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  • stefanos1999
    replied
    11/2010 Right I/O (pure seminoma,6cm StageI) age30, b-chorio elevated
    12/2010 1st cycle of Carbo
    01/2011 2st cycle of Carbo


    12/2013 Left P/O "partial orchiectomy"(1cm pure seminoma again,StageI, age33) ..75% of the testicle remained..TIN/ IGCNU confirmed...no raised markers

    Leave a comment:


  • 34with1
    replied
    Somehow I fell off the list. But I had to update my stuff anyway, TRT method has changed:

    34with1 ['fake' TC1 1975 (age 6 mos), preventative right orchidectomy]/+34.5 years [real TC1 2010 (age 35), seminoma stage 3, left orchidectomy and 4xBEP] Infertility+TRT (Axiron) since age 30, so wife and I adopted 3 kids.

    AdrianE [TC1 2008 (age 32), Teratoma stage I, surveillance] same time [TC2 2008, Seminoma stage 1, surveillance]

    Aegletes [TC1 1996 (age 30), seminoma stage I XRT] /+12 years [TC2 2008 (age 42), seminoma stage I surveillance]

    Andycoles [TC1 2006 (aged 30), seminoma Stage 1, right orchidectomy plus 1 dose Carboplatine], [TC2 2009 (aged 33), intratubular germ cell neplasia, left orchidectomy]

    Ariel [TC1 1999 (age 25), seminoma Stage 1, right orchiectomy, radiation, prosthetic]/+10 years [TC2 2009 (age 35), seminoma Stage 1, left orchiectomy, surveillance, prosthetic, 10mg androgel daily]

    Bipestuff [TC1 1983 (age 27), seminoma stage 1, Radiation] /+22 years [TC2 2005 (age 49), surveillance]

    BraveOne [TC 1 & 2 7/2009 (age 32). Pure Seminoma, bilateral orch and implants and surveillance only. 10mg androgel] Glad to be TC free!

    cbudd [{TC1: (age 21) July 2005 / Left orchiectomy/ Prostheses}
    {TC2: (age 27) May 2011 / Right orchiectomy (surgery is scheduled 6-1-11) / Cancer found in Lymph Nodes as well/ No Prostheses / Chemotherapy to come (if not more)}]

    Davepet [TC1 1975 (age20) Unknown type & stage, right I/O, RPLND] /+35 years \[TC2 2009 (age55) Mixed embryonal& seminoma, Left I/O, followed by 3xBEP]

    DoubleZero [TC1 2009 (age 40). Seminoma stage 1, radiation; TC2 2010 (age 41) teratoma stage 1, surveillance; 2010 relapse 3xBEP]

    dsomers74 [TC1: May 2000 (age 25) / Right orchiectomy / seminoma stage 1 / Radiation
    TC2: June 2010 (age 36) / Left orchiectomy / seminoma stage 1 / 1 Prostheses / Androgel 2X 5G packets]

    Fish [TC1 1988 (age 26), primarily embryonal cell carcinoma with teratoma & seminoma, Stage 1, RPLND, surveillance] /+15 years [TC2 2003 (age 42), pure seminoma, Stage 1, surveillance]

    greg_oz [TC1 1998 (age 24), embryonal carcinoma & seminoma, stage I, surveillance, recurrence 1999, 3xBEP] /+10 years [TC2 2008 (age 34), seminoma stage I, XRT]

    Groundhog [TC1 1988 (age 38), pure seminoma, stage 1, surveillance/ +21 1/2 years [TC2 2010 (age 59), pure seminoma, stage 1, surveillance. 5g testim]

    Healthnut [TC1 1995 (age 28), pure seminoma stage 1, radiation] / +8 years [TC2 2003 (age 35), pure seminoma stage 1, surveillance]

    Hugh [TC1 1989 (age 40), seminoma stage 1, radiation] / +21 years [TC2 2010 (age 61), seminoma stage 1, 1 x Carboplatin]

    joev [TC1 1998 (age 31), pure seminoma stage 1, RT] /+3 years [TC2 2001 (age 34), pure seminoma stage 1, surveillance]

    Joe3man [TC1 2006 (age 32), seminoma stage I-25 Rounds of Radiation] [TC2 2010 (age 36), seminoma stage I-surveillance]

    JonM [TC1 1997 (age 31), teratoma stage III, X4 BEP, X3 VIP, RPLND, x5 GAMEC, RPLND (2), LT] /+11 years [TC2 2008 (age 43), Stage 1 Seminoma, Right orchidectomy, x1 Carboplatin, Surveillance]

    Kiwi [TC1 2001 (age 36), seminoma stage 1, Radiation] /+7 years [TC2 2008 (age 43), seminoma stage 1, surveillance] two prosthetics

    LeePee [TC1 1992 (age 34), pure seminoma, left orchidectomy, Radiation] + 14 years [ TC2 2006 (age 48), seminoma stage 1, right orchidectomy, 1 dose carboplatine, surveillance] two x prosthetics

    LeeR [TC1 1997 (age 30), seminoma stage 1, Radiotherapy] /+12 years [TC2 2009 (age 42) seminoma stage 1, 1x carboplatin] In between episodes had two boys to add to a daughter.

    lindsayn [TC1 May 2000 (age 24), seminoma Stage 1, radiotherapy - right side; TC2 October 2010, seminoma Stage 1, surveillance at this stage - left)

    Marc311978 [TC1 1997 (age 18), seminoma stage 1, Radiation] /+12 years [TC2 2009 (age 31) seminoma stage 1, surveillance]

    pcwilson [TC1 1997 (aged 27), teratoma, stage I, surveillance] /+10 years [TC2 2007 (aged 38), seminoma stage I, surveillance]

    Perk, TC1 2001, seminoma, teratoma, embryonal carcinoma, uncertain type, Stage 1, lymph node dissection (negative 2001), surveillance. TC2 2006, embryonal carcinoma, seminoma, Stage 1, surveillance. AndroGel Pump...

    PISKOT (wife) TC1: 2005, pure seminoma, stage 1, left I/0, radiation (age 43), TC2: 2010, seminoma, right I/0 2xBEP), HRT Nebido (age 48)

    robert j [7/2009 TC in Both!) both seminoma stage 1, surveillance] (opted for 2 prosthetics at time of surgery, now on HRT bi-weekly self injection).

    Rosc [TC-1: 5/1990 (age 29). Seminoma some Embryonal, Left Orch. and surveillance. Appears in lymphnodes in 1992. RPLND using laparoscopy and then 6wks. radiation therapy. Clean until 2008. (TC-2 4/2008) age 46. Pure Seminoma. Right Orch. and chemo. (2X Carboplatin). HRT is weekly self IM injections with 100mg Cypionate. In between episodes had two children with wonderful wife.

    Schmitt313 (wife) [TC1 -left- 2006 (age 29), non-seminoma, stage 3, chemo 9 wks,] in between we had a healthy baby boy to add to our two daughters![ TC2 12/2008 (age 32) pure-seminoma, surveillance, two prosthetics, Testim]

    Smerd [TC1 Feb 2008 (age 30), Non-Seminoma with some Seminoma Stage 1] [TC2 October 2008 Seminoma Stage I] Partial Orch

    TC Runner: Left TC 5-2010 (age 35) 95% seminoma 5% non-seminoma lymphovascular involvement but confined to the testicle. Left I/O and surveillance. Right TC 11-2010 (age 36) 90% embryonal 10% seminoma lymphovascular involvement + 3 enlarged lymph staged 2B. Right I/O & Right prosthetic. January 2011 3 x BEP.[/QUOTE]

    Leave a comment:


  • Aegletes
    replied
    To include Joe3man's entry:

    AdrianE [TC1 2008 (age 32), Teratoma stage I, surveillance] same time [TC2 2008, Seminoma stage 1, surveillance]

    Aegletes [TC1 1996 (age 30), seminoma stage I XRT] /+12 years [TC2 2008 (age 42), seminoma stage I surveillance]

    Andycoles [TC1 2006 (aged 30), seminoma Stage 1, right orchidectomy plus 1 dose Carboplatine], [TC2 2009 (aged 33), intratubular germ cell neplasia, left orchidectomy]

    Ariel [TC1 1999 (age 25), seminoma Stage 1, right orchiectomy, radiation, prosthetic]/+10 years [TC2 2009 (age 35), seminoma Stage 1, left orchiectomy, surveillance, prosthetic, 10mg androgel daily]

    Bipestuff [TC1 1983 (age 27), seminoma stage 1, Radiation] /+22 years [TC2 2005 (age 49), surveillance]

    BraveOne [TC 1 & 2 7/2009 (age 32). Pure Seminoma, bilateral orch and implants and surveillance only. 10mg androgel] Glad to be TC free!

