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  • #16
    I'm sorry that I can't help you much with the testosterone question as I have not had to use it.

    However, why is the urologist nervous? Is he second guessing the ultrasound or just not excited to remove it given your solitary testicle status? Any idea on the size of the mass on the ultrasound?

    Testis sparing techniques are available but they are a bit of a difficult situation as well. I am glad to see that he is getting others involved as well.
    Oct. 2005 felt lump but waited over 7 months.
    06.15.06 "You have Cancer"
    06.26.06 Left I/O
    06.29.06 Personal Cancer Diagnosis Date: Got my own pathology report from medical records.
    06.30.06 It's Official - Stage I Seminoma
    Surveillance...
    Founded the Testicular Cancer Society
    6.29.13 Summited Mt. Kilimanjaro for 7th Cancerversary

    For some reason I do not get notices of private messages on here so please feel free to email me directly at mike@tc-cancer.com if you would like to chat privately so as to avoid any delays.

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    • #17
      Injections - what is the product and the frequency?
      >>>>>>>>>
      TC1: May 2001 / Right orchiectomy / seminoma stage 1 / Radiation
      TC2: July 2008 / Left orchiectomy / seminoma stage 1 / X2 Prostheses / Reandron (long term Testosterone injections)

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      • #18
        Nervous isn't the correct word. Hesitant to remove the last one is more like it. He said he want's everything to be 100% before we do anything permanent. He really wants me to be able to bank some sperm. I guess the fact I wasn't able to is making him hesitant also. The fact he cares and is talking with others seems to be good.. I was ready to just rip it all out.

        the mass was 1.6 cm i believe? I could just feel it slightly but it went away for a bit.

        the injections I am not 100 percent sure but i can get back to you.

        the gel was testim 5g or something like that? 50mg a day? if that sounds correct. I'm picking it up today and don't have the paper

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        • #19
          It sounds like there was a few other small masses in the testicle so my guess is they will end up taking it out

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          • #20
            Well. Going in tomorrow AM bright and early. .... time to start an interesting journey! If it don't kill ya it makes you stronger right?

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            • #21
              Hope it's gone ok. Let us know how things pan out for you.

              - T
              30 Jul 14: Discovered lump
              31 Jul 14: GP referral to specialist
              4 Aug 14: Clinical diagnosis of tumour, blood samples taken, CT scans, USS (confirming ~2cm tumour)
              8 Aug 14: Left radical orchidectomy (plus test results back: CT normal, no mets; blood markers slightly elevated: AFP 14.16, HCG 4.9, LDH 149)
              29 Aug 14: Pathology results: Stage 1A Mixed Non-Seminomatous Germ Cell Tumour (composition: Yolk-sac Tumour and Mature Teratoma)

              24 Sep 14: Started precautionary adjuvant 1xBEP
              23 Oct 14: All clear; on surveillance

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              • #22
                Your doc sounds alot like the one I had. He wanted to make sure it was cancer before he removed my remaining boy. He looked at the Ultrasound and said, " that's a tumor and it needs to come out today!" So 3 hours later it came out.
                It took me a little while to get my trt correct but I evently went with injections. If you have any questions ask away. That is what we are here for.
                Jan 2012- U/S mass in Left testicle
                Feb 2012- I/O performed to remove cancer
                Mar 1,2012- pathology pure seminoma
                Mar 7, 2012 PET SCAN stage IIa
                April 2012 Mayo clinic carbolite.
                May 2012 carbolite failed, started BEP x3
                August 7th 2012- BEP complete
                April 2013 CT/PET show relapse
                May 2013 RPLND
                Aug 2013 Relapse again Started VIeP x2
                Oct 2013 HDC AUTOLOGOUS
                Dec 2013 HDC completed CT/PETSCAN 1.1 cm x .8 cm right lower lung lobe
                Feb 2014 confirmed false positive all clear FINALLY !
                Jan 2015 1 year cancer free Pet/CT scan
                Jan 2016 2 years cancer free "Pet/CT scan
                Jan 2017 3 years cancer free "Pet/CT scan
                Jab 2018 4 years cancer free "Pet/CT scan, labs, xrays

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                • #23
                  Wow. In this am. wasn't sure if they would do it today or tomorrow. glad I fasted.. was in at 2pm. Woke up at 4:30 right out of it.. lol..
                  They ended up taking it out.. He told me before it sounded like a long shot but the frozen section was worth the try.

                  Started on the gel last week so I'll keep on that untill Jan when i go back and maybe start my own injections.

