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Worried wife

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  • vpirh
    replied
    It could be that his body is still adjusting to the surgery and maybe the surviving testicle is not yet producing enough testosterone. 4 days is too soon to tell imho.

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  • Violet0729
    replied
    Guys since my husband had I/O on tuesday hes been really tired these days, is that normal?

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  • Violet0729
    replied
    Thank you guys and i will keep you posted once we find out

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  • Davepet
    replied
    Just to reiterate, his chances of a cure are very high. He should be getting a CT scan soon, to find out if it has spread, also blood markers for hcg & AFP need to be drawn, LDH is also often measured, but isn't as useful.If these tests haven't been ordered or done yet, make sure to mention it to the urologist at the first appointment.

    Davve

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  • Trekga
    replied
    So sorry you are able to post here. As mentioned already you are in the waiting period, and it is a tough time. Deep breath...update when you get pathology. I hope they ran tumor markers and will do a CT Scan/lung x-ray. Glad he found it.

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  • Violet0729
    replied
    He took long because his testicle was hard but didnt think anything was wrong and he even had a physical and the doctor grabbed his testis but didnít mention him anything so he didnt think anything was wrong. Until it swelled up then we were concerned. He also was getting ready to get weightloss surgery and just in December and January he had alot of labs done. Chest x-ray, CBC, abdominal ultrasound, barium swallow and everything came back normal. His weightloss surgery was cancelled.

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  • HouTex
    replied
    My tumor was 4.5. I too waited; 3 months from first sign. With two young children the time between 'it has got to come out' and 'what kind of cancer is it and what are the next steps' was very difficult. But here I am 8+ years later, worry about the kids and their driving.

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  • Violet0729
    replied
    Thank you so much guys. I really appreciate your words. I had my husband read your replies and he smiled. 😊

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  • Mike
    replied
    I agree that right now is one of the most difficult times. It is the hurry up and then wait period where the surgery is done but the results seem take forever to get back. A 5 cm tumor is not that large and there is no real way from telling from the tumor size itself if it has spread. There is some data showing guys with even 8 cm tumors were still stage I, where the cure rate is essentially 100%. Has he had any imaging done as far as CT scans, those are the key in looking for any spread, or any tumor markers (AFP, beta-hCG, LDH)?

    As mentioned it is highly curable and keep in mind that many times the stories on here are because people did face difficulties or have advanced disease as those that had the orchiectomy, were stage I, and went on with life with no issues typically are not on here or on here for long periods of time so essentially you miss many of the easier success stories.

    Please keep us posted and try not to worry too much until the doctors give you something to worry about (I know that is easier said than done). The odds are way in your favor that this is just a temporary hiccup and it is just a matter of how much short term crap he has to go through to come out a success on the other side.

    MIke

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  • Sir Lurkington
    replied
    First of all, sorry to have to welcome you to this forum. There are plenty of people here with more experience than me who can answer pretty much any question you might have, so if there's something you're wondering about, or if you just need to vent, go ahead and write a message.
    I understand that you're scared and sad, but as I'm sure you already know, the cure rate for this type of cancer is very high, and even in a worst case scenario where it has spread, the majority of people are cured.

    For me, waiting for test results was (and still is, just did my first post chemo blood work) the hardest part. Not knowing is incredibly hard, but the fact that he took a long time to see a doctor doesn't necessarily mean it has spread for sure. I waited 5 months after I found a lump to see a doctor (by then a large part of the surface and most of the inside of the testicle was just tumour/necrotic mass), and even though the cells in my tumour were 100% Embryonal Carcinoma, a type that is known for being VERY aggressive, I was still only diagnosed stage 1B.

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