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Good luck LET!

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  • Good luck LET!

    Hi Lynda,

    I believe your nephew starts chemo tomorrow and just wanted to wish you both GOOD LUCK! He's on his way to putting all of this behind him, which is exactly where we want it!

    Keep us posted,

    J
    Husband Shaun diagnosed March 2010. AFP 4571, HCG 3340.
    6cm x 6cm x 8cm retroperitoneal mass + 1cm nodule in right lung.
    Stage IIIb, Intermediate Risk.
    Left I/O March 9/10: 75% EC, 20% Teratoma, 5% Yolk Sac + Seminoma.
    3xBEP + 1xEP March 15 - May 21/10: markers normal.
    Bilateral RPLND July 28/10: 9.5 x 7 x 4.5cm mass, teratoma only.
    Chylous Ascites Aug/Sep.
    November 2012 All Clear
    Continuously monitoring 0.9 x 1.7cm omental nodule (possible fat necrosis)

    www.teamshaun.wordpress.com

  • #2
    Thanks Jules, so sweet of you to remember. I am just sitting here baking muffins and brownies for him. He is totally calm, I am way more nervous than he is. He did shave his head this weekend. I told him he should be Uncle Fester for Halloween!

    Comment


    • #3
      Muffins, brownies AND thorough medical research? Boy, where do I get an aunt like you?!

      It's great that he's calm. This was my experience too: I was a complete disaster while Shaun was making friends and cracking jokes in chemo daycare. His attitude actually made things easier for me, and I think it allowed him to barrel through whatever treatment was at hand, and not jump too far into the future. You and your nephew will make a good team.

      Try to get some decent sleep tonight!
      Husband Shaun diagnosed March 2010. AFP 4571, HCG 3340.
      6cm x 6cm x 8cm retroperitoneal mass + 1cm nodule in right lung.
      Stage IIIb, Intermediate Risk.
      Left I/O March 9/10: 75% EC, 20% Teratoma, 5% Yolk Sac + Seminoma.
      3xBEP + 1xEP March 15 - May 21/10: markers normal.
      Bilateral RPLND July 28/10: 9.5 x 7 x 4.5cm mass, teratoma only.
      Chylous Ascites Aug/Sep.
      November 2012 All Clear
      Continuously monitoring 0.9 x 1.7cm omental nodule (possible fat necrosis)

      www.teamshaun.wordpress.com

      Comment


      • #4
        I carried a Bugs Bunny with me as I took my kids "twick-ow-tweating" last year.

        It's great to have some fun with it!

        I'll be praying for him this week.
        Right I/O in early childhood
        TRT due to low functionality, since 2004 (Axiron)

        Back pain CT shows 7.5 x 8 x 11 cm periaortic node, Pure Seminoma (Stage III), Summer 2010
        Left I/O, September 14, 2010
        4xBEP, September 20 - December 6, 2010

        All clear through 3-12-12
        Next: 6-15-12

        Comment


        • #5
          Day 1 down. He made it through like a trooper. He feels totally fine.

          Comment


          • #6
            NICE! Day one is never a fun one - the unknown sucks. You've got one tough nephew .
            Husband Shaun diagnosed March 2010. AFP 4571, HCG 3340.
            6cm x 6cm x 8cm retroperitoneal mass + 1cm nodule in right lung.
            Stage IIIb, Intermediate Risk.
            Left I/O March 9/10: 75% EC, 20% Teratoma, 5% Yolk Sac + Seminoma.
            3xBEP + 1xEP March 15 - May 21/10: markers normal.
            Bilateral RPLND July 28/10: 9.5 x 7 x 4.5cm mass, teratoma only.
            Chylous Ascites Aug/Sep.
            November 2012 All Clear
            Continuously monitoring 0.9 x 1.7cm omental nodule (possible fat necrosis)

            www.teamshaun.wordpress.com

            Comment


            • #7
              Best of luck with the treatment. It's no fun but it works!!! Cheryl
              sigpic

              Comment


              • #8
                Originally posted by LET View Post
                Day 1 down. He made it through like a trooper. He feels totally fine.
                So good to hear! I bet those brownies and muffins helped.

                Good luck with the rest of the week - let us know how he does.

                Tracy
                Tracy
                Cancer pharmacologist, caregiver blog here

                Wife to Kel, dx 12/30/11 Stage IIIc (poor) embyronal, AFP 13700, 10x11 cm retroperitoneal mass, 1 cm^2 lung met
                Left I/O 12/31/10.
                4xBEP 1-4/11, AFP=22, 5*7 RP mass, tx failed
                1.5 x VeIP 5-6/11; tx failed, AFP/b-hCG rising
                Salvage RPLND @Indy 6/29/11, metastatic mixed germ cell tumor with yolk sac, seminoma and teratoma
                Remission! AFP steady since 9/2011; 2+ years ALL CLEAR

                Comment


                • #9
                  Week 1 done

                  Well, we made it through week 1. Most of the week he was just tired. Today there was a bit more nausea and dry heaves. I'm thinking this weekend won't be much fun. 1 down 3 to go. My big decision is, what to bake this weekend. I'm thinking I will make a cinamon bread but not sure yet, maybe some chocolate chip cookies.

                  Comment


                  • #10
                    Ghirardelli has an amazing double chocolate banana bread recipe, see it here. I made it last weekend and it is yummy - it can be made into muffins too.