    cbudd [{TC1: (age 21) July 2005 / Left orchiectomy/ Prostheses}
    {TC2: (age 27) May 2011 / Right orchiectomy (surgery is scheduled 6-1-11) / Cancer found in Lymph Nodes as well/ No Prostheses / Chemotherapy to come (if not more)}]

    Davepet [TC1 1975 (age20) Unknown type & stage, right I/O, RPLND] /+35 years \[TC2 2009 (age55) Mixed embryonal& seminoma, Left I/O, followed by 3xBEP]

    DoubleZero [TC1 2009 (age 40). Seminoma stage 1, radiation; TC2 2010 (age 41) teratoma stage 1, surveillance; 2010 relapse 3xBEP]

    dsomers74 [TC1: May 2000 (age 25) / Right orchiectomy / seminoma stage 1 / Radiation
    TC2: June 2010 (age 36) / Left orchiectomy / seminoma stage 1 / 1 Prostheses / Androgel 2X 5G packets]

    Fish [TC1 1988 (age 26), primarily embryonal cell carcinoma with teratoma & seminoma, Stage 1, RPLND, surveillance] /+15 years [TC2 2003 (age 42), pure seminoma, Stage 1, surveillance]

    greg_oz [TC1 1998 (age 24), embryonal carcinoma & seminoma, stage I, surveillance, recurrence 1999, 3xBEP] /+10 years [TC2 2008 (age 34), seminoma stage I, XRT]

    Groundhog [TC1 1988 (age 38), pure seminoma, stage 1, surveillance/ +21 1/2 years [TC2 2010 (age 59), pure seminoma, stage 1, surveillance. 5g testim]

    Healthnut [TC1 1995 (age 28), pure seminoma stage 1, radiation] / +8 years [TC2 2003 (age 35), pure seminoma stage 1, surveillance]

    Hugh [TC1 1989 (age 40), seminoma stage 1, radiation] / +21 years [TC2 2010 (age 61), seminoma stage 1, 1 x Carboplatin]

    joev [TC1 1998 (age 31), pure seminoma stage 1, RT] /+3 years [TC2 2001 (age 34), pure seminoma stage 1, surveillance]

    Joe3man [TC1 2006 (age 32), seminoma stage I-25 Rounds of Radiation] [TC2 2010 (age 36), seminoma stage I-surveillance]

    JonM [TC1 1997 (age 31), teratoma stage III, X4 BEP, X3 VIP, RPLND, x5 GAMEC, RPLND (2), LT] /+11 years [TC2 2008 (age 43), Stage 1 Seminoma, Right orchidectomy, x1 Carboplatin, Surveillance]

    Kiwi [TC1 2001 (age 36), seminoma stage 1, Radiation] /+7 years [TC2 2008 (age 43), seminoma stage 1, surveillance] two prosthetics

    LeePee [TC1 1992 (age 34), pure seminoma, left orchidectomy, Radiation] + 14 years [ TC2 2006 (age 48), seminoma stage 1, right orchidectomy, 1 dose carboplatine, surveillance] two x prosthetics

    LeeR [TC1 1997 (age 30), seminoma stage 1, Radiotherapy] /+12 years [TC2 2009 (age 42) seminoma stage 1, 1x carboplatin] In between episodes had two boys to add to a daughter.

    lindsayn [TC1 May 2000 (age 24), seminoma Stage 1, radiotherapy - right side; TC2 October 2010, seminoma Stage 1, surveillance at this stage - left)

    Marc311978 [TC1 1997 (age 18), seminoma stage 1, Radiation] /+12 years [TC2 2009 (age 31) seminoma stage 1, surveillance]

    pcwilson [TC1 1997 (aged 27), teratoma, stage I, surveillance] /+10 years [TC2 2007 (aged 38), seminoma stage I, surveillance]

    Perk, TC1 2001, seminoma, teratoma, embryonal carcinoma, uncertain type, Stage 1, lymph node dissection (negative 2001), surveillance. TC2 2006, embryonal carcinoma, seminoma, Stage 1, surveillance. AndroGel Pump...

    PISKOT (wife) TC1: 2005, pure seminoma, stage 1, left I/0, radiation (age 43), TC2: 2010, seminoma, right I/0 2xBEP), HRT Nebido (age 48)

    robert j [7/2009 TC in Both!) both seminoma stage 1, surveillance] (opted for 2 prosthetics at time of surgery, now on HRT bi-weekly self injection).

    Rosc [TC-1: 5/1990 (age 29). Seminoma some Embryonal, Left Orch. and surveillance. Appears in lymphnodes in 1992. RPLND using laparoscopy and then 6wks. radiation therapy. Clean until 2008. (TC-2 4/2008) age 46. Pure Seminoma. Right Orch. and chemo. (2X Carboplatin). HRT is weekly self IM injections with 100mg Cypionate. In between episodes had two children with wonderful wife.

    Schmitt313 (wife) [TC1 -left- 2006 (age 29), non-seminoma, stage 3, chemo 9 wks,] in between we had a healthy baby boy to add to our two daughters![ TC2 12/2008 (age 32) pure-seminoma, surveillance, two prosthetics, Testim]

    Smerd [TC1 Feb 2008 (age 30), Non-Seminoma with some Seminoma Stage 1] [TC2 October 2008 Seminoma Stage I] Partial Orch

    TC Runner: Left TC 5-2010 (age 35) 95% seminoma 5% non-seminoma lymphovascular involvement but confined to the testicle. Left I/O and surveillance. Right TC 11-2010 (age 36) 90% embryonal 10% seminoma lymphovascular involvement + 3 enlarged lymph staged 2B. Right I/O & Right prosthetic. January 2011 3 x BEP.

    Leave a comment:


  • joe3man
    replied
    Joe3man [TC1 2006 (age 32), seminoma stage I-25 Rounds of Radiation] [TC2 2010 (age 36), seminoma stage I-surveillance]

    Leave a comment:


  • TCRunner
    replied
    Just made an update to my post TCRunner. Forgot to put in the right I/O.

    THE LIST:

    AdrianE [TC1 2008 (age 32), Teratoma stage I, surveillance] same time [TC2 2008, Seminoma stage 1, surveillance]

    Aegletes [TC1 1996 (age 30), seminoma stage I XRT] /+12 years [TC2 2008 (age 42), seminoma stage I surveillance]

    Andycoles [TC1 2006 (aged 30), seminoma Stage 1, right orchidectomy plus 1 dose Carboplatine], [TC2 2009 (aged 33), intratubular germ cell neplasia, left orchidectomy]

    Ariel [TC1 1999 (age 25), seminoma Stage 1, right orchiectomy, radiation, prosthetic]/+10 years [TC2 2009 (age 35), seminoma Stage 1, left orchiectomy, surveillance, prosthetic, 10mg androgel daily]

    Bipestuff [TC1 1983 (age 27), seminoma stage 1, Radiation] /+22 years [TC2 2005 (age 49), surveillance]

    BraveOne [TC 1 & 2 7/2009 (age 32). Pure Seminoma, bilateral orch and implants and surveillance only. 10mg androgel] Glad to be TC free!

    cbudd [{TC1: (age 21) July 2005 / Left orchiectomy/ Prostheses}
    {TC2: (age 27) May 2011 / Right orchiectomy (surgery is scheduled 6-1-11) / Cancer found in Lymph Nodes as well/ No Prostheses / Chemotherapy to come (if not more)}]

    Davepet [TC1 1975 (age20) Unknown type & stage, right I/O, RPLND] /+35 years \[TC2 2009 (age55) Mixed embryonal& seminoma, Left I/O, followed by 3xBEP]

    DoubleZero [TC1 2009 (age 40). Seminoma stage 1, radiation; TC2 2010 (age 41) teratoma stage 1, surveillance; 2010 relapse 3xBEP]

    dsomers74 [TC1: May 2000 (age 25) / Right orchiectomy / seminoma stage 1 / Radiation
    TC2: June 2010 (age 36) / Left orchiectomy / seminoma stage 1 / 1 Prostheses / Androgel 2X 5G packets]

    Fish [TC1 1988 (age 26), primarily embryonal cell carcinoma with teratoma & seminoma, Stage 1, RPLND, surveillance] /+15 years [TC2 2003 (age 42), pure seminoma, Stage 1, surveillance]

    greg_oz [TC1 1998 (age 24), embryonal carcinoma & seminoma, stage I, surveillance, recurrence 1999, 3xBEP] /+10 years [TC2 2008 (age 34), seminoma stage I, XRT]

    Groundhog [TC1 1988 (age 38), pure seminoma, stage 1, surveillance/ +21 1/2 years [TC2 2010 (age 59), pure seminoma, stage 1, surveillance. 5g testim]

