Announcement

Announcement Module
Collapse
No announcement yet.

Find a Warrior

Page Title Module
Move Remove Collapse
This is a sticky topic.
X
X
Conversation Detail Module
Collapse
  • Filter
  • Time
  • Show
Clear All
new posts

  • Kiwi
    started a topic Find a Warrior

    Find a Warrior

    Could we put TC2 list together like the Occupation List?

    Copy and paste add details in alpha order?

    You can also join the 2X Warriors Social Group (when you are logged in under Networking in the quick links) or click this link http://www.tc-cancer.com/forum/group.php?groupid=6

    >>>>>>>>>>

    Kiwi (TC1 2001 / TC2 2008)


    >>>>>>>>>>

    Fast track and access the LAST Page to read all entries - cheers Kiwi January 2014 - instructions for updating follow below
    (as at November 2014 we are a group of 41!)


    __________________________________________________ ___

    To update:
    1. Copy all the the Posts (and these instructions)
    2. Click Reply
    3. Paste into the Reply
    4. Add your Details

    Sample
    You [TC1 20?? (age ??), type/stage, Left or Right IO, treatment / other info] /+? years [TC2 20?? (age ??), type/stage, Left or Right IO, treatment / other info]

    __________________________________________________ __
    Last edited by Kiwi; 11-01-14, 08:25 AM.

  • Kak584
    replied
    Adding myself to the list...
    ________________________

    34with1 ['fake' TC1 1975 (age 6 mos), preventative right orchidectomy]/+34.5 years [real TC1 2010 (age 35), seminoma stage 3, left orchidectomy and 4xBEP] Infertility+TRT (Axiron) since age 30, so wife and I adopted 3 kids.

    AdrianE [TC1 2008 (age 32), Teratoma stage I, surveillance] same time [TC2 2008, Seminoma stage 1, surveillance]

    Aegletes [TC1 1996 (age 30), seminoma stage I XRT] /+12 years [TC2 2008 (age 42), seminoma stage I surveillance]

    Andycoles [TC1 2006 (aged 30), seminoma Stage 1, right orchidectomy plus 1 dose Carboplatine], [TC2 2009 (aged 33), intratubular germ cell neplasia, left orchidectomy]

    Ariel [TC1 1999 (age 25), seminoma Stage 1, right orchiectomy, radiation, prosthetic]/+10 years [TC2 2009 (age 35), seminoma Stage 1, left orchiectomy, surveillance, prosthetic, 10mg androgel daily]

    Bipestuff [TC1 1983 (age 27), seminoma stage 1, Radiation] /+22 years [TC2 2005 (age 49), surveillance]

    BLWedge09 [TC1 1/2010 (age 29) Primarily EC Stage 1,Right orchiectomy(inguinal), 1xBEP/No prosthesis]+2.5 Years [TC2 6/2012 (age 32) Seminoma Stage 1,Left orchiectomy(scrotal), 1xBEP/2 Prosthesis, TRT is weekly Testosterone Cypionate IM injections @ 100mg]

    BraveOne [TC 1 & 2 7/2009 (age 32). Pure Seminoma, bilateral orch and implants and surveillance only. 10mg androgel] Glad to be TC free!

    cbudd [{TC1: (age 21) July 2005 / Left orchiectomy/ Prostheses}
    {TC2: (age 27) May 2011 / Right orchiectomy (surgery is scheduled 6-1-11) / Cancer found in Lymph Nodes as well/ No Prostheses / Chemotherapy to come (if not more)}]

    Davepet [TC1 1975 (age20) Unknown type & stage, right I/O, RPLND] /+35 years \[TC2 2009 (age55) Mixed embryonal& seminoma, Left I/O, followed by 3xBEP]

    DoubleZero [TC1 2009 (age 40). Seminoma stage 1, radiation; TC2 2010 (age 41) embryonal carcinoma stage 1, surveillance; 2010 relapse 3xBEP]

    dsomers74 [TC1: May 2000 (age 25) / Right orchiectomy / seminoma stage 1 / Radiation
    TC2: June 2010 (age 36) / Left orchiectomy / seminoma stage 1 / 1 Prostheses / Androgel 2X 5G packets]

    Fish [TC1 1988 (age 26), primarily embryonal cell carcinoma with teratoma & seminoma, Stage 1, RPLND, surveillance] /+15 years [TC2 2003 (age 42), pure seminoma, Stage 1, surveillance]

    greg_oz [TC1 1998 (age 24), embryonal carcinoma & seminoma, stage I, surveillance, recurrence 1999, 3xBEP] /+10 years [TC2 2008 (age 34), seminoma stage I, XRT]

    Groundhog [TC1 1988 (age 38), pure seminoma, stage 1, surveillance/ +21 1/2 years [TC2 2010 (age 59), pure seminoma, stage 1, surveillance. 5g testim]

    Healthnut [TC1 1995 (age 28), pure seminoma stage 1, radiation] / +8 years [TC2 2003 (age 35), pure seminoma stage 1, surveillance]

    Hugh [TC1 1989 (age 40), seminoma stage 1, radiation] / +21 years [TC2 2010 (age 61), seminoma stage 1, 1 x Carboplatin]

    James [TC1 2001 (Sept), Seminoma Stage IIIa, Right IO] /+3 Months] [TC2 2001 (Dec), type/stage, Left IO, mixed "germ cell". No sign of invasion, surveillance surveillance but in 2004 my lymph nodes AND lung showed a problem with my routine scans. Ended up "re-lapsing" after 3 years and had to do 4 rounds of B/E/P. No RPLND needed as remaining scar tissue all disappeared a few months after last chemo treatment, 4x BEP Completed 2/14/05]

    Jesse 74 [TC1 May 2011 (age 36) classic seminoma stage 1, Left IO, Radiation] /+ 2years & 7 months [TC2 January 2014 (age 39), 2 nodules; nonseminoma and a seminoma stage 1a, Right IO, treatment TBD per Dr. Einhorn]

    joev [TC1 1998 (age 31), pure seminoma stage 1, RT] /+3 years [TC2 2001 (age 34), pure seminoma stage 1, surveillance]

    Joe3man [TC1 2006 (age 32), seminoma stage I-25 Rounds of Radiation] [TC2 2010 (age 36), seminoma stage I-surveillance]

    JonM [TC1 1997 (age 31), teratoma stage III, X4 BEP, X3 VIP, RPLND, x5 GAMEC, RPLND (2), LT] /+11 years [TC2 2008 (age 43), Stage 1 Seminoma, Right orchidectomy, x1 Carboplatin, Surveillance]

    Kevin1988 [TC1 2011 (age 23), pure seminoma stage 1A, radiation] /+3 years [TC2 2014 (age 26), seminoma stage 1B, 2X carboplatin, surveillance]

    Kiwi [TC1 2001 (age 36), seminoma stage 1, right IO, Radiation] /+7 years [TC2 2008 (age 43), seminoma stage 1, Left IO, surveillance] two prosthetics

    LeePee [TC1 1992 (age 34), pure seminoma, left orchidectomy, Radiation] + 14 years [ TC2 2006 (age 48), seminoma stage 1, right orchidectomy, 1 dose carboplatine, surveillance] two x prosthetics

    LeeR [TC1 1997 (age 30), seminoma stage 1, Radiotherapy] /+12 years [TC2 2009 (age 42) seminoma stage 1, 1x carboplatin] In between episodes had two boys to add to a daughter.

    Leo [TC1/2 at the same time jul/2012 (age 32), left/right IO, seminoma stage 1, 2 rounds of Carboplatin, two prosthetics, TRT Nebido each 11 weeks]

    lindsayn [TC1 May 2000 (age 24), seminoma Stage 1, radiotherapy - right side; TC2 October 2010, seminoma Stage 1, surveillance at this stage - left)

    Marc311978 [TC1 1997 (age 18), seminoma stage 1, Radiation] /+12 years [TC2 2009 (age 31) seminoma stage 1, surveillance]

    No nuts [TC1 2006 (age 27), seminoma right radiation treatment] / +7 years [TC2 2013 age 34 seminoma left carboplaten testepe]

    pcwilson [TC1 1997 (aged 27), teratoma, stage I, surveillance] /+10 years [TC2 2007 (aged 38), seminoma stage I, surveillance]

    Perk, TC1 2001, seminoma, teratoma, embryonal carcinoma, uncertain type, Stage 1, lymph node dissection (negative 2001), surveillance. TC2 2006, embryonal carcinoma, seminoma, Stage 1, surveillance. AndroGel Pump...

    PISKOT (wife) TC1: 2005, pure seminoma, stage 1, left I/0, radiation (age 43), TC2: 2010, seminoma, right I/0 2xBEP), HRT Nebido (age 48)

    robert j [7/2009 TC in Both!) both seminoma stage 1, surveillance] (opted for 2 prosthetics at time of surgery, now on HRT bi-weekly self injection).

    Rosc [TC-1: 5/1990 (age 29). Seminoma some Embryonal, Left Orch. and surveillance. Appears in lymphnodes in 1992. RPLND using laparoscopy and then 6wks. radiation therapy. Clean until 2008. (TC-2 4/2008) age 46. Pure Seminoma. Right Orch. and chemo. (2X Carboplatin). HRT is weekly self IM injections with 100mg Cypionate. In between episodes had two children with wonderful wife.

    Roybatty [TC1 1987 (age 22), seminoma stage 1, Radiation, HRT, implant TC2,seminoma stage 1, 2013 age 48, implant, surveillance, plastic surgery]

    SamMac84 [TC1 2011 (age 27), pure embryonal stage 2, right I/O, RPLND / surveillance] / + 2 years [TC2 2014 (age 29), pure seminoma stage 1, left I/O, surveillance / Testim]

    Schmitt313 (wife) [TC1 -left- 2006 (age 29), non-seminoma, stage 3, chemo 9 wks,] in between we had a healthy baby boy to add to our two daughters![ TC2 12/2008 (age 32) pure-seminoma, surveillance, two prosthetics, Testim]

    Smerd [TC1 Feb 2008 (age 30), Non-Seminoma with some Seminoma Stage 1] [TC2 October 2008 Seminoma Stage I] Partial Orch

    Steffo [TC1:2001 (18 yo), embryo carcinome, stage 1A, left, RPLND clean] / +12 years [TC2:2013 (31 yo), mixed embryo, yolk, tera, chorio + vasal invasion, stage 2B, right, cryopreservation, 2xBEP. just switched from Nebid(o) to Andro/Testogel]

    stefanos1999 [TC1 Nov 2010 (age 30), Right (pure seminoma,6cm StageI, Carbo) / +3 years Dec 2013[TC2 Left P/O "partial orchiectomy"(1cm pure seminoma again,StageI, age33) ..75% of the testicle remained..TIN/ IGCNU]

    TC Runner: Left TC 5-2010 (age 35) 95% seminoma 5% non-seminoma – lymphovascular involvement but confined to the testicle. Left I/O and surveillance. Right TC 11-2010 (age 36) –90% embryonal 10% seminoma – lymphovascular involvement + 3 enlarged lymph – staged 2B. Right I/O & Right prosthetic. January 2011 3 x BEP.

    Kak584 (TC1 2012 (28), Non-Seminoma Stage I Lymphadic and Vascular invasion, Left, BEP Chemo) (TC2 2015 (31) Seminoma Stage 1, Right, TRT Lifer)

    __________________________________________________ ______________________________
    To update:
    1. Copy all the the Posts (and these instructions)
    2. Click Reply
    3. Paste into the Reply
    4. Add your Details
    __________________________________________________ ______________________________

    Sample
    You [TC1 20?? (age ??), type/stage, Left or Right IO, treatment / other info] /+? years [TC2 20?? (age ??), type/stage, Left or Right IO, treatment / other info]

    Leave a comment:


  • kevin1988
    replied
    Adding myself to the list...
    ________________________

    34with1 ['fake' TC1 1975 (age 6 mos), preventative right orchidectomy]/+34.5 years [real TC1 2010 (age 35), seminoma stage 3, left orchidectomy and 4xBEP] Infertility+TRT (Axiron) since age 30, so wife and I adopted 3 kids.

    AdrianE [TC1 2008 (age 32), Teratoma stage I, surveillance] same time [TC2 2008, Seminoma stage 1, surveillance]

    Aegletes [TC1 1996 (age 30), seminoma stage I XRT] /+12 years [TC2 2008 (age 42), seminoma stage I surveillance]

    Andycoles [TC1 2006 (aged 30), seminoma Stage 1, right orchidectomy plus 1 dose Carboplatine], [TC2 2009 (aged 33), intratubular germ cell neplasia, left orchidectomy]

    Ariel [TC1 1999 (age 25), seminoma Stage 1, right orchiectomy, radiation, prosthetic]/+10 years [TC2 2009 (age 35), seminoma Stage 1, left orchiectomy, surveillance, prosthetic, 10mg androgel daily]

    Bipestuff [TC1 1983 (age 27), seminoma stage 1, Radiation] /+22 years [TC2 2005 (age 49), surveillance]

    BLWedge09 [TC1 1/2010 (age 29) Primarily EC Stage 1,Right orchiectomy(inguinal), 1xBEP/No prosthesis]+2.5 Years [TC2 6/2012 (age 32) Seminoma Stage 1,Left orchiectomy(scrotal), 1xBEP/2 Prosthesis, TRT is weekly Testosterone Cypionate IM injections @ 100mg]

    BraveOne [TC 1 & 2 7/2009 (age 32). Pure Seminoma, bilateral orch and implants and surveillance only. 10mg androgel] Glad to be TC free!

    cbudd [{TC1: (age 21) July 2005 / Left orchiectomy/ Prostheses}
    {TC2: (age 27) May 2011 / Right orchiectomy (surgery is scheduled 6-1-11) / Cancer found in Lymph Nodes as well/ No Prostheses / Chemotherapy to come (if not more)}]

    Davepet [TC1 1975 (age20) Unknown type & stage, right I/O, RPLND] /+35 years \[TC2 2009 (age55) Mixed embryonal& seminoma, Left I/O, followed by 3xBEP]

    DoubleZero [TC1 2009 (age 40). Seminoma stage 1, radiation; TC2 2010 (age 41) embryonal carcinoma stage 1, surveillance; 2010 relapse 3xBEP]

    dsomers74 [TC1: May 2000 (age 25) / Right orchiectomy / seminoma stage 1 / Radiation
    TC2: June 2010 (age 36) / Left orchiectomy / seminoma stage 1 / 1 Prostheses / Androgel 2X 5G packets]

    Fish [TC1 1988 (age 26), primarily embryonal cell carcinoma with teratoma & seminoma, Stage 1, RPLND, surveillance] /+15 years [TC2 2003 (age 42), pure seminoma, Stage 1, surveillance]

    greg_oz [TC1 1998 (age 24), embryonal carcinoma & seminoma, stage I, surveillance, recurrence 1999, 3xBEP] /+10 years [TC2 2008 (age 34), seminoma stage I, XRT]

