I've wanted to post here for a long time!!!

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  • dcalandrelli
    Registered User
    • Apr 2017
    • 288

    I've wanted to post here for a long time!!!

    CT was clear HCG and LDH normal and AFP dropped from 19 to 10! Doctor is very pleased I'm officially on surveillance and all clear!
    3/29/17 Diagnosed 100% Embryonal 4/10/17 Left I/O CT scan shows a few suspicious lymph (biggest 1.9 cm) 5/8/17 - 7/3/17 3xBEP 7/20/17 CT Scan Clear, AFP has uptick to 19 8/16/17 AFP Drops in half to 10, ALL CLEAR! 6/08/23 All clears up to here! 6 years all clear! Son born September 2022, conceived naturally!
  • jryancard
    Registered User
    • Aug 2017
    • 13

    #2
    Fantastic news! I'm so happy for you. It's a big relief to have this significant leg of the journey done.
    9/28/16 - Diagnosed Stage 3C. 10/10/16 - Left I/O. Pathology pure seminoma but treated as non-seminoma due to aggression and high AFP at 58. Largest tumor at 11x9cm. 10/28/16 - Emergency VIP chemo in hospital and 3 additional in-patient cycles. 2/17 - RPLND and tumor masses all dead. 3/17 Remission and surveillance. 7/17 - First imaging clear.

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    • biwi
      Registered User
      • Jun 2015
      • 861

      #3
      congrats, great to hear!
      6/5/15: bHCG 27,AFP 8.66, LDH 361, 5.6cm lymph node - Stage IIC
      6/16/15: Left I/O 85% EC, 10% chorio, 5% yolk sac opinion 2 (mayo) 90% EC, 10% yolk sac
      7/7/15: bHCG 56, AFP 42, LDH 322
      7/13/15: begin 4xEP, end 9/18/15
      10/1/15: bloodwork normal, ct scan shows 2 lymph nodes 1.0cm
      10/26/15: 2nd opinion on CT results - lymph nodes normal. Surveillance!
      4/6/16: 1.7cm X 1.5cm lymph node found with markers normal.
      4/20/16: RPLND @ IU - teratoma only!
      10/22/19: all clears up to this date!
      4/8/24: stopped monitoring something like 2 years ago, still all clear!

      Comment

      • Joe.shupe22
        Registered User
        • Nov 2016
        • 169

        #4
        I just knew you would be getting news like that!! Congratulations man!! Must be a huge relief!!

        I have a scan next week, hopefully theres no schenanigans happening!
        11/16- Pain/lump in R testicle 11/16- US finds multiple masses 11/16- Right I/O path multifocal largest nodule 2.1cm 100% EC with LVI/rete testis invasion. 12/16- Ct/markers normal stage 1b 12/16- Ct/markers normal 1/17- rplnd pN1 2 nodes 1.8/1.4 cm EC Stage IIA 2/20 ct/markers clear! 3/1/17 started androgel for low T 4/27/17 Relapsed. Multiple lymph nodes in mesentary and few nodes in retriperitoneum. Start 3x bep. Ct after 2nd cycle revealed all masses already resolved! Continue last cycle! 6/26/17 Finished 3x bep!

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        • dcalandrelli
          Registered User
          • Apr 2017
          • 288

          #5
          There won't be Joe you'll be fine for many many years! Thanks everyone!
          3/29/17 Diagnosed 100% Embryonal 4/10/17 Left I/O CT scan shows a few suspicious lymph (biggest 1.9 cm) 5/8/17 - 7/3/17 3xBEP 7/20/17 CT Scan Clear, AFP has uptick to 19 8/16/17 AFP Drops in half to 10, ALL CLEAR! 6/08/23 All clears up to here! 6 years all clear! Son born September 2022, conceived naturally!

          Comment

          • Trekga
            Registered User
            • Jan 2017
            • 882

            #6
            The BEST news!!!!! Congrats!
            Son Grant
            dx 12/21/16 at age 17

            BEP x3
            Post Chemo CT Scan on 3/28/17 still showed a few nodes over 2 cm
            2nd Post Chemo CT Scan on 4/27/17 showed all nodes still over 2cm
            Post Chemo RPLND 5/8/17: Periaortic Teratoma, Intraaorticaval Teratoma, and Paracaval Teratoma found.

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            • Jacob
              Registered User
              • Sep 2013
              • 40

              #7
              Congratulations! Can't wait to get there as well

              Comment

              • MTS1994
                Registered User
                • Jul 2017
                • 49

                #8
                Congrats! awesome news!

                Comment

                • Mike
                  Administrator
                  • Apr 2008
                  • 979

                  #9
                  Awesome news to hear and so happy for you!!!

                  Mike
                  Oct. 2005 felt lump but waited over 7 months.
                  06.15.06 "You have Cancer"
                  06.26.06 Left I/O
                  06.29.06 Personal Cancer Diagnosis Date: Got my own pathology report from medical records.
                  06.30.06 It's Official - Stage I Seminoma
                  Surveillance...
                  Founded the Testicular Cancer Society
                  6.29.13 Summited Mt. Kilimanjaro for 7th Cancerversary

                  For some reason I do not get notices of private messages on here so please feel free to email me directly at [email protected] if you would like to chat privately so as to avoid any delays.

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