    Healthnut [TC1 1995 (age 28), pure seminoma stage 1, radiation] / +8 years [TC2 2003 (age 35), pure seminoma stage 1, surveillance]

    Hugh [TC1 1989 (age 40), seminoma stage 1, radiation] / +21 years [TC2 2010 (age 61), seminoma stage 1, 1 x Carboplatin]

    joev [TC1 1998 (age 31), pure seminoma stage 1, RT] /+3 years [TC2 2001 (age 34), pure seminoma stage 1, surveillance]

    JonM [TC1 1997 (age 31), teratoma stage III, X4 BEP, X3 VIP, RPLND, x5 GAMEC, RPLND (2), LT] /+11 years [TC2 2008 (age 43), Stage 1 Seminoma, Right orchidectomy, x1 Carboplatin, Surveillance]

    Kiwi [TC1 2001 (age 36), seminoma stage 1, Radiation] /+7 years [TC2 2008 (age 43), seminoma stage 1, surveillance] two prosthetics

    LeePee [TC1 1992 (age 34), pure seminoma, left orchidectomy, Radiation] + 14 years [ TC2 2006 (age 48), seminoma stage 1, right orchidectomy, 1 dose carboplatine, surveillance] two x prosthetics

    LeeR [TC1 1997 (age 30), seminoma stage 1, Radiotherapy] /+12 years [TC2 2009 (age 42) seminoma stage 1, 1x carboplatin] In between episodes had two boys to add to a daughter.

    lindsayn [TC1 May 2000 (age 24), seminoma Stage 1, radiotherapy - right side; TC2 October 2010, seminoma Stage 1, surveillance at this stage - left)

    Marc311978 [TC1 1997 (age 18), seminoma stage 1, Radiation] /+12 years [TC2 2009 (age 31) seminoma stage 1, surveillance]

    pcwilson [TC1 1997 (aged 27), teratoma, stage I, surveillance] /+10 years [TC2 2007 (aged 38), seminoma stage I, surveillance]

    Perk, TC1 2001, seminoma, teratoma, embryonal carcinoma, uncertain type, Stage 1, lymph node dissection (negative 2001), surveillance. TC2 2006, embryonal carcinoma, seminoma, Stage 1, surveillance. AndroGel Pump...

    PISKOT (wife) TC1: 2005, pure seminoma, stage 1, left I/0, radiation (age 43), TC2: 2010, seminoma, right I/0 2xBEP), HRT Nebido (age 48)

    robert j [7/2009 TC in Both!) both seminoma stage 1, surveillance] (opted for 2 prosthetics at time of surgery, now on HRT bi-weekly self injection).

    Rosc [TC-1: 5/1990 (age 29). Seminoma some Embryonal, Left Orch. and surveillance. Appears in lymphnodes in 1992. RPLND using laparoscopy and then 6wks. radiation therapy. Clean until 2008. (TC-2 4/2008) age 46. Pure Seminoma. Right Orch. and chemo. (2X Carboplatin). HRT is weekly self IM injections with 100mg Cypionate. In between episodes had two children with wonderful wife.

    Schmitt313 (wife) [TC1 -left- 2006 (age 29), non-seminoma, stage 3, chemo 9 wks,] in between we had a healthy baby boy to add to our two daughters![ TC2 12/2008 (age 32) pure-seminoma, surveillance, two prosthetics, Testim]

    Smerd [TC1 Feb 2008 (age 30), Non-Seminoma with some Seminoma Stage 1] [TC2 October 2008 Seminoma Stage I] Partial Orch

    TC Runner: Left TC 5-2010 (age 35) 95% seminoma 5% non-seminoma lymphovascular involvement but confined to the testicle. Left I/O and surveillance. Right TC 11-2010 (age 36) 90% embryonal 10% seminoma lymphovascular involvement + 3 enlarged lymph staged 2B. Right I/O & Right prosthetic. January 2011 3 x BEP.

    Leave a comment:


  • Kiwi
    replied
    Just added TC Runner into full list - cheers Kiwi

    THE LIST:

    AdrianE [TC1 2008 (age 32), Teratoma stage I, surveillance] same time [TC2 2008, Seminoma stage 1, surveillance]

    Aegletes [TC1 1996 (age 30), seminoma stage I XRT] /+12 years [TC2 2008 (age 42), seminoma stage I surveillance]

    Andycoles [TC1 2006 (aged 30), seminoma Stage 1, right orchidectomy plus 1 dose Carboplatine], [TC2 2009 (aged 33), intratubular germ cell neplasia, left orchidectomy]

    Ariel [TC1 1999 (age 25), seminoma Stage 1, right orchiectomy, radiation, prosthetic]/+10 years [TC2 2009 (age 35), seminoma Stage 1, left orchiectomy, surveillance, prosthetic, 10mg androgel daily]

    Bipestuff [TC1 1983 (age 27), seminoma stage 1, Radiation] /+22 years [TC2 2005 (age 49), surveillance]

    BraveOne [TC 1 & 2 7/2009 (age 32). Pure Seminoma, bilateral orch and implants and surveillance only. 10mg androgel] Glad to be TC free!

    cbudd [{TC1: (age 21) July 2005 / Left orchiectomy/ Prostheses}
    {TC2: (age 27) May 2011 / Right orchiectomy (surgery is scheduled 6-1-11) / Cancer found in Lymph Nodes as well/ No Prostheses / Chemotherapy to come (if not more)}]

    Davepet [TC1 1975 (age20) Unknown type & stage, right I/O, RPLND] /+35 years \[TC2 2009 (age55) Mixed embryonal& seminoma, Left I/O, followed by 3xBEP]

    DoubleZero [TC1 2009 (age 40). Seminoma stage 1, radiation; TC2 2010 (age 41) teratoma stage 1, surveillance; 2010 relapse 3xBEP]

    dsomers74 [TC1: May 2000 (age 25) / Right orchiectomy / seminoma stage 1 / Radiation
    TC2: June 2010 (age 36) / Left orchiectomy / seminoma stage 1 / 1 Prostheses / Androgel 2X 5G packets]

    Fish [TC1 1988 (age 26), primarily embryonal cell carcinoma with teratoma & seminoma, Stage 1, RPLND, surveillance] /+15 years [TC2 2003 (age 42), pure seminoma, Stage 1, surveillance]

    greg_oz [TC1 1998 (age 24), embryonal carcinoma & seminoma, stage I, surveillance, recurrence 1999, 3xBEP] /+10 years [TC2 2008 (age 34), seminoma stage I, XRT]

    Groundhog [TC1 1988 (age 38), pure seminoma, stage 1, surveillance/ +21 1/2 years [TC2 2010 (age 59), pure seminoma, stage 1, surveillance. 5g testim]

    Healthnut [TC1 1995 (age 28), pure seminoma stage 1, radiation] / +8 years [TC2 2003 (age 35), pure seminoma stage 1, surveillance]

    Hugh [TC1 1989 (age 40), seminoma stage 1, radiation] / +21 years [TC2 2010 (age 61), seminoma stage 1, 1 x Carboplatin]

    joev [TC1 1998 (age 31), pure seminoma stage 1, RT] /+3 years [TC2 2001 (age 34), pure seminoma stage 1, surveillance]

    JonM [TC1 1997 (age 31), teratoma stage III, X4 BEP, X3 VIP, RPLND, x5 GAMEC, RPLND (2), LT] /+11 years [TC2 2008 (age 43), Stage 1 Seminoma, Right orchidectomy, x1 Carboplatin, Surveillance]

    Kiwi [TC1 2001 (age 36), seminoma stage 1, Radiation] /+7 years [TC2 2008 (age 43), seminoma stage 1, surveillance] two prosthetics

    LeePee [TC1 1992 (age 34), pure seminoma, left orchidectomy, Radiation] + 14 years [ TC2 2006 (age 48), seminoma stage 1, right orchidectomy, 1 dose carboplatine, surveillance] two x prosthetics

    LeeR [TC1 1997 (age 30), seminoma stage 1, Radiotherapy] /+12 years [TC2 2009 (age 42) seminoma stage 1, 1x carboplatin] In between episodes had two boys to add to a daughter.

    lindsayn [TC1 May 2000 (age 24), seminoma Stage 1, radiotherapy - right side; TC2 October 2010, seminoma Stage 1, surveillance at this stage - left)

    Marc311978 [TC1 1997 (age 18), seminoma stage 1, Radiation] /+12 years [TC2 2009 (age 31) seminoma stage 1, surveillance]

    pcwilson [TC1 1997 (aged 27), teratoma, stage I, surveillance] /+10 years [TC2 2007 (aged 38), seminoma stage I, surveillance]

    Perk, TC1 2001, seminoma, teratoma, embryonal carcinoma, uncertain type, Stage 1, lymph node dissection (negative 2001), surveillance. TC2 2006, embryonal carcinoma, seminoma, Stage 1, surveillance. AndroGel Pump...

