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  • #46
    Just made an update to my post TCRunner. Forgot to put in the right I/O.

    THE LIST:

    AdrianE [TC1 2008 (age 32), Teratoma stage I, surveillance] same time [TC2 2008, Seminoma stage 1, surveillance]

    Aegletes [TC1 1996 (age 30), seminoma stage I XRT] /+12 years [TC2 2008 (age 42), seminoma stage I surveillance]

    Andycoles [TC1 2006 (aged 30), seminoma Stage 1, right orchidectomy plus 1 dose Carboplatine], [TC2 2009 (aged 33), intratubular germ cell neplasia, left orchidectomy]

    Ariel [TC1 1999 (age 25), seminoma Stage 1, right orchiectomy, radiation, prosthetic]/+10 years [TC2 2009 (age 35), seminoma Stage 1, left orchiectomy, surveillance, prosthetic, 10mg androgel daily]

    Bipestuff [TC1 1983 (age 27), seminoma stage 1, Radiation] /+22 years [TC2 2005 (age 49), surveillance]

    BraveOne [TC 1 & 2 7/2009 (age 32). Pure Seminoma, bilateral orch and implants and surveillance only. 10mg androgel] Glad to be TC free!

    cbudd [{TC1: (age 21) July 2005 / Left orchiectomy/ Prostheses}
    {TC2: (age 27) May 2011 / Right orchiectomy (surgery is scheduled 6-1-11) / Cancer found in Lymph Nodes as well/ No Prostheses / Chemotherapy to come (if not more)}]

    Davepet [TC1 1975 (age20) Unknown type & stage, right I/O, RPLND] /+35 years \[TC2 2009 (age55) Mixed embryonal& seminoma, Left I/O, followed by 3xBEP]

    DoubleZero [TC1 2009 (age 40). Seminoma stage 1, radiation; TC2 2010 (age 41) teratoma stage 1, surveillance; 2010 relapse 3xBEP]

    dsomers74 [TC1: May 2000 (age 25) / Right orchiectomy / seminoma stage 1 / Radiation
    TC2: June 2010 (age 36) / Left orchiectomy / seminoma stage 1 / 1 Prostheses / Androgel 2X 5G packets]

    Fish [TC1 1988 (age 26), primarily embryonal cell carcinoma with teratoma & seminoma, Stage 1, RPLND, surveillance] /+15 years [TC2 2003 (age 42), pure seminoma, Stage 1, surveillance]

    greg_oz [TC1 1998 (age 24), embryonal carcinoma & seminoma, stage I, surveillance, recurrence 1999, 3xBEP] /+10 years [TC2 2008 (age 34), seminoma stage I, XRT]

    Groundhog [TC1 1988 (age 38), pure seminoma, stage 1, surveillance/ +21 1/2 years [TC2 2010 (age 59), pure seminoma, stage 1, surveillance. 5g testim]

    Healthnut [TC1 1995 (age 28), pure seminoma stage 1, radiation] / +8 years [TC2 2003 (age 35), pure seminoma stage 1, surveillance]

    Hugh [TC1 1989 (age 40), seminoma stage 1, radiation] / +21 years [TC2 2010 (age 61), seminoma stage 1, 1 x Carboplatin]

    joev [TC1 1998 (age 31), pure seminoma stage 1, RT] /+3 years [TC2 2001 (age 34), pure seminoma stage 1, surveillance]

    JonM [TC1 1997 (age 31), teratoma stage III, X4 BEP, X3 VIP, RPLND, x5 GAMEC, RPLND (2), LT] /+11 years [TC2 2008 (age 43), Stage 1 Seminoma, Right orchidectomy, x1 Carboplatin, Surveillance]

    Kiwi [TC1 2001 (age 36), seminoma stage 1, Radiation] /+7 years [TC2 2008 (age 43), seminoma stage 1, surveillance] two prosthetics

    LeePee [TC1 1992 (age 34), pure seminoma, left orchidectomy, Radiation] + 14 years [ TC2 2006 (age 48), seminoma stage 1, right orchidectomy, 1 dose carboplatine, surveillance] two x prosthetics

    LeeR [TC1 1997 (age 30), seminoma stage 1, Radiotherapy] /+12 years [TC2 2009 (age 42) seminoma stage 1, 1x carboplatin] In between episodes had two boys to add to a daughter.

    lindsayn [TC1 May 2000 (age 24), seminoma Stage 1, radiotherapy - right side; TC2 October 2010, seminoma Stage 1, surveillance at this stage - left)

    Marc311978 [TC1 1997 (age 18), seminoma stage 1, Radiation] /+12 years [TC2 2009 (age 31) seminoma stage 1, surveillance]

    pcwilson [TC1 1997 (aged 27), teratoma, stage I, surveillance] /+10 years [TC2 2007 (aged 38), seminoma stage I, surveillance]

    Perk, TC1 2001, seminoma, teratoma, embryonal carcinoma, uncertain type, Stage 1, lymph node dissection (negative 2001), surveillance. TC2 2006, embryonal carcinoma, seminoma, Stage 1, surveillance. AndroGel Pump...

    PISKOT (wife) TC1: 2005, pure seminoma, stage 1, left I/0, radiation (age 43), TC2: 2010, seminoma, right I/0 2xBEP), HRT Nebido (age 48)

    robert j [7/2009 TC in Both!) both seminoma stage 1, surveillance] (opted for 2 prosthetics at time of surgery, now on HRT bi-weekly self injection).

    Rosc [TC-1: 5/1990 (age 29). Seminoma some Embryonal, Left Orch. and surveillance. Appears in lymphnodes in 1992. RPLND using laparoscopy and then 6wks. radiation therapy. Clean until 2008. (TC-2 4/2008) age 46. Pure Seminoma. Right Orch. and chemo. (2X Carboplatin). HRT is weekly self IM injections with 100mg Cypionate. In between episodes had two children with wonderful wife.

    Schmitt313 (wife) [TC1 -left- 2006 (age 29), non-seminoma, stage 3, chemo 9 wks,] in between we had a healthy baby boy to add to our two daughters![ TC2 12/2008 (age 32) pure-seminoma, surveillance, two prosthetics, Testim]

    Smerd [TC1 Feb 2008 (age 30), Non-Seminoma with some Seminoma Stage 1] [TC2 October 2008 Seminoma Stage I] Partial Orch

    TC Runner: Left TC 5-2010 (age 35) 95% seminoma 5% non-seminoma lymphovascular involvement but confined to the testicle. Left I/O and surveillance. Right TC 11-2010 (age 36) 90% embryonal 10% seminoma lymphovascular involvement + 3 enlarged lymph staged 2B. Right I/O & Right prosthetic. January 2011 3 x BEP.
    Wife of TC x 2 Warrior.

    05/2010 Left TC diagnosis; 95% seminoma, 5% Embryonal - Treated w left orchiectomy and surveillance.

    11/2010 Right TC diagnosis; 90% Embryonal, 10% seminoma, 3 enlarged lymph nodes Treated w right orchiectomy and 3 x BEP.

    3 x BEP completed February 2011.

    Currently undergoing surveillance.

    Comment


    • #47
      Joe3man [TC1 2006 (age 32), seminoma stage I-25 Rounds of Radiation] [TC2 2010 (age 36), seminoma stage I-surveillance]

      Comment


      • #48
        To include Joe3man's entry:

        AdrianE [TC1 2008 (age 32), Teratoma stage I, surveillance] same time [TC2 2008, Seminoma stage 1, surveillance]

        Aegletes [TC1 1996 (age 30), seminoma stage I XRT] /+12 years [TC2 2008 (age 42), seminoma stage I surveillance]

        Andycoles [TC1 2006 (aged 30), seminoma Stage 1, right orchidectomy plus 1 dose Carboplatine], [TC2 2009 (aged 33), intratubular germ cell neplasia, left orchidectomy]

        Ariel [TC1 1999 (age 25), seminoma Stage 1, right orchiectomy, radiation, prosthetic]/+10 years [TC2 2009 (age 35), seminoma Stage 1, left orchiectomy, surveillance, prosthetic, 10mg androgel daily]

        Bipestuff [TC1 1983 (age 27), seminoma stage 1, Radiation] /+22 years [TC2 2005 (age 49), surveillance]

        BraveOne [TC 1 & 2 7/2009 (age 32). Pure Seminoma, bilateral orch and implants and surveillance only. 10mg androgel] Glad to be TC free!

        cbudd [{TC1: (age 21) July 2005 / Left orchiectomy/ Prostheses}
        {TC2: (age 27) May 2011 / Right orchiectomy (surgery is scheduled 6-1-11) / Cancer found in Lymph Nodes as well/ No Prostheses / Chemotherapy to come (if not more)}]

        Davepet [TC1 1975 (age20) Unknown type & stage, right I/O, RPLND] /+35 years \[TC2 2009 (age55) Mixed embryonal& seminoma, Left I/O, followed by 3xBEP]

        DoubleZero [TC1 2009 (age 40). Seminoma stage 1, radiation; TC2 2010 (age 41) teratoma stage 1, surveillance; 2010 relapse 3xBEP]

        dsomers74 [TC1: May 2000 (age 25) / Right orchiectomy / seminoma stage 1 / Radiation
        TC2: June 2010 (age 36) / Left orchiectomy / seminoma stage 1 / 1 Prostheses / Androgel 2X 5G packets]

        Fish [TC1 1988 (age 26), primarily embryonal cell carcinoma with teratoma & seminoma, Stage 1, RPLND, surveillance] /+15 years [TC2 2003 (age 42), pure seminoma, Stage 1, surveillance]

        greg_oz [TC1 1998 (age 24), embryonal carcinoma & seminoma, stage I, surveillance, recurrence 1999, 3xBEP] /+10 years [TC2 2008 (age 34), seminoma stage I, XRT]

        Groundhog [TC1 1988 (age 38), pure seminoma, stage 1, surveillance/ +21 1/2 years [TC2 2010 (age 59), pure seminoma, stage 1, surveillance. 5g testim]

        Healthnut [TC1 1995 (age 28), pure seminoma stage 1, radiation] / +8 years [TC2 2003 (age 35), pure seminoma stage 1, surveillance]

        Hugh [TC1 1989 (age 40), seminoma stage 1, radiation] / +21 years [TC2 2010 (age 61), seminoma stage 1, 1 x Carboplatin]

        joev [TC1 1998 (age 31), pure seminoma stage 1, RT] /+3 years [TC2 2001 (age 34), pure seminoma stage 1, surveillance]

        Joe3man [TC1 2006 (age 32), seminoma stage I-25 Rounds of Radiation] [TC2 2010 (age 36), seminoma stage I-surveillance]

        JonM [TC1 1997 (age 31), teratoma stage III, X4 BEP, X3 VIP, RPLND, x5 GAMEC, RPLND (2), LT] /+11 years [TC2 2008 (age 43), Stage 1 Seminoma, Right orchidectomy, x1 Carboplatin, Surveillance]

        Kiwi [TC1 2001 (age 36), seminoma stage 1, Radiation] /+7 years [TC2 2008 (age 43), seminoma stage 1, surveillance] two prosthetics

        LeePee [TC1 1992 (age 34), pure seminoma, left orchidectomy, Radiation] + 14 years [ TC2 2006 (age 48), seminoma stage 1, right orchidectomy, 1 dose carboplatine, surveillance] two x prosthetics

        LeeR [TC1 1997 (age 30), seminoma stage 1, Radiotherapy] /+12 years [TC2 2009 (age 42) seminoma stage 1, 1x carboplatin] In between episodes had two boys to add to a daughter.

        lindsayn [TC1 May 2000 (age 24), seminoma Stage 1, radiotherapy - right side; TC2 October 2010, seminoma Stage 1, surveillance at this stage - left)

        Marc311978 [TC1 1997 (age 18), seminoma stage 1, Radiation] /+12 years [TC2 2009 (age 31) seminoma stage 1, surveillance]

        pcwilson [TC1 1997 (aged 27), teratoma, stage I, surveillance] /+10 years [TC2 2007 (aged 38), seminoma stage I, surveillance]

        Perk, TC1 2001, seminoma, teratoma, embryonal carcinoma, uncertain type, Stage 1, lymph node dissection (negative 2001), surveillance. TC2 2006, embryonal carcinoma, seminoma, Stage 1, surveillance. AndroGel Pump...

