.9 cm

      -80% Embryonal, 10% Yolk Sac, 5% Teratoma, 5% Choriocarcinoma w/LVI within Spermatic Cord and invasion into Rete Testis
      2nd CT scan on 1/24/17 3 nodes 2 over 2.5, one over 3.5
      BEP x 3 1/27/17
      Post Chemo CT Scan on 3/28/17 still showed a few nodes over 2 cm
      2nd Post Chemo CT Scan on 4/27/17 showed all nodes still over 2cm
      Post Chemo RPLND 5/8/17: Periaortic Teratoma, Intraaorticaval Teratoma, and Paracaval Teratoma found.

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