    PISKOT (wife) TC1: 2005, pure seminoma, stage 1, left I/0, radiation (age 43), TC2: 2010, seminoma, right I/0 2xBEP), HRT Nebido (age 48)

    robert j [7/2009 TC in Both!) both seminoma stage 1, surveillance] (opted for 2 prosthetics at time of surgery, now on HRT bi-weekly self injection).

    Rosc [TC-1: 5/1990 (age 29). Seminoma some Embryonal, Left Orch. and surveillance. Appears in lymphnodes in 1992. RPLND using laparoscopy and then 6wks. radiation therapy. Clean until 2008. (TC-2 4/2008) age 46. Pure Seminoma. Right Orch. and chemo. (2X Carboplatin). HRT is weekly self IM injections with 100mg Cypionate. In between episodes had two children with wonderful wife.

    Schmitt313 (wife) [TC1 -left- 2006 (age 29), non-seminoma, stage 3, chemo 9 wks,] in between we had a healthy baby boy to add to our two daughters![ TC2 12/2008 (age 32) pure-seminoma, surveillance, two prosthetics, Testim]

    Smerd [TC1 Feb 2008 (age 30), Non-Seminoma with some Seminoma Stage 1] [TC2 October 2008 Seminoma Stage I] Partial Orch

    TC Runner: Left TC 5-2010 (age 35) 95% seminoma 5% non-seminoma lymphovascular involvement but confined to the testicle. Left I/O and surveillance. Right TC 11-2010 (age 36) 90% embryonal 10% seminoma lymphovascular involvement + 3 enlarged lymph staged 2B. January 2011 3 x BEP.

    Leave a comment:


  • TCRunner
    replied
    TC Runner: Left TC 5-2010 (age 35) 95% seminoma 5% non-seminoma lymphovascular involvement but confined to the testicle. Left I/O and surveillance. Right TC 11-2010 (age 36) 90% embryonal 10% seminoma lymphovascular involvement + 3 enlarged lymph staged 2B. January 2011 3 x BEP.

    Leave a comment:


  • cbudd
    replied
    another to the list of TC2

    Well looking through the list, it looks like i am the youngest TC2 at this point (age 27).
    TC1: (age 21) July 2005 / Left orchiectomy/ Prostheses
    TC2: (age 27) May 2011 / Right orchiectomy (surgery is scheduled 6-1-11) / Cancer found in Lymph Nodes as well/ No Prostheses / Chemotherapy to come (if not more)


    THE LIST:

    AdrianE [TC1 2008 (age 32), Teratoma stage I, surveillance] same time [TC2 2008, Seminoma stage 1, surveillance]

    Aegletes [TC1 1996 (age 30), seminoma stage I XRT] /+12 years [TC2 2008 (age 42), seminoma stage I surveillance]

    Andycoles [TC1 2006 (aged 30), seminoma Stage 1, right orchidectomy plus 1 dose Carboplatine], [TC2 2009 (aged 33), intratubular germ cell neplasia, left orchidectomy]

    Ariel [TC1 1999 (age 25), seminoma Stage 1, right orchiectomy, radiation, prosthetic]/+10 years [TC2 2009 (age 35), seminoma Stage 1, left orchiectomy, surveillance, prosthetic, 10mg androgel daily]

    Bipestuff [TC1 1983 (age 27), seminoma stage 1, Radiation] /+22 years [TC2 2005 (age 49), surveillance]

    BraveOne [TC 1 & 2 7/2009 (age 32). Pure Seminoma, bilateral orch and implants and surveillance only. 10mg androgel] Glad to be TC free!

    cbudd [{TC1: (age 21) July 2005 / Left orchiectomy/ Prostheses}
    {TC2: (age 27) May 2011 / Right orchiectomy (surgery is scheduled 6-1-11) / Cancer found in Lymph Nodes as well/ No Prostheses / Chemotherapy to come (if not more)}]

    Davepet [TC1 1975 (age20) Unknown type & stage, right I/O, RPLND] /+35 years \[TC2 2009 (age55) Mixed embryonal& seminoma, Left I/O, followed by 3xBEP]

    DoubleZero [TC1 2009 (age 40). Seminoma stage 1, radiation; TC2 2010 (age 41) teratoma stage 1, surveillance; 2010 relapse 3xBEP]

    dsomers74 [TC1: May 2000 (age 25) / Right orchiectomy / seminoma stage 1 / Radiation
    TC2: June 2010 (age 36) / Left orchiectomy / seminoma stage 1 / 1 Prostheses / Androgel 2X 5G packets]

    Fish [TC1 1988 (age 26), primarily embryonal cell carcinoma with teratoma & seminoma, Stage 1, RPLND, surveillance] /+15 years [TC2 2003 (age 42), pure seminoma, Stage 1, surveillance]

    greg_oz [TC1 1998 (age 24), embryonal carcinoma & seminoma, stage I, surveillance, recurrence 1999, 3xBEP] /+10 years [TC2 2008 (age 34), seminoma stage I, XRT]

    Groundhog [TC1 1988 (age 38), pure seminoma, stage 1, surveillance/ +21 1/2 years [TC2 2010 (age 59), pure seminoma, stage 1, surveillance. 5g testim]

    Healthnut [TC1 1995 (age 28), pure seminoma stage 1, radiation] / +8 years [TC2 2003 (age 35), pure seminoma stage 1, surveillance]

    Hugh [TC1 1989 (age 40), seminoma stage 1, radiation] / +21 years [TC2 2010 (age 61), seminoma stage 1, 1 x Carboplatin]

    joev [TC1 1998 (age 31), pure seminoma stage 1, RT] /+3 years [TC2 2001 (age 34), pure seminoma stage 1, surveillance]

    JonM [TC1 1997 (age 31), teratoma stage III, X4 BEP, X3 VIP, RPLND, x5 GAMEC, RPLND (2), LT] /+11 years [TC2 2008 (age 43), Stage 1 Seminoma, Right orchidectomy, x1 Carboplatin, Surveillance]

    Kiwi [TC1 2001 (age 36), seminoma stage 1, Radiation] /+7 years [TC2 2008 (age 43), seminoma stage 1, surveillance] two prosthetics

    LeePee [TC1 1992 (age 34), pure seminoma, left orchidectomy, Radiation] + 14 years [ TC2 2006 (age 48), seminoma stage 1, right orchidectomy, 1 dose carboplatine, surveillance] two x prosthetics

    LeeR [TC1 1997 (age 30), seminoma stage 1, Radiotherapy] /+12 years [TC2 2009 (age 42) seminoma stage 1, 1x carboplatin] In between episodes had two boys to add to a daughter.

    lindsayn [TC1 May 2000 (age 24), seminoma Stage 1, radiotherapy - right side; TC2 October 2010, seminoma Stage 1, surveillance at this stage - left)

    Marc311978 [TC1 1997 (age 18), seminoma stage 1, Radiation] /+12 years [TC2 2009 (age 31) seminoma stage 1, surveillance]

    pcwilson [TC1 1997 (aged 27), teratoma, stage I, surveillance] /+10 years [TC2 2007 (aged 38), seminoma stage I, surveillance]

    Perk, TC1 2001, seminoma, teratoma, embryonal carcinoma, uncertain type, Stage 1, lymph node dissection (negative 2001), surveillance. TC2 2006, embryonal carcinoma, seminoma, Stage 1, surveillance. AndroGel Pump...

    PISKOT (wife) TC1: 2005, pure seminoma, stage 1, left I/0, radiation (age 43), TC2: 2010, seminoma, right I/0 2xBEP), HRT Nebido (age 48)

    robert j [7/2009 TC in Both!) both seminoma stage 1, surveillance] (opted for 2 prosthetics at time of surgery, now on HRT bi-weekly self injection).

    Rosc [TC-1: 5/1990 (age 29). Seminoma some Embryonal, Left Orch. and surveillance. Appears in lymphnodes in 1992. RPLND using laparoscopy and then 6wks. radiation therapy. Clean until 2008. (TC-2 4/2008) age 46. Pure Seminoma. Right Orch. and chemo. (2X Carboplatin). HRT is weekly self IM injections with 100mg Cypionate. In between episodes had two children with wonderful wife.

    Schmitt313 (wife) [TC1 -left- 2006 (age 29), non-seminoma, stage 3, chemo 9 wks,] in between we had a healthy baby boy to add to our two daughters![ TC2 12/2008 (age 32) pure-seminoma, surveillance, two prosthetics, Testim]

    Smerd [TC1 Feb 2008 (age 30), Non-Seminoma with some Seminoma Stage 1] [TC2 October 2008 Seminoma Stage I] Partial Orch

    Leave a comment:


  • Hugh
    replied
    34with1 [fake TC1 1975 (age 6 mos), preventative right orchidectomy]/+34.5 years [real TC1 2010 (age 35), seminoma stage 3, left orchidectomy and 4xBEP] Infertility+TRT (Testim gel) since age 30, so wife and I adopted 3 kids.