    Groundhog [TC1 1988 (age 38), pure seminoma, stage 1, surveillance/ +21 1/2 years [TC2 2010 (age 59), pure seminoma, stage 1, surveillance. 5g testim]

    Healthnut [TC1 1995 (age 28), pure seminoma stage 1, radiation] / +8 years [TC2 2003 (age 35), pure seminoma stage 1, surveillance]

    Hugh [TC1 1989 (age 40), seminoma stage 1, radiation] / +21 years [TC2 2010 (age 61), seminoma stage 1, 1 x Carboplatin]

    James [TC1 2001 (Sept), Seminoma Stage IIIa, Right IO] /+3 Months] [TC2 2001 (Dec), type/stage, Left IO, mixed "germ cell". No sign of invasion, surveillance surveillance but in 2004 my lymph nodes AND lung showed a problem with my routine scans. Ended up "re-lapsing" after 3 years and had to do 4 rounds of B/E/P. No RPLND needed as remaining scar tissue all disappeared a few months after last chemo treatment, 4x BEP Completed 2/14/05]

    Jesse 74 [TC1 May 2011 (age 36) classic seminoma stage 1, Left IO, Radiation] /+ 2years & 7 months [TC2 January 2014 (age 39), 2 nodules; nonseminoma and a seminoma stage 1a, Right IO, treatment TBD per Dr. Einhorn]

    joev [TC1 1998 (age 31), pure seminoma stage 1, RT] /+3 years [TC2 2001 (age 34), pure seminoma stage 1, surveillance]

    Joe3man [TC1 2006 (age 32), seminoma stage I-25 Rounds of Radiation] [TC2 2010 (age 36), seminoma stage I-surveillance]

    JonM [TC1 1997 (age 31), teratoma stage III, X4 BEP, X3 VIP, RPLND, x5 GAMEC, RPLND (2), LT] /+11 years [TC2 2008 (age 43), Stage 1 Seminoma, Right orchidectomy, x1 Carboplatin, Surveillance]

    Kevin1988 [TC1 2011 (age 23), pure seminoma stage 1A, radiation] /+3 years [TC2 2014 (age 26), seminoma stage 1B, 2X carboplatin, surveillance]

    Kiwi [TC1 2001 (age 36), seminoma stage 1, right IO, Radiation] /+7 years [TC2 2008 (age 43), seminoma stage 1, Left IO, surveillance] two prosthetics

    LeePee [TC1 1992 (age 34), pure seminoma, left orchidectomy, Radiation] + 14 years [ TC2 2006 (age 48), seminoma stage 1, right orchidectomy, 1 dose carboplatine, surveillance] two x prosthetics

    LeeR [TC1 1997 (age 30), seminoma stage 1, Radiotherapy] /+12 years [TC2 2009 (age 42) seminoma stage 1, 1x carboplatin] In between episodes had two boys to add to a daughter.

    Leo [TC1/2 at the same time jul/2012 (age 32), left/right IO, seminoma stage 1, 2 rounds of Carboplatin, two prosthetics, TRT Nebido each 11 weeks]

    lindsayn [TC1 May 2000 (age 24), seminoma Stage 1, radiotherapy - right side; TC2 October 2010, seminoma Stage 1, surveillance at this stage - left)

    Marc311978 [TC1 1997 (age 18), seminoma stage 1, Radiation] /+12 years [TC2 2009 (age 31) seminoma stage 1, surveillance]

    No nuts [TC1 2006 (age 27), seminoma right radiation treatment] / +7 years [TC2 2013 age 34 seminoma left carboplaten testepe]

    pcwilson [TC1 1997 (aged 27), teratoma, stage I, surveillance] /+10 years [TC2 2007 (aged 38), seminoma stage I, surveillance]

    Perk, TC1 2001, seminoma, teratoma, embryonal carcinoma, uncertain type, Stage 1, lymph node dissection (negative 2001), surveillance. TC2 2006, embryonal carcinoma, seminoma, Stage 1, surveillance. AndroGel Pump...

    PISKOT (wife) TC1: 2005, pure seminoma, stage 1, left I/0, radiation (age 43), TC2: 2010, seminoma, right I/0 2xBEP), HRT Nebido (age 48)

    robert j [7/2009 TC in Both!) both seminoma stage 1, surveillance] (opted for 2 prosthetics at time of surgery, now on HRT bi-weekly self injection).

    Rosc [TC-1: 5/1990 (age 29). Seminoma some Embryonal, Left Orch. and surveillance. Appears in lymphnodes in 1992. RPLND using laparoscopy and then 6wks. radiation therapy. Clean until 2008. (TC-2 4/2008) age 46. Pure Seminoma. Right Orch. and chemo. (2X Carboplatin). HRT is weekly self IM injections with 100mg Cypionate. In between episodes had two children with wonderful wife.

    Roybatty [TC1 1987 (age 22), seminoma stage 1, Radiation, HRT, implant TC2,seminoma stage 1, 2013 age 48, implant, surveillance, plastic surgery]

    SamMac84 [TC1 2011 (age 27), pure embryonal stage 2, right I/O, RPLND / surveillance] / + 2 years [TC2 2014 (age 29), pure seminoma stage 1, left I/O, surveillance / Testim]

    Schmitt313 (wife) [TC1 -left- 2006 (age 29), non-seminoma, stage 3, chemo 9 wks,] in between we had a healthy baby boy to add to our two daughters![ TC2 12/2008 (age 32) pure-seminoma, surveillance, two prosthetics, Testim]

    Smerd [TC1 Feb 2008 (age 30), Non-Seminoma with some Seminoma Stage 1] [TC2 October 2008 Seminoma Stage I] Partial Orch

    Steffo [TC1:2001 (18 yo), embryo carcinome, stage 1A, left, RPLND clean] / +12 years [TC2:2013 (31 yo), mixed embryo, yolk, tera, chorio + vasal invasion, stage 2B, right, cryopreservation, 2xBEP. just switched from Nebid(o) to Andro/Testogel]

    stefanos1999 [TC1 Nov 2010 (age 30), Right (pure seminoma,6cm StageI, Carbo) / +3 years Dec 2013[TC2 Left P/O "partial orchiectomy"(1cm pure seminoma again,StageI, age33) ..75% of the testicle remained..TIN/ IGCNU]

    TC Runner: Left TC 5-2010 (age 35) 95% seminoma 5% non-seminoma lymphovascular involvement but confined to the testicle. Left I/O and surveillance. Right TC 11-2010 (age 36) 90% embryonal 10% seminoma lymphovascular involvement + 3 enlarged lymph staged 2B. Right I/O & Right prosthetic. January 2011 3 x BEP.

    __________________________________________________ ______________________________
    To update:
    1. Copy all the the Posts (and these instructions)
    2. Click Reply
    3. Paste into the Reply
    4. Add your Details
    __________________________________________________ ______________________________

    Sample
    You [TC1 20?? (age ??), type/stage, Left or Right IO, treatment / other info] /+? years [TC2 20?? (age ??), type/stage, Left or Right IO, treatment / other info]

    Leave a comment:


  • BLWedge09
    replied
    Adding myself to the list...
    ________________________

    34with1 ['fake' TC1 1975 (age 6 mos), preventative right orchidectomy]/+34.5 years [real TC1 2010 (age 35), seminoma stage 3, left orchidectomy and 4xBEP] Infertility+TRT (Axiron) since age 30, so wife and I adopted 3 kids.

    AdrianE [TC1 2008 (age 32), Teratoma stage I, surveillance] same time [TC2 2008, Seminoma stage 1, surveillance]

    Aegletes [TC1 1996 (age 30), seminoma stage I XRT] /+12 years [TC2 2008 (age 42), seminoma stage I surveillance]

    Andycoles [TC1 2006 (aged 30), seminoma Stage 1, right orchidectomy plus 1 dose Carboplatine], [TC2 2009 (aged 33), intratubular germ cell neplasia, left orchidectomy]

    Ariel [TC1 1999 (age 25), seminoma Stage 1, right orchiectomy, radiation, prosthetic]/+10 years [TC2 2009 (age 35), seminoma Stage 1, left orchiectomy, surveillance, prosthetic, 10mg androgel daily]

    Bipestuff [TC1 1983 (age 27), seminoma stage 1, Radiation] /+22 years [TC2 2005 (age 49), surveillance]

    BLWedge09 [TC1 1/2010 (age 29) Primarily EC Stage 1,Right orchiectomy(inguinal), 1xBEP/No prosthesis]+2.5 Years [TC2 6/2012 (age 32) Seminoma Stage 1,Left orchiectomy(scrotal), 1xBEP/2 Prosthesis, TRT is weekly Testosterone Cypionate IM injections @ 100mg]

    BraveOne [TC 1 & 2 7/2009 (age 32). Pure Seminoma, bilateral orch and implants and surveillance only. 10mg androgel] Glad to be TC free!

    cbudd [{TC1: (age 21) July 2005 / Left orchiectomy/ Prostheses}
    {TC2: (age 27) May 2011 / Right orchiectomy (surgery is scheduled 6-1-11) / Cancer found in Lymph Nodes as well/ No Prostheses / Chemotherapy to come (if not more)}]

    Davepet [TC1 1975 (age20) Unknown type & stage, right I/O, RPLND] /+35 years \[TC2 2009 (age55) Mixed embryonal& seminoma, Left I/O, followed by 3xBEP]

    DoubleZero [TC1 2009 (age 40). Seminoma stage 1, radiation; TC2 2010 (age 41) embryonal carcinoma stage 1, surveillance; 2010 relapse 3xBEP]

    dsomers74 [TC1: May 2000 (age 25) / Right orchiectomy / seminoma stage 1 / Radiation
    TC2: June 2010 (age 36) / Left orchiectomy / seminoma stage 1 / 1 Prostheses / Androgel 2X 5G packets]

    Fish [TC1 1988 (age 26), primarily embryonal cell carcinoma with teratoma & seminoma, Stage 1, RPLND, surveillance] /+15 years [TC2 2003 (age 42), pure seminoma, Stage 1, surveillance]

    greg_oz [TC1 1998 (age 24), embryonal carcinoma & seminoma, stage I, surveillance, recurrence 1999, 3xBEP] /+10 years [TC2 2008 (age 34), seminoma stage I, XRT]

    Groundhog [TC1 1988 (age 38), pure seminoma, stage 1, surveillance/ +21 1/2 years [TC2 2010 (age 59), pure seminoma, stage 1, surveillance. 5g testim]

    Healthnut [TC1 1995 (age 28), pure seminoma stage 1, radiation] / +8 years [TC2 2003 (age 35), pure seminoma stage 1, surveillance]

    Hugh [TC1 1989 (age 40), seminoma stage 1, radiation] / +21 years [TC2 2010 (age 61), seminoma stage 1, 1 x Carboplatin]

    James [TC1 2001 (Sept), Seminoma Stage IIIa, Right IO] /+3 Months] [TC2 2001 (Dec), type/stage, Left IO, mixed "germ cell". No sign of invasion, surveillance surveillance but in 2004 my lymph nodes AND lung showed a problem with my routine scans. Ended up "re-lapsing" after 3 years and had to do 4 rounds of B/E/P. No RPLND needed as remaining scar tissue all disappeared a few months after last chemo treatment, 4x BEP Completed 2/14/05]

    Jesse 74 [TC1 May 2011 (age 36) classic seminoma stage 1, Left IO, Radiation] /+ 2years & 7 months [TC2 January 2014 (age 39), 2 nodules; nonseminoma and a seminoma stage 1a, Right IO, treatment TBD per Dr. Einhorn]

    joev [TC1 1998 (age 31), pure seminoma stage 1, RT] /+3 years [TC2 2001 (age 34), pure seminoma stage 1, surveillance]

    Joe3man [TC1 2006 (age 32), seminoma stage I-25 Rounds of Radiation] [TC2 2010 (age 36), seminoma stage I-surveillance]

    JonM [TC1 1997 (age 31), teratoma stage III, X4 BEP, X3 VIP, RPLND, x5 GAMEC, RPLND (2), LT] /+11 years [TC2 2008 (age 43), Stage 1 Seminoma, Right orchidectomy, x1 Carboplatin, Surveillance]

    Kiwi [TC1 2001 (age 36), seminoma stage 1, right IO, Radiation] /+7 years [TC2 2008 (age 43), seminoma stage 1, Left IO, surveillance] two prosthetics

    LeePee [TC1 1992 (age 34), pure seminoma, left orchidectomy, Radiation] + 14 years [ TC2 2006 (age 48), seminoma stage 1, right orchidectomy, 1 dose carboplatine, surveillance] two x prosthetics

    LeeR [TC1 1997 (age 30), seminoma stage 1, Radiotherapy] /+12 years [TC2 2009 (age 42) seminoma stage 1, 1x carboplatin] In between episodes had two boys to add to a daughter.

    Leo [TC1/2 at the same time jul/2012 (age 32), left/right IO, seminoma stage 1, 2 rounds of Carboplatin, two prosthetics, TRT Nebido each 11 weeks]

    lindsayn [TC1 May 2000 (age 24), seminoma Stage 1, radiotherapy - right side; TC2 October 2010, seminoma Stage 1, surveillance at this stage - left)

    Marc311978 [TC1 1997 (age 18), seminoma stage 1, Radiation] /+12 years [TC2 2009 (age 31) seminoma stage 1, surveillance]

    No nuts [TC1 2006 (age 27), seminoma right radiation treatment] / +7 years [TC2 2013 age 34 seminoma left carboplaten testepe]

    pcwilson [TC1 1997 (aged 27), teratoma, stage I, surveillance] /+10 years [TC2 2007 (aged 38), seminoma stage I, surveillance]

    Perk, TC1 2001, seminoma, teratoma, embryonal carcinoma, uncertain type, Stage 1, lymph node dissection (negative 2001), surveillance. TC2 2006, embryonal carcinoma, seminoma, Stage 1, surveillance. AndroGel Pump...

    PISKOT (wife) TC1: 2005, pure seminoma, stage 1, left I/0, radiation (age 43), TC2: 2010, seminoma, right I/0 2xBEP), HRT Nebido (age 48)

    robert j [7/2009 TC in Both!) both seminoma stage 1, surveillance] (opted for 2 prosthetics at time of surgery, now on HRT bi-weekly self injection).

    Rosc [TC-1: 5/1990 (age 29). Seminoma some Embryonal, Left Orch. and surveillance. Appears in lymphnodes in 1992. RPLND using laparoscopy and then 6wks. radiation therapy. Clean until 2008. (TC-2 4/2008) age 46. Pure Seminoma. Right Orch. and chemo. (2X Carboplatin). HRT is weekly self IM injections with 100mg Cypionate. In between episodes had two children with wonderful wife.