        PISKOT (wife) TC1: 2005, pure seminoma, stage 1, left I/0, radiation (age 43), TC2: 2010, seminoma, right I/0 2xBEP), HRT Nebido (age 48)

        robert j [7/2009 TC in Both!) both seminoma stage 1, surveillance] (opted for 2 prosthetics at time of surgery, now on HRT bi-weekly self injection).

        Rosc [TC-1: 5/1990 (age 29). Seminoma some Embryonal, Left Orch. and surveillance. Appears in lymphnodes in 1992. RPLND using laparoscopy and then 6wks. radiation therapy. Clean until 2008. (TC-2 4/2008) age 46. Pure Seminoma. Right Orch. and chemo. (2X Carboplatin). HRT is weekly self IM injections with 100mg Cypionate. In between episodes had two children with wonderful wife.

        Schmitt313 (wife) [TC1 -left- 2006 (age 29), non-seminoma, stage 3, chemo 9 wks,] in between we had a healthy baby boy to add to our two daughters![ TC2 12/2008 (age 32) pure-seminoma, surveillance, two prosthetics, Testim]

        Smerd [TC1 Feb 2008 (age 30), Non-Seminoma with some Seminoma Stage 1] [TC2 October 2008 Seminoma Stage I] Partial Orch

        TC Runner: Left TC 5-2010 (age 35) 95% seminoma 5% non-seminoma lymphovascular involvement but confined to the testicle. Left I/O and surveillance. Right TC 11-2010 (age 36) 90% embryonal 10% seminoma lymphovascular involvement + 3 enlarged lymph staged 2B. Right I/O & Right prosthetic. January 2011 3 x BEP.
        TC1: 1996, right orchiectomy, seminoma stage I 3.5 cm mass, radiation therapy (peri-aortic & pelvic 27.3 Gy)
        TC2: 2008, left orchiectomy, seminoma stage IA 5 cm mass, left & right prostheses, AndroGel TRT, surveillance at MSKCC

        Comment


        • #49
          Somehow I fell off the list. But I had to update my stuff anyway, TRT method has changed:

          34with1 ['fake' TC1 1975 (age 6 mos), preventative right orchidectomy]/+34.5 years [real TC1 2010 (age 35), seminoma stage 3, left orchidectomy and 4xBEP] Infertility+TRT (Axiron) since age 30, so wife and I adopted 3 kids.

          AdrianE [TC1 2008 (age 32), Teratoma stage I, surveillance] same time [TC2 2008, Seminoma stage 1, surveillance]

          Aegletes [TC1 1996 (age 30), seminoma stage I XRT] /+12 years [TC2 2008 (age 42), seminoma stage I surveillance]

          Andycoles [TC1 2006 (aged 30), seminoma Stage 1, right orchidectomy plus 1 dose Carboplatine], [TC2 2009 (aged 33), intratubular germ cell neplasia, left orchidectomy]

          Ariel [TC1 1999 (age 25), seminoma Stage 1, right orchiectomy, radiation, prosthetic]/+10 years [TC2 2009 (age 35), seminoma Stage 1, left orchiectomy, surveillance, prosthetic, 10mg androgel daily]

          Bipestuff [TC1 1983 (age 27), seminoma stage 1, Radiation] /+22 years [TC2 2005 (age 49), surveillance]

          BraveOne [TC 1 & 2 7/2009 (age 32). Pure Seminoma, bilateral orch and implants and surveillance only. 10mg androgel] Glad to be TC free!

          cbudd [{TC1: (age 21) July 2005 / Left orchiectomy/ Prostheses}
          {TC2: (age 27) May 2011 / Right orchiectomy (surgery is scheduled 6-1-11) / Cancer found in Lymph Nodes as well/ No Prostheses / Chemotherapy to come (if not more)}]

          Davepet [TC1 1975 (age20) Unknown type & stage, right I/O, RPLND] /+35 years \[TC2 2009 (age55) Mixed embryonal& seminoma, Left I/O, followed by 3xBEP]

          DoubleZero [TC1 2009 (age 40). Seminoma stage 1, radiation; TC2 2010 (age 41) teratoma stage 1, surveillance; 2010 relapse 3xBEP]

          dsomers74 [TC1: May 2000 (age 25) / Right orchiectomy / seminoma stage 1 / Radiation
          TC2: June 2010 (age 36) / Left orchiectomy / seminoma stage 1 / 1 Prostheses / Androgel 2X 5G packets]

          Fish [TC1 1988 (age 26), primarily embryonal cell carcinoma with teratoma & seminoma, Stage 1, RPLND, surveillance] /+15 years [TC2 2003 (age 42), pure seminoma, Stage 1, surveillance]

          greg_oz [TC1 1998 (age 24), embryonal carcinoma & seminoma, stage I, surveillance, recurrence 1999, 3xBEP] /+10 years [TC2 2008 (age 34), seminoma stage I, XRT]

          Groundhog [TC1 1988 (age 38), pure seminoma, stage 1, surveillance/ +21 1/2 years [TC2 2010 (age 59), pure seminoma, stage 1, surveillance. 5g testim]

          Healthnut [TC1 1995 (age 28), pure seminoma stage 1, radiation] / +8 years [TC2 2003 (age 35), pure seminoma stage 1, surveillance]

          Hugh [TC1 1989 (age 40), seminoma stage 1, radiation] / +21 years [TC2 2010 (age 61), seminoma stage 1, 1 x Carboplatin]

          joev [TC1 1998 (age 31), pure seminoma stage 1, RT] /+3 years [TC2 2001 (age 34), pure seminoma stage 1, surveillance]

          Joe3man [TC1 2006 (age 32), seminoma stage I-25 Rounds of Radiation] [TC2 2010 (age 36), seminoma stage I-surveillance]

          JonM [TC1 1997 (age 31), teratoma stage III, X4 BEP, X3 VIP, RPLND, x5 GAMEC, RPLND (2), LT] /+11 years [TC2 2008 (age 43), Stage 1 Seminoma, Right orchidectomy, x1 Carboplatin, Surveillance]

          Kiwi [TC1 2001 (age 36), seminoma stage 1, Radiation] /+7 years [TC2 2008 (age 43), seminoma stage 1, surveillance] two prosthetics

          LeePee [TC1 1992 (age 34), pure seminoma, left orchidectomy, Radiation] + 14 years [ TC2 2006 (age 48), seminoma stage 1, right orchidectomy, 1 dose carboplatine, surveillance] two x prosthetics

          LeeR [TC1 1997 (age 30), seminoma stage 1, Radiotherapy] /+12 years [TC2 2009 (age 42) seminoma stage 1, 1x carboplatin] In between episodes had two boys to add to a daughter.

          lindsayn [TC1 May 2000 (age 24), seminoma Stage 1, radiotherapy - right side; TC2 October 2010, seminoma Stage 1, surveillance at this stage - left)

          Marc311978 [TC1 1997 (age 18), seminoma stage 1, Radiation] /+12 years [TC2 2009 (age 31) seminoma stage 1, surveillance]

          pcwilson [TC1 1997 (aged 27), teratoma, stage I, surveillance] /+10 years [TC2 2007 (aged 38), seminoma stage I, surveillance]

          Perk, TC1 2001, seminoma, teratoma, embryonal carcinoma, uncertain type, Stage 1, lymph node dissection (negative 2001), surveillance. TC2 2006, embryonal carcinoma, seminoma, Stage 1, surveillance. AndroGel Pump...

          PISKOT (wife) TC1: 2005, pure seminoma, stage 1, left I/0, radiation (age 43), TC2: 2010, seminoma, right I/0 2xBEP), HRT Nebido (age 48)

          robert j [7/2009 TC in Both!) both seminoma stage 1, surveillance] (opted for 2 prosthetics at time of surgery, now on HRT bi-weekly self injection).

          Rosc [TC-1: 5/1990 (age 29). Seminoma some Embryonal, Left Orch. and surveillance. Appears in lymphnodes in 1992. RPLND using laparoscopy and then 6wks. radiation therapy. Clean until 2008. (TC-2 4/2008) age 46. Pure Seminoma. Right Orch. and chemo. (2X Carboplatin). HRT is weekly self IM injections with 100mg Cypionate. In between episodes had two children with wonderful wife.

          Schmitt313 (wife) [TC1 -left- 2006 (age 29), non-seminoma, stage 3, chemo 9 wks,] in between we had a healthy baby boy to add to our two daughters![ TC2 12/2008 (age 32) pure-seminoma, surveillance, two prosthetics, Testim]

          Smerd [TC1 Feb 2008 (age 30), Non-Seminoma with some Seminoma Stage 1] [TC2 October 2008 Seminoma Stage I] Partial Orch

          TC Runner: Left TC 5-2010 (age 35) 95% seminoma 5% non-seminoma lymphovascular involvement but confined to the testicle. Left I/O and surveillance. Right TC 11-2010 (age 36) 90% embryonal 10% seminoma lymphovascular involvement + 3 enlarged lymph staged 2B. Right I/O & Right prosthetic. January 2011 3 x BEP.[/QUOTE]
          Right I/O in early childhood
          TRT due to low functionality, since 2004 (Axiron)

          Back pain CT shows 7.5 x 8 x 11 cm periaortic node, Pure Seminoma (Stage III), Summer 2010
          Left I/O, September 14, 2010
          4xBEP, September 20 - December 6, 2010

          All clear through 3-12-12
          Next: 6-15-12

          Comment


          • #50
            11/2010 Right I/O (pure seminoma,6cm StageI) age30, b-chorio elevated
            12/2010 1st cycle of Carbo
            01/2011 2st cycle of Carbo


            12/2013 Left P/O "partial orchiectomy"(1cm pure seminoma again,StageI, age33) ..75% of the testicle remained..TIN/ IGCNU confirmed...no raised markers

            Comment


            • #51
              (added in stefanos1999 - cheers Kiwi)

              34with1 ['fake' TC1 1975 (age 6 mos), preventative right orchidectomy]/+34.5 years [real TC1 2010 (age 35), seminoma stage 3, left orchidectomy and 4xBEP] Infertility+TRT (Axiron) since age 30, so wife and I adopted 3 kids.

              AdrianE [TC1 2008 (age 32), Teratoma stage I, surveillance] same time [TC2 2008, Seminoma stage 1, surveillance]

              Aegletes [TC1 1996 (age 30), seminoma stage I XRT] /+12 years [TC2 2008 (age 42), seminoma stage I surveillance]

              Andycoles [TC1 2006 (aged 30), seminoma Stage 1, right orchidectomy plus 1 dose Carboplatine], [TC2 2009 (aged 33), intratubular germ cell neplasia, left orchidectomy]

              Ariel [TC1 1999 (age 25), seminoma Stage 1, right orchiectomy, radiation, prosthetic]/+10 years [TC2 2009 (age 35), seminoma Stage 1, left orchiectomy, surveillance, prosthetic, 10mg androgel daily]

              Bipestuff [TC1 1983 (age 27), seminoma stage 1, Radiation] /+22 years [TC2 2005 (age 49), surveillance]

              BraveOne [TC 1 & 2 7/2009 (age 32). Pure Seminoma, bilateral orch and implants and surveillance only. 10mg androgel] Glad to be TC free!

              cbudd [{TC1: (age 21) July 2005 / Left orchiectomy/ Prostheses}
              {TC2: (age 27) May 2011 / Right orchiectomy (surgery is scheduled 6-1-11) / Cancer found in Lymph Nodes as well/ No Prostheses / Chemotherapy to come (if not more)}]

              Davepet [TC1 1975 (age20) Unknown type & stage, right I/O, RPLND] /+35 years \[TC2 2009 (age55) Mixed embryonal& seminoma, Left I/O, followed by 3xBEP]

              DoubleZero [TC1 2009 (age 40). Seminoma stage 1, radiation; TC2 2010 (age 41) teratoma stage 1, surveillance; 2010 relapse 3xBEP]

              dsomers74 [TC1: May 2000 (age 25) / Right orchiectomy / seminoma stage 1 / Radiation
              TC2: June 2010 (age 36) / Left orchiectomy / seminoma stage 1 / 1 Prostheses / Androgel 2X 5G packets]

              Fish [TC1 1988 (age 26), primarily embryonal cell carcinoma with teratoma & seminoma, Stage 1, RPLND, surveillance] /+15 years [TC2 2003 (age 42), pure seminoma, Stage 1, surveillance]

              greg_oz [TC1 1998 (age 24), embryonal carcinoma & seminoma, stage I, surveillance, recurrence 1999, 3xBEP] /+10 years [TC2 2008 (age 34), seminoma stage I, XRT]