    AdrianE [TC1 2008 (age 32), Teratoma stage I, surveillance] same time [TC2 2008, Seminoma stage 1, surveillance]

    Aegletes [TC1 1996 (age 30), seminoma stage I XRT] /+12 years [TC2 2008 (age 42), seminoma stage I surveillance]

    Andycoles [TC1 2006 (aged 30), seminoma Stage 1, right orchidectomy plus 1 dose Carboplatine], [TC2 2009 (aged 33), intratubular germ cell neplasia, left orchidectomy]

    Ariel [TC1 1999 (age 25), seminoma Stage 1, right orchiectomy, radiation, prosthetic]/+10 years [TC2 2009 (age 35), seminoma Stage 1, left orchiectomy, surveillance, prosthetic, 10mg androgel daily]

    Bipestuff [TC1 1983 (age 27), seminoma stage 1, Radiation] /+22 years [TC2 2005 (age 49), surveillance]

    BraveOne [TC 1 & 2 7/2009 (age 32). Pure Seminoma, bilateral orch and implants and surveillance only. 10mg androgel] Glad to be TC free!

    Davepet [TC1 1975 (age20) Unknown type & stage, right I/O, RPLND] /+35 years \[TC2 2009 (age55) Mixed embryonal& seminoma, Left I/O, followed by 3xBEP]

    DoubleZero [TC1 2009 (age 40). Seminoma stage 1, radiation; TC2 2010 (age 41) teratoma stage 1, surveillance; 2010 relapse 3xBEP]

    dsomers74 [TC1: May 2000 (age 25) / Right orchiectomy / seminoma stage 1 / Radiation
    TC2: June 2010 (age 36) / Left orchiectomy / seminoma stage 1 / 1 Prostheses / Androgel 2X 5G packets]

    Fish [TC1 1988 (age 26), primarily embryonal cell carcinoma with teratoma & seminoma, Stage 1, RPLND, surveillance] /+15 years [TC2 2003 (age 42), pure seminoma, Stage 1, surveillance]

    greg_oz [TC1 1998 (age 24), embryonal carcinoma & seminoma, stage I, surveillance, recurrence 1999, 3xBEP] /+10 years [TC2 2008 (age 34), seminoma stage I, XRT]

    Groundhog [TC1 1988 (age 38), pure seminoma, stage 1, surveillance/ +21 1/2 years [TC2 2010 (age 59), pure seminoma, stage 1, surveillance. 5g testim]

    Healthnut [TC1 1995 (age 28), pure seminoma stage 1, radiation] / +8 years [TC2 2003 (age 35), pure seminoma stage 1, surveillance]

    Hugh [TC1 1989 (age 40), seminoma stage 1, radiation] / +21 years [TC2 2010 (age 61), seminoma stage 1, 1 x Carboplatin]

    joev [TC1 1998 (age 31), pure seminoma stage 1, RT] /+3 years [TC2 2001 (age 34), pure seminoma stage 1, surveillance]

    JonM [TC1 1997 (age 31), teratoma stage III, X4 BEP, X3 VIP, RPLND, x5 GAMEC, RPLND (2), LT] /+11 years [TC2 2008 (age 43), Stage 1 Seminoma, Right orchidectomy, x1 Carboplatin, Surveillance]

    Kiwi [TC1 2001 (age 36), seminoma stage 1, Radiation] /+7 years [TC2 2008 (age 43), seminoma stage 1, surveillance] two prosthetics

    LeePee [TC1 1992 (age 34), pure seminoma, left orchidectomy, Radiation] + 14 years [ TC2 2006 (age 48), seminoma stage 1, right orchidectomy, 1 dose carboplatine, surveillance] two x prosthetics

    LeeR [TC1 1997 (age 30), seminoma stage 1, Radiotherapy] /+12 years [TC2 2009 (age 42) seminoma stage 1, 1x carboplatin] In between episodes had two boys to add to a daughter.

    lindsayn [TC1 May 2000 (age 24), seminoma Stage 1, radiotherapy - right side; TC2 October 2010, seminoma Stage 1, surveillance at this stage - left)

    Marc311978 [TC1 1997 (age 18), seminoma stage 1, Radiation] /+12 years [TC2 2009 (age 31) seminoma stage 1, surveillance]

    pcwilson [TC1 1997 (aged 27), teratoma, stage I, surveillance] /+10 years [TC2 2007 (aged 38), seminoma stage I, surveillance]

    Perk, TC1 2001, seminoma, teratoma, embryonal carcinoma, uncertain type, Stage 1, lymph node dissection (negative 2001), surveillance. TC2 2006, embryonal carcinoma, seminoma, Stage 1, surveillance. AndroGel Pump...

    PISKOT (wife) TC1: 2005, pure seminoma, stage 1, left I/0, radiation (age 43), TC2: 2010, seminoma, right I/0 2xBEP), HRT Nebido (age 48)

    robert j [7/2009 TC in Both!) both seminoma stage 1, surveillance] (opted for 2 prosthetics at time of surgery, now on HRT bi-weekly self injection).

    Rosc [TC-1: 5/1990 (age 29). Seminoma some Embryonal, Left Orch. and surveillance. Appears in lymphnodes in 1992. RPLND using laparoscopy and then 6wks. radiation therapy. Clean until 2008. (TC-2 4/2008) age 46. Pure Seminoma. Right Orch. and chemo. (2X Carboplatin). HRT is weekly self IM injections with 100mg Cypionate. In between episodes had two children with wonderful wife.

    Schmitt313 (wife) [TC1 -left- 2006 (age 29), non-seminoma, stage 3, chemo 9 wks,] in between we had a healthy baby boy to add to our two daughters![ TC2 12/2008 (age 32) pure-seminoma, surveillance, two prosthetics, Testim]

    Smerd [TC1 Feb 2008 (age 30), Non-Seminoma with some Seminoma Stage 1] [TC2 October 2008 Seminoma Stage I] Partial Orch

    Leave a comment:


  • dsomers74
    replied
    34with1 [fake TC1 1975 (age 6 mos), preventative right orchidectomy]/+34.5 years [real TC1 2010 (age 35), seminoma stage 3, left orchidectomy and 4xBEP] Infertility+TRT (Testim gel) since age 30, so wife and I adopted 3 kids.

    AdrianE [TC1 2008 (age 32), Teratoma stage I, surveillance] same time [TC2 2008, Seminoma stage 1, surveillance]

    Aegletes [TC1 1996 (age 30), seminoma stage I XRT] /+12 years [TC2 2008 (age 42), seminoma stage I surveillance]

    Andycoles [TC1 2006 (aged 30), seminoma Stage 1, right orchidectomy plus 1 dose Carboplatine], [TC2 2009 (aged 33), intratubular germ cell neplasia, left orchidectomy]

    Ariel [TC1 1999 (age 25), seminoma Stage 1, right orchiectomy, radiation, prosthetic]/+10 years [TC2 2009 (age 35), seminoma Stage 1, left orchiectomy, surveillance, prosthetic, 10mg androgel daily]

    Bipestuff [TC1 1983 (age 27), seminoma stage 1, Radiation] /+22 years [TC2 2005 (age 49), surveillance]

    BraveOne [TC 1 & 2 7/2009 (age 32). Pure Seminoma, bilateral orch and implants and surveillance only. 10mg androgel] Glad to be TC free!

