Hey folks,
Brand new member of the club here. Just had my second I/O yesterday and I wanted to say how much lurking on this forum has helped me over the last few years. I had my first I/O on the right side in late 2015, stage 1 seminoma ~4cm, went on observation, and mostly forgot about the ordeal. Recently I found lumps in the left side (three lesions between 1 and 2 cm each) and had it removed yesterday. We put in one prosthetic and may do the other when I'm all healed. Started on T gel right after the surgery, I was diligent about making this happen thanks to advice I've seen here on the forum.
I'm waiting to hear back on the biopsy and hoping I can go on observation again. I had my last CT / xray / blood panel two months ago and was all clear. I have handled all this stuff pretty well but chemo honestly is the first thing that truly scares me.
They offered for me to do 1x cisplatin after the first I/O and I opted not to. I'm 33 and super active, also I love and make music. Damaging my fitness or hearing are things I want to avoid if possible. I have been clear for 2.5 years now in terms of lymphatic system, lungs, etc so far, just now have this second primary TC. If this is another stage 1 seminoma, I hope they'll offer the option to do 1x carbo/cisplatin or just go on observation again.
Some questions:
- For those who have done it, how hard is the 1x carbo / cisplatin?
- Did it have long term effects for you?
- How do you feel about your decision since doing it?
- For those who do testosterone shots, do you do them yourself? I'm gonna be playing with TRT options and would prefer to be able to do it all solo.
Sad to join the club, but also grateful there is a club. Thanks in advance for any help!
Brand new member of the club here. Just had my second I/O yesterday and I wanted to say how much lurking on this forum has helped me over the last few years. I had my first I/O on the right side in late 2015, stage 1 seminoma ~4cm, went on observation, and mostly forgot about the ordeal. Recently I found lumps in the left side (three lesions between 1 and 2 cm each) and had it removed yesterday. We put in one prosthetic and may do the other when I'm all healed. Started on T gel right after the surgery, I was diligent about making this happen thanks to advice I've seen here on the forum.
I'm waiting to hear back on the biopsy and hoping I can go on observation again. I had my last CT / xray / blood panel two months ago and was all clear. I have handled all this stuff pretty well but chemo honestly is the first thing that truly scares me.
They offered for me to do 1x cisplatin after the first I/O and I opted not to. I'm 33 and super active, also I love and make music. Damaging my fitness or hearing are things I want to avoid if possible. I have been clear for 2.5 years now in terms of lymphatic system, lungs, etc so far, just now have this second primary TC. If this is another stage 1 seminoma, I hope they'll offer the option to do 1x carbo/cisplatin or just go on observation again.
Some questions:
- For those who have done it, how hard is the 1x carbo / cisplatin?
- Did it have long term effects for you?
- How do you feel about your decision since doing it?
- For those who do testosterone shots, do you do them yourself? I'm gonna be playing with TRT options and would prefer to be able to do it all solo.
Sad to join the club, but also grateful there is a club. Thanks in advance for any help!
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