Five Years

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  • JonSurrey
    Registered User
    • Sep 2010
    • 113
    #1

    Five Years

    Hi all

    Just got my five year all clear.
    An opportunity to reflect on how lucky I am, how grateful to the brilliant people who fixed me and have continued to support through surveillance, and to pause for a moment to think of those less fortunate, taken from us by this horrible disease.
    To any new members here reading this, hang in there. Even though the world feels dark and scary, you'll get through it and be able to put it behind you.
    2 Sep 2010 - Diagnosed TC
    13 Sep 2010 - Right IO
    Pure Seminoma Stage 1 - Surveillance
    Oct 2010 -Biopsy on remaining testis shows no pre cancerous changes
    Dec 2010 - All Clear
    Mar 2011 - Relapse: Enlarged abdominal lymph nodes 8mm and
    15mm
    8 Apr 2011 - Single Dose Carboplatin
    12 May - 2 Jun 2011 - Radiotherapy 30 Gy
    9 Sep 2011 - All Clear
    11 Dec 2011 - All Clear
    14 June CT and CXR - All Clear
    Tags: None
    • 👍 1
  • Cp1015
    Registered User
    • Jul 2016
    • 23
    #2
    Thanks for the update! As someone who was recently diagnosed and has an r/o set for tomorrow, it is re-assuring to hear from those who have been through the fight!

    Comment

    • JonSurrey
      Registered User
      • Sep 2010
      • 113
      #3
      Hi Cp.
      Good luck tomorrow.
      As I'm sure you know, there's plenty of support and info available here. This community was a huge help to me during my diagnosis and subsequent treatment.
      Stay positive and use this amazing community to get the support you need.
      2 Sep 2010 - Diagnosed TC
      13 Sep 2010 - Right IO
      Pure Seminoma Stage 1 - Surveillance
      Oct 2010 -Biopsy on remaining testis shows no pre cancerous changes
      Dec 2010 - All Clear
      Mar 2011 - Relapse: Enlarged abdominal lymph nodes 8mm and
      15mm
      8 Apr 2011 - Single Dose Carboplatin
      12 May - 2 Jun 2011 - Radiotherapy 30 Gy
      9 Sep 2011 - All Clear
      11 Dec 2011 - All Clear
      14 June CT and CXR - All Clear

      Comment

      • Talis
        Registered User
        • Sep 2014
        • 408
        #4
        Great to hear it, Jon. Congrats!

        - T
        30 Jul 14: Discovered lump
        31 Jul 14: GP referral to specialist
        4 Aug 14: Clinical diagnosis of tumour, blood samples taken, CT scans, USS (confirming ~2cm tumour)
        8 Aug 14: Left radical orchidectomy (plus test results back: CT normal, no mets; blood markers slightly elevated: AFP 14.16, HCG 4.9, LDH 149)
        29 Aug 14: Pathology results: Stage 1A Mixed Non-Seminomatous Germ Cell Tumour (composition: Yolk-sac Tumour and Mature Teratoma)
        24 Sep 14: Started precautionary adjuvant 1xBEP
        23 Oct 14: All clear; on surveillance

        Comment

        • JonSurrey
          Registered User
          • Sep 2010
          • 113
          #5
          Thanks T.
          Pleased to see you're doing well too.
          j
          2 Sep 2010 - Diagnosed TC
          13 Sep 2010 - Right IO
          Pure Seminoma Stage 1 - Surveillance
          Oct 2010 -Biopsy on remaining testis shows no pre cancerous changes
          Dec 2010 - All Clear
          Mar 2011 - Relapse: Enlarged abdominal lymph nodes 8mm and
          15mm
          8 Apr 2011 - Single Dose Carboplatin
          12 May - 2 Jun 2011 - Radiotherapy 30 Gy
          9 Sep 2011 - All Clear
          11 Dec 2011 - All Clear
          14 June CT and CXR - All Clear

          Comment

          • chad-in-berlin
            Registered User
            • Jul 2015
            • 72
            #6
            BIG UPS!
            -C
            JAN.2015- mild pain/swelling in RT, spread to abd., GP misdiagnosed as orchitis. (SEE A UROLOGIST, GUYS!)
            JUN27- Diagnosed
            JUN28- AFP ~250, bHCG ~90, LDH ~1.6x
            JUL01- Right orch.; 4x3 cm tumor, 90% EC, 10% yolk), CT shows 2.8cm met in abdom. + smallish mediastinum mets including one 7mm; staged III-A
            JUL06- 3xBEP start
            JUL07- AFP ~225, bHCG ~110, LDH ~2.3x, LDH qualifies as stage III-B, upped to 4xBEP
            JUL28- AFP ~25, bHCG ~15, LDH normal
            AUG17- AFP, bHCG, LDH normalized by 3rd cycle
            SEP21- 4xBEP done, no complications; a few +2cm masses remain in retroperitoneum
            DEC02- RPLND, necrosis + bit of mat. tera., retrograde
            JAN. 2016- Surveillance, exercise, working, SIGUE!
            NOV. 2017- Retrograde improves. Still not normal but better.
            FEB. 2018- 26 MONTHS ALL CLEAR.

            Comment

            • DoubleZero
              Registered User
              • Aug 2010
              • 400
              #7
              Hey Jon,
              Well done! It's always good (for *everyone*) to see five year updates. I think even more so, from one who went the radiation route.

              Take care
              DZ
              Jan 2009: RHS (Seminoma) & RT
              Mar 2010: LHS (Embryonal Carcinoma)
              Sep 2010: Relapse & 3 x BEP
              Mar 2015: Five years "nut free"
              ​http://doublezeroami.blogspot.com

              Comment

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