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New member 24 yo son with Mediastinal Nonseminomatous Germ Cell tumor

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  • #46
    Exhale at least for a bit! Hopeful, that the surgery removes the tumor with no complications, and that AFP drops afterwards. Thanks for letting us know what the surgeon thought.
    17 year old son Grant dx 12/21/16
    pre/o markers 12/21/16- HCG:1065.15,AFP:298.8,LDH:1119
    pre/o CT Scan 12/22/16 normal
    r/o 12/22/16
    Post r/o Elevated Markers with INCREASE 4 weeks post r/o;
    PATHLOGY: mixed maligent germ cell 8.6 x 6.2 x 5.9 cm

    -80% Embryonal, 10% Yolk Sac, 5% Teratoma, 5% Choriocarcinoma w/LVI within Spermatic Cord and invasion into Rete Testis
    2nd CT scan on 1/24/17 3 nodes 2 over 2.5, one over 3.5
    BEP x 3 1/27/17
    Post Chemo CT Scan on 3/28/17 still showed a few nodes over 2 cm
    2nd Post Chemo CT Scan on 4/27/17 showed all nodes still over 2cm
    Post Chemo RPLND 5/8/17: Periaortic Teratoma, Intraaorticaval Teratoma, and Paracaval Teratoma found.

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    • #47
      Happy to hear the news. Best of luck with hopefully the last phase.
      Aug 2013: vague fevers, exhaustion, weight loss, night sweats
      September 2013: became a father
      October 2013: diagnosis PMNSGCT, ~5cm x 5cm, AFP: 43 bHCG: 0
      December 2013: cycle 1, VIP 3wks
      January 2014: cycle 2, VIP 3wks, became allergic to polysorbates
      February 2014: AFP 813, bHCG: 0, scrapped chemo
      February 2014: resection, upper left lobectomy, 7 x 6 x 5 cm tumor, teratoma / adenocarcinoma
      March 2014: AFP 70
      March 2014: AFP 19
      April 2014: AFP 11 !
      <fast forward>
      September 2014: surveillance, AFP < 12 for almost 4 years

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