3.5 years all clear - wrote a song about TC

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  • Pittsconsin
    Registered User
    • Jul 2013
    • 6

    3.5 years all clear - wrote a song about TC

    Just wanted to say how thankful I am for this forum. With the research I was able to do here I contacted a TC specialist, avoided RPLND, and confirmed I only needed one round of BEP. Testicular cancer taught me, among many things, how important it is for you to be your own health advocate and do your own research; I had a particularly unique tumor so the standard course of post-op treatment just wouldn't have made sense despite the fact that my oncologist and urologist were both recommending the standard stuff (I learned they just don't have the time to research curveballs, no pun intended). I am 3 years in the clear and am approaching my 3.5 year follow-up appointment; I've had another kid post TC, and feel pretty healthy. Again, I'm very, very thankful to the admins and people who have dedicated their time and energy to make this research forum. I'm a musician and wrote a song about my cancer experience--it's hard rock just to give you a head's up: https://maxxout.bandcamp.com/track/the-cancer-song

    Thanks again!!!


  • biwi
    Registered User
    • Jun 2015
    • 861

    #2
    Indeed, this forum was very helpful for me and now that I'm in surveillance I have been trying to contribute what I have learned as well.
    6/5/15: bHCG 27,AFP 8.66, LDH 361, 5.6cm lymph node - Stage IIC
    6/16/15: Left I/O 85% EC, 10% chorio, 5% yolk sac opinion 2 (mayo) 90% EC, 10% yolk sac
    7/7/15: bHCG 56, AFP 42, LDH 322
    7/13/15: begin 4xEP, end 9/18/15
    10/1/15: bloodwork normal, ct scan shows 2 lymph nodes 1.0cm
    10/26/15: 2nd opinion on CT results - lymph nodes normal. Surveillance!
    4/6/16: 1.7cm X 1.5cm lymph node found with markers normal.
    4/20/16: RPLND @ IU - teratoma only!
    10/22/19: all clears up to this date!
    4/8/24: stopped monitoring something like 2 years ago, still all clear!

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