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  • Welcome!

    As the description states, this is a place to share, discuss and vent all the issues and emotions that are part of being a caregiver. Questions and comments specific to treatment are best suited for posting in the other "Treatment and Beyond" spaces.

    To sum up the relationships between Caregivers and those we care about and for, nothing says it better than the following posts by Maria (MRMRSU) and Mark (TCLEFT):

    For Our Guys
    You're worth every ounce of worry.
    You're worth every tear I've shed,
    And every night spent revisiting
    All those articles I've read.

    You're worth every minute of planning
    In keeping schedules straight -
    Every appointment, every blood test
    And every news that we await.

    You're worth all the questions asked
    When you're too ashamed to say,
    Or when you've just had enough of this,
    That you drift so far away.

    You're worth every aching emotion
    That consumes me day and night,
    And equally worthy of praise and cheer
    When you win the smallest fight.

    You're worth every penny that I can spend
    In the hopes of finding a cure
    And if anything good could be seen from this,
    Let it be my love so sure.

    You're my purpose and inspiration
    Worthy of all that I can give,
    You're the reason for everything I do,
    And why I strongly live.

    -Maria (MRMRSU)



    From Us to You
    In your actions are your truest words spoken
    Your words chase the monsters from our beds
    When we're feeling battered and broken
    You give us this day our daily bread

    We wish for you Life's greatest banquet
    Even when we feel more like burnt toast
    We wish for you Joy forever and always
    Forever and always is when we need you the most

    We wonder if this is what life intended
    How could this be the purpose of our birth
    But all of those deep wounds you mended
    Gives us hope in what we're still worth

    We could never repay such a kindness
    But a promise we give sure and true
    That the love that you give will remind us
    To give our All and that all of it's for you

    -Mark (TCLEFT)
    Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.

  • #2
    Karen: My Jersey big sister...I am humbled that you've included my poem as a start to this new forum. Let this be the beginning of many more expressions of love and support.

    Hugs from Cali!
    Maria
    *Hubby Andy diagnosed 02/13/07, Left IO 02/16/07 *Stage 1A Non-Seminoma (65% Immature Teratoma / 35% Embryonal Carcinoma) *RPLND 04/27/07 Lymph Nodes-ALL CLEAR
    *Complications from Chylous Ascites so Laparotomy 05/03/07 *No food for 10 weeks, TPN only *07/18/07 Removed drains, tubes, picc line *CT Scan 07/31/07-ALL CLEAR
    *CT Scan 02/12/08-ALL CLEAR *Hydrocele surgery 06/19/08 *CT Scan 9/30/08 and 03/06/09 shows <cm left lung nodule - under surveillance

    Comment


    • #3
      I second that emotion! Wishing you all success and some peace of mind in this space.
      Much Love,
      Mark
      I Love My Pack!

      sigpic

      Comment


      • #4
        Very nice!! This is a very welcomed addition to the forum!! Russell just stopped by for a few minutes while on a lunch break...dropped mud from his "work boots" from the back door to the kitchen. He has had some shortness of breath...I am going to stay positive!!!!! Chest films will be next week. If a lot of money in the bank is a good thing, then having a ton of emotions should add up to something too!! So glad to be able to put it all out on the table. Nice work Karen, thank-you, Sharon
        Click here to support my LIVESTRONG Challenge with Team LOVEstrong.

        Comment


        • #5
          Hi Karen,
          Its nice to see this carers thread up and running. I think it will be good for all carers to see that they are not alone with the way they are feeling and don't need to bottle things up when things are getting tough, after all we are not robots and cannot switch off our emotions, maybe put them to one side for awhile but then they come back with avengence and knock you for six. Cancer is one big roller coaster ride with ups and downs. I hope you all have more UPS than Downs
          Takecare
          Irene (Kevins Mam)
          Kevin (17yrs) Diagnosed March 2006
          Stage 3+
          spread to spine,lung and liver.
          Paralised Due to spinal Compression With Sheer determination started to Walk again be it with crutches
          4 X Bep 3X Tip 5 days Radiotherapy. Spread to his brain 8th Feb 07 passed away 15th Feb 07.

          Comment


          • #6
            Hi Karen and gang, sometimes I am sick of being a caregiver and want someone to give care to me! I guess that is what being a mother and a wife is all about and it doesn't necessarily have anything to do with cancer. The bottom line is that YOU have to take care of YOURSELF. You can tell I have had a few drinks but I am celebrating today because I became eligible for social security!!!!!
            Spouse: I/O 8/80; embryonal, seminoma, teratoma; RPLND 9/80 - no reoccurrence - HRT 8/80; bladder cancer 11/97; reoccurrence: 4X
            Son: I/O 11/04; embryonal, teratoma; VI; 3XBEP; relapse 5/08; RPLND 6/18/08 - path: mature teratoma

            Comment


            • #7
              Dianne,
              Well, congrats on the eligibility for SS!!! I definatley can relate to feeling like there's no time for me. I think we all tend to put ourselves last and feel guilty when we "escape". Give me one day, at a quiet beach, eighty degrees, cool breeze, no jellyfish, with a mindless summer fiction paperback and a cooler of an "adult beverage" ......ahhhhhhh.

              Cheers!
              Karen
              Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.

