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Starting the road of surveillance

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  • albano90
    started a topic Starting the road of surveillance

    Starting the road of surveillance

    Hello guys,

    This forum has been a good way to get information, get hope and meet other survivors.

    Last week I had my first follow-up appointment with my oncologist after chemotherapy. I had my blood work and my abdomen/pelvis/chest CT Scan (since my insurance didn't approved a PET Scan). I never got a true stage because with what I read I should have been stage IIC seminoma, my doctor said 3A, but at my documents it was 3B (weird).

    Blood work: Before starting chemo I had my LDH at 650, now 5 weeks after chemo it is 210 (within the range of 220). Other markes never been escalated.

    CT Scan of my lymph nodes: I had 3 enlarged lymph nodes - a) 3.7 x 3.7cm which now is 1.1 x 1.5 cm - b) 2.5 x 2.8cm which now is 1.2 x 0.6cm - c) 5 x 6 cm which now is 2.4 x 0.8cm
    I was looking at the images of the CT Scan and even the 2.4 x 0.8cm lymph node was just some small dots and it looked like they were trying to measure it. This was also the opinion of my oncologist, who said that it looks like they were just trying to give an estimate of it. What my doctor told was that probably what is left are just scares or concrete, so I did good during my chemo. Even with guidelines everything under 3cm with seminomas goes under surveillance.

    Giving this details, I have some questions that I need some opinion from others:

    1) Is the follow-up schedule after 6 months good with seminomas?
    2) What are the chances that those nodes more than 1cm could still be cancer?

    Thank you guys!

  • albano90
    replied
    Originally posted by Ryan Bi View Post
    Thank you for the good news. I am here really happy hearing such good news!

    Best wishes to you!

    Ran’s mom
    Thank you, hope Ryan is continuing to do well. Have a blessing holidays

    Leave a comment:


  • Ryan Bi
    replied
    Thank you for the good news. I am here really happy hearing such good news!

    Best wishes to you!

    Ran’s mom

    Leave a comment:


  • albano90
    replied
    Hello guys,

    Just a follow up for my 1 year scan and labs. Good news everything is OK. Labs came all within normal. CT scan came with results showing that lymph nodes continue to shrink, and now only 2 of them are more than 1cm.

    Left paraortic 0.9x1.1cm (previously 1x1.2cm) (before treatment 3.7x3.7cm)

    Left external iliac 0.7x1.4cm (previously 0.7x2cm) (before treatment 5x6cm)

    And the left common iliac is not shown in the report, meaning that's less than 1cm (previously 0.7x1cm) (before treatment 2.5x2.8cm)


    Hope they will continue to shrink and I can have another clean next year.

    Marry Christmas & Happy New Year everybody, wish you all the best

    Leave a comment:


  • biwi
    replied
    NCCN recommends a 3 month follow up for imaging/labs if I am reading it right. After that follow up, then it goes to a 6 month, then it goes to annual for imaging, and labs remain at every 6 months.

    I think chances of there being any remaining cancer are pretty low, given your response and the way you fall into the guidelines.

    Leave a comment:


  • Trekga
    replied
    Happy NEW year to you! I do not know Seminoma NCCN Guidelines, sorry.

    Leave a comment:

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