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My 9 Year Cancerversary is Today

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  • My 9 Year Cancerversary is Today

    Today is my 9 year cancerversary from Testicular Cancer, yes Valentine's Day of all the days. That strange pain I'd had in one of my testicles that I thought was from one of my kids running into me a few weeks (or months?) prior had just kept getting worse and worse. Finally, in the middle of the night on Valentine's Day morning it got so bad that I couldn't even sleep. I'd given myself a couple of superficial feels previously and hadn't found anything, but now I finally gave myself a "deep feel" all around, and there it was in top rear of my right testicle and exactly where I would have missed it before, a rock hard solid mass that clearly wasn't normal. It was one of those moments where your heart skips a beat and time freezes for a bit, and my life was altered forever.

    I was lucky enough to catch it early enough to have a high cure rate waiting for me, but still had to go through complete hell to get there. 12 weeks of chemotherapy and a highly invasive surgery called an RPLND later, I was cured. Thought I was done, but in the years after I developed anxiety issues, depression, PTSD, and had even been suicidal from it all on more than one occasion. It's a blessing to still be here, but not an easy life at all having your entire life up in the air every other month for scans, especially when you have young children at home.

    And at 9 years out I don't give a bleep about any of this anymore.😎 Life moves on, you handle it and get through it in whatever way you can, and it's best you do that because life isn't going to pause or give you any breaks either. There are many people out there that still suffer from all of the demons that cancer leaves in your head even decades after, so to have gotten fully past this in only 5 or so years is quite a feat, and it's why I continue to put my story out there, to try and help others find their way. I've had numerous others over the years tell me that they had been suicidal or suffering from PTSD or other things after cancer, but had found one of my many blogs or essays on the topics which had "saved" them. And that's why I continue to do what I do.

    Wrote this blog last year:

    http://www.stevepake.com/cancer-blog...cancer-anymore

    StevePake.com | @K2xxSteve on Gab
    (Social Media with actual privacy, cancer support groups, encrypted secure chat & more)

    Feb 2011, Stage IIB, 4xEP, RPLND, PTSD
    My Survivorship Thread | All of my Blogs
    C
    ONTACT ME ANYTIME!

  • #2
    Congratulations Steve!
    Jan, 1975: Right I/O, followed by RPLND
    Dec, 2009: Left I/O, followed by 3xBEP

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    • #3
      Congrats, man.
      45yo, left I/O 07/30/2018, T1 pure seminoma, surveillance...
      Waiting...

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      • #4
        Congrats thats good to hear.

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        • #5
          Congratulations Steve and cheers for many many more.

          Mike
          Oct. 2005 felt lump but waited over 7 months.
          06.15.06 "You have Cancer"
          06.26.06 Left I/O
          06.29.06 Personal Cancer Diagnosis Date: Got my own pathology report from medical records.
          06.30.06 It's Official - Stage I Seminoma
          Surveillance...
          Founded the Testicular Cancer Society
          6.29.13 Summited Mt. Kilimanjaro for 7th Cancerversary

          For some reason I do not get notices of private messages on here so please feel free to email me directly at mike@tc-cancer.com if you would like to chat privately so as to avoid any delays.

          Comment


          • #6
            Fantastic! Thank you for the encouraging news!
            Son Ran, 24 years old, 25th May 2018 diagnosed NSGCT. 28th May 2018 right orchiectomy. Pathology:50% EC, 30% Teratoma ,20% Yolk sac. CTs: 1 retroperitoneal lymph node 0.7mm Tumor markers: AFP 497, bhcg 19, LDH normal Normalized after R/O. Stage 1, surveillance 17th September 2018, Bhcg elevated up to 5.6 AFP and LDH normal, CT stable. 4th November bhcg up to 28, AFP and LDH normal. BEPx3 started and 2nd January 2019 BEP finished with Tumor markers normalized. 13th February 2019 CT scan showed 1 retroperitoneal lymph node enlarged up to 1.1 cm with normal tumor markers. RPLND : 03/14 2019@IU Dr.Cary Pathology report: one lymph node from 57 is Teratoma .Back to surveillance 05/02/19 Blood work all normal

            08/23/2019 normal
            12/04/2019 normal.
            04/01/2020 normal.

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            • #7
              Congratulations, Steve.Big applause..

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              • #8
                Congrats, Steve. Your story is inspiring and you deserve high praise for making it through this cancer journey.

                I just completed RPLND surgery two weeks ago and am awaiting, what likely will be surveillance, at my 1-month follow-up at IU. It all started when I was diagnosed in January with 100% pure embryonal carcinoma and got right orchiectomy shortly after that.
                11/28/2019 - Notice swelling in right testicle
                01/06/2020 - Diagnosed with cancer; Stage 2 nonseminoa 100% embryonal carcinoma
                01/08/2020 - Right Radical Orchiectomy
                02/11/2020 - RPLND surgery at IU; begin surveillance
                03/01/2020 - Notice slight soreness/discomfort coming from left testicle
                03/05/2020 - Ultrasound show subtle lesion; surveillance bloodwork/scans clear
                05/12/2020 - surveillance bloodwork/scans - all clear; ultrasound shows slight growth in lesion on left testicle
                06/09/2020 - Left Radical Orchiectomy; Stage 1 nonseminoa 100% embryonal carcinoma
                8/21/2020: Surveillance scans - all clear
                10/16/2020: Bloodwork - normal range/clear

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