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New member 24 yo son with Mediastinal Nonseminomatous Germ Cell tumor

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  • #61
    The BEST news!! AFP especially takes a bit, unless it starts increasing to over 25, no need to panic. It can even fluctuate for months.
    I know you can EXHALE a bit now!!!
    Son Grant
    dx 12/21/16 at age 17

    BEP x3
    Post Chemo CT Scan on 3/28/17 still showed a few nodes over 2 cm
    2nd Post Chemo CT Scan on 4/27/17 showed all nodes still over 2cm
    Post Chemo RPLND 5/8/17: Periaortic Teratoma, Intraaorticaval Teratoma, and Paracaval Teratoma found.

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    • #62
      Here they are!!!!! Someone described the wedding as "An intimate party for 200 people" .......Perfect day!!!!!

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      • #63
        I wish you all the best.I hope to see only positive news in this topic!

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        • #64
          12/11 Update: SURVEILLANCE!!!! AFP 1.5, HCG & LDH undetectable. No evidence of cancer. Followup BW in 2 months. Imaging in 4. Still dealing with that nasty blood clot in the heart but hoping the Lovenox is doing it's job.

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          • #65
            Congratulations!
            Age 31 - Portland, OR
            01NOV16- Pain in right testicle, palpable mass
            13NOV16- R I/O. Markers normal
            27NOV16- Stage Ia non-seminoma, 1.3cm, 100% EC, no LVI
            06DEC16 - CT scan clear
            09DEC16 - Started 1xBEP. Neutropenic at day 15; Worst part for me was bleo (allergic).
            03JAN17- Ended 1xBEP; start surveillance
            18MAR17-2nd pathology report shows 90% EC , 10% seminoma

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            • #66
              Hello all!

              Son had his first surveillance (CT and BW) appointment and everything is still clear! Blood clot in heart has totally dissolved so he's been released to do cardio but there will be limitations on exercise for 2 years due to the sternotomy. There's often such bleak news for Mediastinal GCT so I just wanted to post some positive feed for anyone searching. Much love and thanks to everyone for the advice and support!

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              • #67
                Originally posted by MamaAng View Post
                Hello all!

                Son had his first surveillance (CT and BW) appointment and everything is still clear! Blood clot in heart has totally dissolved so he's been released to do cardio but there will be limitations on exercise for 2 years due to the sternotomy. There's often such bleak news for Mediastinal GCT so I just wanted to post some positive feed for anyone searching. Much love and thanks to everyone for the advice and support!
                Awesome! Go celebrate! My wife and I went to a nice dinner on my first all clear.
                6/5/15: bHCG 27,AFP 8.66, LDH 361, 5.6cm lymph node - Stage IIC
                6/16/15: Left I/O 85% EC, 10% chorio, 5% yolk sac opinion 2 (mayo) 90% EC, 10% yolk sac
                7/7/15: bHCG 56, AFP 42, LDH 322
                7/13/15 - 9/18/15: 4xEP
                10/1/15: bloodwork normal, ct scan shows 2 lymph nodes 1.0cm
                10/26/15: 2nd opinion on CT results - lymph nodes normal. Surveillance!
                4/6/16: 1.7cm X 1.5cm lymph node found with markers normal.
                4/20/16: RPLND @ IU - teratoma only!
                3/29/2018 all clears up to this date!

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                • #68
                  Super! My congratulations to your family!

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                  • #69
                    Wonderful news indeed. Congratulations and cheers more many more clear check ups!!!

                    Mike
                    Oct. 2005 felt lump but waited over 7 months.
                    06.15.06 "You have Cancer"
                    06.26.06 Left I/O
                    06.29.06 Personal Cancer Diagnosis Date: Got my own pathology report from medical records.
                    06.30.06 It's Official - Stage I Seminoma
                    Surveillance...
                    Founded the Testicular Cancer Society
                    6.29.13 Summited Mt. Kilimanjaro for 7th Cancerversary

                    For some reason I do not get notices of private messages on here so please feel free to email me directly at mike@tc-cancer.com if you would like to chat privately so as to avoid any delays.

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                    • #70
                      I love seeing this news congrats!!
                      3/29/17 Diagnosed 100% Embryonal 4/10/17 Left I/O CT scan shows a few suspicious lymph (biggest 1.9 cm) 5/8/17 - 7/3/17 3xBEP 7/20/17 CT Scan Clear, AFP has uptick to 19 8/16/17 AFP Drops in half to 10, ALL CLEAR! 11/16/17 All Clear! AFP continues to drop! 3/19/18 All clear!

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                      • #71
                        The BEST news!!!!!!
                        Son Grant
                        dx 12/21/16 at age 17

                        BEP x3
                        Post Chemo CT Scan on 3/28/17 still showed a few nodes over 2 cm
                        2nd Post Chemo CT Scan on 4/27/17 showed all nodes still over 2cm
                        Post Chemo RPLND 5/8/17: Periaortic Teratoma, Intraaorticaval Teratoma, and Paracaval Teratoma found.

                        Comment


                        • #72
                          Hey all!! Time for updates! First and foremost, got another ALL CLEAR today after a full body work up. So he's rounded the 6 month mark. They now have their first puppy and bought a house last week which we are all painting and getting ready to move them in next week. He's playing softball again and hit a homerun at his first game back. We are all living in the moment and cautiously optimistic about the future. Think my husband and I have a little PTSD lol but otherwise things are settling down. Big hugs to everyone for their continued support and good wishes.

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                          • #73
                            Awesome!! That is great to hear.
                            6/5/15: bHCG 27,AFP 8.66, LDH 361, 5.6cm lymph node - Stage IIC
                            6/16/15: Left I/O 85% EC, 10% chorio, 5% yolk sac opinion 2 (mayo) 90% EC, 10% yolk sac
                            7/7/15: bHCG 56, AFP 42, LDH 322
                            7/13/15 - 9/18/15: 4xEP
                            10/1/15: bloodwork normal, ct scan shows 2 lymph nodes 1.0cm
                            10/26/15: 2nd opinion on CT results - lymph nodes normal. Surveillance!
                            4/6/16: 1.7cm X 1.5cm lymph node found with markers normal.
                            4/20/16: RPLND @ IU - teratoma only!
                            3/29/2018 all clears up to this date!

                            Comment


                            • #74
                              Great news! Thanks for sharing.
                              Aug 2013: vague fevers, exhaustion, weight loss, night sweats
                              Sept 2013: became a father
                              Oct 2013: diagnosis PMNSGCT, ~5cm x 5cm, AFP: 43 bHCG: 0
                              Dec 2013: cycle 1, VIP 3wks
                              Jan 2014: cycle 2, VIP 3wks, became allergic to polysorbates
                              Feb 2014: AFP 813, bHCG: 0, scrapped chemo
                              Feb 2014: upper left lobectomy, 7x6x5 cm tumor, teratoma / adenocarcinoma
                              March 2014: AFP 70
                              March 2014: AFP 19
                              Apr 2014: AFP 11 !!!!
                              Feb 2018: AFP & scans clear for 4 years

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                              • #75
                                Thanks for sharing - Congratulations to all of you.

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