              Groundhog [TC1 1988 (age 38), pure seminoma, stage 1, surveillance/ +21 1/2 years [TC2 2010 (age 59), pure seminoma, stage 1, surveillance. 5g testim]

              Healthnut [TC1 1995 (age 28), pure seminoma stage 1, radiation] / +8 years [TC2 2003 (age 35), pure seminoma stage 1, surveillance]

              Hugh [TC1 1989 (age 40), seminoma stage 1, radiation] / +21 years [TC2 2010 (age 61), seminoma stage 1, 1 x Carboplatin]

              joev [TC1 1998 (age 31), pure seminoma stage 1, RT] /+3 years [TC2 2001 (age 34), pure seminoma stage 1, surveillance]

              Joe3man [TC1 2006 (age 32), seminoma stage I-25 Rounds of Radiation] [TC2 2010 (age 36), seminoma stage I-surveillance]

              JonM [TC1 1997 (age 31), teratoma stage III, X4 BEP, X3 VIP, RPLND, x5 GAMEC, RPLND (2), LT] /+11 years [TC2 2008 (age 43), Stage 1 Seminoma, Right orchidectomy, x1 Carboplatin, Surveillance]

              Kiwi [TC1 2001 (age 36), seminoma stage 1, Radiation] /+7 years [TC2 2008 (age 43), seminoma stage 1, surveillance] two prosthetics

              LeePee [TC1 1992 (age 34), pure seminoma, left orchidectomy, Radiation] + 14 years [ TC2 2006 (age 48), seminoma stage 1, right orchidectomy, 1 dose carboplatine, surveillance] two x prosthetics

              LeeR [TC1 1997 (age 30), seminoma stage 1, Radiotherapy] /+12 years [TC2 2009 (age 42) seminoma stage 1, 1x carboplatin] In between episodes had two boys to add to a daughter.

              lindsayn [TC1 May 2000 (age 24), seminoma Stage 1, radiotherapy - right side; TC2 October 2010, seminoma Stage 1, surveillance at this stage - left)

              Marc311978 [TC1 1997 (age 18), seminoma stage 1, Radiation] /+12 years [TC2 2009 (age 31) seminoma stage 1, surveillance]

              pcwilson [TC1 1997 (aged 27), teratoma, stage I, surveillance] /+10 years [TC2 2007 (aged 38), seminoma stage I, surveillance]

              Perk, TC1 2001, seminoma, teratoma, embryonal carcinoma, uncertain type, Stage 1, lymph node dissection (negative 2001), surveillance. TC2 2006, embryonal carcinoma, seminoma, Stage 1, surveillance. AndroGel Pump...

              PISKOT (wife) TC1: 2005, pure seminoma, stage 1, left I/0, radiation (age 43), TC2: 2010, seminoma, right I/0 2xBEP), HRT Nebido (age 48)

              robert j [7/2009 TC in Both!) both seminoma stage 1, surveillance] (opted for 2 prosthetics at time of surgery, now on HRT bi-weekly self injection).

              Rosc [TC-1: 5/1990 (age 29). Seminoma some Embryonal, Left Orch. and surveillance. Appears in lymphnodes in 1992. RPLND using laparoscopy and then 6wks. radiation therapy. Clean until 2008. (TC-2 4/2008) age 46. Pure Seminoma. Right Orch. and chemo. (2X Carboplatin). HRT is weekly self IM injections with 100mg Cypionate. In between episodes had two children with wonderful wife.

              Schmitt313 (wife) [TC1 -left- 2006 (age 29), non-seminoma, stage 3, chemo 9 wks,] in between we had a healthy baby boy to add to our two daughters![ TC2 12/2008 (age 32) pure-seminoma, surveillance, two prosthetics, Testim]

              Smerd [TC1 Feb 2008 (age 30), Non-Seminoma with some Seminoma Stage 1] [TC2 October 2008 Seminoma Stage I] Partial Orch

              stefanos1999 [TC1 Nov 2010 (age 30), Right (pure seminoma,6cm StageI, Carbo) / +3 years Dec 2013[TC2 Left P/O "partial orchiectomy"(1cm pure seminoma again,StageI, age33) ..75% of the testicle remained..TIN/ IGCNU]

              TC Runner: Left TC 5-2010 (age 35) 95% seminoma 5% non-seminoma lymphovascular involvement but confined to the testicle. Left I/O and surveillance. Right TC 11-2010 (age 36) 90% embryonal 10% seminoma lymphovascular involvement + 3 enlarged lymph staged 2B. Right I/O & Right prosthetic. January 2011 3 x BEP.[/QUOTE]
              >>>>>>>>>
              TC1: May 2001 / Right orchiectomy / seminoma stage 1 / Radiation
              TC2: July 2008 / Left orchiectomy / seminoma stage 1 / X2 Prostheses / Reandron (long term Testosterone injections)

              Comment


              • #52
                Added me -

                34with1 ['fake' TC1 1975 (age 6 mos), preventative right orchidectomy]/+34.5 years [real TC1 2010 (age 35), seminoma stage 3, left orchidectomy and 4xBEP] Infertility+TRT (Axiron) since age 30, so wife and I adopted 3 kids.

                AdrianE [TC1 2008 (age 32), Teratoma stage I, surveillance] same time [TC2 2008, Seminoma stage 1, surveillance]

                Aegletes [TC1 1996 (age 30), seminoma stage I XRT] /+12 years [TC2 2008 (age 42), seminoma stage I surveillance]

                Andycoles [TC1 2006 (aged 30), seminoma Stage 1, right orchidectomy plus 1 dose Carboplatine], [TC2 2009 (aged 33), intratubular germ cell neplasia, left orchidectomy]

                Ariel [TC1 1999 (age 25), seminoma Stage 1, right orchiectomy, radiation, prosthetic]/+10 years [TC2 2009 (age 35), seminoma Stage 1, left orchiectomy, surveillance, prosthetic, 10mg androgel daily]

                Bipestuff [TC1 1983 (age 27), seminoma stage 1, Radiation] /+22 years [TC2 2005 (age 49), surveillance]

                BraveOne [TC 1 & 2 7/2009 (age 32). Pure Seminoma, bilateral orch and implants and surveillance only. 10mg androgel] Glad to be TC free!

                cbudd [{TC1: (age 21) July 2005 / Left orchiectomy/ Prostheses}
                {TC2: (age 27) May 2011 / Right orchiectomy (surgery is scheduled 6-1-11) / Cancer found in Lymph Nodes as well/ No Prostheses / Chemotherapy to come (if not more)}]

                Davepet [TC1 1975 (age20) Unknown type & stage, right I/O, RPLND] /+35 years \[TC2 2009 (age55) Mixed embryonal& seminoma, Left I/O, followed by 3xBEP]

                DoubleZero [TC1 2009 (age 40). Seminoma stage 1, radiation; TC2 2010 (age 41) teratoma stage 1, surveillance; 2010 relapse 3xBEP]

                dsomers74 [TC1: May 2000 (age 25) / Right orchiectomy / seminoma stage 1 / Radiation
                TC2: June 2010 (age 36) / Left orchiectomy / seminoma stage 1 / 1 Prostheses / Androgel 2X 5G packets]

                Fish [TC1 1988 (age 26), primarily embryonal cell carcinoma with teratoma & seminoma, Stage 1, RPLND, surveillance] /+15 years [TC2 2003 (age 42), pure seminoma, Stage 1, surveillance]

                greg_oz [TC1 1998 (age 24), embryonal carcinoma & seminoma, stage I, surveillance, recurrence 1999, 3xBEP] /+10 years [TC2 2008 (age 34), seminoma stage I, XRT]

                Groundhog [TC1 1988 (age 38), pure seminoma, stage 1, surveillance/ +21 1/2 years [TC2 2010 (age 59), pure seminoma, stage 1, surveillance. 5g testim]

                Healthnut [TC1 1995 (age 28), pure seminoma stage 1, radiation] / +8 years [TC2 2003 (age 35), pure seminoma stage 1, surveillance]

                Hugh [TC1 1989 (age 40), seminoma stage 1, radiation] / +21 years [TC2 2010 (age 61), seminoma stage 1, 1 x Carboplatin]

                joev [TC1 1998 (age 31), pure seminoma stage 1, RT] /+3 years [TC2 2001 (age 34), pure seminoma stage 1, surveillance]

                Joe3man [TC1 2006 (age 32), seminoma stage I-25 Rounds of Radiation] [TC2 2010 (age 36), seminoma stage I-surveillance]

                JonM [TC1 1997 (age 31), teratoma stage III, X4 BEP, X3 VIP, RPLND, x5 GAMEC, RPLND (2), LT] /+11 years [TC2 2008 (age 43), Stage 1 Seminoma, Right orchidectomy, x1 Carboplatin, Surveillance]

                Kiwi [TC1 2001 (age 36), seminoma stage 1, Radiation] /+7 years [TC2 2008 (age 43), seminoma stage 1, surveillance] two prosthetics

                LeePee [TC1 1992 (age 34), pure seminoma, left orchidectomy, Radiation] + 14 years [ TC2 2006 (age 48), seminoma stage 1, right orchidectomy, 1 dose carboplatine, surveillance] two x prosthetics

                LeeR [TC1 1997 (age 30), seminoma stage 1, Radiotherapy] /+12 years [TC2 2009 (age 42) seminoma stage 1, 1x carboplatin] In between episodes had two boys to add to a daughter.

                lindsayn [TC1 May 2000 (age 24), seminoma Stage 1, radiotherapy - right side; TC2 October 2010, seminoma Stage 1, surveillance at this stage - left)

                Marc311978 [TC1 1997 (age 18), seminoma stage 1, Radiation] /+12 years [TC2 2009 (age 31) seminoma stage 1, surveillance]

                pcwilson [TC1 1997 (aged 27), teratoma, stage I, surveillance] /+10 years [TC2 2007 (aged 38), seminoma stage I, surveillance]

                Perk, TC1 2001, seminoma, teratoma, embryonal carcinoma, uncertain type, Stage 1, lymph node dissection (negative 2001), surveillance. TC2 2006, embryonal carcinoma, seminoma, Stage 1, surveillance. AndroGel Pump...

                PISKOT (wife) TC1: 2005, pure seminoma, stage 1, left I/0, radiation (age 43), TC2: 2010, seminoma, right I/0 2xBEP), HRT Nebido (age 48)

                robert j [7/2009 TC in Both!) both seminoma stage 1, surveillance] (opted for 2 prosthetics at time of surgery, now on HRT bi-weekly self injection).

                Rosc [TC-1: 5/1990 (age 29). Seminoma some Embryonal, Left Orch. and surveillance. Appears in lymphnodes in 1992. RPLND using laparoscopy and then 6wks. radiation therapy. Clean until 2008. (TC-2 4/2008) age 46. Pure Seminoma. Right Orch. and chemo. (2X Carboplatin). HRT is weekly self IM injections with 100mg Cypionate. In between episodes had two children with wonderful wife.

                Roybatty [TC1 1987 (age 22), seminoma stage 1, Radiation, HRT, implant TC2,seminoma stage 1, 2013 age 48, implant, surveillance, plastic surgery]

                Schmitt313 (wife) [TC1 -left- 2006 (age 29), non-seminoma, stage 3, chemo 9 wks,] in between we had a healthy baby boy to add to our two daughters![ TC2 12/2008 (age 32) pure-seminoma, surveillance, two prosthetics, Testim]

                Smerd [TC1 Feb 2008 (age 30), Non-Seminoma with some Seminoma Stage 1] [TC2 October 2008 Seminoma Stage I] Partial Orch

                stefanos1999 [TC1 Nov 2010 (age 30), Right (pure seminoma,6cm StageI, Carbo) / +3 years Dec 2013[TC2 Left P/O "partial orchiectomy"(1cm pure seminoma again,StageI, age33) ..75% of the testicle remained..TIN/ IGCNU]

                TC Runner: Left TC 5-2010 (age 35) 95% seminoma 5% non-seminoma – lymphovascular involvement but confined to the testicle. Left I/O and surveillance. Right TC 11-2010 (age 36) –90% embryonal 10% seminoma – lymphovascular involvement + 3 enlarged lymph – staged 2B. Right I/O & Right prosthetic. January 2011 3 x BEP.
                "More human than human is our motto...."

                Comment


                • #53
                  A

                  Originally posted by 34with1 View Post
                  Somehow I fell off the list. But I had to update my stuff anyway, TRT method has changed:

                  34with1 ['fake' TC1 1975 (age 6 mos), preventative right orchidectomy]/+34.5 years [real TC1 2010 (age 35), seminoma stage 3, left orchidectomy and 4xBEP] Infertility+TRT (Axiron) since age 30, so wife and I adopted 3 kids.