    Roybatty [TC1 1987 (age 22), seminoma stage 1, Radiation, HRT, implant TC2,seminoma stage 1, 2013 age 48, implant, surveillance, plastic surgery]

    SamMac84 [TC1 2011 (age 27), pure embryonal stage 2, right I/O, RPLND / surveillance] / + 2 years [TC2 2014 (age 29), pure seminoma stage 1, left I/O, surveillance / Testim]

    Schmitt313 (wife) [TC1 -left- 2006 (age 29), non-seminoma, stage 3, chemo 9 wks,] in between we had a healthy baby boy to add to our two daughters![ TC2 12/2008 (age 32) pure-seminoma, surveillance, two prosthetics, Testim]

    Smerd [TC1 Feb 2008 (age 30), Non-Seminoma with some Seminoma Stage 1] [TC2 October 2008 Seminoma Stage I] Partial Orch

    Steffo [TC1:2001 (18 yo), embryo carcinome, stage 1A, left, RPLND clean] / +12 years [TC2:2013 (31 yo), mixed embryo, yolk, tera, chorio + vasal invasion, stage 2B, right, cryopreservation, 2xBEP. just switched from Nebid(o) to Andro/Testogel]

    stefanos1999 [TC1 Nov 2010 (age 30), Right (pure seminoma,6cm StageI, Carbo) / +3 years Dec 2013[TC2 Left P/O "partial orchiectomy"(1cm pure seminoma again,StageI, age33) ..75% of the testicle remained..TIN/ IGCNU]

    TC Runner: Left TC 5-2010 (age 35) 95% seminoma 5% non-seminoma lymphovascular involvement but confined to the testicle. Left I/O and surveillance. Right TC 11-2010 (age 36) 90% embryonal 10% seminoma lymphovascular involvement + 3 enlarged lymph staged 2B. Right I/O & Right prosthetic. January 2011 3 x BEP.

    __________________________________________________ ______________________________
    To update:
    1. Copy all the the Posts (and these instructions)
    2. Click Reply
    3. Paste into the Reply
    4. Add your Details
    __________________________________________________ ______________________________

    Sample
    You [TC1 20?? (age ??), type/stage, Left or Right IO, treatment / other info] /+? years [TC2 20?? (age ??), type/stage, Left or Right IO, treatment / other info]

    Leave a comment:


  • sammac84
    replied
    Joining the team
    ------

    34with1 ['fake' TC1 1975 (age 6 mos), preventative right orchidectomy]/+34.5 years [real TC1 2010 (age 35), seminoma stage 3, left orchidectomy and 4xBEP] Infertility+TRT (Axiron) since age 30, so wife and I adopted 3 kids.

    AdrianE [TC1 2008 (age 32), Teratoma stage I, surveillance] same time [TC2 2008, Seminoma stage 1, surveillance]

    Aegletes [TC1 1996 (age 30), seminoma stage I XRT] /+12 years [TC2 2008 (age 42), seminoma stage I surveillance]

    Andycoles [TC1 2006 (aged 30), seminoma Stage 1, right orchidectomy plus 1 dose Carboplatine], [TC2 2009 (aged 33), intratubular germ cell neplasia, left orchidectomy]

    Ariel [TC1 1999 (age 25), seminoma Stage 1, right orchiectomy, radiation, prosthetic]/+10 years [TC2 2009 (age 35), seminoma Stage 1, left orchiectomy, surveillance, prosthetic, 10mg androgel daily]

    Bipestuff [TC1 1983 (age 27), seminoma stage 1, Radiation] /+22 years [TC2 2005 (age 49), surveillance]

    BraveOne [TC 1 & 2 7/2009 (age 32). Pure Seminoma, bilateral orch and implants and surveillance only. 10mg androgel] Glad to be TC free!

    cbudd [{TC1: (age 21) July 2005 / Left orchiectomy/ Prostheses}
    {TC2: (age 27) May 2011 / Right orchiectomy (surgery is scheduled 6-1-11) / Cancer found in Lymph Nodes as well/ No Prostheses / Chemotherapy to come (if not more)}]

    Davepet [TC1 1975 (age20) Unknown type & stage, right I/O, RPLND] /+35 years \[TC2 2009 (age55) Mixed embryonal& seminoma, Left I/O, followed by 3xBEP]

    DoubleZero [TC1 2009 (age 40). Seminoma stage 1, radiation; TC2 2010 (age 41) embryonal carcinoma stage 1, surveillance; 2010 relapse 3xBEP]

    dsomers74 [TC1: May 2000 (age 25) / Right orchiectomy / seminoma stage 1 / Radiation
    TC2: June 2010 (age 36) / Left orchiectomy / seminoma stage 1 / 1 Prostheses / Androgel 2X 5G packets]

    Fish [TC1 1988 (age 26), primarily embryonal cell carcinoma with teratoma & seminoma, Stage 1, RPLND, surveillance] /+15 years [TC2 2003 (age 42), pure seminoma, Stage 1, surveillance]

    greg_oz [TC1 1998 (age 24), embryonal carcinoma & seminoma, stage I, surveillance, recurrence 1999, 3xBEP] /+10 years [TC2 2008 (age 34), seminoma stage I, XRT]

    Groundhog [TC1 1988 (age 38), pure seminoma, stage 1, surveillance/ +21 1/2 years [TC2 2010 (age 59), pure seminoma, stage 1, surveillance. 5g testim]

    Healthnut [TC1 1995 (age 28), pure seminoma stage 1, radiation] / +8 years [TC2 2003 (age 35), pure seminoma stage 1, surveillance]

    Hugh [TC1 1989 (age 40), seminoma stage 1, radiation] / +21 years [TC2 2010 (age 61), seminoma stage 1, 1 x Carboplatin]

    James [TC1 2001 (Sept), Seminoma Stage IIIa, Right IO] /+3 Months] [TC2 2001 (Dec), type/stage, Left IO, mixed "germ cell". No sign of invasion, surveillance surveillance but in 2004 my lymph nodes AND lung showed a problem with my routine scans. Ended up "re-lapsing" after 3 years and had to do 4 rounds of B/E/P. No RPLND needed as remaining scar tissue all disappeared a few months after last chemo treatment, 4x BEP Completed 2/14/05]

    Jesse 74 [TC1 May 2011 (age 36) classic seminoma stage 1, Left IO, Radiation] /+ 2years & 7 months [TC2 January 2014 (age 39), 2 nodules; nonseminoma and a seminoma stage 1a, Right IO, treatment TBD per Dr. Einhorn]

    joev [TC1 1998 (age 31), pure seminoma stage 1, RT] /+3 years [TC2 2001 (age 34), pure seminoma stage 1, surveillance]

    Joe3man [TC1 2006 (age 32), seminoma stage I-25 Rounds of Radiation] [TC2 2010 (age 36), seminoma stage I-surveillance]

    JonM [TC1 1997 (age 31), teratoma stage III, X4 BEP, X3 VIP, RPLND, x5 GAMEC, RPLND (2), LT] /+11 years [TC2 2008 (age 43), Stage 1 Seminoma, Right orchidectomy, x1 Carboplatin, Surveillance]

    Kiwi [TC1 2001 (age 36), seminoma stage 1, right IO, Radiation] /+7 years [TC2 2008 (age 43), seminoma stage 1, Left IO, surveillance] two prosthetics

    LeePee [TC1 1992 (age 34), pure seminoma, left orchidectomy, Radiation] + 14 years [ TC2 2006 (age 48), seminoma stage 1, right orchidectomy, 1 dose carboplatine, surveillance] two x prosthetics

    LeeR [TC1 1997 (age 30), seminoma stage 1, Radiotherapy] /+12 years [TC2 2009 (age 42) seminoma stage 1, 1x carboplatin] In between episodes had two boys to add to a daughter.

    Leo [TC1/2 at the same time jul/2012 (age 32), left/right IO, seminoma stage 1, 2 rounds of Carboplatin, two prosthetics, TRT Nebido each 11 weeks]

    lindsayn [TC1 May 2000 (age 24), seminoma Stage 1, radiotherapy - right side; TC2 October 2010, seminoma Stage 1, surveillance at this stage - left)

    Marc311978 [TC1 1997 (age 18), seminoma stage 1, Radiation] /+12 years [TC2 2009 (age 31) seminoma stage 1, surveillance]

    No nuts [TC1 2006 (age 27), seminoma right radiation treatment] / +7 years [TC2 2013 age 34 seminoma left carboplaten testepe]

    pcwilson [TC1 1997 (aged 27), teratoma, stage I, surveillance] /+10 years [TC2 2007 (aged 38), seminoma stage I, surveillance]

    Perk, TC1 2001, seminoma, teratoma, embryonal carcinoma, uncertain type, Stage 1, lymph node dissection (negative 2001), surveillance. TC2 2006, embryonal carcinoma, seminoma, Stage 1, surveillance. AndroGel Pump...

    PISKOT (wife) TC1: 2005, pure seminoma, stage 1, left I/0, radiation (age 43), TC2: 2010, seminoma, right I/0 2xBEP), HRT Nebido (age 48)

    robert j [7/2009 TC in Both!) both seminoma stage 1, surveillance] (opted for 2 prosthetics at time of surgery, now on HRT bi-weekly self injection).

    Rosc [TC-1: 5/1990 (age 29). Seminoma some Embryonal, Left Orch. and surveillance. Appears in lymphnodes in 1992. RPLND using laparoscopy and then 6wks. radiation therapy. Clean until 2008. (TC-2 4/2008) age 46. Pure Seminoma. Right Orch. and chemo. (2X Carboplatin). HRT is weekly self IM injections with 100mg Cypionate. In between episodes had two children with wonderful wife.

    Roybatty [TC1 1987 (age 22), seminoma stage 1, Radiation, HRT, implant TC2,seminoma stage 1, 2013 age 48, implant, surveillance, plastic surgery]

    SamMac84 [TC1 2011 (age 27), pure embryonal stage 2, right I/O, RPLND / surveillance] / + 2 years [TC2 2014 (age 29), pure seminoma stage 1, left I/O, surveillance / Testim]

    Schmitt313 (wife) [TC1 -left- 2006 (age 29), non-seminoma, stage 3, chemo 9 wks,] in between we had a healthy baby boy to add to our two daughters![ TC2 12/2008 (age 32) pure-seminoma, surveillance, two prosthetics, Testim]

    Smerd [TC1 Feb 2008 (age 30), Non-Seminoma with some Seminoma Stage 1] [TC2 October 2008 Seminoma Stage I] Partial Orch

    Steffo [TC1:2001 (18 yo), embryo carcinome, stage 1A, left, RPLND clean] / +12 years [TC2:2013 (31 yo), mixed embryo, yolk, tera, chorio + vasal invasion, stage 2B, right, cryopreservation, 2xBEP. just switched from Nebid(o) to Andro/Testogel]

    stefanos1999 [TC1 Nov 2010 (age 30), Right (pure seminoma,6cm StageI, Carbo) / +3 years Dec 2013[TC2 Left P/O "partial orchiectomy"(1cm pure seminoma again,StageI, age33) ..75% of the testicle remained..TIN/ IGCNU]

    TC Runner: Left TC 5-2010 (age 35) 95% seminoma 5% non-seminoma – lymphovascular involvement but confined to the testicle. Left I/O and surveillance. Right TC 11-2010 (age 36) –90% embryonal 10% seminoma – lymphovascular involvement + 3 enlarged lymph – staged 2B. Right I/O & Right prosthetic. January 2011 3 x BEP.

    __________________________________________________ ______________________________
    To update:
    1. Copy all the the Posts (and these instructions)
    2. Click Reply
    3. Paste into the Reply
    4. Add your Details
    __________________________________________________ ______________________________

    Sample
    You [TC1 20?? (age ??), type/stage, Left or Right IO, treatment / other info] /+? years [TC2 20?? (age ??), type/stage, Left or Right IO, treatment / other info]

    Leave a comment:


  • steffo
    replied
    34with1 ['fake' TC1 1975 (age 6 mos), preventative right orchidectomy]/+34.5 years [real TC1 2010 (age 35), seminoma stage 3, left orchidectomy and 4xBEP] Infertility+TRT (Axiron) since age 30, so wife and I adopted 3 kids.

    AdrianE [TC1 2008 (age 32), Teratoma stage I, surveillance] same time [TC2 2008, Seminoma stage 1, surveillance]

    Aegletes [TC1 1996 (age 30), seminoma stage I XRT] /+12 years [TC2 2008 (age 42), seminoma stage I surveillance]

    Andycoles [TC1 2006 (aged 30), seminoma Stage 1, right orchidectomy plus 1 dose Carboplatine], [TC2 2009 (aged 33), intratubular germ cell neplasia, left orchidectomy]

    Ariel [TC1 1999 (age 25), seminoma Stage 1, right orchiectomy, radiation, prosthetic]/+10 years [TC2 2009 (age 35), seminoma Stage 1, left orchiectomy, surveillance, prosthetic, 10mg androgel daily]

    Bipestuff [TC1 1983 (age 27), seminoma stage 1, Radiation] /+22 years [TC2 2005 (age 49), surveillance]

    BraveOne [TC 1 & 2 7/2009 (age 32). Pure Seminoma, bilateral orch and implants and surveillance only. 10mg androgel] Glad to be TC free!

    cbudd [{TC1: (age 21) July 2005 / Left orchiectomy/ Prostheses}
    {TC2: (age 27) May 2011 / Right orchiectomy (surgery is scheduled 6-1-11) / Cancer found in Lymph Nodes as well/ No Prostheses / Chemotherapy to come (if not more)}]

    Davepet [TC1 1975 (age20) Unknown type & stage, right I/O, RPLND] /+35 years \[TC2 2009 (age55) Mixed embryonal& seminoma, Left I/O, followed by 3xBEP]

    DoubleZero [TC1 2009 (age 40). Seminoma stage 1, radiation; TC2 2010 (age 41) embryonal carcinoma stage 1, surveillance; 2010 relapse 3xBEP]

    dsomers74 [TC1: May 2000 (age 25) / Right orchiectomy / seminoma stage 1 / Radiation
    TC2: June 2010 (age 36) / Left orchiectomy / seminoma stage 1 / 1 Prostheses / Androgel 2X 5G packets]

    Fish [TC1 1988 (age 26), primarily embryonal cell carcinoma with teratoma & seminoma, Stage 1, RPLND, surveillance] /+15 years [TC2 2003 (age 42), pure seminoma, Stage 1, surveillance]

    greg_oz [TC1 1998 (age 24), embryonal carcinoma & seminoma, stage I, surveillance, recurrence 1999, 3xBEP] /+10 years [TC2 2008 (age 34), seminoma stage I, XRT]

