1 year all clear

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  • jds88
    Registered User
    • Feb 2016
    • 12
    #1

    1 year all clear

    It's now been 18 months since diagnosis and 13 months since I finished all treatments. The repair work is holding up! 1 year all clear.....

    By the way.... as far as my treatment is going I feel like I am the a guinea pig... compared to the traditional treatments I see for similar cases...

    A. Robotic-RPLND for Seminoma Stage 2A (upgraded to 2B after histology report came back)....
    ​B. Follow ups with MRI vs CT scan. Thanks doc!
    19/1/16 – Lump on right testicle, confirmed on CT scan with normal tumor markers, Right RP lymph node 9.1mm(still normal range but suspicious)
    27/1/16 – Right Inguinal orchiectomy
    03/2/16 – Histology, 100 % Seminoma, with Rete Testis Invasion, Pt1
    04/2/16 - PET scan, Blood work, Right Retroperitoneal lymph node 11.1mm (lit up on PET scan suggesting tumor activity), Normal Tumor Markers. Stage 2A
    09/2/16 - Selection of treatment - Robotic-RPLND, 2 cycles Carboplatin
    22/2/16 - Robotic RPLND with DaVinci robot at Royal Marsden in London
    01/3/16 - Histology 100% Seminoma, 3 nodes largest 30mm, 3mm, 1mm
    07/3/16 - 1st round Carboplatin
    01/4/16 - 2nd round Carboplatin
    15/5/16 - Got engaged to my greatest cheerleader
    25/7/16 - CT Scan, 1st All clear
    07/11/16 - Chest X-Ray, 2nd all clear
    Tags: None
  • eodtech2001
    Registered User
    • Feb 2012
    • 409
    #2
    I feel you about being the guinea pig. I had rplnd for pure seminoma also. Stick to your follow ups and dont let anything get dismissed.
    Jan 2012- U/S mass in Left testicle
    Feb 2012- I/O performed to remove cancer
    Mar 1,2012- pathology pure seminoma
    Mar 7, 2012 PET SCAN stage IIa
    April 2012 Mayo clinic carbolite.
    May 2012 carbolite failed, started BEP x3
    August 7th 2012- BEP complete
    April 2013 CT/PET show relapse
    May 2013 RPLND
    Aug 2013 Relapse again Started VIeP x2
    Oct 2013 HDC AUTOLOGOUS
    Dec 2013 HDC completed CT/PETSCAN 1.1 cm x .8 cm right lower lung lobe
    Feb 2014 confirmed false positive all clear FINALLY !
    Jan 2015 1 year cancer free Pet/CT scan
    Jan 2016 2 years cancer free "Pet/CT scan
    Jan 2017 3 years cancer free "Pet/CT scan
    Jab 2018 4 years cancer free "Pet/CT scan, labs, xrays

    Comment

    • Nish115
      Registered User
      • Nov 2016
      • 270
      #3
      Congrats mate!
      24 year old diagnosed 6/11/16
      Pre/o markers 9/11/16 - HCG 15, AFP 210, LDH 539
      Pre/o CT Clear
      Non-seminoma (80% embryonal carcinoma, 10% yolk sac tumour, 5% chorea carcinoma, 5% seminoma)
      Post-op markers - 14/12/16 - HCG 35, AFP 1050, LDH 430
      Post-op CT with one enlarged lymph node - 1.5x1cm
      Borderline stage 2B/3B
      BEPx3 started 15/12/16 (Borderline BEPx4 - Advise of Dr. E to only do 3 rounds)
      CT and markers clear - in remission - 28/2/16

      Comment

      • TC Mom
        Registered User
        • May 2017
        • 56
        #4
        What great news! Congratulations!
        Mom to Zachary - dx. at the age of 15 - Stage IIIC mixed germ cell
        5.10.17 - Initial diagnosis
        Baseline markers: BhCG: 43,882 AFP: 138 LDH: 328
        5.16.17 - Left Radical orchiectomy (total tumor size 7x5x4cm)
        5.31.17 - CT Scan showed mets to retroperitoneal LNs (5.7x6.4x9.4cm, 1.7x2.6x3.5cm, 3.1x4.5x6.1cm)
        PATH: Mixed germ cell (75% teratoma, 15% embryonal ca, 8% yolk sac tumor, & 2% trophoblastic tumor) Spermatic cord margin, neg. Germ cell neoplasia in situ present.

        Post-op markers: BhCG: 73,837 AFP: 38 LDH: 412

        BEP#1 6.9.17 BhCG:77,721, AFP 34
        BEP#2 7.3.17 BhCG: 210, AFP: 6
        BEP#3 7.24.17 BhCG: 19 AFP: 3
        BEP#4 8.14.17 BhCG: 4.59 AFP: 5

        8.28.17 BhCG 2.46, AFP 6
        9.7.17 BhCG 1.78, AFP 3

        RPLND 9.14.17 - path report showed 100% teratoma in nodes removed! ALL CLEAR!

        Comment

        • Trekga
          Registered User
          • Jan 2017
          • 882
          #5
          JDS88~ Congrats on all the all year!!!!!
          Son Grant
          dx 12/21/16 at age 17
          BEP x3
          Post Chemo CT Scan on 3/28/17 still showed a few nodes over 2 cm
          2nd Post Chemo CT Scan on 4/27/17 showed all nodes still over 2cm
          Post Chemo RPLND 5/8/17: Periaortic Teratoma, Intraaorticaval Teratoma, and Paracaval Teratoma found.

          Comment

          • Cwink6
            Registered User
            • May 2017
            • 8
            #6
            Congrats on one year! More importantly congratulations on engagement. In the coming months / years she will be your ROCK when you need her most!

            Comment

            • Daniel_Eye
              Registered User
              • Feb 2017
              • 166
              #7
              HI JDS

              Congrats on your 1 year all clear, here's to many more of them!

              Comment

              • JoeTheAstronaut
                Registered User
                • Dec 2016
                • 344
                #8
                Congrats, man, awesome!!
                July 2016 - Left I/O
                December 2016 - BEPx3
                All clear for 2.5 years now + new baby!

                Simplify Cancer: Man's Guide to Navigating the Everyday Reality of Cancer
                My Testicular Cancer Support Kit
                First Oncologist Visit Checklist
                Simplify Cancer Podcast

                Comment

                • jds88
                  Registered User
                  • Feb 2016
                  • 12
                  #9
                  Thanks all!
                  19/1/16 – Lump on right testicle, confirmed on CT scan with normal tumor markers, Right RP lymph node 9.1mm(still normal range but suspicious)
                  27/1/16 – Right Inguinal orchiectomy
                  03/2/16 – Histology, 100 % Seminoma, with Rete Testis Invasion, Pt1
                  04/2/16 - PET scan, Blood work, Right Retroperitoneal lymph node 11.1mm (lit up on PET scan suggesting tumor activity), Normal Tumor Markers. Stage 2A
                  09/2/16 - Selection of treatment - Robotic-RPLND, 2 cycles Carboplatin
                  22/2/16 - Robotic RPLND with DaVinci robot at Royal Marsden in London
                  01/3/16 - Histology 100% Seminoma, 3 nodes largest 30mm, 3mm, 1mm
                  07/3/16 - 1st round Carboplatin
                  01/4/16 - 2nd round Carboplatin
                  15/5/16 - Got engaged to my greatest cheerleader
                  25/7/16 - CT Scan, 1st All clear
                  07/11/16 - Chest X-Ray, 2nd all clear

                  Comment

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