                    Ohhhh, and I was just on pinterest (darn that Kimmy for sharing that obsession), saw these and thought of you. What cancer patient and family doesn't need to throw caution to the wind and indulge?

                    And YEAH through week 1!

                    Tracy
                    Last edited by CancerSux; 09-10-11, 12:08 AM. Reason: Added deliciousness
                    Tracy
                    Cancer pharmacologist, caregiver blog here

                    Wife to Kel, dx 12/30/11 Stage IIIc (poor) embyronal, AFP 13700, 10x11 cm retroperitoneal mass, 1 cm^2 lung met
                    Left I/O 12/31/10.
                    4xBEP 1-4/11, AFP=22, 5*7 RP mass, tx failed
                    1.5 x VeIP 5-6/11; tx failed, AFP/b-hCG rising
                    Salvage RPLND @Indy 6/29/11, metastatic mixed germ cell tumor with yolk sac, seminoma and teratoma
                    Remission! AFP steady since 9/2011; 2+ years ALL CLEAR

                    Comment


                    • #11
                      Originally posted by LET View Post
                      Well, we made it through week 1. Most of the week he was just tired. Today there was a bit more nausea and dry heaves. I'm thinking this weekend won't be much fun. 1 down 3 to go. My big decision is, what to bake this weekend. I'm thinking I will make a cinamon bread but not sure yet, maybe some chocolate chip cookies.
                      So happy week 1 is done! Will be keeping you all in our thoughts!
                      Caregiver to Brian
                      Newly diagnosed May, 2011
                      Embryonal and seminoma with vascular invasion
                      BEPx2 began June 27th

                      Comment


                      • #12
                        Tracy that recipe looks wonderful, one day, when he decides to like chocolate again, I will make that. I'm sure he will love it. His requests this weekend are......cinnamon muffins (again), pound cake, and ginger snap cookies. His wish is my command!

                        He is very tired and I know that is to be expected, but I just can't bear it. I hate seeing him like this. I haven't cried in about a week but I feel a good one coming on. I can't even imagine if he were my child, although, we are very close and he is the closest thing to my own child that I have ( him and his brother) I don't know how my sister is dealing with this! I really need it to be next Feruary and for all of this to be behind us. How did this post about baking turn into a pity party for Aunt Lynda?

                        Comment


                        • #13
                          Aunt Lynda can have as much of a pity party as she needs! And how wonderful of you to bake whatever he requests. I did the same (well, Kel didn't want too much baking) - whatever he wanted, he got, but for Kel that was too much ice cream. He kept using the 'cancer card' in theory so much, that I actually made him 'Cancer Cards'. They are one time use only and just a cute gimmick. Actually, I have a TON of them, so if you think your nephew would get a laugh out of the idea, just PM me and I can send a bunch to you (I have 'supporter cards' too ... entitled to whatever the heck s/he wants, but trumped by the 'Cancer Card') ... just let me know (and that goes for anyone).

                          Otherwise, it is really hard to see our loved ones go through this. Kel and I went out last night for a belated anniversary dinner and were talking about this last year and all of the big events that we could have done without. Good thing is, his memory of the trials and tribulations of chemo are a little fuzzy.

                          Big hugs! Tomorrow is a bleo day?

                          Tracy
                          Tracy
                          Cancer pharmacologist, caregiver blog here

                          Wife to Kel, dx 12/30/11 Stage IIIc (poor) embyronal, AFP 13700, 10x11 cm retroperitoneal mass, 1 cm^2 lung met
                          Left I/O 12/31/10.
                          4xBEP 1-4/11, AFP=22, 5*7 RP mass, tx failed
                          1.5 x VeIP 5-6/11; tx failed, AFP/b-hCG rising
                          Salvage RPLND @Indy 6/29/11, metastatic mixed germ cell tumor with yolk sac, seminoma and teratoma
                          Remission! AFP steady since 9/2011; 2+ years ALL CLEAR

                          Comment


                          • #14
                            Tracy,

                            No bleo for him, he is EPx4. Just a straight 2 weeks off now, yay!!!!

                            Ah, Ice Cream, I make that too. 2 weeks ago I had to make chocolate chip mint, pistachio, and lemon ices. We always talk about the "cancer card". I would love to see them. I will PM later, when I get home from work.

                            Lynda

                            Comment


                            • #15
                              I read your message before this - ignore my comments about bleo! Since this is a week off for him, hopefully he will feel better.

                              You make ice cream?! Wow, impressive. And I sent pics of the card - just something cute I did when I needed to channel my frustrations.

                              T
                              Tracy
                              Cancer pharmacologist, caregiver blog here

                              Wife to Kel, dx 12/30/11 Stage IIIc (poor) embyronal, AFP 13700, 10x11 cm retroperitoneal mass, 1 cm^2 lung met
                              Left I/O 12/31/10.
                              4xBEP 1-4/11, AFP=22, 5*7 RP mass, tx failed
                              1.5 x VeIP 5-6/11; tx failed, AFP/b-hCG rising
                              Salvage RPLND @Indy 6/29/11, metastatic mixed germ cell tumor with yolk sac, seminoma and teratoma
                              Remission! AFP steady since 9/2011; 2+ years ALL CLEAR

                              Comment

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