    Groundhog [TC1 1988 (age 38), pure seminoma, stage 1, surveillance/ +21 1/2 years [TC2 2010 (age 59), pure seminoma, stage 1, surveillance. 5g testim]

    Healthnut [TC1 1995 (age 28), pure seminoma stage 1, radiation] / +8 years [TC2 2003 (age 35), pure seminoma stage 1, surveillance]

    Hugh [TC1 1989 (age 40), seminoma stage 1, radiation] / +21 years [TC2 2010 (age 61), seminoma stage 1, 1 x Carboplatin]

    James [TC1 2001 (Sept), Seminoma Stage IIIa, Right IO] /+3 Months] [TC2 2001 (Dec), type/stage, Left IO, mixed "germ cell". No sign of invasion, surveillance surveillance but in 2004 my lymph nodes AND lung showed a problem with my routine scans. Ended up "re-lapsing" after 3 years and had to do 4 rounds of B/E/P. No RPLND needed as remaining scar tissue all disappeared a few months after last chemo treatment, 4x BEP Completed 2/14/05]

    Jesse 74 [TC1 May 2011 (age 36) classic seminoma stage 1, Left IO, Radiation] /+ 2years & 7 months [TC2 January 2014 (age 39), 2 nodules; nonseminoma and a seminoma stage 1a, Right IO, treatment TBD per Dr. Einhorn]

    joev [TC1 1998 (age 31), pure seminoma stage 1, RT] /+3 years [TC2 2001 (age 34), pure seminoma stage 1, surveillance]

    Joe3man [TC1 2006 (age 32), seminoma stage I-25 Rounds of Radiation] [TC2 2010 (age 36), seminoma stage I-surveillance]

    JonM [TC1 1997 (age 31), teratoma stage III, X4 BEP, X3 VIP, RPLND, x5 GAMEC, RPLND (2), LT] /+11 years [TC2 2008 (age 43), Stage 1 Seminoma, Right orchidectomy, x1 Carboplatin, Surveillance]

    Kiwi [TC1 2001 (age 36), seminoma stage 1, right IO, Radiation] /+7 years [TC2 2008 (age 43), seminoma stage 1, Left IO, surveillance] two prosthetics

    LeePee [TC1 1992 (age 34), pure seminoma, left orchidectomy, Radiation] + 14 years [ TC2 2006 (age 48), seminoma stage 1, right orchidectomy, 1 dose carboplatine, surveillance] two x prosthetics

    LeeR [TC1 1997 (age 30), seminoma stage 1, Radiotherapy] /+12 years [TC2 2009 (age 42) seminoma stage 1, 1x carboplatin] In between episodes had two boys to add to a daughter.

    Leo [TC1/2 at the same time jul/2012 (age 32), left/right IO, seminoma stage 1, 2 rounds of Carboplatin, two prosthetics, TRT Nebido each 11 weeks]

    lindsayn [TC1 May 2000 (age 24), seminoma Stage 1, radiotherapy - right side; TC2 October 2010, seminoma Stage 1, surveillance at this stage - left)

    Marc311978 [TC1 1997 (age 18), seminoma stage 1, Radiation] /+12 years [TC2 2009 (age 31) seminoma stage 1, surveillance]

    No nuts [TC1 2006 (age 27), seminoma right radiation treatment] / +7 years [TC2 2013 age 34 seminoma left carboplaten testepe]

    pcwilson [TC1 1997 (aged 27), teratoma, stage I, surveillance] /+10 years [TC2 2007 (aged 38), seminoma stage I, surveillance]

    Perk, TC1 2001, seminoma, teratoma, embryonal carcinoma, uncertain type, Stage 1, lymph node dissection (negative 2001), surveillance. TC2 2006, embryonal carcinoma, seminoma, Stage 1, surveillance. AndroGel Pump...

    PISKOT (wife) TC1: 2005, pure seminoma, stage 1, left I/0, radiation (age 43), TC2: 2010, seminoma, right I/0 2xBEP), HRT Nebido (age 48)

    robert j [7/2009 TC in Both!) both seminoma stage 1, surveillance] (opted for 2 prosthetics at time of surgery, now on HRT bi-weekly self injection).

    Rosc [TC-1: 5/1990 (age 29). Seminoma some Embryonal, Left Orch. and surveillance. Appears in lymphnodes in 1992. RPLND using laparoscopy and then 6wks. radiation therapy. Clean until 2008. (TC-2 4/2008) age 46. Pure Seminoma. Right Orch. and chemo. (2X Carboplatin). HRT is weekly self IM injections with 100mg Cypionate. In between episodes had two children with wonderful wife.

    Roybatty [TC1 1987 (age 22), seminoma stage 1, Radiation, HRT, implant TC2,seminoma stage 1, 2013 age 48, implant, surveillance, plastic surgery]

    Schmitt313 (wife) [TC1 -left- 2006 (age 29), non-seminoma, stage 3, chemo 9 wks,] in between we had a healthy baby boy to add to our two daughters![ TC2 12/2008 (age 32) pure-seminoma, surveillance, two prosthetics, Testim]

    Smerd [TC1 Feb 2008 (age 30), Non-Seminoma with some Seminoma Stage 1] [TC2 October 2008 Seminoma Stage I] Partial Orch

    Steffo [TC1:2001 (18 yo), embryo carcinome, stage 1A, left, RPLND clean] / +12 years [TC2:2013 (31 yo), mixed embryo, yolk, tera, chorio + vasal invasion, stage 2B, right, cryopreservation, 2xBEP. just switched from Nebid(o) to Andro/Testogel]

    stefanos1999 [TC1 Nov 2010 (age 30), Right (pure seminoma,6cm StageI, Carbo) / +3 years Dec 2013[TC2 Left P/O "partial orchiectomy"(1cm pure seminoma again,StageI, age33) ..75% of the testicle remained..TIN/ IGCNU]

    TC Runner: Left TC 5-2010 (age 35) 95% seminoma 5% non-seminoma lymphovascular involvement but confined to the testicle. Left I/O and surveillance. Right TC 11-2010 (age 36) 90% embryonal 10% seminoma lymphovascular involvement + 3 enlarged lymph staged 2B. Right I/O & Right prosthetic. January 2011 3 x BEP.

    __________________________________________________ ______________________________
    To update:
    1. Copy all the the Posts (and these instructions)
    2. Click Reply
    3. Paste into the Reply
    4. Add your Details
    __________________________________________________ ______________________________

    Sample
    You [TC1 20?? (age ??), type/stage, Left or Right IO, treatment / other info] /+? years [TC2 20?? (age ??), type/stage, Left or Right IO, treatment / other info]

    Leave a comment:


  • Jesse 74
    replied
    __________________________________________________ _____________________________
    To update:
    1. Copy all the the Posts (and these instructions)
    2. Click Reply
    3. Paste into the Reply
    4. Add your Details
    __________________________________________________ ______________________________

    Sample
    You [TC1 20?? (age ??), type/stage, Left or Right IO, treatment / other info] /+? years [TC2 20?? (age ??), type/stage, Left or Right IO, treatment / other info]
    __________________________________________________ ______________________________

    34with1 ['fake' TC1 1975 (age 6 mos), preventative right orchidectomy]/+34.5 years [real TC1 2010 (age 35), seminoma stage 3, left orchidectomy and 4xBEP] Infertility+TRT (Axiron) since age 30, so wife and I adopted 3 kids.

    AdrianE [TC1 2008 (age 32), Teratoma stage I, surveillance] same time [TC2 2008, Seminoma stage 1, surveillance]

    Aegletes [TC1 1996 (age 30), seminoma stage I XRT] /+12 years [TC2 2008 (age 42), seminoma stage I surveillance]

    Andycoles [TC1 2006 (aged 30), seminoma Stage 1, right orchidectomy plus 1 dose Carboplatine], [TC2 2009 (aged 33), intratubular germ cell neplasia, left orchidectomy]

    Ariel [TC1 1999 (age 25), seminoma Stage 1, right orchiectomy, radiation, prosthetic]/+10 years [TC2 2009 (age 35), seminoma Stage 1, left orchiectomy, surveillance, prosthetic, 10mg androgel daily]

    Bipestuff [TC1 1983 (age 27), seminoma stage 1, Radiation] /+22 years [TC2 2005 (age 49), surveillance]

    BraveOne [TC 1 & 2 7/2009 (age 32). Pure Seminoma, bilateral orch and implants and surveillance only. 10mg androgel] Glad to be TC free!

    cbudd [{TC1: (age 21) July 2005 / Left orchiectomy/ Prostheses}
    {TC2: (age 27) May 2011 / Right orchiectomy (surgery is scheduled 6-1-11) / Cancer found in Lymph Nodes as well/ No Prostheses / Chemotherapy to come (if not more)}]

    Davepet [TC1 1975 (age20) Unknown type & stage, right I/O, RPLND] /+35 years \[TC2 2009 (age55) Mixed embryonal& seminoma, Left I/O, followed by 3xBEP]

    DoubleZero [TC1 2009 (age 40). Seminoma stage 1, radiation; TC2 2010 (age 41) embryonal carcinoma stage 1, surveillance; 2010 relapse 3xBEP]

    dsomers74 [TC1: May 2000 (age 25) / Right orchiectomy / seminoma stage 1 / Radiation
    TC2: June 2010 (age 36) / Left orchiectomy / seminoma stage 1 / 1 Prostheses / Androgel 2X 5G packets]

    Fish [TC1 1988 (age 26), primarily embryonal cell carcinoma with teratoma & seminoma, Stage 1, RPLND, surveillance] /+15 years [TC2 2003 (age 42), pure seminoma, Stage 1, surveillance]

    greg_oz [TC1 1998 (age 24), embryonal carcinoma & seminoma, stage I, surveillance, recurrence 1999, 3xBEP] /+10 years [TC2 2008 (age 34), seminoma stage I, XRT]

    Groundhog [TC1 1988 (age 38), pure seminoma, stage 1, surveillance/ +21 1/2 years [TC2 2010 (age 59), pure seminoma, stage 1, surveillance. 5g testim]

    Healthnut [TC1 1995 (age 28), pure seminoma stage 1, radiation] / +8 years [TC2 2003 (age 35), pure seminoma stage 1, surveillance]

    Hugh [TC1 1989 (age 40), seminoma stage 1, radiation] / +21 years [TC2 2010 (age 61), seminoma stage 1, 1 x Carboplatin]

    James [TC1 2001 (Sept), Seminoma Stage IIIa, Right IO] /+3 Months] [TC2 2001 (Dec), type/stage, Left IO, mixed "germ cell". No sign of invasion, surveillance surveillance but in 2004 my lymph nodes AND lung showed a problem with my routine scans. Ended up "re-lapsing" after 3 years and had to do 4 rounds of B/E/P. No RPLND needed as remaining scar tissue all disappeared a few months after last chemo treatment, 4x BEP Completed 2/14/05]

    Jesse 74 [TC1 May 2011 (age 36) classic seminoma stage 1, Left IO, Radiation] /+ 2years & 7 months [TC2 January 2014 (age 39), 2 nodules; nonseminoma and a seminoma stage 1a, Right IO, treatment TBD per Dr. Einhorn]

    joev [TC1 1998 (age 31), pure seminoma stage 1, RT] /+3 years [TC2 2001 (age 34), pure seminoma stage 1, surveillance]

    Joe3man [TC1 2006 (age 32), seminoma stage I-25 Rounds of Radiation] [TC2 2010 (age 36), seminoma stage I-surveillance]

    JonM [TC1 1997 (age 31), teratoma stage III, X4 BEP, X3 VIP, RPLND, x5 GAMEC, RPLND (2), LT] /+11 years [TC2 2008 (age 43), Stage 1 Seminoma, Right orchidectomy, x1 Carboplatin, Surveillance]

    Kiwi [TC1 2001 (age 36), seminoma stage 1, right IO, Radiation] /+7 years [TC2 2008 (age 43), seminoma stage 1, Left IO, surveillance] two prosthetics

    LeePee [TC1 1992 (age 34), pure seminoma, left orchidectomy, Radiation] + 14 years [ TC2 2006 (age 48), seminoma stage 1, right orchidectomy, 1 dose carboplatine, surveillance] two x prosthetics

    LeeR [TC1 1997 (age 30), seminoma stage 1, Radiotherapy] /+12 years [TC2 2009 (age 42) seminoma stage 1, 1x carboplatin] In between episodes had two boys to add to a daughter.

    Leo [TC1/2 at the same time jul/2012 (age 32), left/right IO, seminoma stage 1, 2 rounds of Carboplatin, two prosthetics, TRT Nebido each 11 weeks]

    lindsayn [TC1 May 2000 (age 24), seminoma Stage 1, radiotherapy - right side; TC2 October 2010, seminoma Stage 1, surveillance at this stage - left)

    Marc311978 [TC1 1997 (age 18), seminoma stage 1, Radiation] /+12 years [TC2 2009 (age 31) seminoma stage 1, surveillance]

    No nuts [TC1 2006 (age 27), seminoma right radiation treatment] / +7 years [TC2 2013 age 34 seminoma left carboplaten testepe]

    pcwilson [TC1 1997 (aged 27), teratoma, stage I, surveillance] /+10 years [TC2 2007 (aged 38), seminoma stage I, surveillance]

    Perk, TC1 2001, seminoma, teratoma, embryonal carcinoma, uncertain type, Stage 1, lymph node dissection (negative 2001), surveillance. TC2 2006, embryonal carcinoma, seminoma, Stage 1, surveillance. AndroGel Pump...

    PISKOT (wife) TC1: 2005, pure seminoma, stage 1, left I/0, radiation (age 43), TC2: 2010, seminoma, right I/0 2xBEP), HRT Nebido (age 48)

    robert j [7/2009 TC in Both!) both seminoma stage 1, surveillance] (opted for 2 prosthetics at time of surgery, now on HRT bi-weekly self injection).

    Rosc [TC-1: 5/1990 (age 29). Seminoma some Embryonal, Left Orch. and surveillance. Appears in lymphnodes in 1992. RPLND using laparoscopy and then 6wks. radiation therapy. Clean until 2008. (TC-2 4/2008) age 46. Pure Seminoma. Right Orch. and chemo. (2X Carboplatin). HRT is weekly self IM injections with 100mg Cypionate. In between episodes had two children with wonderful wife.

