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Yo y'all, just figured i'd post this here in case anyone was bummed out and liked music and wanted to see a recovery case for encouragement. I'm about two years post BEP, about 20 months post RPLND, all good, and this is going down, so...yeah, life gets better, y'all. Hang in there. http://www.npr.org/2017/09/10/549489...lities-we-carr
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JAN.2015- mild pain/swelling in RT, spread to abd., GP misdiagnosed as orchitis. (SEE A UROLOGIST, GUYS!)
JUN27- Diagnosed
JUN28- AFP ~250, bHCG ~90, LDH ~1.6x
JUL01- Right orch.; 4x3 cm tumor, 90% EC, 10% yolk), CT shows 2.8cm met in abdom. + smallish mediastinum mets including one 7mm; staged III-A
JUL06- 3xBEP start
JUL07- AFP ~225, bHCG ~110, LDH ~2.3x, LDH qualifies as stage III-B, upped to 4xBEP
JUL28- AFP ~25, bHCG ~15, LDH normal
AUG17- AFP, bHCG, LDH normalized by 3rd cycle
SEP21- 4xBEP done, no complications; a few +2cm masses remain in retroperitoneum
DEC02- RPLND, necrosis + bit of mat. tera., retrograde
JAN. 2016- Surveillance, exercise, working, SIGUE!
NOV. 2017- Retrograde improves. Still not normal but better.
FEB. 2018- 26 MONTHS ALL CLEAR. -
This was inspirational! My husband has a similar story. Diagnosed 2 months ago, is starting BEP x3 in a couple days. With a possible RPLND 2 months after chemo is over depending on his scans. This gives me a little light at the end of the tunnel that things will eventually be great again. AND that this nightmare will be over one day. -
Glad you are doing well.Son Grant
dx 12/21/16 at age 17
BEP x3
Post Chemo CT Scan on 3/28/17 still showed a few nodes over 2 cm
2nd Post Chemo CT Scan on 4/27/17 showed all nodes still over 2cm
Post Chemo RPLND 5/8/17: Periaortic Teratoma, Intraaorticaval Teratoma, and Paracaval Teratoma found.Comment
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