              Comment


              • #8
                Hi MOM: You are too cool and too young-at-heart to be eligible for social security, Dianne!!! Congrats...and hey, you can somewhat look at this as Uncle Sam finally doing his part to take care of YOU .

                Still trying to shake off the guilt whenever I treat myself to an "escape" Karen...all in due time I guess.
                Maria
                *Hubby Andy diagnosed 02/13/07, Left IO 02/16/07 *Stage 1A Non-Seminoma (65% Immature Teratoma / 35% Embryonal Carcinoma) *RPLND 04/27/07 Lymph Nodes-ALL CLEAR
                *Complications from Chylous Ascites so Laparotomy 05/03/07 *No food for 10 weeks, TPN only *07/18/07 Removed drains, tubes, picc line *CT Scan 07/31/07-ALL CLEAR
                *CT Scan 02/12/08-ALL CLEAR *Hydrocele surgery 06/19/08 *CT Scan 9/30/08 and 03/06/09 shows <cm left lung nodule - under surveillance

                Comment


                • #9
                  Maybe we should all escape together and go on a cruise (sans spouses, sons, bfs, brothers)!! There are some advantages to becoming older, one is that you finally have the option of saying "take this job and shove it.."(I'll leave the rest of the sentence to TCLEFT). You are really at the point where you are working for yourself. You can tell I have had a bad week. Seriously, as strong as we are, sometimes we need a little TLC or a new pair of shoes or a new bag or a new whatever.. We need to find a respite from this disease, sometimes we even need a break from this forum because it is too gut wrenching. But the bottom line is the power and strength that we get is from each other, no one else truly understands. Dianne
                  Spouse: I/O 8/80; embryonal, seminoma, teratoma; RPLND 9/80 - no reoccurrence - HRT 8/80; bladder cancer 11/97; reoccurrence: 4X
                  Son: I/O 11/04; embryonal, teratoma; VI; 3XBEP; relapse 5/08; RPLND 6/18/08 - path: mature teratoma

                  Comment


                  • #10
                    sometimes we need a little TLC
                    It's not much, but from me to you "Thank You".
                    I Love My Pack!

                    sigpic

                    Comment


                    • #11
                      Karen:
                      This section is such a great idea, thanks.
                      Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

                      Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

                      Comment


                      • #12
                        thank you!

                        I am a new member. My fiance was diagnosed with TC (Seminoma) about 3 weeks ago. He has had an orchiectomy of his right testicle. Scans show no cancer, but bloodwork shows elevated afb levels (tumor markers). We both have been struggling, especially since everything happened so fast, but I showed him the first poem you posted and it made his day. We both send our love and thanks

                        Comment


                        • #13
                          I am a new member too. My husband was diagnosed with TC in August which was a total shock. He had injured his testicle in May and was being treated for a haematoma. At the August appointment we were told that it was not what they thought and it was TC. He had his orchiectomy September 19th. Tumour markers have come down, consultant says it was contained to the testicle but there was evidence of something in the vascular tissue. 2 x BEP starts on Monday. Although we have had all the information it's quite scary to know how the next few months will go. It's really helps reading other peoples experiences on here.

                          Melanie

                          Comment


                          • #14
                            Just wanna say that it's a really nice poem =D

                            Love the both of them!

                            Anyway fairly new here =) and I think it's a great place to find out more info and gain support =)

                            My husband and I just got married last Oct and 2 weeks after that we found out about TC. The first time we heard it, it really caught us off guard. Although I suspected that it might be TC but hearing it from the specialist, telling us about cancer, chemo, sperm banks...WE JUST GOT MARRIED 2 weeks ago! It was a LITTLE too much

                            But through it all, it's God's grace and peace that have brought us through PLUS we had tremendous awesome people around us supporting us

                            And I think that this forum is a great place cause it's really important to have other people supporting, what more when they were there before or going through the same ordeal. =)

                            Just wanna say kudos to all the moderators & members who have contributed so much to make this forum a really nice place =)
                            Fionna Tan

                            Husband (Pavel)
                            Embryonal Carcinoma pT1 NO MO
                            Pre op tumor markers: AFP 546.8 & hCG 108
                            Post op tumor markers: AFP S:7.9 & S:0

                            Right testicle removed on the 10th Nov 2011
                            scans are all clear

                            BEP.
                            Cycle 1: 19/12/11 - 8/1/12
                            Cycle 2: 9/1/12 - 30/1/12

                            Post Chemo:-
                            ALL CLEAR

                            Comment


                            • #15
                              Fionna,

                              WOW, what a way to start your honeymoon! So sorry you had to join us, but glad to have you here for anything we can help with/answer, etc.

                              Best wishes,
                              Tracy
                              Tracy
                              Cancer pharmacologist, caregiver blog here

                              Wife to Kel, dx 12/30/11 Stage IIIc (poor) embyronal, AFP 13700, 10x11 cm retroperitoneal mass, 1 cm^2 lung met
                              Left I/O 12/31/10.
                              4xBEP 1-4/11, AFP=22, 5*7 RP mass, tx failed
                              1.5 x VeIP 5-6/11; tx failed, AFP/b-hCG rising
                              Salvage RPLND @Indy 6/29/11, metastatic mixed germ cell tumor with yolk sac, seminoma and teratoma
                              Remission! AFP steady since 9/2011; 2+ years ALL CLEAR

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