                  AdrianE [TC1 2008 (age 32), Teratoma stage I, surveillance] same time [TC2 2008, Seminoma stage 1, surveillance]

                  Aegletes [TC1 1996 (age 30), seminoma stage I XRT] /+12 years [TC2 2008 (age 42), seminoma stage I surveillance]

                  Andycoles [TC1 2006 (aged 30), seminoma Stage 1, right orchidectomy plus 1 dose Carboplatine], [TC2 2009 (aged 33), intratubular germ cell neplasia, left orchidectomy]

                  Ariel [TC1 1999 (age 25), seminoma Stage 1, right orchiectomy, radiation, prosthetic]/+10 years [TC2 2009 (age 35), seminoma Stage 1, left orchiectomy, surveillance, prosthetic, 10mg androgel daily]

                  Bipestuff [TC1 1983 (age 27), seminoma stage 1, Radiation] /+22 years [TC2 2005 (age 49), surveillance]

                  BraveOne [TC 1 & 2 7/2009 (age 32). Pure Seminoma, bilateral orch and implants and surveillance only. 10mg androgel] Glad to be TC free!

                  cbudd [{TC1: (age 21) July 2005 / Left orchiectomy/ Prostheses}
                  {TC2: (age 27) May 2011 / Right orchiectomy (surgery is scheduled 6-1-11) / Cancer found in Lymph Nodes as well/ No Prostheses / Chemotherapy to come (if not more)}]

                  Davepet [TC1 1975 (age20) Unknown type & stage, right I/O, RPLND] /+35 years \[TC2 2009 (age55) Mixed embryonal& seminoma, Left I/O, followed by 3xBEP]

                  DoubleZero [TC1 2009 (age 40). Seminoma stage 1, radiation; TC2 2010 (age 41) teratoma stage 1, surveillance; 2010 relapse 3xBEP]

                  dsomers74 [TC1: May 2000 (age 25) / Right orchiectomy / seminoma stage 1 / Radiation
                  TC2: June 2010 (age 36) / Left orchiectomy / seminoma stage 1 / 1 Prostheses / Androgel 2X 5G packets]

                  Fish [TC1 1988 (age 26), primarily embryonal cell carcinoma with teratoma & seminoma, Stage 1, RPLND, surveillance] /+15 years [TC2 2003 (age 42), pure seminoma, Stage 1, surveillance]

                  greg_oz [TC1 1998 (age 24), embryonal carcinoma & seminoma, stage I, surveillance, recurrence 1999, 3xBEP] /+10 years [TC2 2008 (age 34), seminoma stage I, XRT]

                  Groundhog [TC1 1988 (age 38), pure seminoma, stage 1, surveillance/ +21 1/2 years [TC2 2010 (age 59), pure seminoma, stage 1, surveillance. 5g testim]

                  Healthnut [TC1 1995 (age 28), pure seminoma stage 1, radiation] / +8 years [TC2 2003 (age 35), pure seminoma stage 1, surveillance]

                  Hugh [TC1 1989 (age 40), seminoma stage 1, radiation] / +21 years [TC2 2010 (age 61), seminoma stage 1, 1 x Carboplatin]

                  joev [TC1 1998 (age 31), pure seminoma stage 1, RT] /+3 years [TC2 2001 (age 34), pure seminoma stage 1, surveillance]

                  Joe3man [TC1 2006 (age 32), seminoma stage I-25 Rounds of Radiation] [TC2 2010 (age 36), seminoma stage I-surveillance]

                  JonM [TC1 1997 (age 31), teratoma stage III, X4 BEP, X3 VIP, RPLND, x5 GAMEC, RPLND (2), LT] /+11 years [TC2 2008 (age 43), Stage 1 Seminoma, Right orchidectomy, x1 Carboplatin, Surveillance]

                  Kiwi [TC1 2001 (age 36), seminoma stage 1, Radiation] /+7 years [TC2 2008 (age 43), seminoma stage 1, surveillance] two prosthetics

                  LeePee [TC1 1992 (age 34), pure seminoma, left orchidectomy, Radiation] + 14 years [ TC2 2006 (age 48), seminoma stage 1, right orchidectomy, 1 dose carboplatine, surveillance] two x prosthetics

                  LeeR [TC1 1997 (age 30), seminoma stage 1, Radiotherapy] /+12 years [TC2 2009 (age 42) seminoma stage 1, 1x carboplatin] In between episodes had two boys to add to a daughter.

                  lindsayn [TC1 May 2000 (age 24), seminoma Stage 1, radiotherapy - right side; TC2 October 2010, seminoma Stage 1, surveillance at this stage - left)

                  Marc311978 [TC1 1997 (age 18), seminoma stage 1, Radiation] /+12 years [TC2 2009 (age 31) seminoma stage 1, surveillance]

                  pcwilson [TC1 1997 (aged 27), teratoma, stage I, surveillance] /+10 years [TC2 2007 (aged 38), seminoma stage I, surveillance]

                  Perk, TC1 2001, seminoma, teratoma, embryonal carcinoma, uncertain type, Stage 1, lymph node dissection (negative 2001), surveillance. TC2 2006, embryonal carcinoma, seminoma, Stage 1, surveillance. AndroGel Pump...

                  PISKOT (wife) TC1: 2005, pure seminoma, stage 1, left I/0, radiation (age 43), TC2: 2010, seminoma, right I/0 2xBEP), HRT Nebido (age 48)

                  robert j [7/2009 TC in Both!) both seminoma stage 1, surveillance] (opted for 2 prosthetics at time of surgery, now on HRT bi-weekly self injection).

                  Rosc [TC-1: 5/1990 (age 29). Seminoma some Embryonal, Left Orch. and surveillance. Appears in lymphnodes in 1992. RPLND using laparoscopy and then 6wks. radiation therapy. Clean until 2008. (TC-2 4/2008) age 46. Pure Seminoma. Right Orch. and chemo. (2X Carboplatin). HRT is weekly self IM injections with 100mg Cypionate. In between episodes had two children with wonderful wife.

                  Schmitt313 (wife) [TC1 -left- 2006 (age 29), non-seminoma, stage 3, chemo 9 wks,] in between we had a healthy baby boy to add to our two daughters![ TC2 12/2008 (age 32) pure-seminoma, surveillance, two prosthetics, Testim]

                  Smerd [TC1 Feb 2008 (age 30), Non-Seminoma with some Seminoma Stage 1] [TC2 October 2008 Seminoma Stage I] Partial Orch

                  TC Runner: Left TC 5-2010 (age 35) 95% seminoma 5% non-seminoma lymphovascular involvement but confined to the testicle. Left I/O and surveillance. Right TC 11-2010 (age 36) 90% embryonal 10% seminoma lymphovascular involvement + 3 enlarged lymph staged 2B. Right I/O & Right prosthetic. January 2011 3 x BEP.
                  [/QUOTE]

                  No nuts- tc1 2006 age 27 seminoma right radiation treatment. Tc2 2013 age 34 seminoma left carboplaten testepel

                  Comment


                  • #54
                    (7 Jan 2014 - included No Nuts Entry)
                    __________________________________________________ ___
                    To update:
                    1. Copy all the the Posts (and these instructions)
                    2. Click Reply
                    3. Paste into the Reply
                    4. Add your Details

                    Sample
                    You [TC1 20?? (age ??), type/stage, Left or Right IO, treatment / other info] /+? years [TC2 20?? (age ??), type/stage, Left or Right IO, treatment / other info]

                    __________________________________________________ __


                    34with1 ['fake' TC1 1975 (age 6 mos), preventative right orchidectomy]/+34.5 years [real TC1 2010 (age 35), seminoma stage 3, left orchidectomy and 4xBEP] Infertility+TRT (Axiron) since age 30, so wife and I adopted 3 kids.

                    AdrianE [TC1 2008 (age 32), Teratoma stage I, surveillance] same time [TC2 2008, Seminoma stage 1, surveillance]

                    Aegletes [TC1 1996 (age 30), seminoma stage I XRT] /+12 years [TC2 2008 (age 42), seminoma stage I surveillance]

                    Andycoles [TC1 2006 (aged 30), seminoma Stage 1, right orchidectomy plus 1 dose Carboplatine], [TC2 2009 (aged 33), intratubular germ cell neplasia, left orchidectomy]

                    Ariel [TC1 1999 (age 25), seminoma Stage 1, right orchiectomy, radiation, prosthetic]/+10 years [TC2 2009 (age 35), seminoma Stage 1, left orchiectomy, surveillance, prosthetic, 10mg androgel daily]

                    Bipestuff [TC1 1983 (age 27), seminoma stage 1, Radiation] /+22 years [TC2 2005 (age 49), surveillance]

                    BraveOne [TC 1 & 2 7/2009 (age 32). Pure Seminoma, bilateral orch and implants and surveillance only. 10mg androgel] Glad to be TC free!

                    cbudd [{TC1: (age 21) July 2005 / Left orchiectomy/ Prostheses}
                    {TC2: (age 27) May 2011 / Right orchiectomy (surgery is scheduled 6-1-11) / Cancer found in Lymph Nodes as well/ No Prostheses / Chemotherapy to come (if not more)}]

                    Davepet [TC1 1975 (age20) Unknown type & stage, right I/O, RPLND] /+35 years \[TC2 2009 (age55) Mixed embryonal& seminoma, Left I/O, followed by 3xBEP]

                    DoubleZero [TC1 2009 (age 40). Seminoma stage 1, radiation; TC2 2010 (age 41) teratoma stage 1, surveillance; 2010 relapse 3xBEP]

                    dsomers74 [TC1: May 2000 (age 25) / Right orchiectomy / seminoma stage 1 / Radiation
                    TC2: June 2010 (age 36) / Left orchiectomy / seminoma stage 1 / 1 Prostheses / Androgel 2X 5G packets]

                    Fish [TC1 1988 (age 26), primarily embryonal cell carcinoma with teratoma & seminoma, Stage 1, RPLND, surveillance] /+15 years [TC2 2003 (age 42), pure seminoma, Stage 1, surveillance]

                    greg_oz [TC1 1998 (age 24), embryonal carcinoma & seminoma, stage I, surveillance, recurrence 1999, 3xBEP] /+10 years [TC2 2008 (age 34), seminoma stage I, XRT]

                    Groundhog [TC1 1988 (age 38), pure seminoma, stage 1, surveillance/ +21 1/2 years [TC2 2010 (age 59), pure seminoma, stage 1, surveillance. 5g testim]

                    Healthnut [TC1 1995 (age 28), pure seminoma stage 1, radiation] / +8 years [TC2 2003 (age 35), pure seminoma stage 1, surveillance]

                    Hugh [TC1 1989 (age 40), seminoma stage 1, radiation] / +21 years [TC2 2010 (age 61), seminoma stage 1, 1 x Carboplatin]

                    joev [TC1 1998 (age 31), pure seminoma stage 1, RT] /+3 years [TC2 2001 (age 34), pure seminoma stage 1, surveillance]

                    Joe3man [TC1 2006 (age 32), seminoma stage I-25 Rounds of Radiation] [TC2 2010 (age 36), seminoma stage I-surveillance]

                    JonM [TC1 1997 (age 31), teratoma stage III, X4 BEP, X3 VIP, RPLND, x5 GAMEC, RPLND (2), LT] /+11 years [TC2 2008 (age 43), Stage 1 Seminoma, Right orchidectomy, x1 Carboplatin, Surveillance]

                    Kiwi [TC1 2001 (age 36), seminoma stage 1, right IO, Radiation] /+7 years [TC2 2008 (age 43), seminoma stage 1, Left IO, surveillance] two prosthetics

                    LeePee [TC1 1992 (age 34), pure seminoma, left orchidectomy, Radiation] + 14 years [ TC2 2006 (age 48), seminoma stage 1, right orchidectomy, 1 dose carboplatine, surveillance] two x prosthetics

                    LeeR [TC1 1997 (age 30), seminoma stage 1, Radiotherapy] /+12 years [TC2 2009 (age 42) seminoma stage 1, 1x carboplatin] In between episodes had two boys to add to a daughter.

                    lindsayn [TC1 May 2000 (age 24), seminoma Stage 1, radiotherapy - right side; TC2 October 2010, seminoma Stage 1, surveillance at this stage - left)

                    Marc311978 [TC1 1997 (age 18), seminoma stage 1, Radiation] /+12 years [TC2 2009 (age 31) seminoma stage 1, surveillance]

                    No nuts [TC1 2006 (age 27), seminoma right radiation treatment] / +7 years [TC2 2013 age 34 seminoma left carboplaten testepe]

                    pcwilson [TC1 1997 (aged 27), teratoma, stage I, surveillance] /+10 years [TC2 2007 (aged 38), seminoma stage I, surveillance]

                    Perk, TC1 2001, seminoma, teratoma, embryonal carcinoma, uncertain type, Stage 1, lymph node dissection (negative 2001), surveillance. TC2 2006, embryonal carcinoma, seminoma, Stage 1, surveillance. AndroGel Pump...

