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He is only 13 years old

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  • So sorry to read this, we all know people who have lost the fight, but this was heart breaking to read, thank you for sharing, and thank you to the members of this forum who travelled this road with you. Thoughts are with you, so so sorry to hear of your loss.

    Comment


    • Hi Paul,

      It certainly is hard to believe that nearly 12 months have already passed. I am glad that the pub is helping to ease the lingering emotions. I wish you and the family nothing but blue skies ahead and the best of luck with the pub. Thanks for checking in.
      Best,

      Zsolt


      Friendship is born at that moment when one person says to another; "What! You too? I thought I was the only one." - C.S Lewis

      “Experience: that most brutal of teachers. But you learn, my God do you learn.” - C.S. Lewis


      Mass found 11/20/08
      Left I/O 11/25/08
      Pathology: Seminoma, Stage 1
      Surveillance: All Clear since

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      • Thinking of you all - and plotting how I might get to visit the pub and have a toast to Patrik.
        Husband dx Jan 08, Age 43
        CT and markers clear
        Right I/O Jan 31 08
        100% Seminoma, contained to testicle
        17 days RT finished 3/27/08

        Comment


        • Originally posted by lost parent View Post
          Hi Everyone

          Just thought Id pop by and say hello. Its been nearly 12 months since Patrik left us and it hasnt been easy. We bought the pub and I retired from the construction industry. Needed to spend time with Kay & kids and just take each day as it came.

          Thanks for all the kind words, we seem to have got through most of the bad times and are starting to pick ourselves slowly up. Pub keeps us busy and we have met some really nice people who took Pat to their hearts as we named the public bar after him.

          Time just seems to go on and its hard to believe that its been nearly 12 months but we just keep taking each day as it comes. I think the hardest thing was cleaning out his room but we have kept mosy of his prized items and have given other items to people who meant alot to him during his short life. They were extremely happy to get them.

          Anyways I dont know what to say really, just that we are still here and starting to cope better. I think the next few weeks will tell though...

          Paul Oakes
          A strong, warm, sincere and friendly hug to you and Kay, dear Paul... Tears don't allow me to write more, believe me...

          With the heart,
          Francesco Patrono, Southern Italy

          Comment


          • Hello Everyone, at 9.23am on 21 st may Australia vic time we will be letting go blue and white balloons for Patrik, to all our family and friends u are welcome to join us or let one go from where ever u all might be in in the world at that time and date. Sorry such short notice love Kay and Paul

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            • Merry Xmas everyone, life is still so hard but each day we wake and go forward. We are still at Patriks pub , I think of you all and still hope to get back to the USA and meet u all . Love Kay Paul xxoo

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              • Merry Christmas to you over there. Hope your Holidays are good ones!!!

                Terry
                sigpic
                15 Dec 08 Son Vincent diagnosed with TC
                20 Dec 08 RT I/O, 85% EC,15% Teratoma
                3XBEP Feb to April 09
                18 Aug 09 ct scan,massive tumor in lymph nodes
                23 Sept 09 RPLND, 80% Immature Teratoma, 20% Mature Teratoma
                21 Dec 09 scan shows neck, abdomen and groin node enlargements
                21 Dec 09 Amended path report, Metastatic Primitive Neuroectodermal Tumor as well as Metastatic Teratoma
                29 Dec 09 starts 6X VAC/IE
                7 March pet scan shows new disease, chemo stopped
                Hospice 5/11/10
                Passed away 5/15/10

                Comment


                • Merry Christmas! I hope the renewed thread gives a lot of the new guys the chance to read Patrik's story, we are all so blessed to have been able to share and grieve with you guys. Praying for a blessed and peaceful Christmas.
                  Tony

                  Diagnosed 4/12/12
                  AFP 31, HCG 32
                  I/O 4/25/12
                  Nonseminoma Stage 1S
                  Embryonal Carcinoma 95%, Yolk Sac 5%
                  Lymphatic Invasion, Markers did not normalize
                  BEPx3 Finished 8/5/12
                  Post Chemo APF 2 HCG Undetectable

                  Comment


                  • Merry Christmas to you, Kay and Paul and the family, as well! I hope the balloon release was beautiful and we love hearing about the pub!

                    <3
                    Tracy
                    Cancer pharmacologist, caregiver blog here

                    Wife to Kel, dx 12/30/11 Stage IIIc (poor) embyronal, AFP 13700, 10x11 cm retroperitoneal mass, 1 cm^2 lung met
                    Left I/O 12/31/10.
                    4xBEP 1-4/11, AFP=22, 5*7 RP mass, tx failed
                    1.5 x VeIP 5-6/11; tx failed, AFP/b-hCG rising
                    Salvage RPLND @Indy 6/29/11, metastatic mixed germ cell tumor with yolk sac, seminoma and teratoma
                    Remission! AFP steady since 9/2011; 2+ years ALL CLEAR

                    Comment


                    • I hope that the holiday was a good one, especially knowing that Patrik was with you in spirit.

                      Take care!
                      Husband dx Jan 08, Age 43
                      CT and markers clear
                      Right I/O Jan 31 08
                      100% Seminoma, contained to testicle
                      17 days RT finished 3/27/08

                      Comment


                      • hi kay and paul...its been so long...I remember when my son mitch and I met you in orange cty, ca....we still have the footie you brought....I sometimes look at the pics I have of us at Disney with Patrick and the whole family kicking the ball...well, at least us americans trying....

                        anyway, thinking of you and hope you are well...pete
                        - lump first noticed 11/20/2005
                        - I/O right Dec 8, 2005
                        - 95% embryonal / 5% seminoma
                        - normal markers PRE surgery
                        - no vascular invasion, tunica free of cancer, epididymis free of cancer, lungs free, lymph free
                        - Stage I diagnosis
                        - surveillance
                        - mid feb '06, beta hcg slightly elevated = 4.6...small enlarged lower node seen on CT scan...
                        - 3BEP began feb 20, 2006
                        - finished 3 BEP, last bleo, april 17, 2006
                        - CT scan, blood markers, chest..all clear
                        - back on surveillance

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                        • Hi Pete and TC family, it's been way to long since I posted on here . I think of you guys often and our trip to the U.S. , a update on our family . All kids have grown up and left home bar one , Paul is working hard as always and we still have the pub. We have put the pub for sale now so hope to sell fast in 2016 . I still work in pub and struggle still with the passing of Patrik. If possible I would like to use my pass port in early 2016 and see some of the U.S. And meet Pete again and maybe travel around to meet u all . Have a Merry Christmas and a safe and Happy New year. Would like to contact you all again and have a chat if possible and again sorry it's been so long xxoo

                          Comment


                          • I read story about Patrik.So sad
                            On left testicle.It was removed.Diagnose: malignant Sertoli–Leydig cell tumour in stage 3.I had mets in lymph,liver and lungs.I had 4xBEP.All cleared after that.Third month in remission.

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