Announcement

Announcement Module
Collapse
No announcement yet.

RPLND: Anyone have experience in how long assistance is needed after surgery?

Page Title Module
Move Remove Collapse
X
Conversation Detail Module
Collapse
  • Filter
  • Time
  • Show
Clear All
new posts

  • RPLND: Anyone have experience in how long assistance is needed after surgery?

    I guess I'll start off with an introduction. My boyfriend and I have been together for two years, and I'm currently living across the country for grad school, and I'll be moving back in the beginning of September after graduation. He recently had his IO, and I decided to save my limited time off and funds for flying for if he needs an RPLND or chemo. He just received the results of the biopsy, and it turns out the tumor is a teratoma. I don't have a ton of information yet, because he has been really reserved after hearing the results, but I know he will be having a full body scan sometime this week to determine if it has metastasized. Though we don't know yet if a RPLND will be recommended, I really want to be prepared for the worst possible scenario, as we have yet to receive any news from the doctors that is even remotely close to good.
    He lives by himself, and is very reluctant to move in with family during treatment because he is a very independent person. I was wondering, for those who have experienced a loved one getting a RPLND, how long did you feel they needed in person assistance, and during which points in the process did they need the most help? I've done a lot of reading, and I'm assuming the RPLND would require the most help immediately after surgery, but wanted to get some input from people who have experienced either. My advisor is extremely understanding, and I would be able to get off as much time as needed, but could really use some additional information for planning when and for how long to fly out, especially due to the fact that I want to avoid delaying graduation as much as possible, as I would like to be around to help out full time soon. Also, if anyone has experience dealing with a teratoma I would love to hear about it, as I've done a good bit of research, but it is hard to get an idea of what exactly happens through just reading papers and sifting through prognosis statistics. Thank you for your help.



  • #2
    Hi Danielle,

    My wife helped me through RPLND in July. She took about 10 days off of work to help me. I think it could have been less, but she wanted to be close. This assumes that there are no major complications. Also, it will depend on his living set-up. Is everything on one floor etc? I'm sorry, but I don't have any experience with teratoma.

    Good luck with everything. Post more questions if you have them. This forum was very helpful for me and my family.

    Comment


    • #3
      Originally posted by jfert View Post
      Hi Danielle,

      My wife helped me through RPLND in July. She took about 10 days off of work to help me. I think it could have been less, but she wanted to be close. This assumes that there are no major complications. Also, it will depend on his living set-up. Is everything on one floor etc? I'm sorry, but I don't have any experience with teratoma.

      Good luck with everything. Post more questions if you have them. This forum was very helpful for me and my family.
      Thank you so much for your input, it is a great relief to hear that you were better after 10 days. Can I ask how long you were in the hospital for? Fortunately, his apartment is all one floor, with no stairs besides the exit, so that won't be a problem. I was shocked by how bad he felt after the IO, so I was pretty concerned about how he would react to the major surgery. Your comment was extremely reassuring!

      Comment


      • #4
        I had my surgery at Indiana University. Surgery was 9am on a Weds, and with zero complications I was discharged around 11am on Saturday. I think generally people stay a day longer than that.

        I am 3 weeks out of my RPLND and I would say about 2 weeks. Cooking, driving, grocery shopping, laundry would be the most difficult part in those first 2 weeks. Standing for long periods of time is very uncomfortable and tiring. After 2 weeks he generally should be able to do normal chores and whatnot at a slow pace.

        There is a chance of complications but generally I think the above should be a decent guide.
        6/5/15: bHCG 27,AFP 8.66, LDH 361, 5.6cm lymph node - Stage IIC
        6/16/15: Left I/O 85% EC, 10% chorio, 5% yolk sac opinion 2 (mayo) 90% EC, 10% yolk sac
        7/7/15: bHCG 56, AFP 42, LDH 322
        7/13/15 - 9/18/15: 4xEP
        10/1/15: bloodwork normal, ct scan shows 2 lymph nodes 1.0cm
        10/26/15: 2nd opinion on CT results - lymph nodes normal. Surveillance!
        4/6/16: 1.7cm X 1.5cm lymph node found with markers normal.
        4/20/16: RPLND @ IU - teratoma only!
        9/18/2017 all clears up to this date!

        Comment


        • #5
          You may want to check if it's laparoscopy RPLND. Mine wasn't and it took me about 1 month to be self-sufficient.
          Born 1982.
          2001 TC 1A (embryo carcinome) + RPLND, clear.
          2013 TC 2B (mixed embryo chorio thera yolk sac + vasal invasion) + 2xBEP, clear.
          TRT: Nebido insufficient, switched to Testogel 50mg.

          Comment

          Working...
          X