    Roybatty [TC1 1987 (age 22), seminoma stage 1, Radiation, HRT, implant TC2,seminoma stage 1, 2013 age 48, implant, surveillance, plastic surgery]

    Schmitt313 (wife) [TC1 -left- 2006 (age 29), non-seminoma, stage 3, chemo 9 wks,] in between we had a healthy baby boy to add to our two daughters![ TC2 12/2008 (age 32) pure-seminoma, surveillance, two prosthetics, Testim]

    Smerd [TC1 Feb 2008 (age 30), Non-Seminoma with some Seminoma Stage 1] [TC2 October 2008 Seminoma Stage I] Partial Orch

    stefanos1999 [TC1 Nov 2010 (age 30), Right (pure seminoma,6cm StageI, Carbo) / +3 years Dec 2013[TC2 Left P/O "partial orchiectomy"(1cm pure seminoma again,StageI, age33) ..75% of the testicle remained..TIN/ IGCNU]

    TC Runner: Left TC 5-2010 (age 35) 95% seminoma 5% non-seminoma lymphovascular involvement but confined to the testicle. Left I/O and surveillance. Right TC 11-2010 (age 36) 90% embryonal 10% seminoma lymphovascular involvement + 3 enlarged lymph staged 2B. Right I/O & Right prosthetic. January 2011 3 x BEP.

    __________________________________________________ ______________________________
    To update:
    1. Copy all the the Posts (and these instructions)
    2. Click Reply
    3. Paste into the Reply
    4. Add your Details
    __________________________________________________ ______________________________

    Sample
    You [TC1 20?? (age ??), type/stage, Left or Right IO, treatment / other info] /+? years [TC2 20?? (age ??), type/stage, Left or Right IO, treatment / other info]

    Leave a comment:


  • DoubleZero
    replied
    __________________________________________________ _____________________________
    To update:
    1. Copy all the the Posts (and these instructions)
    2. Click Reply
    3. Paste into the Reply
    4. Add your Details
    __________________________________________________ ______________________________

    Sample
    You [TC1 20?? (age ??), type/stage, Left or Right IO, treatment / other info] /+? years [TC2 20?? (age ??), type/stage, Left or Right IO, treatment / other info]
    __________________________________________________ ______________________________

    34with1 ['fake' TC1 1975 (age 6 mos), preventative right orchidectomy]/+34.5 years [real TC1 2010 (age 35), seminoma stage 3, left orchidectomy and 4xBEP] Infertility+TRT (Axiron) since age 30, so wife and I adopted 3 kids.

    AdrianE [TC1 2008 (age 32), Teratoma stage I, surveillance] same time [TC2 2008, Seminoma stage 1, surveillance]

    Aegletes [TC1 1996 (age 30), seminoma stage I XRT] /+12 years [TC2 2008 (age 42), seminoma stage I surveillance]

    Andycoles [TC1 2006 (aged 30), seminoma Stage 1, right orchidectomy plus 1 dose Carboplatine], [TC2 2009 (aged 33), intratubular germ cell neplasia, left orchidectomy]

    Ariel [TC1 1999 (age 25), seminoma Stage 1, right orchiectomy, radiation, prosthetic]/+10 years [TC2 2009 (age 35), seminoma Stage 1, left orchiectomy, surveillance, prosthetic, 10mg androgel daily]

    Bipestuff [TC1 1983 (age 27), seminoma stage 1, Radiation] /+22 years [TC2 2005 (age 49), surveillance]

    BraveOne [TC 1 & 2 7/2009 (age 32). Pure Seminoma, bilateral orch and implants and surveillance only. 10mg androgel] Glad to be TC free!

    cbudd [{TC1: (age 21) July 2005 / Left orchiectomy/ Prostheses}
    {TC2: (age 27) May 2011 / Right orchiectomy (surgery is scheduled 6-1-11) / Cancer found in Lymph Nodes as well/ No Prostheses / Chemotherapy to come (if not more)}]

    Davepet [TC1 1975 (age20) Unknown type & stage, right I/O, RPLND] /+35 years \[TC2 2009 (age55) Mixed embryonal& seminoma, Left I/O, followed by 3xBEP]

    DoubleZero [TC1 2009 (age 40). Seminoma stage 1, radiation; TC2 2010 (age 41) embryonal carcinoma stage 1, surveillance; 2010 relapse 3xBEP]

    dsomers74 [TC1: May 2000 (age 25) / Right orchiectomy / seminoma stage 1 / Radiation
    TC2: June 2010 (age 36) / Left orchiectomy / seminoma stage 1 / 1 Prostheses / Androgel 2X 5G packets]

    Fish [TC1 1988 (age 26), primarily embryonal cell carcinoma with teratoma & seminoma, Stage 1, RPLND, surveillance] /+15 years [TC2 2003 (age 42), pure seminoma, Stage 1, surveillance]

    greg_oz [TC1 1998 (age 24), embryonal carcinoma & seminoma, stage I, surveillance, recurrence 1999, 3xBEP] /+10 years [TC2 2008 (age 34), seminoma stage I, XRT]

    Groundhog [TC1 1988 (age 38), pure seminoma, stage 1, surveillance/ +21 1/2 years [TC2 2010 (age 59), pure seminoma, stage 1, surveillance. 5g testim]

    Healthnut [TC1 1995 (age 28), pure seminoma stage 1, radiation] / +8 years [TC2 2003 (age 35), pure seminoma stage 1, surveillance]

    Hugh [TC1 1989 (age 40), seminoma stage 1, radiation] / +21 years [TC2 2010 (age 61), seminoma stage 1, 1 x Carboplatin]

    James [TC1 2001 (Sept), Seminoma Stage IIIa, Right IO] /+3 Months] [TC2 2001 (Dec), type/stage, Left IO, mixed "germ cell". No sign of invasion, surveillance surveillance but in 2004 my lymph nodes AND lung showed a problem with my routine scans. Ended up "re-lapsing" after 3 years and had to do 4 rounds of B/E/P. No RPLND needed as remaining scar tissue all disappeared a few months after last chemo treatment, 4x BEP Completed 2/14/05]

    joev [TC1 1998 (age 31), pure seminoma stage 1, RT] /+3 years [TC2 2001 (age 34), pure seminoma stage 1, surveillance]

    Joe3man [TC1 2006 (age 32), seminoma stage I-25 Rounds of Radiation] [TC2 2010 (age 36), seminoma stage I-surveillance]

    JonM [TC1 1997 (age 31), teratoma stage III, X4 BEP, X3 VIP, RPLND, x5 GAMEC, RPLND (2), LT] /+11 years [TC2 2008 (age 43), Stage 1 Seminoma, Right orchidectomy, x1 Carboplatin, Surveillance]

    Kiwi [TC1 2001 (age 36), seminoma stage 1, right IO, Radiation] /+7 years [TC2 2008 (age 43), seminoma stage 1, Left IO, surveillance] two prosthetics

    LeePee [TC1 1992 (age 34), pure seminoma, left orchidectomy, Radiation] + 14 years [ TC2 2006 (age 48), seminoma stage 1, right orchidectomy, 1 dose carboplatine, surveillance] two x prosthetics

    LeeR [TC1 1997 (age 30), seminoma stage 1, Radiotherapy] /+12 years [TC2 2009 (age 42) seminoma stage 1, 1x carboplatin] In between episodes had two boys to add to a daughter.

    Leo [TC1/2 at the same time jul/2012 (age 32), left/right IO, seminoma stage 1, 2 rounds of Carboplatin, two prosthetics, TRT Nebido each 11 weeks]

    lindsayn [TC1 May 2000 (age 24), seminoma Stage 1, radiotherapy - right side; TC2 October 2010, seminoma Stage 1, surveillance at this stage - left)

    Marc311978 [TC1 1997 (age 18), seminoma stage 1, Radiation] /+12 years [TC2 2009 (age 31) seminoma stage 1, surveillance]

    No nuts [TC1 2006 (age 27), seminoma right radiation treatment] / +7 years [TC2 2013 age 34 seminoma left carboplaten testepe]

    pcwilson [TC1 1997 (aged 27), teratoma, stage I, surveillance] /+10 years [TC2 2007 (aged 38), seminoma stage I, surveillance]

    Perk, TC1 2001, seminoma, teratoma, embryonal carcinoma, uncertain type, Stage 1, lymph node dissection (negative 2001), surveillance. TC2 2006, embryonal carcinoma, seminoma, Stage 1, surveillance. AndroGel Pump...

    PISKOT (wife) TC1: 2005, pure seminoma, stage 1, left I/0, radiation (age 43), TC2: 2010, seminoma, right I/0 2xBEP), HRT Nebido (age 48)

    robert j [7/2009 TC in Both!) both seminoma stage 1, surveillance] (opted for 2 prosthetics at time of surgery, now on HRT bi-weekly self injection).

    Rosc [TC-1: 5/1990 (age 29). Seminoma some Embryonal, Left Orch. and surveillance. Appears in lymphnodes in 1992. RPLND using laparoscopy and then 6wks. radiation therapy. Clean until 2008. (TC-2 4/2008) age 46. Pure Seminoma. Right Orch. and chemo. (2X Carboplatin). HRT is weekly self IM injections with 100mg Cypionate. In between episodes had two children with wonderful wife.

    Roybatty [TC1 1987 (age 22), seminoma stage 1, Radiation, HRT, implant TC2,seminoma stage 1, 2013 age 48, implant, surveillance, plastic surgery]

    Schmitt313 (wife) [TC1 -left- 2006 (age 29), non-seminoma, stage 3, chemo 9 wks,] in between we had a healthy baby boy to add to our two daughters![ TC2 12/2008 (age 32) pure-seminoma, surveillance, two prosthetics, Testim]

    Smerd [TC1 Feb 2008 (age 30), Non-Seminoma with some Seminoma Stage 1] [TC2 October 2008 Seminoma Stage I] Partial Orch

    stefanos1999 [TC1 Nov 2010 (age 30), Right (pure seminoma,6cm StageI, Carbo) / +3 years Dec 2013[TC2 Left P/O "partial orchiectomy"(1cm pure seminoma again,StageI, age33) ..75% of the testicle remained..TIN/ IGCNU]

    TC Runner: Left TC 5-2010 (age 35) 95% seminoma 5% non-seminoma lymphovascular involvement but confined to the testicle. Left I/O and surveillance. Right TC 11-2010 (age 36) 90% embryonal 10% seminoma lymphovascular involvement + 3 enlarged lymph staged 2B. Right I/O & Right prosthetic. January 2011 3 x BEP.

    __________________________________________________ ______________________________
    To update:
    1. Copy all the the Posts (and these instructions)
    2. Click Reply
    3. Paste into the Reply
    4. Add your Details
    __________________________________________________ ______________________________

    Sample
    You [TC1 20?? (age ??), type/stage, Left or Right IO, treatment / other info] /+? years [TC2 20?? (age ??), type/stage, Left or Right IO, treatment / other info]

    Leave a comment:


  • Kiwi
    replied
    (James added into log)
    __________________________________________________ _____________________________
    To update:
    1. Copy all the the Posts (and these instructions)
    2. Click Reply
    3. Paste into the Reply
    4. Add your Details
    __________________________________________________ ______________________________

    Sample
    You [TC1 20?? (age ??), type/stage, Left or Right IO, treatment / other info] /+? years [TC2 20?? (age ??), type/stage, Left or Right IO, treatment / other info]
    __________________________________________________ ______________________________

    34with1 ['fake' TC1 1975 (age 6 mos), preventative right orchidectomy]/+34.5 years [real TC1 2010 (age 35), seminoma stage 3, left orchidectomy and 4xBEP] Infertility+TRT (Axiron) since age 30, so wife and I adopted 3 kids.

    AdrianE [TC1 2008 (age 32), Teratoma stage I, surveillance] same time [TC2 2008, Seminoma stage 1, surveillance]

    Aegletes [TC1 1996 (age 30), seminoma stage I XRT] /+12 years [TC2 2008 (age 42), seminoma stage I surveillance]

    Andycoles [TC1 2006 (aged 30), seminoma Stage 1, right orchidectomy plus 1 dose Carboplatine], [TC2 2009 (aged 33), intratubular germ cell neplasia, left orchidectomy]

    Ariel [TC1 1999 (age 25), seminoma Stage 1, right orchiectomy, radiation, prosthetic]/+10 years [TC2 2009 (age 35), seminoma Stage 1, left orchiectomy, surveillance, prosthetic, 10mg androgel daily]

    Bipestuff [TC1 1983 (age 27), seminoma stage 1, Radiation] /+22 years [TC2 2005 (age 49), surveillance]

    BraveOne [TC 1 & 2 7/2009 (age 32). Pure Seminoma, bilateral orch and implants and surveillance only. 10mg androgel] Glad to be TC free!

    cbudd [{TC1: (age 21) July 2005 / Left orchiectomy/ Prostheses}
    {TC2: (age 27) May 2011 / Right orchiectomy (surgery is scheduled 6-1-11) / Cancer found in Lymph Nodes as well/ No Prostheses / Chemotherapy to come (if not more)}]

    Davepet [TC1 1975 (age20) Unknown type & stage, right I/O, RPLND] /+35 years \[TC2 2009 (age55) Mixed embryonal& seminoma, Left I/O, followed by 3xBEP]

    DoubleZero [TC1 2009 (age 40). Seminoma stage 1, radiation; TC2 2010 (age 41) teratoma stage 1, surveillance; 2010 relapse 3xBEP]

    dsomers74 [TC1: May 2000 (age 25) / Right orchiectomy / seminoma stage 1 / Radiation
    TC2: June 2010 (age 36) / Left orchiectomy / seminoma stage 1 / 1 Prostheses / Androgel 2X 5G packets]

    Fish [TC1 1988 (age 26), primarily embryonal cell carcinoma with teratoma & seminoma, Stage 1, RPLND, surveillance] /+15 years [TC2 2003 (age 42), pure seminoma, Stage 1, surveillance]

    greg_oz [TC1 1998 (age 24), embryonal carcinoma & seminoma, stage I, surveillance, recurrence 1999, 3xBEP] /+10 years [TC2 2008 (age 34), seminoma stage I, XRT]

    Groundhog [TC1 1988 (age 38), pure seminoma, stage 1, surveillance/ +21 1/2 years [TC2 2010 (age 59), pure seminoma, stage 1, surveillance. 5g testim]

    Healthnut [TC1 1995 (age 28), pure seminoma stage 1, radiation] / +8 years [TC2 2003 (age 35), pure seminoma stage 1, surveillance]

    Hugh [TC1 1989 (age 40), seminoma stage 1, radiation] / +21 years [TC2 2010 (age 61), seminoma stage 1, 1 x Carboplatin]

    James [TC1 2001 (Sept), Seminoma Stage IIIa, Right IO] /+3 Months] [TC2 2001 (Dec), type/stage, Left IO, mixed "germ cell". No sign of invasion, surveillance surveillance but in 2004 my lymph nodes AND lung showed a problem with my routine scans. Ended up "re-lapsing" after 3 years and had to do 4 rounds of B/E/P. No RPLND needed as remaining scar tissue all disappeared a few months after last chemo treatment, 4x BEP Completed 2/14/05]

    joev [TC1 1998 (age 31), pure seminoma stage 1, RT] /+3 years [TC2 2001 (age 34), pure seminoma stage 1, surveillance]

    Joe3man [TC1 2006 (age 32), seminoma stage I-25 Rounds of Radiation] [TC2 2010 (age 36), seminoma stage I-surveillance]

    JonM [TC1 1997 (age 31), teratoma stage III, X4 BEP, X3 VIP, RPLND, x5 GAMEC, RPLND (2), LT] /+11 years [TC2 2008 (age 43), Stage 1 Seminoma, Right orchidectomy, x1 Carboplatin, Surveillance]

    Kiwi [TC1 2001 (age 36), seminoma stage 1, right IO, Radiation] /+7 years [TC2 2008 (age 43), seminoma stage 1, Left IO, surveillance] two prosthetics

    LeePee [TC1 1992 (age 34), pure seminoma, left orchidectomy, Radiation] + 14 years [ TC2 2006 (age 48), seminoma stage 1, right orchidectomy, 1 dose carboplatine, surveillance] two x prosthetics

    LeeR [TC1 1997 (age 30), seminoma stage 1, Radiotherapy] /+12 years [TC2 2009 (age 42) seminoma stage 1, 1x carboplatin] In between episodes had two boys to add to a daughter.

