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Husband is one month clear.. nervous of recurring side effects

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  • Husband is one month clear.. nervous of recurring side effects

    Hi all! My husband was diagnosed in August 2017 with stage 2 pure seminoma with enlarged lymph nodes in retro. Orcheictomy completed August 2017.. Completed 3 rounds of bep x 3 December 2017. Got the all clear in January 2018 that the large lymph nodes are no longer visible and pet scan showed clear. My husband is 29 years old, stomach has been feeling a little weird/ crampy similar symptoms (not fully) of what he had prior to chemo. He goes back for his blood work and check up March 14th but in the meantime am a little nervous of recurrence (could that be possible so soon?) I also should add my husband had a lot of stomach issues prior to chemo, certain things he ate would bother him etc and also stomach issues during chemo (bad stomach aches from all the meds and throwing up) wondering if anyone else has anything similar? Could we be just over reacting.. is this normal? Anyone else feel like every ache and discomfort is a cancer now?

    Thanks in advance...

  • #2
    Stomach issues during chemo is very common, one of the main side effects of the drugs.

    Pretty much everyone has these nervous feelings around or between checkups, especially in the beginning. Psychosomatic issues also crop up, one feels every little ache and pain and is always worried about relapse. Don't sweat it, statistics say that your visit will go well and that his symptoms are either in his head, or from something else entirely. I know about half the time all my aches and pains go away the day after my good checkups!
    6/5/15: bHCG 27,AFP 8.66, LDH 361, 5.6cm lymph node - Stage IIC
    6/16/15: Left I/O 85% EC, 10% chorio, 5% yolk sac opinion 2 (mayo) 90% EC, 10% yolk sac
    7/7/15: bHCG 56, AFP 42, LDH 322
    7/13/15 - 9/18/15: 4xEP
    10/1/15: bloodwork normal, ct scan shows 2 lymph nodes 1.0cm
    10/26/15: 2nd opinion on CT results - lymph nodes normal. Surveillance!
    4/6/16: 1.7cm X 1.5cm lymph node found with markers normal.
    4/20/16: RPLND @ IU - teratoma only!
    9/18/2017 all clears up to this date!


    • #3
      Thanks so much! That’s very reassuring. God bless you and fingers crossed for always great check ups!


      • #4
        Originally posted by Jackmandy919 View Post
        Anyone else feel like every ache and discomfort is a cancer now?.
        This forum is full of folks who worry about every ache & pain.

        With his prior history of stomach issues, this is most likely just a continuation of them, or, as biwi suggests, pre-checkup nerves.

        Jan, 1975: Right I/O, followed by RPLND
        Dec, 2009: Left I/O, followed by 3xBEP


        • #5
          So normal to be nervous after treatment. It does mellow with time, per my son.
          Son Grant
          dx 12/21/16 at age 17

          BEP x3
          Post Chemo CT Scan on 3/28/17 still showed a few nodes over 2 cm
          2nd Post Chemo CT Scan on 4/27/17 showed all nodes still over 2cm
          Post Chemo RPLND 5/8/17: Periaortic Teratoma, Intraaorticaval Teratoma, and Paracaval Teratoma found.
          Grant is enjoying his senior year in High School Cancer Free!


          • #6
            I have a scan coming up in a couple weeks and I also feel quite nervous. Stress though can tense muscles and cause pain and a lot of other ailments. Stats are In Our favor. I was worried about something on my last CT scan and sent it to Einhorn and he said “This does not sound concerning. You are almost certainly cured.” I just need to listen to him and not my anxiety lol. I freaked at the word “almost”, but my rational side told me he said almost because if it was certain no one would ever need follow ups so it’s as close to certain as he could be. Just trust in the stats!
            3/29/17 Diagnosed 100% Embryonal 4/10/17 Left I/O CT scan shows a few suspicious lymph (biggest 1.9 cm) 5/8/17 - 7/3/17 3xBEP 7/20/17 CT Scan Clear, AFP has uptick to 19 8/16/17 AFP Drops in half to 10, ALL CLEAR! 11/16/17 All Clear! AFP continues to drop! 3/19/18 All clear!


            • #7
              I think it's normal to think everything is a sign of trouble - after all, this is pretty traumatic experience you're going through!! My stomach settled within a few months after chemo and regular exercise, even if only a long walk every night, helped me a lot. Also, starting one or two personal projects that I'm really passionate about helps to take mind off things too! Anything on the to do list, anything your husband might have been putting for later?
              July 2016 - Left I/O
              December 2016 - BEPx3
              All clear for 1 year!

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