                    PISKOT (wife) TC1: 2005, pure seminoma, stage 1, left I/0, radiation (age 43), TC2: 2010, seminoma, right I/0 2xBEP), HRT Nebido (age 48)

                    robert j [7/2009 TC in Both!) both seminoma stage 1, surveillance] (opted for 2 prosthetics at time of surgery, now on HRT bi-weekly self injection).

                    Rosc [TC-1: 5/1990 (age 29). Seminoma some Embryonal, Left Orch. and surveillance. Appears in lymphnodes in 1992. RPLND using laparoscopy and then 6wks. radiation therapy. Clean until 2008. (TC-2 4/2008) age 46. Pure Seminoma. Right Orch. and chemo. (2X Carboplatin). HRT is weekly self IM injections with 100mg Cypionate. In between episodes had two children with wonderful wife.

                    Roybatty [TC1 1987 (age 22), seminoma stage 1, Radiation, HRT, implant TC2,seminoma stage 1, 2013 age 48, implant, surveillance, plastic surgery]

                    Schmitt313 (wife) [TC1 -left- 2006 (age 29), non-seminoma, stage 3, chemo 9 wks,] in between we had a healthy baby boy to add to our two daughters![ TC2 12/2008 (age 32) pure-seminoma, surveillance, two prosthetics, Testim]

                    Smerd [TC1 Feb 2008 (age 30), Non-Seminoma with some Seminoma Stage 1] [TC2 October 2008 Seminoma Stage I] Partial Orch

                    stefanos1999 [TC1 Nov 2010 (age 30), Right (pure seminoma,6cm StageI, Carbo) / +3 years Dec 2013[TC2 Left P/O "partial orchiectomy"(1cm pure seminoma again,StageI, age33) ..75% of the testicle remained..TIN/ IGCNU]

                    TC Runner: Left TC 5-2010 (age 35) 95% seminoma 5% non-seminoma lymphovascular involvement but confined to the testicle. Left I/O and surveillance. Right TC 11-2010 (age 36) 90% embryonal 10% seminoma lymphovascular involvement + 3 enlarged lymph staged 2B. Right I/O & Right prosthetic. January 2011 3 x BEP.


                    __________________________________________________ _____________________________
                    To update:
                    1. Copy all the the Posts (and these instructions)
                    2. Click Reply
                    3. Paste into the Reply
                    4. Add your Details
                    __________________________________________________ _____________________________

                    Sample
                    You [TC1 20?? (age ??), type/stage, Left or Right IO, treatment / other info] /+? years [TC2 20?? (age ??), type/stage, Left or Right IO, treatment / other info]
                    >>>>>>>>>
                    TC1: May 2001 / Right orchiectomy / seminoma stage 1 / Radiation
                    TC2: July 2008 / Left orchiectomy / seminoma stage 1 / X2 Prostheses / Reandron (long term Testosterone injections)

                    Comment


                    • #55
                      34with1 ['fake' TC1 1975 (age 6 mos), preventative right orchidectomy]/+34.5 years [real TC1 2010 (age 35), seminoma stage 3, left orchidectomy and 4xBEP] Infertility+TRT (Axiron) since age 30, so wife and I adopted 3 kids.

                      AdrianE [TC1 2008 (age 32), Teratoma stage I, surveillance] same time [TC2 2008, Seminoma stage 1, surveillance]

                      Aegletes [TC1 1996 (age 30), seminoma stage I XRT] /+12 years [TC2 2008 (age 42), seminoma stage I surveillance]

                      Andycoles [TC1 2006 (aged 30), seminoma Stage 1, right orchidectomy plus 1 dose Carboplatine], [TC2 2009 (aged 33), intratubular germ cell neplasia, left orchidectomy]

                      Ariel [TC1 1999 (age 25), seminoma Stage 1, right orchiectomy, radiation, prosthetic]/+10 years [TC2 2009 (age 35), seminoma Stage 1, left orchiectomy, surveillance, prosthetic, 10mg androgel daily]

                      Bipestuff [TC1 1983 (age 27), seminoma stage 1, Radiation] /+22 years [TC2 2005 (age 49), surveillance]

                      BraveOne [TC 1 & 2 7/2009 (age 32). Pure Seminoma, bilateral orch and implants and surveillance only. 10mg androgel] Glad to be TC free!

                      cbudd [{TC1: (age 21) July 2005 / Left orchiectomy/ Prostheses}
                      {TC2: (age 27) May 2011 / Right orchiectomy (surgery is scheduled 6-1-11) / Cancer found in Lymph Nodes as well/ No Prostheses / Chemotherapy to come (if not more)}]

                      Davepet [TC1 1975 (age20) Unknown type & stage, right I/O, RPLND] /+35 years \[TC2 2009 (age55) Mixed embryonal& seminoma, Left I/O, followed by 3xBEP]

                      DoubleZero [TC1 2009 (age 40). Seminoma stage 1, radiation; TC2 2010 (age 41) teratoma stage 1, surveillance; 2010 relapse 3xBEP]

                      dsomers74 [TC1: May 2000 (age 25) / Right orchiectomy / seminoma stage 1 / Radiation
                      TC2: June 2010 (age 36) / Left orchiectomy / seminoma stage 1 / 1 Prostheses / Androgel 2X 5G packets]

                      Fish [TC1 1988 (age 26), primarily embryonal cell carcinoma with teratoma & seminoma, Stage 1, RPLND, surveillance] /+15 years [TC2 2003 (age 42), pure seminoma, Stage 1, surveillance]

                      greg_oz [TC1 1998 (age 24), embryonal carcinoma & seminoma, stage I, surveillance, recurrence 1999, 3xBEP] /+10 years [TC2 2008 (age 34), seminoma stage I, XRT]

                      Groundhog [TC1 1988 (age 38), pure seminoma, stage 1, surveillance/ +21 1/2 years [TC2 2010 (age 59), pure seminoma, stage 1, surveillance. 5g testim]

                      Healthnut [TC1 1995 (age 28), pure seminoma stage 1, radiation] / +8 years [TC2 2003 (age 35), pure seminoma stage 1, surveillance]

                      Hugh [TC1 1989 (age 40), seminoma stage 1, radiation] / +21 years [TC2 2010 (age 61), seminoma stage 1, 1 x Carboplatin]

                      joev [TC1 1998 (age 31), pure seminoma stage 1, RT] /+3 years [TC2 2001 (age 34), pure seminoma stage 1, surveillance]

                      Joe3man [TC1 2006 (age 32), seminoma stage I-25 Rounds of Radiation] [TC2 2010 (age 36), seminoma stage I-surveillance]

                      JonM [TC1 1997 (age 31), teratoma stage III, X4 BEP, X3 VIP, RPLND, x5 GAMEC, RPLND (2), LT] /+11 years [TC2 2008 (age 43), Stage 1 Seminoma, Right orchidectomy, x1 Carboplatin, Surveillance]

                      Kiwi [TC1 2001 (age 36), seminoma stage 1, right IO, Radiation] /+7 years [TC2 2008 (age 43), seminoma stage 1, Left IO, surveillance] two prosthetics

                      LeePee [TC1 1992 (age 34), pure seminoma, left orchidectomy, Radiation] + 14 years [ TC2 2006 (age 48), seminoma stage 1, right orchidectomy, 1 dose carboplatine, surveillance] two x prosthetics

                      LeeR [TC1 1997 (age 30), seminoma stage 1, Radiotherapy] /+12 years [TC2 2009 (age 42) seminoma stage 1, 1x carboplatin] In between episodes had two boys to add to a daughter.

                      Leo [TC1/2 at the same time jul/2012 (age 32), left/right IO, seminoma stage 1, 2 rounds of Carboplatin, two prosthetics, TRT Nebido each 11 weeks]

                      lindsayn [TC1 May 2000 (age 24), seminoma Stage 1, radiotherapy - right side; TC2 October 2010, seminoma Stage 1, surveillance at this stage - left)

                      Marc311978 [TC1 1997 (age 18), seminoma stage 1, Radiation] /+12 years [TC2 2009 (age 31) seminoma stage 1, surveillance]

                      No nuts [TC1 2006 (age 27), seminoma right radiation treatment] / +7 years [TC2 2013 age 34 seminoma left carboplaten testepe]

                      pcwilson [TC1 1997 (aged 27), teratoma, stage I, surveillance] /+10 years [TC2 2007 (aged 38), seminoma stage I, surveillance]

                      Perk, TC1 2001, seminoma, teratoma, embryonal carcinoma, uncertain type, Stage 1, lymph node dissection (negative 2001), surveillance. TC2 2006, embryonal carcinoma, seminoma, Stage 1, surveillance. AndroGel Pump...

                      PISKOT (wife) TC1: 2005, pure seminoma, stage 1, left I/0, radiation (age 43), TC2: 2010, seminoma, right I/0 2xBEP), HRT Nebido (age 48)

                      robert j [7/2009 TC in Both!) both seminoma stage 1, surveillance] (opted for 2 prosthetics at time of surgery, now on HRT bi-weekly self injection).

                      Rosc [TC-1: 5/1990 (age 29). Seminoma some Embryonal, Left Orch. and surveillance. Appears in lymphnodes in 1992. RPLND using laparoscopy and then 6wks. radiation therapy. Clean until 2008. (TC-2 4/2008) age 46. Pure Seminoma. Right Orch. and chemo. (2X Carboplatin). HRT is weekly self IM injections with 100mg Cypionate. In between episodes had two children with wonderful wife.

                      Roybatty [TC1 1987 (age 22), seminoma stage 1, Radiation, HRT, implant TC2,seminoma stage 1, 2013 age 48, implant, surveillance, plastic surgery]

                      Schmitt313 (wife) [TC1 -left- 2006 (age 29), non-seminoma, stage 3, chemo 9 wks,] in between we had a healthy baby boy to add to our two daughters![ TC2 12/2008 (age 32) pure-seminoma, surveillance, two prosthetics, Testim]

                      Smerd [TC1 Feb 2008 (age 30), Non-Seminoma with some Seminoma Stage 1] [TC2 October 2008 Seminoma Stage I] Partial Orch

                      stefanos1999 [TC1 Nov 2010 (age 30), Right (pure seminoma,6cm StageI, Carbo) / +3 years Dec 2013[TC2 Left P/O "partial orchiectomy"(1cm pure seminoma again,StageI, age33) ..75% of the testicle remained..TIN/ IGCNU]

                      TC Runner: Left TC 5-2010 (age 35) 95% seminoma 5% non-seminoma lymphovascular involvement but confined to the testicle. Left I/O and surveillance. Right TC 11-2010 (age 36) 90% embryonal 10% seminoma lymphovascular involvement + 3 enlarged lymph staged 2B. Right I/O & Right prosthetic. January 2011 3 x BEP.

                      Comment


                      • #56
                        Im a member of this elite group as well. Sept 2001, orchiectomy, right side then found a spot on the left one 2 months later. Dec 2001, left orchiectomy. Right seminoma. left was mixed "germ cell". No sign of invasion, surveillance but in 2004 my lymph nodes AND lung showed a problem with my routine scans. Ended up "re-lapsing" after 3 years and had to do 4 rounds of B/E/P. No RPLND needed as remaining scar tissue all disappeared a few months after last chemo treatment.

                        Now - in remission since Feb 2005. Next month will be 9 years!!!!!
                        James,
                        Stage IIIa Seminoma
                        4x BEP Completed 2/14/05
                        james@tc-cancer.com

                        Comment


                        • #57
                          (James added into log)
                          __________________________________________________ _____________________________
                          To update:
                          1. Copy all the the Posts (and these instructions)
                          2. Click Reply
                          3. Paste into the Reply
                          4. Add your Details
                          __________________________________________________ ______________________________

                          Sample
                          You [TC1 20?? (age ??), type/stage, Left or Right IO, treatment / other info] /+? years [TC2 20?? (age ??), type/stage, Left or Right IO, treatment / other info]
                          __________________________________________________ ______________________________

                          34with1 ['fake' TC1 1975 (age 6 mos), preventative right orchidectomy]/+34.5 years [real TC1 2010 (age 35), seminoma stage 3, left orchidectomy and 4xBEP] Infertility+TRT (Axiron) since age 30, so wife and I adopted 3 kids.