    Leo [TC1/2 at the same time jul/2012 (age 32), left/right IO, seminoma stage 1, 2 rounds of Carboplatin, two prosthetics, TRT Nebido each 11 weeks]

    lindsayn [TC1 May 2000 (age 24), seminoma Stage 1, radiotherapy - right side; TC2 October 2010, seminoma Stage 1, surveillance at this stage - left)

    Marc311978 [TC1 1997 (age 18), seminoma stage 1, Radiation] /+12 years [TC2 2009 (age 31) seminoma stage 1, surveillance]

    No nuts [TC1 2006 (age 27), seminoma right radiation treatment] / +7 years [TC2 2013 age 34 seminoma left carboplaten testepe]

    pcwilson [TC1 1997 (aged 27), teratoma, stage I, surveillance] /+10 years [TC2 2007 (aged 38), seminoma stage I, surveillance]

    Perk, TC1 2001, seminoma, teratoma, embryonal carcinoma, uncertain type, Stage 1, lymph node dissection (negative 2001), surveillance. TC2 2006, embryonal carcinoma, seminoma, Stage 1, surveillance. AndroGel Pump...

    PISKOT (wife) TC1: 2005, pure seminoma, stage 1, left I/0, radiation (age 43), TC2: 2010, seminoma, right I/0 2xBEP), HRT Nebido (age 48)

    robert j [7/2009 TC in Both!) both seminoma stage 1, surveillance] (opted for 2 prosthetics at time of surgery, now on HRT bi-weekly self injection).

    Rosc [TC-1: 5/1990 (age 29). Seminoma some Embryonal, Left Orch. and surveillance. Appears in lymphnodes in 1992. RPLND using laparoscopy and then 6wks. radiation therapy. Clean until 2008. (TC-2 4/2008) age 46. Pure Seminoma. Right Orch. and chemo. (2X Carboplatin). HRT is weekly self IM injections with 100mg Cypionate. In between episodes had two children with wonderful wife.

    Roybatty [TC1 1987 (age 22), seminoma stage 1, Radiation, HRT, implant TC2,seminoma stage 1, 2013 age 48, implant, surveillance, plastic surgery]

    Schmitt313 (wife) [TC1 -left- 2006 (age 29), non-seminoma, stage 3, chemo 9 wks,] in between we had a healthy baby boy to add to our two daughters![ TC2 12/2008 (age 32) pure-seminoma, surveillance, two prosthetics, Testim]

    Smerd [TC1 Feb 2008 (age 30), Non-Seminoma with some Seminoma Stage 1] [TC2 October 2008 Seminoma Stage I] Partial Orch

    stefanos1999 [TC1 Nov 2010 (age 30), Right (pure seminoma,6cm StageI, Carbo) / +3 years Dec 2013[TC2 Left P/O "partial orchiectomy"(1cm pure seminoma again,StageI, age33) ..75% of the testicle remained..TIN/ IGCNU]

    TC Runner: Left TC 5-2010 (age 35) 95% seminoma 5% non-seminoma – lymphovascular involvement but confined to the testicle. Left I/O and surveillance. Right TC 11-2010 (age 36) –90% embryonal 10% seminoma – lymphovascular involvement + 3 enlarged lymph – staged 2B. Right I/O & Right prosthetic. January 2011 3 x BEP.

    __________________________________________________ ______________________________
    To update:
    1. Copy all the the Posts (and these instructions)
    2. Click Reply
    3. Paste into the Reply
    4. Add your Details
    __________________________________________________ ______________________________

    Sample
    You [TC1 20?? (age ??), type/stage, Left or Right IO, treatment / other info] /+? years [TC2 20?? (age ??), type/stage, Left or Right IO, treatment / other info]

    Leave a comment:


  • James
    replied
    Im a member of this elite group as well. Sept 2001, orchiectomy, right side then found a spot on the left one 2 months later. Dec 2001, left orchiectomy. Right seminoma. left was mixed "germ cell". No sign of invasion, surveillance but in 2004 my lymph nodes AND lung showed a problem with my routine scans. Ended up "re-lapsing" after 3 years and had to do 4 rounds of B/E/P. No RPLND needed as remaining scar tissue all disappeared a few months after last chemo treatment.

    Now - in remission since Feb 2005. Next month will be 9 years!!!!!

    Leave a comment:


  • Leo
    replied
    34with1 ['fake' TC1 1975 (age 6 mos), preventative right orchidectomy]/+34.5 years [real TC1 2010 (age 35), seminoma stage 3, left orchidectomy and 4xBEP] Infertility+TRT (Axiron) since age 30, so wife and I adopted 3 kids.

    AdrianE [TC1 2008 (age 32), Teratoma stage I, surveillance] same time [TC2 2008, Seminoma stage 1, surveillance]

    Aegletes [TC1 1996 (age 30), seminoma stage I XRT] /+12 years [TC2 2008 (age 42), seminoma stage I surveillance]

    Andycoles [TC1 2006 (aged 30), seminoma Stage 1, right orchidectomy plus 1 dose Carboplatine], [TC2 2009 (aged 33), intratubular germ cell neplasia, left orchidectomy]

    Ariel [TC1 1999 (age 25), seminoma Stage 1, right orchiectomy, radiation, prosthetic]/+10 years [TC2 2009 (age 35), seminoma Stage 1, left orchiectomy, surveillance, prosthetic, 10mg androgel daily]

    Bipestuff [TC1 1983 (age 27), seminoma stage 1, Radiation] /+22 years [TC2 2005 (age 49), surveillance]

    BraveOne [TC 1 & 2 7/2009 (age 32). Pure Seminoma, bilateral orch and implants and surveillance only. 10mg androgel] Glad to be TC free!

    cbudd [{TC1: (age 21) July 2005 / Left orchiectomy/ Prostheses}
    {TC2: (age 27) May 2011 / Right orchiectomy (surgery is scheduled 6-1-11) / Cancer found in Lymph Nodes as well/ No Prostheses / Chemotherapy to come (if not more)}]

    Davepet [TC1 1975 (age20) Unknown type & stage, right I/O, RPLND] /+35 years \[TC2 2009 (age55) Mixed embryonal& seminoma, Left I/O, followed by 3xBEP]

    DoubleZero [TC1 2009 (age 40). Seminoma stage 1, radiation; TC2 2010 (age 41) teratoma stage 1, surveillance; 2010 relapse 3xBEP]

    dsomers74 [TC1: May 2000 (age 25) / Right orchiectomy / seminoma stage 1 / Radiation
    TC2: June 2010 (age 36) / Left orchiectomy / seminoma stage 1 / 1 Prostheses / Androgel 2X 5G packets]

    Fish [TC1 1988 (age 26), primarily embryonal cell carcinoma with teratoma & seminoma, Stage 1, RPLND, surveillance] /+15 years [TC2 2003 (age 42), pure seminoma, Stage 1, surveillance]

    greg_oz [TC1 1998 (age 24), embryonal carcinoma & seminoma, stage I, surveillance, recurrence 1999, 3xBEP] /+10 years [TC2 2008 (age 34), seminoma stage I, XRT]

    Groundhog [TC1 1988 (age 38), pure seminoma, stage 1, surveillance/ +21 1/2 years [TC2 2010 (age 59), pure seminoma, stage 1, surveillance. 5g testim]

    Healthnut [TC1 1995 (age 28), pure seminoma stage 1, radiation] / +8 years [TC2 2003 (age 35), pure seminoma stage 1, surveillance]

    Hugh [TC1 1989 (age 40), seminoma stage 1, radiation] / +21 years [TC2 2010 (age 61), seminoma stage 1, 1 x Carboplatin]

    joev [TC1 1998 (age 31), pure seminoma stage 1, RT] /+3 years [TC2 2001 (age 34), pure seminoma stage 1, surveillance]

    Joe3man [TC1 2006 (age 32), seminoma stage I-25 Rounds of Radiation] [TC2 2010 (age 36), seminoma stage I-surveillance]

    JonM [TC1 1997 (age 31), teratoma stage III, X4 BEP, X3 VIP, RPLND, x5 GAMEC, RPLND (2), LT] /+11 years [TC2 2008 (age 43), Stage 1 Seminoma, Right orchidectomy, x1 Carboplatin, Surveillance]

    Kiwi [TC1 2001 (age 36), seminoma stage 1, right IO, Radiation] /+7 years [TC2 2008 (age 43), seminoma stage 1, Left IO, surveillance] two prosthetics

    LeePee [TC1 1992 (age 34), pure seminoma, left orchidectomy, Radiation] + 14 years [ TC2 2006 (age 48), seminoma stage 1, right orchidectomy, 1 dose carboplatine, surveillance] two x prosthetics

    LeeR [TC1 1997 (age 30), seminoma stage 1, Radiotherapy] /+12 years [TC2 2009 (age 42) seminoma stage 1, 1x carboplatin] In between episodes had two boys to add to a daughter.

    Leo [TC1/2 at the same time jul/2012 (age 32), left/right IO, seminoma stage 1, 2 rounds of Carboplatin, two prosthetics, TRT Nebido each 11 weeks]

    lindsayn [TC1 May 2000 (age 24), seminoma Stage 1, radiotherapy - right side; TC2 October 2010, seminoma Stage 1, surveillance at this stage - left)

    Marc311978 [TC1 1997 (age 18), seminoma stage 1, Radiation] /+12 years [TC2 2009 (age 31) seminoma stage 1, surveillance]

    No nuts [TC1 2006 (age 27), seminoma right radiation treatment] / +7 years [TC2 2013 age 34 seminoma left carboplaten testepe]

    pcwilson [TC1 1997 (aged 27), teratoma, stage I, surveillance] /+10 years [TC2 2007 (aged 38), seminoma stage I, surveillance]

    Perk, TC1 2001, seminoma, teratoma, embryonal carcinoma, uncertain type, Stage 1, lymph node dissection (negative 2001), surveillance. TC2 2006, embryonal carcinoma, seminoma, Stage 1, surveillance. AndroGel Pump...

    PISKOT (wife) TC1: 2005, pure seminoma, stage 1, left I/0, radiation (age 43), TC2: 2010, seminoma, right I/0 2xBEP), HRT Nebido (age 48)

    robert j [7/2009 TC in Both!) both seminoma stage 1, surveillance] (opted for 2 prosthetics at time of surgery, now on HRT bi-weekly self injection).

    Rosc [TC-1: 5/1990 (age 29). Seminoma some Embryonal, Left Orch. and surveillance. Appears in lymphnodes in 1992. RPLND using laparoscopy and then 6wks. radiation therapy. Clean until 2008. (TC-2 4/2008) age 46. Pure Seminoma. Right Orch. and chemo. (2X Carboplatin). HRT is weekly self IM injections with 100mg Cypionate. In between episodes had two children with wonderful wife.

    Roybatty [TC1 1987 (age 22), seminoma stage 1, Radiation, HRT, implant TC2,seminoma stage 1, 2013 age 48, implant, surveillance, plastic surgery]

    Schmitt313 (wife) [TC1 -left- 2006 (age 29), non-seminoma, stage 3, chemo 9 wks,] in between we had a healthy baby boy to add to our two daughters![ TC2 12/2008 (age 32) pure-seminoma, surveillance, two prosthetics, Testim]

    Smerd [TC1 Feb 2008 (age 30), Non-Seminoma with some Seminoma Stage 1] [TC2 October 2008 Seminoma Stage I] Partial Orch

    stefanos1999 [TC1 Nov 2010 (age 30), Right (pure seminoma,6cm StageI, Carbo) / +3 years Dec 2013[TC2 Left P/O "partial orchiectomy"(1cm pure seminoma again,StageI, age33) ..75% of the testicle remained..TIN/ IGCNU]

    TC Runner: Left TC 5-2010 (age 35) 95% seminoma 5% non-seminoma lymphovascular involvement but confined to the testicle. Left I/O and surveillance. Right TC 11-2010 (age 36) 90% embryonal 10% seminoma lymphovascular involvement + 3 enlarged lymph staged 2B. Right I/O & Right prosthetic. January 2011 3 x BEP.

    Leave a comment:


  • Kiwi
    replied
    (7 Jan 2014 - included No Nuts Entry)
    __________________________________________________ ___
    To update:
    1. Copy all the the Posts (and these instructions)
    2. Click Reply
    3. Paste into the Reply
    4. Add your Details

    Sample
    You [TC1 20?? (age ??), type/stage, Left or Right IO, treatment / other info] /+? years [TC2 20?? (age ??), type/stage, Left or Right IO, treatment / other info]

    __________________________________________________ __


    34with1 ['fake' TC1 1975 (age 6 mos), preventative right orchidectomy]/+34.5 years [real TC1 2010 (age 35), seminoma stage 3, left orchidectomy and 4xBEP] Infertility+TRT (Axiron) since age 30, so wife and I adopted 3 kids.