                  Thanks alot guys. I'm sure I'll have many questions for you in the future... for right now its T3's.. and some movies on the couch with the girl.

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                  • #24
                    Did you seek any further questions on Prosthetic's? for me I wanted one with the first but got upgraded with 2 in the second IO. Love em.

                    How are you going with the Testosterone?
                    >>>>>>>>>
                    TC1: May 2001 / Right orchiectomy / seminoma stage 1 / Radiation
                    TC2: July 2008 / Left orchiectomy / seminoma stage 1 / X2 Prostheses / Reandron (long term Testosterone injections)

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                    • #25
                      I've only been on the T gel for a few days. I kinda like how it smells. my mornings have woken up quite excited lol. So i hope this continues post IO

                      They gave me one prosthetic this time because they went in from the top. I wan't to feel it but am in a fair bit of pain so I'm going to avoid it for few days.

                      Doc said if i want in 3-4 months if I want another its super easy to put one in. but unfortunately that's back for surgery, back of work..

                      I think if none of this returns and the Testosterone is working well though maybe I'll go in for it. It's not a big deal as I am engaged and been with the same girl for about 7 years. she knows what's up so its not like I'm in the bar scene and checks are going to look at me different.

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                      • #26
                        asids from the obvious pain anyone have much numbness in the leg, sac, or below the incision? that kinda freaks me out.. like its fallen asleep or something.

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                        • #27
                          Originally posted by metalguy View Post
                          asids from the obvious pain anyone have much numbness in the leg, sac, or below the incision? that kinda freaks me out.. like its fallen asleep or something.
                          Almost all of my pain was in the crease between the leg and groin area. And I was virtually pain free about 48 hours after surgery without any medication. The only other issue I delt with was at the base of the penis right on top it felt rough like maybe they had irritated it when shaving before the operation. That has now turned into more of a numbness but the feeling is coming back. I suspect it was a thrombosed vein finally returning to size
                          Left R/O on 10-9-14. Ct scans all clear.
                          Pure Seminoma stage 1a. no vascular invasion.
                          surveillance started, with chest x-ray 12-3 , blood work 1-22-14.

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                          • #28
                            Feeling better today, 3rd day post op.. still hurts getting up and sitting down but I think by day 5 or so i'll be able to move around more. the numbness sucks. from the incision down the leg crease and inner thigh. I cant even feel my inner thigh when i poke it with my finger.. hope it goes away but its only a few days since surgery so no panic there. the parts that matter have feeling. lol.

                            Loving the fakie. cant wait to get the other one... Made the girlfriend feel it today too. has a nice weight to it.

                            I guess Its about 3-4 weeks till i get my results.. hoping for the best and that I can just go with surveillance... . both chemo or rrplnd don't look like a great time.

                            Just hope the TRT levels are good for 3 months. seems like a long time to go on testim without a checkup of levels..

                            once the trt is sorted and I'm given the all clear It will be nice to put this behind me

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                            • #29
                              Well about 10 days since the IO.. I am feeling a lot better, got a haircut, and even went into work for a few hours .No lifting or anything but sitting around for the most part. I am still pretty sore and feels like the prosthetic is uncomfortable, or phantom pains from what used to be there perhaps.Either way. I am much better than a few days ago.

                              I get my results in a few weeks but it sounded before hand like the DR said from the CTscan there was no spread and my markers looked good. I'll be getting these numbers off him but I think surveillance is the choice I'll take for now. Been looking all over this site and am SO torn on the subject. I like the vegas odds statement, but even with good odds sometimes you lose, and I'm not just betting a few bucks here. haha.

                              Both Chemo and radiation look like crap. but I was just learning how if you do the Rad that you cant do it again later? is this true? If so I'd rather wait on that until "IF" I need it.

                              Chemo doesn't sound like a party either. but out of the two I'm not sure what would be the lesser of 2 evils.

                              A big thing I searched was tattoos. I understand how being on chemo won't jive with a tat due to the risk of infection, but what about radiation? any issues there?

                              lets say i go out and get a very large tattoo on my leg,.... would this effect anything later? I know MRI and tattoo's aren't friends but a LEG MRI isn't the most common thing either.

                              thanks

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                              • #30
                                Well according to surgeon it was a seminoma. so from what i read that's good news. I'll probably go with surveillance and hope for the best. The weird thing was they said around the tumor the entire testie was all scar tissue, so that's why I had no sperm count. Dr couldn't really explain that. They are going to look into it but really, its too late at this point anyways

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