                          AdrianE [TC1 2008 (age 32), Teratoma stage I, surveillance] same time [TC2 2008, Seminoma stage 1, surveillance]

                          Aegletes [TC1 1996 (age 30), seminoma stage I XRT] /+12 years [TC2 2008 (age 42), seminoma stage I surveillance]

                          Andycoles [TC1 2006 (aged 30), seminoma Stage 1, right orchidectomy plus 1 dose Carboplatine], [TC2 2009 (aged 33), intratubular germ cell neplasia, left orchidectomy]

                          Ariel [TC1 1999 (age 25), seminoma Stage 1, right orchiectomy, radiation, prosthetic]/+10 years [TC2 2009 (age 35), seminoma Stage 1, left orchiectomy, surveillance, prosthetic, 10mg androgel daily]

                          Bipestuff [TC1 1983 (age 27), seminoma stage 1, Radiation] /+22 years [TC2 2005 (age 49), surveillance]

                          BraveOne [TC 1 & 2 7/2009 (age 32). Pure Seminoma, bilateral orch and implants and surveillance only. 10mg androgel] Glad to be TC free!

                          cbudd [{TC1: (age 21) July 2005 / Left orchiectomy/ Prostheses}
                          {TC2: (age 27) May 2011 / Right orchiectomy (surgery is scheduled 6-1-11) / Cancer found in Lymph Nodes as well/ No Prostheses / Chemotherapy to come (if not more)}]

                          Davepet [TC1 1975 (age20) Unknown type & stage, right I/O, RPLND] /+35 years \[TC2 2009 (age55) Mixed embryonal& seminoma, Left I/O, followed by 3xBEP]

                          DoubleZero [TC1 2009 (age 40). Seminoma stage 1, radiation; TC2 2010 (age 41) teratoma stage 1, surveillance; 2010 relapse 3xBEP]

                          dsomers74 [TC1: May 2000 (age 25) / Right orchiectomy / seminoma stage 1 / Radiation
                          TC2: June 2010 (age 36) / Left orchiectomy / seminoma stage 1 / 1 Prostheses / Androgel 2X 5G packets]

                          Fish [TC1 1988 (age 26), primarily embryonal cell carcinoma with teratoma & seminoma, Stage 1, RPLND, surveillance] /+15 years [TC2 2003 (age 42), pure seminoma, Stage 1, surveillance]

                          greg_oz [TC1 1998 (age 24), embryonal carcinoma & seminoma, stage I, surveillance, recurrence 1999, 3xBEP] /+10 years [TC2 2008 (age 34), seminoma stage I, XRT]

                          Groundhog [TC1 1988 (age 38), pure seminoma, stage 1, surveillance/ +21 1/2 years [TC2 2010 (age 59), pure seminoma, stage 1, surveillance. 5g testim]

                          Healthnut [TC1 1995 (age 28), pure seminoma stage 1, radiation] / +8 years [TC2 2003 (age 35), pure seminoma stage 1, surveillance]

                          Hugh [TC1 1989 (age 40), seminoma stage 1, radiation] / +21 years [TC2 2010 (age 61), seminoma stage 1, 1 x Carboplatin]

                          James [TC1 2001 (Sept), Seminoma Stage IIIa, Right IO] /+3 Months] [TC2 2001 (Dec), type/stage, Left IO, mixed "germ cell". No sign of invasion, surveillance surveillance but in 2004 my lymph nodes AND lung showed a problem with my routine scans. Ended up "re-lapsing" after 3 years and had to do 4 rounds of B/E/P. No RPLND needed as remaining scar tissue all disappeared a few months after last chemo treatment, 4x BEP Completed 2/14/05]

                          joev [TC1 1998 (age 31), pure seminoma stage 1, RT] /+3 years [TC2 2001 (age 34), pure seminoma stage 1, surveillance]

                          Joe3man [TC1 2006 (age 32), seminoma stage I-25 Rounds of Radiation] [TC2 2010 (age 36), seminoma stage I-surveillance]

                          JonM [TC1 1997 (age 31), teratoma stage III, X4 BEP, X3 VIP, RPLND, x5 GAMEC, RPLND (2), LT] /+11 years [TC2 2008 (age 43), Stage 1 Seminoma, Right orchidectomy, x1 Carboplatin, Surveillance]

                          Kiwi [TC1 2001 (age 36), seminoma stage 1, right IO, Radiation] /+7 years [TC2 2008 (age 43), seminoma stage 1, Left IO, surveillance] two prosthetics

                          LeePee [TC1 1992 (age 34), pure seminoma, left orchidectomy, Radiation] + 14 years [ TC2 2006 (age 48), seminoma stage 1, right orchidectomy, 1 dose carboplatine, surveillance] two x prosthetics

                          LeeR [TC1 1997 (age 30), seminoma stage 1, Radiotherapy] /+12 years [TC2 2009 (age 42) seminoma stage 1, 1x carboplatin] In between episodes had two boys to add to a daughter.

                          Leo [TC1/2 at the same time jul/2012 (age 32), left/right IO, seminoma stage 1, 2 rounds of Carboplatin, two prosthetics, TRT Nebido each 11 weeks]

                          lindsayn [TC1 May 2000 (age 24), seminoma Stage 1, radiotherapy - right side; TC2 October 2010, seminoma Stage 1, surveillance at this stage - left)

                          Marc311978 [TC1 1997 (age 18), seminoma stage 1, Radiation] /+12 years [TC2 2009 (age 31) seminoma stage 1, surveillance]

                          No nuts [TC1 2006 (age 27), seminoma right radiation treatment] / +7 years [TC2 2013 age 34 seminoma left carboplaten testepe]

                          pcwilson [TC1 1997 (aged 27), teratoma, stage I, surveillance] /+10 years [TC2 2007 (aged 38), seminoma stage I, surveillance]

                          Perk, TC1 2001, seminoma, teratoma, embryonal carcinoma, uncertain type, Stage 1, lymph node dissection (negative 2001), surveillance. TC2 2006, embryonal carcinoma, seminoma, Stage 1, surveillance. AndroGel Pump...

                          PISKOT (wife) TC1: 2005, pure seminoma, stage 1, left I/0, radiation (age 43), TC2: 2010, seminoma, right I/0 2xBEP), HRT Nebido (age 48)

                          robert j [7/2009 TC in Both!) both seminoma stage 1, surveillance] (opted for 2 prosthetics at time of surgery, now on HRT bi-weekly self injection).

                          Rosc [TC-1: 5/1990 (age 29). Seminoma some Embryonal, Left Orch. and surveillance. Appears in lymphnodes in 1992. RPLND using laparoscopy and then 6wks. radiation therapy. Clean until 2008. (TC-2 4/2008) age 46. Pure Seminoma. Right Orch. and chemo. (2X Carboplatin). HRT is weekly self IM injections with 100mg Cypionate. In between episodes had two children with wonderful wife.

                          Roybatty [TC1 1987 (age 22), seminoma stage 1, Radiation, HRT, implant TC2,seminoma stage 1, 2013 age 48, implant, surveillance, plastic surgery]

                          Schmitt313 (wife) [TC1 -left- 2006 (age 29), non-seminoma, stage 3, chemo 9 wks,] in between we had a healthy baby boy to add to our two daughters![ TC2 12/2008 (age 32) pure-seminoma, surveillance, two prosthetics, Testim]

                          Smerd [TC1 Feb 2008 (age 30), Non-Seminoma with some Seminoma Stage 1] [TC2 October 2008 Seminoma Stage I] Partial Orch

                          stefanos1999 [TC1 Nov 2010 (age 30), Right (pure seminoma,6cm StageI, Carbo) / +3 years Dec 2013[TC2 Left P/O "partial orchiectomy"(1cm pure seminoma again,StageI, age33) ..75% of the testicle remained..TIN/ IGCNU]

                          TC Runner: Left TC 5-2010 (age 35) 95% seminoma 5% non-seminoma – lymphovascular involvement but confined to the testicle. Left I/O and surveillance. Right TC 11-2010 (age 36) –90% embryonal 10% seminoma – lymphovascular involvement + 3 enlarged lymph – staged 2B. Right I/O & Right prosthetic. January 2011 3 x BEP.

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                          Sample
                          You [TC1 20?? (age ??), type/stage, Left or Right IO, treatment / other info] /+? years [TC2 20?? (age ??), type/stage, Left or Right IO, treatment / other info]
                          >>>>>>>>>
                          TC1: May 2001 / Right orchiectomy / seminoma stage 1 / Radiation
                          TC2: July 2008 / Left orchiectomy / seminoma stage 1 / X2 Prostheses / Reandron (long term Testosterone injections)

                          Comment


                          • #58
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                            You [TC1 20?? (age ??), type/stage, Left or Right IO, treatment / other info] /+? years [TC2 20?? (age ??), type/stage, Left or Right IO, treatment / other info]
                            __________________________________________________ ______________________________

                            34with1 ['fake' TC1 1975 (age 6 mos), preventative right orchidectomy]/+34.5 years [real TC1 2010 (age 35), seminoma stage 3, left orchidectomy and 4xBEP] Infertility+TRT (Axiron) since age 30, so wife and I adopted 3 kids.

                            AdrianE [TC1 2008 (age 32), Teratoma stage I, surveillance] same time [TC2 2008, Seminoma stage 1, surveillance]

                            Aegletes [TC1 1996 (age 30), seminoma stage I XRT] /+12 years [TC2 2008 (age 42), seminoma stage I surveillance]

                            Andycoles [TC1 2006 (aged 30), seminoma Stage 1, right orchidectomy plus 1 dose Carboplatine], [TC2 2009 (aged 33), intratubular germ cell neplasia, left orchidectomy]

                            Ariel [TC1 1999 (age 25), seminoma Stage 1, right orchiectomy, radiation, prosthetic]/+10 years [TC2 2009 (age 35), seminoma Stage 1, left orchiectomy, surveillance, prosthetic, 10mg androgel daily]

                            Bipestuff [TC1 1983 (age 27), seminoma stage 1, Radiation] /+22 years [TC2 2005 (age 49), surveillance]

                            BraveOne [TC 1 & 2 7/2009 (age 32). Pure Seminoma, bilateral orch and implants and surveillance only. 10mg androgel] Glad to be TC free!

