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Lost my boys journey and advice with TRT

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  • Lost my boys journey and advice with TRT

    Hey guys,


    I’m 25 years old and have gone through HELL since December of 2018. I noticed a lump back in November on my left testicle. I went to my doc who sent me in for a ultrasound. Come to find out, I had not one but THREE masses found. They found two on my left but one on my right. I was referring to a urologist who told me it’s most likely cancer. When she examined me, she didn’t feel anything on my right, which is crazy! I had surgery a few days later to remove my left and go in and try a partial orchiectomy of my right. The surgery was a success, but unfortunately, the pathology report came back with two masses on the left was cancer. One was Embronical carcinoma, seminona, and a minute focus of yolk sack. The smaller one on the left was pure seminoma. Then, on my right, I had what was called post pubertal tertoma, but she removed the teratoma and left my right one in. Fortunately, none of my tumors got as far as my rete testis. I didn’t have any vascular invasion, which put me at Stage 1A. So, a few weeks after surgery I get a call to have a second opinion on my right from Dr. Einhorn because they said I have intratubular neoplasia in my right, which is precancerous cells. I saw Einhorn and he said to remove the right and get on TRT. My urologist was hesitant to move forward with this because it’s premature. To note, my serum tumor markers were normal and my Ct scan was clean before surgery and my blood levels haven’t changed since then (I’ve had two more tests since December).

    Basically, the best of the best which is Einhorn said to remove it, so I did last week. I started on testesterone gel and I’m on day 5. I feel fatigued, lack of energy, and don’t feel like myself. Any words of the wise with testesterone? I was told shots are better. I think I wanna start those next week.



    Words of encouragement or advice?


    My oncology and Dr. Einhorn agreed that I should have my right removed and be on active surveillance since I had no lymphovascular invasion

  • #2
    Sorry to welcome you to the x2 club. Life can get back to normal on the right trt. That said hormones are tricky and everyone responds differently to different treatments. My experience with androgel for 3 years was not great. Just never absorbed it well, lots of fatigue. Switched to twice weekly shots at home last year, much better for me. Other thing is be patient, your body takes awhile to respond as you adjust dosage or methods. Don’t change too much at once at wait 6-8 weeks before tweaking anything. Find a good endo and regularly monitor your bloods along with how you feel. Hang in there, you are not alone on this board as there are several that have gone through this and can offer up great advice.
    TC#1
    May 2013 - Left Orchiectomy - Stage pT1 Seminoma (2.3 cm)
    June 2013 - 1 Dose 1000mg of Carboplatin ---> Surveillance
    TC#2
    May 2015 - Right Orchiectomy - Stage pT1 Seminoma (2.2cm)
    TRT - Cypionate 100mg (Weekly)
    June 2015 - Surveillance

    Comment


    • #3
      Don't wait till next week to start trt if you can avoid it, hot flashes are common & very uncomfortable, believe me.

      I have been on Testim, androgel 1% , androgel 1.62% & generic testosterone gel 1%. I had decent results with all, but with the generic gel i actually got numbers over the high end of the normal range ( my doc was a bit concerned). I couldn't stand the smell of testim, the others were pretty neutral odor wise. I'm now on testosterone cypionate injections, 200mg, once every 3 weeks (I inject myself) & find them a bit less effective, especially in week 3, but way more convenient than daily gels.I just had my level checked this week & was in the middle of the range. YMMV.

      Dave
      Last edited by Davepet; 03-09-19, 10:51 PM.
      Jan, 1975: Right I/O, followed by RPLND
      Dec, 2009: Left I/O, followed by 3xBEP

      Comment


      • #4
        Davepet

        Have you tried administering your shots more frequently with smaller doses? I would think once a week might yield you better results. 200mg every 3 weeks seems like a fairly old protocol by today’s standards. I would think you would get some fairly wild swings with such a large dose all at once and then having a significant drop the 3rd week. Just a thought.
        TC#1
        May 2013 - Left Orchiectomy - Stage pT1 Seminoma (2.3 cm)
        June 2013 - 1 Dose 1000mg of Carboplatin ---> Surveillance
        TC#2
        May 2015 - Right Orchiectomy - Stage pT1 Seminoma (2.2cm)
        TRT - Cypionate 100mg (Weekly)
        June 2015 - Surveillance

        Comment


        • #5
          cc,
          No I have not. One every 3 weeks has been working well enough so far & I find it convenient. Also there is only 1ml in the bottle, so even splitting that in half accurately seems difficult to me.
          Jan, 1975: Right I/O, followed by RPLND
          Dec, 2009: Left I/O, followed by 3xBEP

          Comment


          • #6
            This doesnt make you weak, it makes you strong. Don't give up and keep at it, eventually you'll find the right balance of testosterone to make you feel better. Some people have to take other meds for the rest of their lives, now you have to take testosterone. You're not the only one.

            Comment

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