I guess I really have no right to be scared because unlike the rest of you gentlemen, I am not a cancer patient, but I just can't help it. I can't even begin nor can I even attempt to imagine what any of you have been through in all of your journeys. Nevertheless, I hope I find you all in good health and perhaps you can help out a 51 year old man who is still scared and has many questions. I may not know all the correct terminology any may get confused a bit so please if you could put up with me a bit
To make a long story short, since childhood I've suffered from testicular pain and they would get swollen. Diagnosis was epididymisis. As a side note, I had this even before I was sexually active despite how others believe it's due to an STD. Antibiotics always cleared it up until later in life... mid 40's. All tests kept coming back negative. No infection, sonograms looked good. Doctor's were stumped and suggested it was psychological. I stopped messing around with the local urologists here in Brooklyn and went to New York Columbia Presbyterian Hospital Urology Dept. All their tests also negative. They said my chronic pain was due to all of the severe infections. So a nerve block was done and I was a good candidate for a bilateral denervation. Awesome! I'm going to be pain free! Surgery was done April 2015.
I'm still miserable. Testicles and epididymis still swollen, sometimes I keel over in pain, swallow as many 800mg ibuprofens as I can along with ice and yet other times not so bad. I'm presently on 100mg testosterone cream made from a compounding pharmacy, My sperm is dead, suffer from ED, Viagra, Cialis are hit or miss..mostly miss. I am single and needless to say my love life has been almost non existent because of this.
So...after the latest attack last week, I don't care anymore.... I want them gone! Out of me! Good Bye! See Ya!
Emergency visit to Surgeon 2 days later agreed they should come out. (Of course ultrasound and blood and urine were all normal)
OK Whew! So that's my story.... Now, I don't even know where to begin with my questions... so I just want to know EVERYTHING! The doctor did say I could ask him anything I wanted but of course I just went blank saying to myself OH MY GOD WHAT HAVE YOU JUST DONE! and he is not the type to tell you what he does nor what to expect. All I know is that it is an approximately a 2 hour surgery, he will use size large saline prosthetics, do it inguinally and to expect a call the day before surgery from the hospital.
I'm getting confused as to what I read from others. So, baby words please. Also, I know I should call and ask the doctor my questions but he is on vacation and coincidentally he is returning the day before my surgery.
Some of the main questions I have are...
1) How long did it take you to recover? Before sexual relations? How has sex changed?
2) Please talk about mood swings/flashes/irritability and testosterone. Creams vs shots.. right now I'm still not within a normal range and it's been 5 months.
3) Ejaculate. Nurse told me the volume should be almost the same because most of it comes from the prostate. I'm not sure she is correct on this.
4) Prosthesis. Are they comfortable? Do they last a lifetime? Suture or not to suture? Surgeon said he sutures in place. I've been reading of stories that they often don't lay correctly as normal testicles with sutures.
I'm sorry for the long post. I feel kind of guilty asking these questions knowing that some of you may be going through much worse than I. I can promise all of you that I will continue to share my own experiences with all and anyone of you who need it in the future. I'm just going through a really hard time right now. I'm not in pain at the moment and I don't want the surgery!
Steve
To make a long story short, since childhood I've suffered from testicular pain and they would get swollen. Diagnosis was epididymisis. As a side note, I had this even before I was sexually active despite how others believe it's due to an STD. Antibiotics always cleared it up until later in life... mid 40's. All tests kept coming back negative. No infection, sonograms looked good. Doctor's were stumped and suggested it was psychological. I stopped messing around with the local urologists here in Brooklyn and went to New York Columbia Presbyterian Hospital Urology Dept. All their tests also negative. They said my chronic pain was due to all of the severe infections. So a nerve block was done and I was a good candidate for a bilateral denervation. Awesome! I'm going to be pain free! Surgery was done April 2015.
I'm still miserable. Testicles and epididymis still swollen, sometimes I keel over in pain, swallow as many 800mg ibuprofens as I can along with ice and yet other times not so bad. I'm presently on 100mg testosterone cream made from a compounding pharmacy, My sperm is dead, suffer from ED, Viagra, Cialis are hit or miss..mostly miss. I am single and needless to say my love life has been almost non existent because of this.
So...after the latest attack last week, I don't care anymore.... I want them gone! Out of me! Good Bye! See Ya!
Emergency visit to Surgeon 2 days later agreed they should come out. (Of course ultrasound and blood and urine were all normal)
OK Whew! So that's my story.... Now, I don't even know where to begin with my questions... so I just want to know EVERYTHING! The doctor did say I could ask him anything I wanted but of course I just went blank saying to myself OH MY GOD WHAT HAVE YOU JUST DONE! and he is not the type to tell you what he does nor what to expect. All I know is that it is an approximately a 2 hour surgery, he will use size large saline prosthetics, do it inguinally and to expect a call the day before surgery from the hospital.
I'm getting confused as to what I read from others. So, baby words please. Also, I know I should call and ask the doctor my questions but he is on vacation and coincidentally he is returning the day before my surgery.
Some of the main questions I have are...
1) How long did it take you to recover? Before sexual relations? How has sex changed?
2) Please talk about mood swings/flashes/irritability and testosterone. Creams vs shots.. right now I'm still not within a normal range and it's been 5 months.
3) Ejaculate. Nurse told me the volume should be almost the same because most of it comes from the prostate. I'm not sure she is correct on this.
4) Prosthesis. Are they comfortable? Do they last a lifetime? Suture or not to suture? Surgeon said he sutures in place. I've been reading of stories that they often don't lay correctly as normal testicles with sutures.
I'm sorry for the long post. I feel kind of guilty asking these questions knowing that some of you may be going through much worse than I. I can promise all of you that I will continue to share my own experiences with all and anyone of you who need it in the future. I'm just going through a really hard time right now. I'm not in pain at the moment and I don't want the surgery!
Steve
Comment