    Davepet [TC1 1975 (age20) Unknown type & stage, right I/O, RPLND] /+35 years \[TC2 2009 (age55) Mixed embryonal& seminoma, Left I/O, followed by 3xBEP]

    DoubleZero [TC1 2009 (age 40). Seminoma stage 1, radiation; TC2 2010 (age 41) teratoma stage 1, surveillance; 2010 relapse 3xBEP]

    dsomers74 [TC1: May 2000 (age 25) / Right orchiectomy / seminoma stage 1 / Radiation
    TC2: June 2010 (age 36) / Left orchiectomy / seminoma stage 1 / 1 Prostheses / Androgel 2X 5G packets]

    Fish [TC1 1988 (age 26), primarily embryonal cell carcinoma with teratoma & seminoma, Stage 1, RPLND, surveillance] /+15 years [TC2 2003 (age 42), pure seminoma, Stage 1, surveillance]

    greg_oz [TC1 1998 (age 24), embryonal carcinoma & seminoma, stage I, surveillance, recurrence 1999, 3xBEP] /+10 years [TC2 2008 (age 34), seminoma stage I, XRT]

    Groundhog [TC1 1988 (age 38), pure seminoma, stage 1, surveillance/ +21 1/2 years [TC2 2010 (age 59), pure seminoma, stage 1, surveillance. 5g testim]

    Healthnut [TC1 1995 (age 28), pure seminoma stage 1, radiation] / +8 years [TC2 2003 (age 35), pure seminoma stage 1, surveillance]

    joev [TC1 1998 (age 31), pure seminoma stage 1, RT] /+3 years [TC2 2001 (age 34), pure seminoma stage 1, surveillance]

    JonM [TC1 1997 (age 31), teratoma stage III, X4 BEP, X3 VIP, RPLND, x5 GAMEC, RPLND (2), LT] /+11 years [TC2 2008 (age 43), Stage 1 Seminoma, Right orchidectomy, x1 Carboplatin, Surveillance]

    Kiwi [TC1 2001 (age 36), seminoma stage 1, Radiation] /+7 years [TC2 2008 (age 43), seminoma stage 1, surveillance] two prosthetics

    LeePee [TC1 1992 (age 34), pure seminoma, left orchidectomy, Radiation] + 14 years [ TC2 2006 (age 48), seminoma stage 1, right orchidectomy, 1 dose carboplatine, surveillance] two x prosthetics

    LeeR [TC1 1997 (age 30), seminoma stage 1, Radiotherapy] /+12 years [TC2 2009 (age 42) seminoma stage 1, 1x carboplatin] In between episodes had two boys to add to a daughter.

    lindsayn [TC1 May 2000 (age 24), seminoma Stage 1, radiotherapy - right side; TC2 October 2010, seminoma Stage 1, surveillance at this stage - left)

    Marc311978 [TC1 1997 (age 18), seminoma stage 1, Radiation] /+12 years [TC2 2009 (age 31) seminoma stage 1, surveillance]

    pcwilson [TC1 1997 (aged 27), teratoma, stage I, surveillance] /+10 years [TC2 2007 (aged 38), seminoma stage I, surveillance]

    Perk, TC1 2001, seminoma, teratoma, embryonal carcinoma, uncertain type, Stage 1, lymph node dissection (negative 2001), surveillance. TC2 2006, embryonal carcinoma, seminoma, Stage 1, surveillance. AndroGel Pump...

    PISKOT (wife) TC1: 2005, pure seminoma, stage 1, left I/0, radiation (age 43), TC2: 2010, seminoma, right I/0 2xBEP), HRT Nebido (age 48)

    robert j [7/2009 TC in Both!) both seminoma stage 1, surveillance] (opted for 2 prosthetics at time of surgery, now on HRT bi-weekly self injection).

    Rosc [TC-1: 5/1990 (age 29). Seminoma some Embryonal, Left Orch. and surveillance. Appears in lymphnodes in 1992. RPLND using laparoscopy and then 6wks. radiation therapy. Clean until 2008. (TC-2 4/2008) age 46. Pure Seminoma. Right Orch. and chemo. (2X Carboplatin). HRT is weekly self IM injections with 100mg Cypionate. In between episodes had two children with wonderful wife.

    Schmitt313 (wife) [TC1 -left- 2006 (age 29), non-seminoma, stage 3, chemo 9 wks,] in between we had a healthy baby boy to add to our two daughters![ TC2 12/2008 (age 32) pure-seminoma, surveillance, two prosthetics, Testim]

    Smerd [TC1 Feb 2008 (age 30), Non-Seminoma with some Seminoma Stage 1] [TC2 October 2008 Seminoma Stage I] Partial Orch

    Leave a comment:


  • DoubleZero
    replied
    34with1 [fake TC1 1975 (age 6 mos), preventative right orchidectomy]/+34.5 years [real TC1 2010 (age 35), seminoma stage 3, left orchidectomy and 4xBEP] Infertility+TRT (Testim gel) since age 30, so wife and I adopted 3 kids.

    AdrianE [TC1 2008 (age 32), Teratoma stage I, surveillance] same time [TC2 2008, Seminoma stage 1, surveillance]

    Aegletes [TC1 1996 (age 30), seminoma stage I XRT] /+12 years [TC2 2008 (age 42), seminoma stage I surveillance]

    Andycoles [TC1 2006 (aged 30), seminoma Stage 1, right orchidectomy plus 1 dose Carboplatine], [TC2 2009 (aged 33), intratubular germ cell neplasia, left orchidectomy]

    Ariel [TC1 1999 (age 25), seminoma Stage 1, right orchiectomy, radiation, prosthetic]/+10 years [TC2 2009 (age 35), seminoma Stage 1, left orchiectomy, surveillance, prosthetic, 10mg androgel daily]

    Bipestuff [TC1 1983 (age 27), seminoma stage 1, Radiation] /+22 years [TC2 2005 (age 49), surveillance]

    BraveOne [TC 1 & 2 7/2009 (age 32). Pure Seminoma, bilateral orch and implants and surveillance only. 10mg androgel] Glad to be TC free!

    Davepet [TC1 1975 (age20) Unknown type & stage, right I/O, RPLND] /+35 years \[TC2 2009 (age55) Mixed embryonal& seminoma, Left I/O, followed by 3xBEP]

    DoubleZero [TC1 2009 (age 40). Seminoma stage 1, radiation; TC2 2010 (age 41) teratoma stage 1, surveillance; 2010 relapse 3xBEP]

    Fish [TC1 1988 (age 26), primarily embryonal cell carcinoma with teratoma & seminoma, Stage 1, RPLND, surveillance] /+15 years [TC2 2003 (age 42), pure seminoma, Stage 1, surveillance]

    greg_oz [TC1 1998 (age 24), embryonal carcinoma & seminoma, stage I, surveillance, recurrence 1999, 3xBEP] /+10 years [TC2 2008 (age 34), seminoma stage I, XRT]

    Groundhog [TC1 1988 (age 38), pure seminoma, stage 1, surveillance/ +21 1/2 years [TC2 2010 (age 59), pure seminoma, stage 1, surveillance. 5g testim]

    Healthnut [TC1 1995 (age 28), pure seminoma stage 1, radiation] / +8 years [TC2 2003 (age 35), pure seminoma stage 1, surveillance]

    joev [TC1 1998 (age 31), pure seminoma stage 1, RT] /+3 years [TC2 2001 (age 34), pure seminoma stage 1, surveillance]

    JonM [TC1 1997 (age 31), teratoma stage III, X4 BEP, X3 VIP, RPLND, x5 GAMEC, RPLND (2), LT] /+11 years [TC2 2008 (age 43), Stage 1 Seminoma, Right orchidectomy, x1 Carboplatin, Surveillance]

    Kiwi [TC1 2001 (age 36), seminoma stage 1, Radiation] /+7 years [TC2 2008 (age 43), seminoma stage 1, surveillance] two prosthetics

    LeePee [TC1 1992 (age 34), pure seminoma, left orchidectomy, Radiation] + 14 years [ TC2 2006 (age 48), seminoma stage 1, right orchidectomy, 1 dose carboplatine, surveillance] two x prosthetics

    LeeR [TC1 1997 (age 30), seminoma stage 1, Radiotherapy] /+12 years [TC2 2009 (age 42) seminoma stage 1, 1x carboplatin] In between episodes had two boys to add to a daughter.

    lindsayn [TC1 May 2000 (age 24), seminoma Stage 1, radiotherapy - right side; TC2 October 2010, seminoma Stage 1, surveillance at this stage - left)

    Marc311978 [TC1 1997 (age 18), seminoma stage 1, Radiation] /+12 years [TC2 2009 (age 31) seminoma stage 1, surveillance]

    pcwilson [TC1 1997 (aged 27), teratoma, stage I, surveillance] /+10 years [TC2 2007 (aged 38), seminoma stage I, surveillance]

    Perk, TC1 2001, seminoma, teratoma, embryonal carcinoma, uncertain type, Stage 1, lymph node dissection (negative 2001), surveillance. TC2 2006, embryonal carcinoma, seminoma, Stage 1, surveillance. AndroGel Pump...

    PISKOT (wife) TC1: 2005, pure seminoma, stage 1, left I/0, radiation (age 43), TC2: 2010, seminoma, right I/0 2xBEP), HRT Nebido (age 48)

    robert j [7/2009 TC in Both!) both seminoma stage 1, surveillance] (opted for 2 prosthetics at time of surgery, now on HRT bi-weekly self injection).

    Rosc [TC-1: 5/1990 (age 29). Seminoma some Embryonal, Left Orch. and surveillance. Appears in lymphnodes in 1992. RPLND using laparoscopy and then 6wks. radiation therapy. Clean until 2008. (TC-2 4/2008) age 46. Pure Seminoma. Right Orch. and chemo. (2X Carboplatin). HRT is weekly self IM injections with 100mg Cypionate. In between episodes had two children with wonderful wife.

