Hi I'm new to this site and am not sure exactly how it works. I have a few questions that I have been wanting to ask and I am hoping to find someone with a similar situation to what we are going through. My son was diagnosed with a non-semonoma germ cell tumor at 9 months old. After a l/o we found out it was 100% yolk-sac tumor. We were lucky and only had to go on servalince. His Afp levels went from 7000 pre surgery down 600, 2 weeks post surgery. It continued to drop to 97, 1 month post surgery to 40, 1 month after that and than to 26, 1 month after that, but the following month it went up to 28. We went in for the 3 month ultrasound and xray and it came back clear, at that point his Afp went down to 14 and we were happy. We went in for blood work 2 weeks after that and it elevated to 18 and 1 week later to 30. We were rushed back for another ultrasound and xray and they came back clear. We ended up doing another blood test and it went down to 26, and a week later it went down to 14. We are scheduled for an MRI in 2 weeks where will do more blood tests. I was just wondering if anyone else's levels have fluctuated like that and what was the outcome. He is now 16 months and is a very happy baby. He doesn't act like anything is bothering him or that he is sick in anyway. Could this be his body trying to get back to normal the Dr doesn't have any answers at the moment and I am feeling very lost.
No announcement yet.
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