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1 month all clear!

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  • 1 month all clear!

    I know its not that long of time to be all clear but I got my first scans back and everything looks good. Can't wait to post yearly in this section. BEPx3 sucked and this is now more of a mental battle than anything else.

  • #2
    Congrats on the good news!
    My newer blog. I'll be using the one below from now on.
    http://jefflilland.blogspot.com/


    Initial Diagnosis 04/15/2013 Stage 1b Non-Seminoma
    I/O 04/08/2013
    Second Diagnosis 09/19/2013 Stage 3 Non-Seminoma in the left lung
    3x BEP 09/25/2013-11/19/2013
    All Clear 11/26/2013

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    • #3
      Originally posted by surfhb View Post
      I know its not that long of time to be all clear but I got my first scans back and everything looks good. Can't wait to post yearly in this section. BEPx3 sucked and this is now more of a mental battle than anything else.
      hello mate,dont worry,it will all going perfect
      11.2009 (age 29)carcinoma embryonale testis,op left side(orchiectomy),600 AFP, 90 bHCG(after op still high) ,CT chest and abdomen clear
      12.2009 - 2.2010 3xBEP + bleomicin
      going on controls every 4 month,all clear

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      • #4
        Originally posted by surfhb View Post
        I know its not that long of time to be all clear but I got my first scans back and everything looks good. Can't wait to post yearly in this section. BEPx3 sucked and this is now more of a mental battle than anything else.
        The first month clear is the big one. Each month after this should be less intense & more likely to be clear.

        Keep it up,
        Dave
        Jan, 1975: Right I/O, followed by RPLND
        Dec, 2009: Left I/O, followed by 3xBEP

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        • #5
          Congrats Surf!!!
          March 2012 - I/O Right Testicle (pure Seminoma)
          April 2012 - July 2013 surveillance
          July 12, 2013 LDH 365, Node is in abdomen size = 2.7cm. (treatment needed)
          August 5, 2013 beginning 3xBEP

          http://www.caringbridge.org/visit/jimmiller71

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          • #6
            What is the follow up procedure now that I am in the clear. My oncologist seems to alter what this should be each time I talk with him. It seems like it is up to me in order to make sure I am getting this done correctly.

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            • #7
              Originally posted by surfhb View Post
              What is the follow up procedure now that I am in the clear. My oncologist seems to alter what this should be each time I talk with him. It seems like it is up to me in order to make sure I am getting this done correctly.
              Well, afraid you are not truly "in the clear" just yet, but you passed a big milestone on the journey. Most recurrences happen within the first year, a few wait two years, but 5 years is pretty much the gold standard for "cured". As far as your follow up, it's not really clear to me from the NCCN guidelines, but I *think* you should expect at least 2-3 month interval for chest x-ray & blood markers & a 6 month interval for CT scans in the first year. The frequency decreases over the next few years until year 5.

              Dave
              Jan, 1975: Right I/O, followed by RPLND
              Dec, 2009: Left I/O, followed by 3xBEP

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              • #8
                Originally posted by Davepet View Post
                Well, afraid you are not truly "in the clear" just yet, but you passed a big milestone on the journey. Most recurrences happen within the first year, a few wait two years, but 5 years is pretty much the gold standard for "cured". As far as your follow up, it's not really clear to me from the NCCN guidelines, but I *think* you should expect at least 2-3 month interval for chest x-ray & blood markers & a 6 month interval for CT scans in the first year. The frequency decreases over the next few years until year 5.

                Dave
                Thanks Dave. I tried finding some literature online but it was hard to find exactly what I needed. Yea my doctor told me that recurrences happen within the first year but it is not very likely. I am hoping statistics finally start going my way. They certainly didn't with TC and when I got many get well cards in the mail I didnt win any of the scratch of tickets alot of my friends included.

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                • #9
                  Another question Dave. What are the percentages of recurrence after BEPx3? Is this the 90% curable everyone talks about? I'm assuming the recurrence rate is 10%? Is it less chance of recurrence if you were staged lower but still had BEPx3? I think I can put this stuff in the past and move on with life if I knew what the stats said. It's hard to find this on the web. The good news is that I made it 4 days without smoking (not talking cigs)! Whats the percentage that you get it a second time? It seems like it happens to many members on this forum.

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