    Schmitt313 (wife) [TC1 -left- 2006 (age 29), non-seminoma, stage 3, chemo 9 wks,] in between we had a healthy baby boy to add to our two daughters![ TC2 12/2008 (age 32) pure-seminoma, surveillance, two prosthetics, Testim]

    Smerd [TC1 Feb 2008 (age 30), Non-Seminoma with some Seminoma Stage 1] [TC2 October 2008 Seminoma Stage I] Partial Orch

    Leave a comment:


  • Piskot
    replied
    34with1 [fake TC1 1975 (age 6 mos), preventative right orchidectomy]/+34.5 years [real TC1 2010 (age 35), seminoma stage 3, left orchidectomy and 4xBEP] Infertility+TRT (Testim gel) since age 30, so wife and I adopted 3 kids.

    AdrianE [TC1 2008 (age 32), Teratoma stage I, surveillance] same time [TC2 2008, Seminoma stage 1, surveillance]

    Aegletes [TC1 1996 (age 30), seminoma stage I XRT] /+12 years [TC2 2008 (age 42), seminoma stage I surveillance]

    Andycoles [TC1 2006 (aged 30), seminoma Stage 1, right orchidectomy plus 1 dose Carboplatine], [TC2 2009 (aged 33), intratubular germ cell neplasia, left orchidectomy]

    Ariel [TC1 1999 (age 25), seminoma Stage 1, right orchiectomy, radiation, prosthetic]/+10 years [TC2 2009 (age 35), seminoma Stage 1, left orchiectomy, surveillance, prosthetic, 10mg androgel daily]

    Bipestuff [TC1 1983 (age 27), seminoma stage 1, Radiation] /+22 years [TC2 2005 (age 49), surveillance]

    BraveOne [TC 1 & 2 7/2009 (age 32). Pure Seminoma, bilateral orch and implants and surveillance only. 10mg androgel] Glad to be TC free!

    Davepet [TC1 1975 (age20) Unknown type & stage, right I/O, RPLND] /+35 years \[TC2 2009 (age55) Mixed embryonal& seminoma, Left I/O, followed by 3xBEP]

    Fish [TC1 1988 (age 26), primarily embryonal cell carcinoma with teratoma & seminoma, Stage 1, RPLND, surveillance] /+15 years [TC2 2003 (age 42), pure seminoma, Stage 1, surveillance]

    greg_oz [TC1 1998 (age 24), embryonal carcinoma & seminoma, stage I, surveillance, recurrence 1999, 3xBEP] /+10 years [TC2 2008 (age 34), seminoma stage I, XRT]

    Groundhog [TC1 1988 (age 38), pure seminoma, stage 1, surveillance/ +21 1/2 years [TC2 2010 (age 59), pure seminoma, stage 1, surveillance. 5g testim]

    Healthnut [TC1 1995 (age 28), pure seminoma stage 1, radiation] / +8 years [TC2 2003 (age 35), pure seminoma stage 1, surveillance]

    joev [TC1 1998 (age 31), pure seminoma stage 1, RT] /+3 years [TC2 2001 (age 34), pure seminoma stage 1, surveillance]

    JonM [TC1 1997 (age 31), teratoma stage III, X4 BEP, X3 VIP, RPLND, x5 GAMEC, RPLND (2), LT] /+11 years [TC2 2008 (age 43), Stage 1 Seminoma, Right orchidectomy, x1 Carboplatin, Surveillance]

    Kiwi [TC1 2001 (age 36), seminoma stage 1, Radiation] /+7 years [TC2 2008 (age 43), seminoma stage 1, surveillance] two prosthetics

    LeePee [TC1 1992 (age 34), pure seminoma, left orchidectomy, Radiation] + 14 years [ TC2 2006 (age 48), seminoma stage 1, right orchidectomy, 1 dose carboplatine, surveillance] two x prosthetics

    LeeR [TC1 1997 (age 30), seminoma stage 1, Radiotherapy] /+12 years [TC2 2009 (age 42) seminoma stage 1, 1x carboplatin] In between episodes had two boys to add to a daughter.

    lindsayn [TC1 May 2000 (age 24), seminoma Stage 1, radiotherapy - right side; TC2 October 2010, seminoma Stage 1, surveillance at this stage - left)

    Marc311978 [TC1 1997 (age 18), seminoma stage 1, Radiation] /+12 years [TC2 2009 (age 31) seminoma stage 1, surveillance]

    pcwilson [TC1 1997 (aged 27), teratoma, stage I, surveillance] /+10 years [TC2 2007 (aged 38), seminoma stage I, surveillance]

    Perk, TC1 2001, seminoma, teratoma, embryonal carcinoma, uncertain type, Stage 1, lymph node dissection (negative 2001), surveillance. TC2 2006, embryonal carcinoma, seminoma, Stage 1, surveillance. AndroGel Pump...

    PISKOT (wife) TC1: 2005, pure seminoma, stage 1, left I/0, radiation (age 43), TC2: 2010, seminoma, right I/0 2xBEP), HRT Nebido (age 48)

    robert j [7/2009 TC in Both!) both seminoma stage 1, surveillance] (opted for 2 prosthetics at time of surgery, now on HRT bi-weekly self injection).

    Rosc [TC-1: 5/1990 (age 29). Seminoma some Embryonal, Left Orch. and surveillance. Appears in lymphnodes in 1992. RPLND using laparoscopy and then 6wks. radiation therapy. Clean until 2008. (TC-2 4/2008) age 46. Pure Seminoma. Right Orch. and chemo. (2X Carboplatin). HRT is weekly self IM injections with 100mg Cypionate. In between episodes had two children with wonderful wife.

    Schmitt313 (wife) [TC1 -left- 2006 (age 29), non-seminoma, stage 3, chemo 9 wks,] in between we had a healthy baby boy to add to our two daughters![ TC2 12/2008 (age 32) pure-seminoma, surveillance, two prosthetics, Testim]

    Smerd [TC1 Feb 2008 (age 30), Non-Seminoma with some Seminoma Stage 1] [TC2 October 2008 Seminoma Stage I] Partial Orch

    Leave a comment:


  • Perk
    replied
    34with1 [fake TC1 1975 (age 6 mos), preventative right orchidectomy]/+34.5 years [real TC1 2010 (age 35), seminoma stage 3, left orchidectomy and 4xBEP] Infertility+TRT (Testim gel) since age 30, so wife and I adopted 3 kids.

    AdrianE [TC1 2008 (age 32), Teratoma stage I, surveillance] same time [TC2 2008, Seminoma stage 1, surveillance]

    Aegletes [TC1 1996 (age 30), seminoma stage I XRT] /+12 years [TC2 2008 (age 42), seminoma stage I surveillance]

    Andycoles [TC1 2006 (aged 30), seminoma Stage 1, right orchidectomy plus 1 dose Carboplatine], [TC2 2009 (aged 33), intratubular germ cell neplasia, left orchidectomy]

    Ariel [TC1 1999 (age 25), seminoma Stage 1, right orchiectomy, radiation, prosthetic]/+10 years [TC2 2009 (age 35), seminoma Stage 1, left orchiectomy, surveillance, prosthetic, 10mg androgel daily]

    Bipestuff [TC1 1983 (age 27), seminoma stage 1, Radiation] /+22 years [TC2 2005 (age 49), surveillance]

    BraveOne [TC 1 & 2 7/2009 (age 32). Pure Seminoma, bilateral orch and implants and surveillance only. 10mg androgel] Glad to be TC free!

