Worried wife

[Violet0729]

Thank you Dave

[surfhb]

I think it would be important to tell everyone where you are located so that if RPLND surgery is needed you can know the excellent surgeons for the job in your area. Unless I missed a post that says it?

I was just 2a. 1 enlarged node to 1.9cm. I went with the RPLND surgery since I had an expert near by that could do the surgery. They found 5 total nodes rather than the 1 that showed up on the PET/CT. The surgery can be curative on its own but given the correct circumstances like mine, it lessened the amount of chemo I have to do from 4EP or 3BEP to 2EP.

They will only allow the surgery if your tumor markers stay normal. As much as I don’t want to have to do chemo (again) I’m glad it’s not going to be 3 or 4 rounds and I can spare myself at least 1 round maybe 2.

Just something to consider. Hoping the best for you.

[Violet0729]

I think it would be important to tell everyone where you are located so that if RPLND surgery is needed you can know the excellent surgeons for the job in your area. Unless I missed a post that says it?

I was just 2a. 1 enlarged node to 1.9cm. I went with the RPLND surgery since I had an expert near by that could do the surgery. They found 5 total nodes rather than the 1 that showed up on the PET/CT. The surgery can be curative on its own but given the correct circumstances like mine, it lessened the amount of chemo I have to do from 4EP or 3BEP to 2EP.

They will only allow the surgery if your tumor markers stay normal. As much as I don’t want to have to do chemo (again) I’m glad it’s not going to be 3 or 4 rounds and I can spare myself at least 1 round maybe 2.

Just something to consider. Hoping the best for you.

I live in El Paso Texas and I emailed Dr. Einhorn and replied saying that chemo would be best and his cure rate is still 99-100%. He did mention RPLND surgery as an option but not sure if my Husband’s urologist does those kind of surgeries. My husband’s tumor markers are normal and been that way since the beginning.

[Ryan Bi]

Hi, I read all of the above. Then I have a question, is it normal that doctors will restage patients because of enlarged nodes during surveillance? I thought patients get stages only when they got diagnosed. Everything comes later called recurrence or relapse, isn't it?

Sorry for my stupid question. I am trying to learn more about TC.

Many thanks for your input!

Best Regards

Amy, Ran’s Mom

[raincrow]

​Hi...From Canadian semimoma protocol, surveillance seems to be the preferred method.....in my case there was surveillance after 2007 orchitectomy and in about a 1.5 years time (2009) the seminoma popped back as a 1 cm node in the para-aortic region (discovered by CT scan). I then had 20 days of radiation (took about 2 years to feel good after the bombing) . I was released from the program after 9 years of continued surveillance (blood work and x-rays). Wishing you and your husband health and happiness.

[surfhb]

I live in El Paso Texas and I emailed Dr. Einhorn and replied saying that chemo would be best and his cure rate is still 99-100%. He did mention RPLND surgery as an option but not sure if my Husband’s urologist does those kind of surgeries. My husband’s tumor markers are normal and been that way since the beginning.

Glad you got a response from Dr. E. He is absolutely the man when it comes to this. I emailed him also and did exactly as he suggested. Chemo isn’t as bad as you read about. There are many posts on the site that can help you deal with the side effects.

[Davepet]

Amy,
Technically, this is a relapse, but no matter what it's called it's the treatment going forward that is what is important, & that does not change.

[Davepet]

Violet,
Glad you heard from doc E, I would follow his advise, he knows how to treat TC better than anyone.

[Ryan Bi]

Thank you very much, Dave.

I saw this word �restage � very often, but I couldn't read anything from papers. That confused me always.and sometimes it related to the outcome. So I want to know more about it.

Thank you again!

BRs

Amy

[melanie]

Violet! Ugh, I am SO disappointed to hear about the relapse! I was just thinking about you the other day since both our husbands were diagnosed close to this time last year. So sorry for the relapse, but you guys are doing everything right! Hang in there. He will be okay. Keep us posted

[Violet0729]

Thanks Melanie and I will keep you posted. Today he had the pulmonary function test done. So Friday the oncologist will decide which chemo he will get. We are nervous and a little scared but I know we will pull through.

[Violet0729]

Ok so we went to oncologist and he got mad because my husband was supposed to get the biopsy on his lymph node and we didn’t schedule anything because we thought it was optional since that’s what oncologist made it seem. We still have to see if that’s possible because lymph node is on a main artery. But this week we will find out. Then pulmonary function test came back ok but with a mild obstrutive disease in one lung. He can get BEPx3 but if he runs into problems then i guess EPx4. We are nervous and full of anxiety now. Every time he gets a lab done something new pops up.

[Violet0729]

Hi guys I have a question..... where there is spread to a lymph node is that area supposed to feel tender? My husband is still waiting for biopsy appointment and now he says that area where para aortic node is feels like a bruise.

[biwi]

Probably not related. Those lymph nodes are not near the surface of your skin, they are pretty deep inside you.

[Violet0729]

Oh ok thank you biwi