Hi everyone! I've read a lot of your stories and it's time for me to join your group. My 24 yo son was dx with a mediastinal nonseminomatous germ cell tumor in June 2017. No symptoms and really an incredible route to diagnosis. His fiance was practicing giving stress tests for her Masters and his showed PVCs so they went to a cardiologist. Several doctors later (and no cardiac problems) we were referred to a surgeon for an incidental finding of a lesion in the chest. I remember thinking "they're getting married in September and now he'll need surgery"! Man I wish that had been the case. Instead, he had a biopsy followed by a PET scan to check for mets (none found). Finally referred to Fox Chase where he's being treated by Dr. Geynisman. Negative brain MRI and testicle US. He had 2 rounds of BEP and had good tumor marker response. AFP was 318 at diagnosis, dropped to 90 after Round 1, dropped to 50 after round 2. But he developed shortness of breath and reduced pulmonary function so they switched him to VIP, in patient. He did miss 1 week of treatment while they decided whether or not to switch regimens. His AFP only dropped to 30 after his 3rd round (1st of VIP) and we won't know his 4th round number until 10/2/17 when we go for his second look CT scan. His HCG has always been normal and he showed his first ever LDH number last round but the doctor attributed that to tumor death. His doctor is not happy with his last AFP reading. So now we wait a few weeks to see what the next step is. He finished his last round on 9/16/17 and he's still incredibly tired. I'm hoping that means the chemo is KILLING that freaking tumor!
Thank you for indulging this long post. This mama needs a little therapy of her own and I'm grateful for the venue. Any advice or guidance is most appreciated.
Thank you for indulging this long post. This mama needs a little therapy of her own and I'm grateful for the venue. Any advice or guidance is most appreciated.
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