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New member 24 yo son with Mediastinal Nonseminomatous Germ Cell tumor

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  • #61
    The BEST news!! AFP especially takes a bit, unless it starts increasing to over 25, no need to panic. It can even fluctuate for months.
    I know you can EXHALE a bit now!!!
    Son Grant
    dx 12/21/16 at age 17

    BEP x3
    Post Chemo CT Scan on 3/28/17 still showed a few nodes over 2 cm
    2nd Post Chemo CT Scan on 4/27/17 showed all nodes still over 2cm
    Post Chemo RPLND 5/8/17: Periaortic Teratoma, Intraaorticaval Teratoma, and Paracaval Teratoma found.
    Grant is enjoying his senior year in High School Cancer Free!

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    • #62
      Here they are!!!!! Someone described the wedding as "An intimate party for 200 people" .......Perfect day!!!!!

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      • #63
        I wish you all the best.I hope to see only positive news in this topic!

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        • #64
          12/11 Update: SURVEILLANCE!!!! AFP 1.5, HCG & LDH undetectable. No evidence of cancer. Followup BW in 2 months. Imaging in 4. Still dealing with that nasty blood clot in the heart but hoping the Lovenox is doing it's job.

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          • #65
            Congratulations!
            Age 31 - Portland, OR
            01NOV16- Pain in right testicle, palpable mass
            13NOV16- R I/O. Markers normal
            27NOV16- Stage Ia non-seminoma, 1.3cm, 100% EC, no LVI
            06DEC16 - CT scan clear
            09DEC16 - Started 1xBEP. Neutropenic at day 15; Worst part for me was bleo (allergic).
            03JAN17- Ended 1xBEP; start surveillance
            18MAR17-2nd pathology report shows 90% EC , 10% seminoma

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