                            cbudd [{TC1: (age 21) July 2005 / Left orchiectomy/ Prostheses}
                            {TC2: (age 27) May 2011 / Right orchiectomy (surgery is scheduled 6-1-11) / Cancer found in Lymph Nodes as well/ No Prostheses / Chemotherapy to come (if not more)}]

                            Davepet [TC1 1975 (age20) Unknown type & stage, right I/O, RPLND] /+35 years \[TC2 2009 (age55) Mixed embryonal& seminoma, Left I/O, followed by 3xBEP]

                            DoubleZero [TC1 2009 (age 40). Seminoma stage 1, radiation; TC2 2010 (age 41) embryonal carcinoma stage 1, surveillance; 2010 relapse 3xBEP]

                            dsomers74 [TC1: May 2000 (age 25) / Right orchiectomy / seminoma stage 1 / Radiation
                            TC2: June 2010 (age 36) / Left orchiectomy / seminoma stage 1 / 1 Prostheses / Androgel 2X 5G packets]

                            Fish [TC1 1988 (age 26), primarily embryonal cell carcinoma with teratoma & seminoma, Stage 1, RPLND, surveillance] /+15 years [TC2 2003 (age 42), pure seminoma, Stage 1, surveillance]

                            greg_oz [TC1 1998 (age 24), embryonal carcinoma & seminoma, stage I, surveillance, recurrence 1999, 3xBEP] /+10 years [TC2 2008 (age 34), seminoma stage I, XRT]

                            Groundhog [TC1 1988 (age 38), pure seminoma, stage 1, surveillance/ +21 1/2 years [TC2 2010 (age 59), pure seminoma, stage 1, surveillance. 5g testim]

                            Healthnut [TC1 1995 (age 28), pure seminoma stage 1, radiation] / +8 years [TC2 2003 (age 35), pure seminoma stage 1, surveillance]

                            Hugh [TC1 1989 (age 40), seminoma stage 1, radiation] / +21 years [TC2 2010 (age 61), seminoma stage 1, 1 x Carboplatin]

                            James [TC1 2001 (Sept), Seminoma Stage IIIa, Right IO] /+3 Months] [TC2 2001 (Dec), type/stage, Left IO, mixed "germ cell". No sign of invasion, surveillance surveillance but in 2004 my lymph nodes AND lung showed a problem with my routine scans. Ended up "re-lapsing" after 3 years and had to do 4 rounds of B/E/P. No RPLND needed as remaining scar tissue all disappeared a few months after last chemo treatment, 4x BEP Completed 2/14/05]

                            joev [TC1 1998 (age 31), pure seminoma stage 1, RT] /+3 years [TC2 2001 (age 34), pure seminoma stage 1, surveillance]

                            Joe3man [TC1 2006 (age 32), seminoma stage I-25 Rounds of Radiation] [TC2 2010 (age 36), seminoma stage I-surveillance]

                            JonM [TC1 1997 (age 31), teratoma stage III, X4 BEP, X3 VIP, RPLND, x5 GAMEC, RPLND (2), LT] /+11 years [TC2 2008 (age 43), Stage 1 Seminoma, Right orchidectomy, x1 Carboplatin, Surveillance]

                            Kiwi [TC1 2001 (age 36), seminoma stage 1, right IO, Radiation] /+7 years [TC2 2008 (age 43), seminoma stage 1, Left IO, surveillance] two prosthetics

                            LeePee [TC1 1992 (age 34), pure seminoma, left orchidectomy, Radiation] + 14 years [ TC2 2006 (age 48), seminoma stage 1, right orchidectomy, 1 dose carboplatine, surveillance] two x prosthetics

                            LeeR [TC1 1997 (age 30), seminoma stage 1, Radiotherapy] /+12 years [TC2 2009 (age 42) seminoma stage 1, 1x carboplatin] In between episodes had two boys to add to a daughter.

                            Leo [TC1/2 at the same time jul/2012 (age 32), left/right IO, seminoma stage 1, 2 rounds of Carboplatin, two prosthetics, TRT Nebido each 11 weeks]

                            lindsayn [TC1 May 2000 (age 24), seminoma Stage 1, radiotherapy - right side; TC2 October 2010, seminoma Stage 1, surveillance at this stage - left)

                            Marc311978 [TC1 1997 (age 18), seminoma stage 1, Radiation] /+12 years [TC2 2009 (age 31) seminoma stage 1, surveillance]

                            No nuts [TC1 2006 (age 27), seminoma right radiation treatment] / +7 years [TC2 2013 age 34 seminoma left carboplaten testepe]

                            pcwilson [TC1 1997 (aged 27), teratoma, stage I, surveillance] /+10 years [TC2 2007 (aged 38), seminoma stage I, surveillance]

                            Perk, TC1 2001, seminoma, teratoma, embryonal carcinoma, uncertain type, Stage 1, lymph node dissection (negative 2001), surveillance. TC2 2006, embryonal carcinoma, seminoma, Stage 1, surveillance. AndroGel Pump...

                            PISKOT (wife) TC1: 2005, pure seminoma, stage 1, left I/0, radiation (age 43), TC2: 2010, seminoma, right I/0 2xBEP), HRT Nebido (age 48)

                            robert j [7/2009 TC in Both!) both seminoma stage 1, surveillance] (opted for 2 prosthetics at time of surgery, now on HRT bi-weekly self injection).

                            Rosc [TC-1: 5/1990 (age 29). Seminoma some Embryonal, Left Orch. and surveillance. Appears in lymphnodes in 1992. RPLND using laparoscopy and then 6wks. radiation therapy. Clean until 2008. (TC-2 4/2008) age 46. Pure Seminoma. Right Orch. and chemo. (2X Carboplatin). HRT is weekly self IM injections with 100mg Cypionate. In between episodes had two children with wonderful wife.

                            Roybatty [TC1 1987 (age 22), seminoma stage 1, Radiation, HRT, implant TC2,seminoma stage 1, 2013 age 48, implant, surveillance, plastic surgery]

                            Schmitt313 (wife) [TC1 -left- 2006 (age 29), non-seminoma, stage 3, chemo 9 wks,] in between we had a healthy baby boy to add to our two daughters![ TC2 12/2008 (age 32) pure-seminoma, surveillance, two prosthetics, Testim]

                            Smerd [TC1 Feb 2008 (age 30), Non-Seminoma with some Seminoma Stage 1] [TC2 October 2008 Seminoma Stage I] Partial Orch

                            stefanos1999 [TC1 Nov 2010 (age 30), Right (pure seminoma,6cm StageI, Carbo) / +3 years Dec 2013[TC2 Left P/O "partial orchiectomy"(1cm pure seminoma again,StageI, age33) ..75% of the testicle remained..TIN/ IGCNU]

                            TC Runner: Left TC 5-2010 (age 35) 95% seminoma 5% non-seminoma lymphovascular involvement but confined to the testicle. Left I/O and surveillance. Right TC 11-2010 (age 36) 90% embryonal 10% seminoma lymphovascular involvement + 3 enlarged lymph staged 2B. Right I/O & Right prosthetic. January 2011 3 x BEP.

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                            Sample
                            You [TC1 20?? (age ??), type/stage, Left or Right IO, treatment / other info] /+? years [TC2 20?? (age ??), type/stage, Left or Right IO, treatment / other info]

                            Jan 2009: RHS (Seminoma) & RT
                            Mar 2010: LHS (Embryonal Carcinoma)
                            Sep 2010: Relapse & 3 x BEP
                            Mar 2015: Five years "nut free"
                            http://doublezeroami.blogspot.com

                            Comment


                            • #59
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                              Sample
                              You [TC1 20?? (age ??), type/stage, Left or Right IO, treatment / other info] /+? years [TC2 20?? (age ??), type/stage, Left or Right IO, treatment / other info]
                              __________________________________________________ ______________________________

                              34with1 ['fake' TC1 1975 (age 6 mos), preventative right orchidectomy]/+34.5 years [real TC1 2010 (age 35), seminoma stage 3, left orchidectomy and 4xBEP] Infertility+TRT (Axiron) since age 30, so wife and I adopted 3 kids.

                              AdrianE [TC1 2008 (age 32), Teratoma stage I, surveillance] same time [TC2 2008, Seminoma stage 1, surveillance]

                              Aegletes [TC1 1996 (age 30), seminoma stage I XRT] /+12 years [TC2 2008 (age 42), seminoma stage I surveillance]

                              Andycoles [TC1 2006 (aged 30), seminoma Stage 1, right orchidectomy plus 1 dose Carboplatine], [TC2 2009 (aged 33), intratubular germ cell neplasia, left orchidectomy]

                              Ariel [TC1 1999 (age 25), seminoma Stage 1, right orchiectomy, radiation, prosthetic]/+10 years [TC2 2009 (age 35), seminoma Stage 1, left orchiectomy, surveillance, prosthetic, 10mg androgel daily]

                              Bipestuff [TC1 1983 (age 27), seminoma stage 1, Radiation] /+22 years [TC2 2005 (age 49), surveillance]

                              BraveOne [TC 1 & 2 7/2009 (age 32). Pure Seminoma, bilateral orch and implants and surveillance only. 10mg androgel] Glad to be TC free!

                              cbudd [{TC1: (age 21) July 2005 / Left orchiectomy/ Prostheses}
                              {TC2: (age 27) May 2011 / Right orchiectomy (surgery is scheduled 6-1-11) / Cancer found in Lymph Nodes as well/ No Prostheses / Chemotherapy to come (if not more)}]

                              Davepet [TC1 1975 (age20) Unknown type & stage, right I/O, RPLND] /+35 years \[TC2 2009 (age55) Mixed embryonal& seminoma, Left I/O, followed by 3xBEP]

                              DoubleZero [TC1 2009 (age 40). Seminoma stage 1, radiation; TC2 2010 (age 41) embryonal carcinoma stage 1, surveillance; 2010 relapse 3xBEP]

                              dsomers74 [TC1: May 2000 (age 25) / Right orchiectomy / seminoma stage 1 / Radiation
                              TC2: June 2010 (age 36) / Left orchiectomy / seminoma stage 1 / 1 Prostheses / Androgel 2X 5G packets]

                              Fish [TC1 1988 (age 26), primarily embryonal cell carcinoma with teratoma & seminoma, Stage 1, RPLND, surveillance] /+15 years [TC2 2003 (age 42), pure seminoma, Stage 1, surveillance]

                              greg_oz [TC1 1998 (age 24), embryonal carcinoma & seminoma, stage I, surveillance, recurrence 1999, 3xBEP] /+10 years [TC2 2008 (age 34), seminoma stage I, XRT]

                              Groundhog [TC1 1988 (age 38), pure seminoma, stage 1, surveillance/ +21 1/2 years [TC2 2010 (age 59), pure seminoma, stage 1, surveillance. 5g testim]

                              Healthnut [TC1 1995 (age 28), pure seminoma stage 1, radiation] / +8 years [TC2 2003 (age 35), pure seminoma stage 1, surveillance]

                              Hugh [TC1 1989 (age 40), seminoma stage 1, radiation] / +21 years [TC2 2010 (age 61), seminoma stage 1, 1 x Carboplatin]

                              James [TC1 2001 (Sept), Seminoma Stage IIIa, Right IO] /+3 Months] [TC2 2001 (Dec), type/stage, Left IO, mixed "germ cell". No sign of invasion, surveillance surveillance but in 2004 my lymph nodes AND lung showed a problem with my routine scans. Ended up "re-lapsing" after 3 years and had to do 4 rounds of B/E/P. No RPLND needed as remaining scar tissue all disappeared a few months after last chemo treatment, 4x BEP Completed 2/14/05]

                              Jesse 74 [TC1 May 2011 (age 36) classic seminoma stage 1, Left IO, Radiation] /+ 2years & 7 months [TC2 January 2014 (age 39), 2 nodules; nonseminoma and a seminoma stage 1a, Right IO, treatment TBD per Dr. Einhorn]

                              joev [TC1 1998 (age 31), pure seminoma stage 1, RT] /+3 years [TC2 2001 (age 34), pure seminoma stage 1, surveillance]

                              Joe3man [TC1 2006 (age 32), seminoma stage I-25 Rounds of Radiation] [TC2 2010 (age 36), seminoma stage I-surveillance]

                              JonM [TC1 1997 (age 31), teratoma stage III, X4 BEP, X3 VIP, RPLND, x5 GAMEC, RPLND (2), LT] /+11 years [TC2 2008 (age 43), Stage 1 Seminoma, Right orchidectomy, x1 Carboplatin, Surveillance]

                              Kiwi [TC1 2001 (age 36), seminoma stage 1, right IO, Radiation] /+7 years [TC2 2008 (age 43), seminoma stage 1, Left IO, surveillance] two prosthetics

                              LeePee [TC1 1992 (age 34), pure seminoma, left orchidectomy, Radiation] + 14 years [ TC2 2006 (age 48), seminoma stage 1, right orchidectomy, 1 dose carboplatine, surveillance] two x prosthetics

                              LeeR [TC1 1997 (age 30), seminoma stage 1, Radiotherapy] /+12 years [TC2 2009 (age 42) seminoma stage 1, 1x carboplatin] In between episodes had two boys to add to a daughter.

                              Leo [TC1/2 at the same time jul/2012 (age 32), left/right IO, seminoma stage 1, 2 rounds of Carboplatin, two prosthetics, TRT Nebido each 11 weeks]

                              lindsayn [TC1 May 2000 (age 24), seminoma Stage 1, radiotherapy - right side; TC2 October 2010, seminoma Stage 1, surveillance at this stage - left)

                              Marc311978 [TC1 1997 (age 18), seminoma stage 1, Radiation] /+12 years [TC2 2009 (age 31) seminoma stage 1, surveillance]

                              No nuts [TC1 2006 (age 27), seminoma right radiation treatment] / +7 years [TC2 2013 age 34 seminoma left carboplaten testepe]

                              pcwilson [TC1 1997 (aged 27), teratoma, stage I, surveillance] /+10 years [TC2 2007 (aged 38), seminoma stage I, surveillance]

                              Perk, TC1 2001, seminoma, teratoma, embryonal carcinoma, uncertain type, Stage 1, lymph node dissection (negative 2001), surveillance. TC2 2006, embryonal carcinoma, seminoma, Stage 1, surveillance. AndroGel Pump...

