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New Beginning

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  • New Beginning

    Diagnosed in May with stage 1A non-seminoma cancer - embryonal and yolk sac tumor. Sept scans showed 2 lymph node enlargement - par aortic measuring 1.6cm and 1.3cm. Starting 3 cycles of BEP chemo on the 26th.
    Does anyone have a copy of the BEP schedule? My nurse coordinator wrote it down for me, but I can't understand it.
    May 6 - R/O Left Testicle
    Pathology Report - Mixed Germ Cell Tumor - Non-Seminoma
    80% Embryonal 20% Yolk Sac
    Margin Free, No LVI.
    Tumor Markers - Normal
    Stage 1A - On Surveillance

    September CT Scan showed 2 Para-Aortic enlarged lymph nodes measuring 1.6cm and 1.3cm
    Restaged 2A
    9/26 Started BEP x 3
    11/21 Ended BEP x 3
    11/21 On Surveillance Again - Lymph Nodes on post chemotherapy scan were 9mm and are expected to shrink further. Merry Christmas to me!!

  • #2
    Do you have elevated tumor markers? I would try to go for an RPLND if that is a choice...
    Diagnosed at age 31. Treated in NYC. Now living in Ottawa, ON, Canada.

    7/1/2015: felt tiny lump on side of R testicle
    7/30/2015: Ultrasound shows 2 intra-testicular masses.
    7/31/2015: tumor markers normal, CXR clear
    8/5/2015: R orchiectomy
    8/11/2015: Pathology: 1.2 x 1.0 x 1.0 cm, embryonal 80%, seminoma 20%, with LVI and rete testis invasion
    8/14/2015: CT abdomen/pelvis clear, Stage 1b
    8/24/2015: started 1 x BEP


    • #3
      Check here - you will need to register to get the info but they do not spam you. .
      TC1: May 2001 / Right orchiectomy / seminoma stage 1 / Radiation
      TC2: July 2008 / Left orchiectomy / seminoma stage 1 / X2 Prostheses / Reandron (long term Testosterone injections)


      • #4
        Week 1 you get EP all 5 days, on Mon or Tue you get the B Many call this "The long week"
        Week 2 only one day of B (same day as week 1)
        Week 3 only one day of B (same day as week 1)

        Weeks 4,5,6 Repeat 1,2,3
        Weeks 7,8,9 Repeat 1,2,3

        I personally would not consider RPLND, chemo will likely take care of any TC anywhere in your body, surgery will only get what's in your retro peritoneum, & could even miss some in there.The cells were already in your peritoneum last May & have had 3-4 months to grow & potentially spread. IMO, it's time for napalm, not a surgical strike.

        Jan, 1975: Right I/O, followed by RPLND
        Dec, 2009: Left I/O, followed by 3xBEP