    AdrianE [TC1 2008 (age 32), Teratoma stage I, surveillance] same time [TC2 2008, Seminoma stage 1, surveillance]

    Aegletes [TC1 1996 (age 30), seminoma stage I XRT] /+12 years [TC2 2008 (age 42), seminoma stage I surveillance]

    Andycoles [TC1 2006 (aged 30), seminoma Stage 1, right orchidectomy plus 1 dose Carboplatine], [TC2 2009 (aged 33), intratubular germ cell neplasia, left orchidectomy]

    Ariel [TC1 1999 (age 25), seminoma Stage 1, right orchiectomy, radiation, prosthetic]/+10 years [TC2 2009 (age 35), seminoma Stage 1, left orchiectomy, surveillance, prosthetic, 10mg androgel daily]

    Bipestuff [TC1 1983 (age 27), seminoma stage 1, Radiation] /+22 years [TC2 2005 (age 49), surveillance]

    BraveOne [TC 1 & 2 7/2009 (age 32). Pure Seminoma, bilateral orch and implants and surveillance only. 10mg androgel] Glad to be TC free!

    cbudd [{TC1: (age 21) July 2005 / Left orchiectomy/ Prostheses}
    {TC2: (age 27) May 2011 / Right orchiectomy (surgery is scheduled 6-1-11) / Cancer found in Lymph Nodes as well/ No Prostheses / Chemotherapy to come (if not more)}]

    Davepet [TC1 1975 (age20) Unknown type & stage, right I/O, RPLND] /+35 years \[TC2 2009 (age55) Mixed embryonal& seminoma, Left I/O, followed by 3xBEP]

    DoubleZero [TC1 2009 (age 40). Seminoma stage 1, radiation; TC2 2010 (age 41) teratoma stage 1, surveillance; 2010 relapse 3xBEP]

    dsomers74 [TC1: May 2000 (age 25) / Right orchiectomy / seminoma stage 1 / Radiation
    TC2: June 2010 (age 36) / Left orchiectomy / seminoma stage 1 / 1 Prostheses / Androgel 2X 5G packets]

    Fish [TC1 1988 (age 26), primarily embryonal cell carcinoma with teratoma & seminoma, Stage 1, RPLND, surveillance] /+15 years [TC2 2003 (age 42), pure seminoma, Stage 1, surveillance]

    greg_oz [TC1 1998 (age 24), embryonal carcinoma & seminoma, stage I, surveillance, recurrence 1999, 3xBEP] /+10 years [TC2 2008 (age 34), seminoma stage I, XRT]

    Groundhog [TC1 1988 (age 38), pure seminoma, stage 1, surveillance/ +21 1/2 years [TC2 2010 (age 59), pure seminoma, stage 1, surveillance. 5g testim]

    Healthnut [TC1 1995 (age 28), pure seminoma stage 1, radiation] / +8 years [TC2 2003 (age 35), pure seminoma stage 1, surveillance]

    Hugh [TC1 1989 (age 40), seminoma stage 1, radiation] / +21 years [TC2 2010 (age 61), seminoma stage 1, 1 x Carboplatin]

    joev [TC1 1998 (age 31), pure seminoma stage 1, RT] /+3 years [TC2 2001 (age 34), pure seminoma stage 1, surveillance]

    Joe3man [TC1 2006 (age 32), seminoma stage I-25 Rounds of Radiation] [TC2 2010 (age 36), seminoma stage I-surveillance]

    JonM [TC1 1997 (age 31), teratoma stage III, X4 BEP, X3 VIP, RPLND, x5 GAMEC, RPLND (2), LT] /+11 years [TC2 2008 (age 43), Stage 1 Seminoma, Right orchidectomy, x1 Carboplatin, Surveillance]

    Kiwi [TC1 2001 (age 36), seminoma stage 1, right IO, Radiation] /+7 years [TC2 2008 (age 43), seminoma stage 1, Left IO, surveillance] two prosthetics

    LeePee [TC1 1992 (age 34), pure seminoma, left orchidectomy, Radiation] + 14 years [ TC2 2006 (age 48), seminoma stage 1, right orchidectomy, 1 dose carboplatine, surveillance] two x prosthetics

    LeeR [TC1 1997 (age 30), seminoma stage 1, Radiotherapy] /+12 years [TC2 2009 (age 42) seminoma stage 1, 1x carboplatin] In between episodes had two boys to add to a daughter.

    lindsayn [TC1 May 2000 (age 24), seminoma Stage 1, radiotherapy - right side; TC2 October 2010, seminoma Stage 1, surveillance at this stage - left)

    Marc311978 [TC1 1997 (age 18), seminoma stage 1, Radiation] /+12 years [TC2 2009 (age 31) seminoma stage 1, surveillance]

    No nuts [TC1 2006 (age 27), seminoma right radiation treatment] / +7 years [TC2 2013 age 34 seminoma left carboplaten testepe]

    pcwilson [TC1 1997 (aged 27), teratoma, stage I, surveillance] /+10 years [TC2 2007 (aged 38), seminoma stage I, surveillance]

    Perk, TC1 2001, seminoma, teratoma, embryonal carcinoma, uncertain type, Stage 1, lymph node dissection (negative 2001), surveillance. TC2 2006, embryonal carcinoma, seminoma, Stage 1, surveillance. AndroGel Pump...

    PISKOT (wife) TC1: 2005, pure seminoma, stage 1, left I/0, radiation (age 43), TC2: 2010, seminoma, right I/0 2xBEP), HRT Nebido (age 48)

    robert j [7/2009 TC in Both!) both seminoma stage 1, surveillance] (opted for 2 prosthetics at time of surgery, now on HRT bi-weekly self injection).

    Rosc [TC-1: 5/1990 (age 29). Seminoma some Embryonal, Left Orch. and surveillance. Appears in lymphnodes in 1992. RPLND using laparoscopy and then 6wks. radiation therapy. Clean until 2008. (TC-2 4/2008) age 46. Pure Seminoma. Right Orch. and chemo. (2X Carboplatin). HRT is weekly self IM injections with 100mg Cypionate. In between episodes had two children with wonderful wife.

    Roybatty [TC1 1987 (age 22), seminoma stage 1, Radiation, HRT, implant TC2,seminoma stage 1, 2013 age 48, implant, surveillance, plastic surgery]

    Schmitt313 (wife) [TC1 -left- 2006 (age 29), non-seminoma, stage 3, chemo 9 wks,] in between we had a healthy baby boy to add to our two daughters![ TC2 12/2008 (age 32) pure-seminoma, surveillance, two prosthetics, Testim]

    Smerd [TC1 Feb 2008 (age 30), Non-Seminoma with some Seminoma Stage 1] [TC2 October 2008 Seminoma Stage I] Partial Orch

    stefanos1999 [TC1 Nov 2010 (age 30), Right (pure seminoma,6cm StageI, Carbo) / +3 years Dec 2013[TC2 Left P/O "partial orchiectomy"(1cm pure seminoma again,StageI, age33) ..75% of the testicle remained..TIN/ IGCNU]

    TC Runner: Left TC 5-2010 (age 35) 95% seminoma 5% non-seminoma lymphovascular involvement but confined to the testicle. Left I/O and surveillance. Right TC 11-2010 (age 36) 90% embryonal 10% seminoma lymphovascular involvement + 3 enlarged lymph staged 2B. Right I/O & Right prosthetic. January 2011 3 x BEP.


    __________________________________________________ _____________________________
    To update:
    1. Copy all the the Posts (and these instructions)
    2. Click Reply
    3. Paste into the Reply
    4. Add your Details
    __________________________________________________ _____________________________

    Sample
    You [TC1 20?? (age ??), type/stage, Left or Right IO, treatment / other info] /+? years [TC2 20?? (age ??), type/stage, Left or Right IO, treatment / other info]

    Leave a comment:


  • No nuts
    replied
    A

    Originally posted by 34with1 View Post
    Somehow I fell off the list. But I had to update my stuff anyway, TRT method has changed:

    34with1 ['fake' TC1 1975 (age 6 mos), preventative right orchidectomy]/+34.5 years [real TC1 2010 (age 35), seminoma stage 3, left orchidectomy and 4xBEP] Infertility+TRT (Axiron) since age 30, so wife and I adopted 3 kids.

    AdrianE [TC1 2008 (age 32), Teratoma stage I, surveillance] same time [TC2 2008, Seminoma stage 1, surveillance]

    Aegletes [TC1 1996 (age 30), seminoma stage I XRT] /+12 years [TC2 2008 (age 42), seminoma stage I surveillance]

    Andycoles [TC1 2006 (aged 30), seminoma Stage 1, right orchidectomy plus 1 dose Carboplatine], [TC2 2009 (aged 33), intratubular germ cell neplasia, left orchidectomy]

    Ariel [TC1 1999 (age 25), seminoma Stage 1, right orchiectomy, radiation, prosthetic]/+10 years [TC2 2009 (age 35), seminoma Stage 1, left orchiectomy, surveillance, prosthetic, 10mg androgel daily]

    Bipestuff [TC1 1983 (age 27), seminoma stage 1, Radiation] /+22 years [TC2 2005 (age 49), surveillance]

    BraveOne [TC 1 & 2 7/2009 (age 32). Pure Seminoma, bilateral orch and implants and surveillance only. 10mg androgel] Glad to be TC free!

    cbudd [{TC1: (age 21) July 2005 / Left orchiectomy/ Prostheses}
    {TC2: (age 27) May 2011 / Right orchiectomy (surgery is scheduled 6-1-11) / Cancer found in Lymph Nodes as well/ No Prostheses / Chemotherapy to come (if not more)}]

    Davepet [TC1 1975 (age20) Unknown type & stage, right I/O, RPLND] /+35 years \[TC2 2009 (age55) Mixed embryonal& seminoma, Left I/O, followed by 3xBEP]

    DoubleZero [TC1 2009 (age 40). Seminoma stage 1, radiation; TC2 2010 (age 41) teratoma stage 1, surveillance; 2010 relapse 3xBEP]

    dsomers74 [TC1: May 2000 (age 25) / Right orchiectomy / seminoma stage 1 / Radiation
    TC2: June 2010 (age 36) / Left orchiectomy / seminoma stage 1 / 1 Prostheses / Androgel 2X 5G packets]

    Fish [TC1 1988 (age 26), primarily embryonal cell carcinoma with teratoma & seminoma, Stage 1, RPLND, surveillance] /+15 years [TC2 2003 (age 42), pure seminoma, Stage 1, surveillance]

    greg_oz [TC1 1998 (age 24), embryonal carcinoma & seminoma, stage I, surveillance, recurrence 1999, 3xBEP] /+10 years [TC2 2008 (age 34), seminoma stage I, XRT]

    Groundhog [TC1 1988 (age 38), pure seminoma, stage 1, surveillance/ +21 1/2 years [TC2 2010 (age 59), pure seminoma, stage 1, surveillance. 5g testim]

    Healthnut [TC1 1995 (age 28), pure seminoma stage 1, radiation] / +8 years [TC2 2003 (age 35), pure seminoma stage 1, surveillance]

    Hugh [TC1 1989 (age 40), seminoma stage 1, radiation] / +21 years [TC2 2010 (age 61), seminoma stage 1, 1 x Carboplatin]

    joev [TC1 1998 (age 31), pure seminoma stage 1, RT] /+3 years [TC2 2001 (age 34), pure seminoma stage 1, surveillance]

    Joe3man [TC1 2006 (age 32), seminoma stage I-25 Rounds of Radiation] [TC2 2010 (age 36), seminoma stage I-surveillance]

    JonM [TC1 1997 (age 31), teratoma stage III, X4 BEP, X3 VIP, RPLND, x5 GAMEC, RPLND (2), LT] /+11 years [TC2 2008 (age 43), Stage 1 Seminoma, Right orchidectomy, x1 Carboplatin, Surveillance]

    Kiwi [TC1 2001 (age 36), seminoma stage 1, Radiation] /+7 years [TC2 2008 (age 43), seminoma stage 1, surveillance] two prosthetics

    LeePee [TC1 1992 (age 34), pure seminoma, left orchidectomy, Radiation] + 14 years [ TC2 2006 (age 48), seminoma stage 1, right orchidectomy, 1 dose carboplatine, surveillance] two x prosthetics

    LeeR [TC1 1997 (age 30), seminoma stage 1, Radiotherapy] /+12 years [TC2 2009 (age 42) seminoma stage 1, 1x carboplatin] In between episodes had two boys to add to a daughter.

    lindsayn [TC1 May 2000 (age 24), seminoma Stage 1, radiotherapy - right side; TC2 October 2010, seminoma Stage 1, surveillance at this stage - left)

    Marc311978 [TC1 1997 (age 18), seminoma stage 1, Radiation] /+12 years [TC2 2009 (age 31) seminoma stage 1, surveillance]

    pcwilson [TC1 1997 (aged 27), teratoma, stage I, surveillance] /+10 years [TC2 2007 (aged 38), seminoma stage I, surveillance]

    Perk, TC1 2001, seminoma, teratoma, embryonal carcinoma, uncertain type, Stage 1, lymph node dissection (negative 2001), surveillance. TC2 2006, embryonal carcinoma, seminoma, Stage 1, surveillance. AndroGel Pump...

    PISKOT (wife) TC1: 2005, pure seminoma, stage 1, left I/0, radiation (age 43), TC2: 2010, seminoma, right I/0 2xBEP), HRT Nebido (age 48)

    robert j [7/2009 TC in Both!) both seminoma stage 1, surveillance] (opted for 2 prosthetics at time of surgery, now on HRT bi-weekly self injection).

    Rosc [TC-1: 5/1990 (age 29). Seminoma some Embryonal, Left Orch. and surveillance. Appears in lymphnodes in 1992. RPLND using laparoscopy and then 6wks. radiation therapy. Clean until 2008. (TC-2 4/2008) age 46. Pure Seminoma. Right Orch. and chemo. (2X Carboplatin). HRT is weekly self IM injections with 100mg Cypionate. In between episodes had two children with wonderful wife.

    Schmitt313 (wife) [TC1 -left- 2006 (age 29), non-seminoma, stage 3, chemo 9 wks,] in between we had a healthy baby boy to add to our two daughters![ TC2 12/2008 (age 32) pure-seminoma, surveillance, two prosthetics, Testim]

    Smerd [TC1 Feb 2008 (age 30), Non-Seminoma with some Seminoma Stage 1] [TC2 October 2008 Seminoma Stage I] Partial Orch

    TC Runner: Left TC 5-2010 (age 35) 95% seminoma 5% non-seminoma lymphovascular involvement but confined to the testicle. Left I/O and surveillance. Right TC 11-2010 (age 36) 90% embryonal 10% seminoma lymphovascular involvement + 3 enlarged lymph staged 2B. Right I/O & Right prosthetic. January 2011 3 x BEP.
    [/QUOTE]

    No nuts- tc1 2006 age 27 seminoma right radiation treatment. Tc2 2013 age 34 seminoma left carboplaten testepel

    Leave a comment:


  • roybatty
    replied
    Added me -

    34with1 ['fake' TC1 1975 (age 6 mos), preventative right orchidectomy]/+34.5 years [real TC1 2010 (age 35), seminoma stage 3, left orchidectomy and 4xBEP] Infertility+TRT (Axiron) since age 30, so wife and I adopted 3 kids.