    Davepet [TC1 1975 (age20) Unknown type & stage, right I/O, RPLND] /+35 years \[TC2 2009 (age55) Mixed embryonal& seminoma, Left I/O, followed by 3xBEP]

    Fish [TC1 1988 (age 26), primarily embryonal cell carcinoma with teratoma & seminoma, Stage 1, RPLND, surveillance] /+15 years [TC2 2003 (age 42), pure seminoma, Stage 1, surveillance]

    greg_oz [TC1 1998 (age 24), embryonal carcinoma & seminoma, stage I, surveillance, recurrence 1999, 3xBEP] /+10 years [TC2 2008 (age 34), seminoma stage I, XRT]

    Groundhog [TC1 1988 (age 38), pure seminoma, stage 1, surveillance/ +21 1/2 years [TC2 2010 (age 59), pure seminoma, stage 1, surveillance. 5g testim]

    Healthnut [TC1 1995 (age 28), pure seminoma stage 1, radiation] / +8 years [TC2 2003 (age 35), pure seminoma stage 1, surveillance]

    joev [TC1 1998 (age 31), pure seminoma stage 1, RT] /+3 years [TC2 2001 (age 34), pure seminoma stage 1, surveillance]

    JonM [TC1 1997 (age 31), teratoma stage III, X4 BEP, X3 VIP, RPLND, x5 GAMEC, RPLND (2), LT] /+11 years [TC2 2008 (age 43), Stage 1 Seminoma, Right orchidectomy, x1 Carboplatin, Surveillance]

    Kiwi [TC1 2001 (age 36), seminoma stage 1, Radiation] /+7 years [TC2 2008 (age 43), seminoma stage 1, surveillance] two prosthetics

    LeePee [TC1 1992 (age 34), pure seminoma, left orchidectomy, Radiation] + 14 years [ TC2 2006 (age 48), seminoma stage 1, right orchidectomy, 1 dose carboplatine, surveillance] two x prosthetics

    LeeR [TC1 1997 (age 30), seminoma stage 1, Radiotherapy] /+12 years [TC2 2009 (age 42) seminoma stage 1, 1x carboplatin] In between episodes had two boys to add to a daughter.

    lindsayn [TC1 May 2000 (age 24), seminoma Stage 1, radiotherapy - right side; TC2 October 2010, seminoma Stage 1, surveillance at this stage - left)

    Marc311978 [TC1 1997 (age 18), seminoma stage 1, Radiation] /+12 years [TC2 2009 (age 31) seminoma stage 1, surveillance]

    pcwilson [TC1 1997 (aged 27), teratoma, stage I, surveillance] /+10 years [TC2 2007 (aged 38), seminoma stage I, surveillance]

    Perk, TC1 2001, seminoma, teratoma, embryonal carcinoma, uncertain type, Stage 1, lymph node dissection (negative 2001), surveillance. TC2 2006, embryonal carcinoma, seminoma, Stage 1, surveillance. AndroGel Pump...

    robert j [7/2009 TC in Both!) both seminoma stage 1, surveillance] (opted for 2 prosthetics at time of surgery, now on HRT bi-weekly self injection).

    Rosc [TC-1: 5/1990 (age 29). Seminoma some Embryonal, Left Orch. and surveillance. Appears in lymphnodes in 1992. RPLND using laparoscopy and then 6wks. radiation therapy. Clean until 2008. (TC-2 4/2008) age 46. Pure Seminoma. Right Orch. and chemo. (2X Carboplatin). HRT is weekly self IM injections with 100mg Cypionate. In between episodes had two children with wonderful wife.

    Schmitt313 (wife) [TC1 -left- 2006 (age 29), non-seminoma, stage 3, chemo 9 wks,] in between we had a healthy baby boy to add to our two daughters![ TC2 12/2008 (age 32) pure-seminoma, surveillance, two prosthetics, Testim]

    Smerd [TC1 Feb 2008 (age 30), Non-Seminoma with some Seminoma Stage 1] [TC2 October 2008 Seminoma Stage I] Partial Orch

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  • Davepet
    replied
    I count 24 of us here so far I wonder how many more there are that have not found this forum yet?

    Dave

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  • lindsayn
    replied
    Add another to the list

    34with1 [fake TC1 1975 (age 6 mos), preventative right orchidectomy]/+34.5 years [real TC1 2010 (age 35), seminoma stage 3, left orchidectomy and 4xBEP] Infertility+TRT (Testim gel) since age 30, so wife and I adopted 3 kids.

    AdrianE [TC1 2008 (age 32), Teratoma stage I, surveillance] same time [TC2 2008, Seminoma stage 1, surveillance]

    Aegletes [TC1 1996 (age 30), seminoma stage I XRT] /+12 years [TC2 2008 (age 42), seminoma stage I surveillance]

    Andycoles [TC1 2006 (aged 30), seminoma Stage 1, right orchidectomy plus 1 dose Carboplatine], [TC2 2009 (aged 33), intratubular germ cell neplasia, left orchidectomy]

    Ariel [TC1 1999 (age 25), seminoma Stage 1, right orchiectomy, radiation, prosthetic]/+10 years [TC2 2009 (age 35), seminoma Stage 1, left orchiectomy, surveillance, prosthetic, 10mg androgel daily]

    Bipestuff [TC1 1983 (age 27), seminoma stage 1, Radiation] /+22 years [TC2 2005 (age 49), surveillance]

    BraveOne [TC 1 & 2 7/2009 (age 32). Pure Seminoma, bilateral orch and implants and surveillance only. 10mg androgel] Glad to be TC free!

    Davepet [TC1 1975 (age20) Unknown type & stage, right I/O, RPLND] /+35 years \[TC2 2009 (age55) Mixed embryonal& seminoma, Left I/O, followed by 3xBEP]

    Fish [TC1 1988 (age 26), primarily embryonal cell carcinoma with teratoma & seminoma, Stage 1, RPLND, surveillance] /+15 years [TC2 2003 (age 42), pure seminoma, Stage 1, surveillance]

    greg_oz [TC1 1998 (age 24), embryonal carcinoma & seminoma, stage I, surveillance, recurrence 1999, 3xBEP] /+10 years [TC2 2008 (age 34), seminoma stage I, XRT]

    Groundhog [TC1 1988 (age 38), pure seminoma, stage 1, surveillance/ +21 1/2 years [TC2 2010 (age 59), pure seminoma, stage 1, surveillance. 5g testim]

    Healthnut [TC1 1995 (age 28), pure seminoma stage 1, radiation] / +8 years [TC2 2003 (age 35), pure seminoma stage 1, surveillance]

    joev [TC1 1998 (age 31), pure seminoma stage 1, RT] /+3 years [TC2 2001 (age 34), pure seminoma stage 1, surveillance]

    JonM [TC1 1997 (age 31), teratoma stage III, X4 BEP, X3 VIP, RPLND, x5 GAMEC, RPLND (2), LT] /+11 years [TC2 2008 (age 43), Stage 1 Seminoma, Right orchidectomy, x1 Carboplatin, Surveillance]

    Kiwi [TC1 2001 (age 36), seminoma stage 1, Radiation] /+7 years [TC2 2008 (age 43), seminoma stage 1, surveillance] two prosthetics

    LeePee [TC1 1992 (age 34), pure seminoma, left orchidectomy, Radiation] + 14 years [ TC2 2006 (age 48), seminoma stage 1, right orchidectomy, 1 dose carboplatine, surveillance] two x prosthetics

    LeeR [TC1 1997 (age 30), seminoma stage 1, Radiotherapy] /+12 years [TC2 2009 (age 42) seminoma stage 1, 1x carboplatin] In between episodes had two boys to add to a daughter.

    lindsayn [TC1 May 2000 (age 24), seminoma Stage 1, radiotherapy - right side; TC2 October 2010, seminoma Stage 1, surveillance at this stage - left)

    Marc311978 [TC1 1997 (age 18), seminoma stage 1, Radiation] /+12 years [TC2 2009 (age 31) seminoma stage 1, surveillance]

    pcwilson [TC1 1997 (aged 27), teratoma, stage I, surveillance] /+10 years [TC2 2007 (aged 38), seminoma stage I, surveillance]

    robert j [7/2009 TC in Both!) both seminoma stage 1, surveillance] (opted for 2 prosthetics at time of surgery, now on HRT bi-weekly self injection).

    Rosc [TC-1: 5/1990 (age 29). Seminoma some Embryonal, Left Orch. and surveillance. Appears in lymphnodes in 1992. RPLND using laparoscopy and then 6wks. radiation therapy. Clean until 2008. (TC-2 4/2008) age 46. Pure Seminoma. Right Orch. and chemo. (2X Carboplatin). HRT is weekly self IM injections with 100mg Cypionate. In between episodes had two children with wonderful wife.

    Schmitt313 (wife) [TC1 -left- 2006 (age 29), non-seminoma, stage 3, chemo 9 wks,] in between we had a healthy baby boy to add to our two daughters![ TC2 12/2008 (age 32) pure-seminoma, surveillance, two prosthetics, Testim]

    Smerd [TC1 Feb 2008 (age 30), Non-Seminoma with some Seminoma Stage 1] [TC2 October 2008 Seminoma Stage I] Partial Orch


    Hi Folks,
    Not sure whether this was the right forum or not but here goes. I have just had my second primary seminoma removed after having the original one treated in May 2000. I have been made aware how rare this is, (1% of first primarys have the second develop), so part of me now feels priveledged to be included in this elite club.
    As with the first one, my prognosis is again quite favourable, and it looks like I will get away with surveillance at this stage. I'm sure that I have my lack of uneasiness about talking to medical professionals about sensitive issues to thank for that. I know that some of you guys have had to put up with hell in your follow-up treatments especially in parts of the world where there is a substandard health system. (Australia really is the lucky country).
    Anyway, just thought I would post my first comment and let you guys know that there are more of you out there, and that we will always share a special bond even if we don't ever meet.

    Lindsay.

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