                              PISKOT (wife) TC1: 2005, pure seminoma, stage 1, left I/0, radiation (age 43), TC2: 2010, seminoma, right I/0 2xBEP), HRT Nebido (age 48)

                              robert j [7/2009 TC in Both!) both seminoma stage 1, surveillance] (opted for 2 prosthetics at time of surgery, now on HRT bi-weekly self injection).

                              Rosc [TC-1: 5/1990 (age 29). Seminoma some Embryonal, Left Orch. and surveillance. Appears in lymphnodes in 1992. RPLND using laparoscopy and then 6wks. radiation therapy. Clean until 2008. (TC-2 4/2008) age 46. Pure Seminoma. Right Orch. and chemo. (2X Carboplatin). HRT is weekly self IM injections with 100mg Cypionate. In between episodes had two children with wonderful wife.

                              Roybatty [TC1 1987 (age 22), seminoma stage 1, Radiation, HRT, implant TC2,seminoma stage 1, 2013 age 48, implant, surveillance, plastic surgery]

                              Schmitt313 (wife) [TC1 -left- 2006 (age 29), non-seminoma, stage 3, chemo 9 wks,] in between we had a healthy baby boy to add to our two daughters![ TC2 12/2008 (age 32) pure-seminoma, surveillance, two prosthetics, Testim]

                              Smerd [TC1 Feb 2008 (age 30), Non-Seminoma with some Seminoma Stage 1] [TC2 October 2008 Seminoma Stage I] Partial Orch

                              stefanos1999 [TC1 Nov 2010 (age 30), Right (pure seminoma,6cm StageI, Carbo) / +3 years Dec 2013[TC2 Left P/O "partial orchiectomy"(1cm pure seminoma again,StageI, age33) ..75% of the testicle remained..TIN/ IGCNU]

                              TC Runner: Left TC 5-2010 (age 35) 95% seminoma 5% non-seminoma lymphovascular involvement but confined to the testicle. Left I/O and surveillance. Right TC 11-2010 (age 36) 90% embryonal 10% seminoma lymphovascular involvement + 3 enlarged lymph staged 2B. Right I/O & Right prosthetic. January 2011 3 x BEP.

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                              Sample
                              You [TC1 20?? (age ??), type/stage, Left or Right IO, treatment / other info] /+? years [TC2 20?? (age ??), type/stage, Left or Right IO, treatment / other info]
                              5-15-11: found mass (left)
                              5-16-11: ultra sound
                              5-17-11: visit urologist confirmed mass and recommended IO and Blood test were completed on this visit and was later informed they were normal
                              5-23-11: Left IO.
                              5-26-11: had CT scan completed all clear and then follow up with urologist for pathology report. Diagnosed with classic seminoma stage a.
                              July/August 2011 Radiation
                              12-28-13: found mass (right)
                              01-03-14: ultra sound and appt with urologist confirmed mass
                              01-10-14: Right IO

                              Comment


                              • #60
                                34with1 ['fake' TC1 1975 (age 6 mos), preventative right orchidectomy]/+34.5 years [real TC1 2010 (age 35), seminoma stage 3, left orchidectomy and 4xBEP] Infertility+TRT (Axiron) since age 30, so wife and I adopted 3 kids.

                                AdrianE [TC1 2008 (age 32), Teratoma stage I, surveillance] same time [TC2 2008, Seminoma stage 1, surveillance]

                                Aegletes [TC1 1996 (age 30), seminoma stage I XRT] /+12 years [TC2 2008 (age 42), seminoma stage I surveillance]

                                Andycoles [TC1 2006 (aged 30), seminoma Stage 1, right orchidectomy plus 1 dose Carboplatine], [TC2 2009 (aged 33), intratubular germ cell neplasia, left orchidectomy]

                                Ariel [TC1 1999 (age 25), seminoma Stage 1, right orchiectomy, radiation, prosthetic]/+10 years [TC2 2009 (age 35), seminoma Stage 1, left orchiectomy, surveillance, prosthetic, 10mg androgel daily]

                                Bipestuff [TC1 1983 (age 27), seminoma stage 1, Radiation] /+22 years [TC2 2005 (age 49), surveillance]

                                BraveOne [TC 1 & 2 7/2009 (age 32). Pure Seminoma, bilateral orch and implants and surveillance only. 10mg androgel] Glad to be TC free!

                                cbudd [{TC1: (age 21) July 2005 / Left orchiectomy/ Prostheses}
                                {TC2: (age 27) May 2011 / Right orchiectomy (surgery is scheduled 6-1-11) / Cancer found in Lymph Nodes as well/ No Prostheses / Chemotherapy to come (if not more)}]

                                Davepet [TC1 1975 (age20) Unknown type & stage, right I/O, RPLND] /+35 years \[TC2 2009 (age55) Mixed embryonal& seminoma, Left I/O, followed by 3xBEP]

                                DoubleZero [TC1 2009 (age 40). Seminoma stage 1, radiation; TC2 2010 (age 41) embryonal carcinoma stage 1, surveillance; 2010 relapse 3xBEP]

                                dsomers74 [TC1: May 2000 (age 25) / Right orchiectomy / seminoma stage 1 / Radiation
                                TC2: June 2010 (age 36) / Left orchiectomy / seminoma stage 1 / 1 Prostheses / Androgel 2X 5G packets]

                                Fish [TC1 1988 (age 26), primarily embryonal cell carcinoma with teratoma & seminoma, Stage 1, RPLND, surveillance] /+15 years [TC2 2003 (age 42), pure seminoma, Stage 1, surveillance]

                                greg_oz [TC1 1998 (age 24), embryonal carcinoma & seminoma, stage I, surveillance, recurrence 1999, 3xBEP] /+10 years [TC2 2008 (age 34), seminoma stage I, XRT]

                                Groundhog [TC1 1988 (age 38), pure seminoma, stage 1, surveillance/ +21 1/2 years [TC2 2010 (age 59), pure seminoma, stage 1, surveillance. 5g testim]

                                Healthnut [TC1 1995 (age 28), pure seminoma stage 1, radiation] / +8 years [TC2 2003 (age 35), pure seminoma stage 1, surveillance]

                                Hugh [TC1 1989 (age 40), seminoma stage 1, radiation] / +21 years [TC2 2010 (age 61), seminoma stage 1, 1 x Carboplatin]

                                James [TC1 2001 (Sept), Seminoma Stage IIIa, Right IO] /+3 Months] [TC2 2001 (Dec), type/stage, Left IO, mixed "germ cell". No sign of invasion, surveillance surveillance but in 2004 my lymph nodes AND lung showed a problem with my routine scans. Ended up "re-lapsing" after 3 years and had to do 4 rounds of B/E/P. No RPLND needed as remaining scar tissue all disappeared a few months after last chemo treatment, 4x BEP Completed 2/14/05]

                                Jesse 74 [TC1 May 2011 (age 36) classic seminoma stage 1, Left IO, Radiation] /+ 2years & 7 months [TC2 January 2014 (age 39), 2 nodules; nonseminoma and a seminoma stage 1a, Right IO, treatment TBD per Dr. Einhorn]

                                joev [TC1 1998 (age 31), pure seminoma stage 1, RT] /+3 years [TC2 2001 (age 34), pure seminoma stage 1, surveillance]

                                Joe3man [TC1 2006 (age 32), seminoma stage I-25 Rounds of Radiation] [TC2 2010 (age 36), seminoma stage I-surveillance]

                                JonM [TC1 1997 (age 31), teratoma stage III, X4 BEP, X3 VIP, RPLND, x5 GAMEC, RPLND (2), LT] /+11 years [TC2 2008 (age 43), Stage 1 Seminoma, Right orchidectomy, x1 Carboplatin, Surveillance]

                                Kiwi [TC1 2001 (age 36), seminoma stage 1, right IO, Radiation] /+7 years [TC2 2008 (age 43), seminoma stage 1, Left IO, surveillance] two prosthetics

                                LeePee [TC1 1992 (age 34), pure seminoma, left orchidectomy, Radiation] + 14 years [ TC2 2006 (age 48), seminoma stage 1, right orchidectomy, 1 dose carboplatine, surveillance] two x prosthetics

                                LeeR [TC1 1997 (age 30), seminoma stage 1, Radiotherapy] /+12 years [TC2 2009 (age 42) seminoma stage 1, 1x carboplatin] In between episodes had two boys to add to a daughter.

                                Leo [TC1/2 at the same time jul/2012 (age 32), left/right IO, seminoma stage 1, 2 rounds of Carboplatin, two prosthetics, TRT Nebido each 11 weeks]

                                lindsayn [TC1 May 2000 (age 24), seminoma Stage 1, radiotherapy - right side; TC2 October 2010, seminoma Stage 1, surveillance at this stage - left)

                                Marc311978 [TC1 1997 (age 18), seminoma stage 1, Radiation] /+12 years [TC2 2009 (age 31) seminoma stage 1, surveillance]

                                No nuts [TC1 2006 (age 27), seminoma right radiation treatment] / +7 years [TC2 2013 age 34 seminoma left carboplaten testepe]

                                pcwilson [TC1 1997 (aged 27), teratoma, stage I, surveillance] /+10 years [TC2 2007 (aged 38), seminoma stage I, surveillance]

                                Perk, TC1 2001, seminoma, teratoma, embryonal carcinoma, uncertain type, Stage 1, lymph node dissection (negative 2001), surveillance. TC2 2006, embryonal carcinoma, seminoma, Stage 1, surveillance. AndroGel Pump...

                                PISKOT (wife) TC1: 2005, pure seminoma, stage 1, left I/0, radiation (age 43), TC2: 2010, seminoma, right I/0 2xBEP), HRT Nebido (age 48)

                                robert j [7/2009 TC in Both!) both seminoma stage 1, surveillance] (opted for 2 prosthetics at time of surgery, now on HRT bi-weekly self injection).

                                Rosc [TC-1: 5/1990 (age 29). Seminoma some Embryonal, Left Orch. and surveillance. Appears in lymphnodes in 1992. RPLND using laparoscopy and then 6wks. radiation therapy. Clean until 2008. (TC-2 4/2008) age 46. Pure Seminoma. Right Orch. and chemo. (2X Carboplatin). HRT is weekly self IM injections with 100mg Cypionate. In between episodes had two children with wonderful wife.

                                Roybatty [TC1 1987 (age 22), seminoma stage 1, Radiation, HRT, implant TC2,seminoma stage 1, 2013 age 48, implant, surveillance, plastic surgery]

                                Schmitt313 (wife) [TC1 -left- 2006 (age 29), non-seminoma, stage 3, chemo 9 wks,] in between we had a healthy baby boy to add to our two daughters![ TC2 12/2008 (age 32) pure-seminoma, surveillance, two prosthetics, Testim]

                                Smerd [TC1 Feb 2008 (age 30), Non-Seminoma with some Seminoma Stage 1] [TC2 October 2008 Seminoma Stage I] Partial Orch

                                Steffo [TC1:2001 (18 yo), embryo carcinome, stage 1A, left, RPLND clean] / +12 years [TC2:2013 (31 yo), mixed embryo, yolk, tera, chorio + vasal invasion, stage 2B, right, cryopreservation, 2xBEP. just switched from Nebid(o) to Andro/Testogel]

                                stefanos1999 [TC1 Nov 2010 (age 30), Right (pure seminoma,6cm StageI, Carbo) / +3 years Dec 2013[TC2 Left P/O "partial orchiectomy"(1cm pure seminoma again,StageI, age33) ..75% of the testicle remained..TIN/ IGCNU]

                                TC Runner: Left TC 5-2010 (age 35) 95% seminoma 5% non-seminoma lymphovascular involvement but confined to the testicle. Left I/O and surveillance. Right TC 11-2010 (age 36) 90% embryonal 10% seminoma lymphovascular involvement + 3 enlarged lymph staged 2B. Right I/O & Right prosthetic. January 2011 3 x BEP.

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                                Sample
                                You [TC1 20?? (age ??), type/stage, Left or Right IO, treatment / other info] /+? years [TC2 20?? (age ??), type/stage, Left or Right IO, treatment / other info]
                                Born 1982.
                                2001 TC 1A (embryo carcinome) + RPLND, clear.
                                2013 TC 2B (mixed embryo chorio thera yolk sac + vasal invasion) + 2xBEP, clear.
                                TRT: Nebido insufficient, switched to Testogel 50mg.

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