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  • Good to be with like minded crowd...

    Hi guys and girls, good to be here in a sense that in our extremely difficult and stressful time I was glad to find a group of people going through the same issues. My son has stage 2 seminoma and is currently going through his first cycle of BEPs (total of 3 to be done). He had diarrhea after the 3rd bleo (the one you are supposed to have fever reaction to). However our oncologist doesn't think it's related and hasn't seen diarrhea sideeffect to any of the BEP meds. Have you heard of any/had any?

  • #2
    No, I can't recall anyone here mentioning diarrhea, in fact, constipation is pretty common, probably from the anti-nausea meds. I'm afraid we can't assume that every problem is related to the chemo, sometimes we just get "lucky" and have an unrelated problem to deal with as well.

    Dave
    Jan, 1975: Right I/O, followed by RPLND
    Dec, 2009: Left I/O, followed by 3xBEP

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    • #3
      The person next to me in my ward had quite bad diarrhea, although he wasn't necessarily on BEP. And in the list of side effects given to me, diarrhea is mentioned as one, although it might not be that common. I've had the opposite problem as Dave mentioned which can be common.
      24 year old diagnosed 6/11/16
      Pre/o markers 9/11/16 - HCG 15, AFP 210, LDH 539
      Pre/o CT Clear
      Non-seminoma (80% embryonal carcinoma, 10% yolk sac tumour, 5% chorea carcinoma, 5% seminoma)
      Post-op markers - 14/12/16 - HCG 35, AFP 1050, LDH 430
      Post-op CT with one enlarged lymph node - 1.5x1cm
      Borderline stage 2B/3B
      BEPx3 started 15/12/16 (Borderline BEPx4 - Advise of Dr. E to only do 3 rounds)
      CT and markers clear - in remission - 28/2/16

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      • #4
        Your body is more susceptible to germs in general during chemo, so various sorts of sickness are not all that uncommon. I was more on the constipation side as well... I (luckily i guess) had my chemo july-sept, so probably the time of year when the least amount of sickness was going around. I certainly did get the annual fall cold in november though if I remember right!
        6/5/15: bHCG 27,AFP 8.66, LDH 361, 5.6cm lymph node - Stage IIC
        6/16/15: Left I/O 85% EC, 10% chorio, 5% yolk sac opinion 2 (mayo) 90% EC, 10% yolk sac
        7/7/15: bHCG 56, AFP 42, LDH 322
        7/13/15 - 9/18/15: 4xEP
        10/1/15: bloodwork normal, ct scan shows 2 lymph nodes 1.0cm
        10/26/15: 2nd opinion on CT results - lymph nodes normal. Surveillance!
        4/6/16: 1.7cm X 1.5cm lymph node found with markers normal.
        4/20/16: RPLND @ IU - teratoma only!
        9/18/2017 all clears up to this date!

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        • #5
          Hello, my son got diarrhea due to C. Diff. Because the chemo lowered his Immune system. You should ask your doctor to test if it continues.
          9/6/13 Left I/O. 18 year old son diagnosed 9/13/13 Stage 2C. Path report: embryonal and yolk sac with spermatic cord involvement and lymphatic invasion BEP x 3 finished 11/25/13. PC-RPLND with Dr. Foster at IU on 1/21/14. Found only dead cancer! Surveillance as of 1/23/14. All clear as of 5/2017.

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          • #6
            Hi All, thank you so much for your replies. We will be watching out as you have suggested. We have another 7 weeks of Chemo total ahead of us so it will be more clear whether this was a side effect or just unlucky coincidence. I agree with you all that immune system is down and we can expect all sort of problems. Will keep you posted.

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            • #7
              Both Constipation and Diarrhea were listed as side effects of my chemo. I ended up having the worst Constipation during chemo....I wish that I actually had the Diarrhea !

              I am not sure what it may be from. The first thing to do is get control of it, find out the cause, next would be to stop it from happening again.

              Keep us posted.

              - Matt
              March 4th 2014: [AFP = 2.5; bHCG = 6; LDH = 618]
              March 13th: Left IO 100% Classic Seminoma
              6.3 x 5.1 x 3.8 cm, no invasion of anything
              LDH never fully normalized
              Stage: IS
              Watchful Waiting
              May 1st: promoted to Stage IIB with two PET active tumors in the para-aortic lymph nodes 2.5 & 2.4 cm
              May 12th: started 3xBEP
              Neupogen during Cycle 2 and 3
              July 8th: Last Bleo shot of Cycle 3 -- chemo completed !
              August 4th: Post Chemo CT/PET scan
              September 4th: Port removed
              July 8th 2017: 3 YEARS ALL CLEAR !

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              • #8
                Thank you Matt. Tomorrow will be an indication as Joe will have the next Bleo. Will let you guys know how we go.

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