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Dark days turn to light in sunny South Africa

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  • Dark days turn to light in sunny South Africa

    Greetings all from Sunny SA. Had my orchiedectomy 16 Feb 18. Seminoma. CT booked for 22 March. Why so long you ask? Long story but sometimes Africa is still Dark.
    Hoping for just surveillance or maybe one round of the good stuff. Anyone Looking for guidance in the African cancer bush Safari . Just ask.
    Many thanks for a great forum. Helped me through some long painful nights post removal.

  • #2
    Thanks for sharing and good luck!
    6/5/15: bHCG 27,AFP 8.66, LDH 361, 5.6cm lymph node - Stage IIC
    6/16/15: Left I/O 85% EC, 10% chorio, 5% yolk sac opinion 2 (mayo) 90% EC, 10% yolk sac
    7/7/15: bHCG 56, AFP 42, LDH 322
    7/13/15 - 9/18/15: 4xEP
    10/1/15: bloodwork normal, ct scan shows 2 lymph nodes 1.0cm
    10/26/15: 2nd opinion on CT results - lymph nodes normal. Surveillance!
    4/6/16: 1.7cm X 1.5cm lymph node found with markers normal.
    4/20/16: RPLND @ IU - teratoma only!
    9/27/2018 all clears up to this date!

    Comment


    • #3
      Hi Wetro,

      I mentioned this is the email that we traded but wanted to post here in case others see the post from South Africa. A great friend of mine, he just stayed with me in Denver for a conference and we originally met in person at Mt. Snowdon in Wales, is Torsten Koehler. He is a testicular cancer survivor in Cape Town, South Africa so if you are in SA, be sure to connect with him. He runs: http://www.love-your-nuts.com/ and you can tell him I sent you and he will take great care of you.

      Mike
      Oct. 2005 felt lump but waited over 7 months.
      06.15.06 "You have Cancer"
      06.26.06 Left I/O
      06.29.06 Personal Cancer Diagnosis Date: Got my own pathology report from medical records.
      06.30.06 It's Official - Stage I Seminoma
      Surveillance...
      Founded the Testicular Cancer Society
      6.29.13 Summited Mt. Kilimanjaro for 7th Cancerversary

      For some reason I do not get notices of private messages on here so please feel free to email me directly at mike@tc-cancer.com if you would like to chat privately so as to avoid any delays.

      Comment


      • #4
        Hopefully, CT Scan later in the month will show nothing. I concur with Mike to reach out to Torsten Koehler.
        Son Grant
        dx 12/21/16 at age 17

        BEP x3
        Post Chemo CT Scan on 3/28/17 still showed a few nodes over 2 cm
        2nd Post Chemo CT Scan on 4/27/17 showed all nodes still over 2cm
        Post Chemo RPLND 5/8/17: Periaortic Teratoma, Intraaorticaval Teratoma, and Paracaval Teratoma found.

        Comment


        • #5
          Thanks Gents.

          Comment


          • #6
            Hi Mike. Torsten from http://www.love-your-nuts.com/ is defiantly the man here in South Africa. Ct Found a node So stage2. Started Chemo yesterday. Almost there

            Comment


            • #7
              Best of luck with the chemotherapy, and yes Torsten is a great guy!!
              Young Adult Cancer Survivorship by Steve Pake
              April is Testicular Cancer Awareness Month!
              www.stevepake.com
              Feb 2011, Stage IIB, 4xEP, RPLND, PTSD
              My Survivorship Thread | All of my Blogs
              C
              ONTACT ME ANYTIME!

              Comment


              • #8
                Thanks SP. TC can be a fun ride but here in Africa we can take it to a next level. Give me a great white shark or a Lion anyday but chemo brain makes navigating this urban jungle a wild ride. EP not going bad. lots of fluids and rest.

                Comment


                • #9
                  How big was your node on the CT scan and where is it do you know? Were your tumor markers negative still?

                  Glad that you got a hold of Torsten, of I am assuming that you did. If he give you any problems, then you just let me know. Hahahaha. He is a great fella.

                  Mike
                  Oct. 2005 felt lump but waited over 7 months.
                  06.15.06 "You have Cancer"
                  06.26.06 Left I/O
                  06.29.06 Personal Cancer Diagnosis Date: Got my own pathology report from medical records.
                  06.30.06 It's Official - Stage I Seminoma
                  Surveillance...
                  Founded the Testicular Cancer Society
                  6.29.13 Summited Mt. Kilimanjaro for 7th Cancerversary

                  For some reason I do not get notices of private messages on here so please feel free to email me directly at mike@tc-cancer.com if you would like to chat privately so as to avoid any delays.

                  Comment


                  • #10
                    Node 12mm . On back wall of stomach. Thus as lymph system drained away from testis. all markers normal. Got hold of Torsten on morning of chemo at 3:30am. He talked me down.

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                    • #11
                      Round 2 of 3 EP done. Chemo sucks. Gonna kick cancers ass.

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                      • #12
                        Started round3 Ep today. Markers normal. Ct in six weeks. Side effects plenty. Strong like bull. Very emotional day but soon to be NED. Here in South Africa the sun is starting to shine bright again

                        Comment


                        • #13
                          Almost done...hoping your next scan shows no enlarged nodes.
                          Son Grant
                          dx 12/21/16 at age 17

                          BEP x3
                          Post Chemo CT Scan on 3/28/17 still showed a few nodes over 2 cm
                          2nd Post Chemo CT Scan on 4/27/17 showed all nodes still over 2cm
                          Post Chemo RPLND 5/8/17: Periaortic Teratoma, Intraaorticaval Teratoma, and Paracaval Teratoma found.

                          Comment


                          • #14
                            You're nearly there, Wetro!! Take care of yourself
                            July 2016 - Left I/O
                            December 2016 - BEPx3
                            All clear for 1 year!

                            My Testicular Cancer Support Kit
                            First Oncologist Visit Checklist
                            Simplify Cancer Podcast

                            Comment


                            • #15
                              Sorry Joe. Did not listen and caught a chest invention and middle ear infection and sinusitis at the end of round 3. I am humbled beyond measure and very grateful to be alive. Do not get sick while doing the chemo thing. i Think it is criminal that the oncologist here in SA are not tasked with ensuring a smooth run through chemo. Please gents dont be a hero and take very good care of yourselves through chemo. First scan in July. Considering myself cured.

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