    AdrianE [TC1 2008 (age 32), Teratoma stage I, surveillance] same time [TC2 2008, Seminoma stage 1, surveillance]

    Aegletes [TC1 1996 (age 30), seminoma stage I XRT] /+12 years [TC2 2008 (age 42), seminoma stage I surveillance]

    Andycoles [TC1 2006 (aged 30), seminoma Stage 1, right orchidectomy plus 1 dose Carboplatine], [TC2 2009 (aged 33), intratubular germ cell neplasia, left orchidectomy]

    Ariel [TC1 1999 (age 25), seminoma Stage 1, right orchiectomy, radiation, prosthetic]/+10 years [TC2 2009 (age 35), seminoma Stage 1, left orchiectomy, surveillance, prosthetic, 10mg androgel daily]

    Bipestuff [TC1 1983 (age 27), seminoma stage 1, Radiation] /+22 years [TC2 2005 (age 49), surveillance]

    BraveOne [TC 1 & 2 7/2009 (age 32). Pure Seminoma, bilateral orch and implants and surveillance only. 10mg androgel] Glad to be TC free!

    cbudd [{TC1: (age 21) July 2005 / Left orchiectomy/ Prostheses}
    {TC2: (age 27) May 2011 / Right orchiectomy (surgery is scheduled 6-1-11) / Cancer found in Lymph Nodes as well/ No Prostheses / Chemotherapy to come (if not more)}]

    Davepet [TC1 1975 (age20) Unknown type & stage, right I/O, RPLND] /+35 years \[TC2 2009 (age55) Mixed embryonal& seminoma, Left I/O, followed by 3xBEP]

    DoubleZero [TC1 2009 (age 40). Seminoma stage 1, radiation; TC2 2010 (age 41) teratoma stage 1, surveillance; 2010 relapse 3xBEP]

    dsomers74 [TC1: May 2000 (age 25) / Right orchiectomy / seminoma stage 1 / Radiation
    TC2: June 2010 (age 36) / Left orchiectomy / seminoma stage 1 / 1 Prostheses / Androgel 2X 5G packets]

    Fish [TC1 1988 (age 26), primarily embryonal cell carcinoma with teratoma & seminoma, Stage 1, RPLND, surveillance] /+15 years [TC2 2003 (age 42), pure seminoma, Stage 1, surveillance]

    greg_oz [TC1 1998 (age 24), embryonal carcinoma & seminoma, stage I, surveillance, recurrence 1999, 3xBEP] /+10 years [TC2 2008 (age 34), seminoma stage I, XRT]

    Groundhog [TC1 1988 (age 38), pure seminoma, stage 1, surveillance/ +21 1/2 years [TC2 2010 (age 59), pure seminoma, stage 1, surveillance. 5g testim]

    Healthnut [TC1 1995 (age 28), pure seminoma stage 1, radiation] / +8 years [TC2 2003 (age 35), pure seminoma stage 1, surveillance]

    Hugh [TC1 1989 (age 40), seminoma stage 1, radiation] / +21 years [TC2 2010 (age 61), seminoma stage 1, 1 x Carboplatin]

    joev [TC1 1998 (age 31), pure seminoma stage 1, RT] /+3 years [TC2 2001 (age 34), pure seminoma stage 1, surveillance]

    Joe3man [TC1 2006 (age 32), seminoma stage I-25 Rounds of Radiation] [TC2 2010 (age 36), seminoma stage I-surveillance]

    JonM [TC1 1997 (age 31), teratoma stage III, X4 BEP, X3 VIP, RPLND, x5 GAMEC, RPLND (2), LT] /+11 years [TC2 2008 (age 43), Stage 1 Seminoma, Right orchidectomy, x1 Carboplatin, Surveillance]

    Kiwi [TC1 2001 (age 36), seminoma stage 1, Radiation] /+7 years [TC2 2008 (age 43), seminoma stage 1, surveillance] two prosthetics

    LeePee [TC1 1992 (age 34), pure seminoma, left orchidectomy, Radiation] + 14 years [ TC2 2006 (age 48), seminoma stage 1, right orchidectomy, 1 dose carboplatine, surveillance] two x prosthetics

    LeeR [TC1 1997 (age 30), seminoma stage 1, Radiotherapy] /+12 years [TC2 2009 (age 42) seminoma stage 1, 1x carboplatin] In between episodes had two boys to add to a daughter.

    lindsayn [TC1 May 2000 (age 24), seminoma Stage 1, radiotherapy - right side; TC2 October 2010, seminoma Stage 1, surveillance at this stage - left)

    Marc311978 [TC1 1997 (age 18), seminoma stage 1, Radiation] /+12 years [TC2 2009 (age 31) seminoma stage 1, surveillance]

    pcwilson [TC1 1997 (aged 27), teratoma, stage I, surveillance] /+10 years [TC2 2007 (aged 38), seminoma stage I, surveillance]

    Perk, TC1 2001, seminoma, teratoma, embryonal carcinoma, uncertain type, Stage 1, lymph node dissection (negative 2001), surveillance. TC2 2006, embryonal carcinoma, seminoma, Stage 1, surveillance. AndroGel Pump...

    PISKOT (wife) TC1: 2005, pure seminoma, stage 1, left I/0, radiation (age 43), TC2: 2010, seminoma, right I/0 2xBEP), HRT Nebido (age 48)

    robert j [7/2009 TC in Both!) both seminoma stage 1, surveillance] (opted for 2 prosthetics at time of surgery, now on HRT bi-weekly self injection).

    Rosc [TC-1: 5/1990 (age 29). Seminoma some Embryonal, Left Orch. and surveillance. Appears in lymphnodes in 1992. RPLND using laparoscopy and then 6wks. radiation therapy. Clean until 2008. (TC-2 4/2008) age 46. Pure Seminoma. Right Orch. and chemo. (2X Carboplatin). HRT is weekly self IM injections with 100mg Cypionate. In between episodes had two children with wonderful wife.

    Roybatty [TC1 1987 (age 22), seminoma stage 1, Radiation, HRT, implant TC2,seminoma stage 1, 2013 age 48, implant, surveillance, plastic surgery]

    Schmitt313 (wife) [TC1 -left- 2006 (age 29), non-seminoma, stage 3, chemo 9 wks,] in between we had a healthy baby boy to add to our two daughters![ TC2 12/2008 (age 32) pure-seminoma, surveillance, two prosthetics, Testim]

    Smerd [TC1 Feb 2008 (age 30), Non-Seminoma with some Seminoma Stage 1] [TC2 October 2008 Seminoma Stage I] Partial Orch

    stefanos1999 [TC1 Nov 2010 (age 30), Right (pure seminoma,6cm StageI, Carbo) / +3 years Dec 2013[TC2 Left P/O "partial orchiectomy"(1cm pure seminoma again,StageI, age33) ..75% of the testicle remained..TIN/ IGCNU]

    TC Runner: Left TC 5-2010 (age 35) 95% seminoma 5% non-seminoma – lymphovascular involvement but confined to the testicle. Left I/O and surveillance. Right TC 11-2010 (age 36) –90% embryonal 10% seminoma – lymphovascular involvement + 3 enlarged lymph – staged 2B. Right I/O & Right prosthetic. January 2011 3 x BEP.

    Leave a comment:


  • Kiwi
    replied
    (added in stefanos1999 - cheers Kiwi)

    34with1 ['fake' TC1 1975 (age 6 mos), preventative right orchidectomy]/+34.5 years [real TC1 2010 (age 35), seminoma stage 3, left orchidectomy and 4xBEP] Infertility+TRT (Axiron) since age 30, so wife and I adopted 3 kids.

    AdrianE [TC1 2008 (age 32), Teratoma stage I, surveillance] same time [TC2 2008, Seminoma stage 1, surveillance]

    Aegletes [TC1 1996 (age 30), seminoma stage I XRT] /+12 years [TC2 2008 (age 42), seminoma stage I surveillance]

    Andycoles [TC1 2006 (aged 30), seminoma Stage 1, right orchidectomy plus 1 dose Carboplatine], [TC2 2009 (aged 33), intratubular germ cell neplasia, left orchidectomy]

    Ariel [TC1 1999 (age 25), seminoma Stage 1, right orchiectomy, radiation, prosthetic]/+10 years [TC2 2009 (age 35), seminoma Stage 1, left orchiectomy, surveillance, prosthetic, 10mg androgel daily]

    Bipestuff [TC1 1983 (age 27), seminoma stage 1, Radiation] /+22 years [TC2 2005 (age 49), surveillance]

    BraveOne [TC 1 & 2 7/2009 (age 32). Pure Seminoma, bilateral orch and implants and surveillance only. 10mg androgel] Glad to be TC free!

    cbudd [{TC1: (age 21) July 2005 / Left orchiectomy/ Prostheses}
    {TC2: (age 27) May 2011 / Right orchiectomy (surgery is scheduled 6-1-11) / Cancer found in Lymph Nodes as well/ No Prostheses / Chemotherapy to come (if not more)}]

    Davepet [TC1 1975 (age20) Unknown type & stage, right I/O, RPLND] /+35 years \[TC2 2009 (age55) Mixed embryonal& seminoma, Left I/O, followed by 3xBEP]

    DoubleZero [TC1 2009 (age 40). Seminoma stage 1, radiation; TC2 2010 (age 41) teratoma stage 1, surveillance; 2010 relapse 3xBEP]

    dsomers74 [TC1: May 2000 (age 25) / Right orchiectomy / seminoma stage 1 / Radiation
    TC2: June 2010 (age 36) / Left orchiectomy / seminoma stage 1 / 1 Prostheses / Androgel 2X 5G packets]

    Fish [TC1 1988 (age 26), primarily embryonal cell carcinoma with teratoma & seminoma, Stage 1, RPLND, surveillance] /+15 years [TC2 2003 (age 42), pure seminoma, Stage 1, surveillance]

    greg_oz [TC1 1998 (age 24), embryonal carcinoma & seminoma, stage I, surveillance, recurrence 1999, 3xBEP] /+10 years [TC2 2008 (age 34), seminoma stage I, XRT]

    Groundhog [TC1 1988 (age 38), pure seminoma, stage 1, surveillance/ +21 1/2 years [TC2 2010 (age 59), pure seminoma, stage 1, surveillance. 5g testim]

    Healthnut [TC1 1995 (age 28), pure seminoma stage 1, radiation] / +8 years [TC2 2003 (age 35), pure seminoma stage 1, surveillance]

    Hugh [TC1 1989 (age 40), seminoma stage 1, radiation] / +21 years [TC2 2010 (age 61), seminoma stage 1, 1 x Carboplatin]

    joev [TC1 1998 (age 31), pure seminoma stage 1, RT] /+3 years [TC2 2001 (age 34), pure seminoma stage 1, surveillance]

    Joe3man [TC1 2006 (age 32), seminoma stage I-25 Rounds of Radiation] [TC2 2010 (age 36), seminoma stage I-surveillance]

    JonM [TC1 1997 (age 31), teratoma stage III, X4 BEP, X3 VIP, RPLND, x5 GAMEC, RPLND (2), LT] /+11 years [TC2 2008 (age 43), Stage 1 Seminoma, Right orchidectomy, x1 Carboplatin, Surveillance]

    Kiwi [TC1 2001 (age 36), seminoma stage 1, Radiation] /+7 years [TC2 2008 (age 43), seminoma stage 1, surveillance] two prosthetics

    LeePee [TC1 1992 (age 34), pure seminoma, left orchidectomy, Radiation] + 14 years [ TC2 2006 (age 48), seminoma stage 1, right orchidectomy, 1 dose carboplatine, surveillance] two x prosthetics

    LeeR [TC1 1997 (age 30), seminoma stage 1, Radiotherapy] /+12 years [TC2 2009 (age 42) seminoma stage 1, 1x carboplatin] In between episodes had two boys to add to a daughter.

    lindsayn [TC1 May 2000 (age 24), seminoma Stage 1, radiotherapy - right side; TC2 October 2010, seminoma Stage 1, surveillance at this stage - left)

    Marc311978 [TC1 1997 (age 18), seminoma stage 1, Radiation] /+12 years [TC2 2009 (age 31) seminoma stage 1, surveillance]

    pcwilson [TC1 1997 (aged 27), teratoma, stage I, surveillance] /+10 years [TC2 2007 (aged 38), seminoma stage I, surveillance]

    Perk, TC1 2001, seminoma, teratoma, embryonal carcinoma, uncertain type, Stage 1, lymph node dissection (negative 2001), surveillance. TC2 2006, embryonal carcinoma, seminoma, Stage 1, surveillance. AndroGel Pump...

    PISKOT (wife) TC1: 2005, pure seminoma, stage 1, left I/0, radiation (age 43), TC2: 2010, seminoma, right I/0 2xBEP), HRT Nebido (age 48)

    robert j [7/2009 TC in Both!) both seminoma stage 1, surveillance] (opted for 2 prosthetics at time of surgery, now on HRT bi-weekly self injection).

    Rosc [TC-1: 5/1990 (age 29). Seminoma some Embryonal, Left Orch. and surveillance. Appears in lymphnodes in 1992. RPLND using laparoscopy and then 6wks. radiation therapy. Clean until 2008. (TC-2 4/2008) age 46. Pure Seminoma. Right Orch. and chemo. (2X Carboplatin). HRT is weekly self IM injections with 100mg Cypionate. In between episodes had two children with wonderful wife.

    Schmitt313 (wife) [TC1 -left- 2006 (age 29), non-seminoma, stage 3, chemo 9 wks,] in between we had a healthy baby boy to add to our two daughters![ TC2 12/2008 (age 32) pure-seminoma, surveillance, two prosthetics, Testim]

    Smerd [TC1 Feb 2008 (age 30), Non-Seminoma with some Seminoma Stage 1] [TC2 October 2008 Seminoma Stage I] Partial Orch

    stefanos1999 [TC1 Nov 2010 (age 30), Right (pure seminoma,6cm StageI, Carbo) / +3 years Dec 2013[TC2 Left P/O "partial orchiectomy"(1cm pure seminoma again,StageI, age33) ..75% of the testicle remained..TIN/ IGCNU]

    TC Runner: Left TC 5-2010 (age 35) 95% seminoma 5% non-seminoma lymphovascular involvement but confined to the testicle. Left I/O and surveillance. Right TC 11-2010 (age 36) 90% embryonal 10% seminoma lymphovascular involvement + 3 enlarged lymph staged 2B. Right I/O & Right prosthetic. January 2011 3 x BEP.[/QUOTE]

    Leave a comment:

Working...
X