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Today I start kicking cancers ass

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  • #16
    Good luck. You'll do fine. I was stage IIIC. I remember I would show up right before 10 AM and they always had the Price is Right on the TV. There were a couple of people there that had different types of cancer. There was one lady that would always talk to me and reassure me that everything was going to be ok. I wish I could stop by and see her or the other people but I'm at work while they are open and close by the time I get off.

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    • #17
      It'seems like it'should been forever since we last chatted. Got my 3rd Bleo yesterday.

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      • #18
        Today I go get my first neupogen injection. What should I expect for typical symptoms?

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        • #19
          Cancer and chemo hasn't beaten me down. It has lifted me up and made me think a lot. I am now on the verge of being able to help my whole family out financially in a way never imagined.
          We own a small parcel in upstate NY on river just outside my hometown. Going to transform this spot into a mini camp ground with a natural amphitheater. The potential is mind blowing when you think about it. We are on a small river, 5minutes from my dad's Pizza shop, 5minutes from golf, 5 minutes from Pleasant Lake that my sister can build a boat launch from, we all ready have a sweet hiking trail, 5min from Carthage where grocery store and hardware store and pharmacy is, 5 minutes from bars, in winter right on snowmobile trail. I can keep going.
          I am so excited I can't sleep.
          So for anyone that likes camping or small concert venues in the future come visit me.

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          • #20
            Glad to hear you're doing okay mate!

            Anyways wanted to go to NY, so maybe i'll take you up on it :P

            How's the hair doing so far?
            24 year old diagnosed 6/11/16
            Pre/o markers 9/11/16 - HCG 15, AFP 210, LDH 539
            Pre/o CT Clear
            Non-seminoma (80% embryonal carcinoma, 10% yolk sac tumour, 5% chorea carcinoma, 5% seminoma)
            Post-op markers - 14/12/16 - HCG 35, AFP 1050, LDH 430
            Post-op CT with one enlarged lymph node - 1.5x1cm
            Borderline stage 2B/3B
            BEPx3 started 15/12/16 (Borderline BEPx4 - Advise of Dr. E to only do 3 rounds)
            CT and markers clear - in remission - 28/2/16

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            • #21
              Originally posted by Scottdbltrbl View Post
              Today I go get my first neupogen injection. What should I expect for typical symptoms?
              I had no issues, some report aching in the bones. I can't recall if other symptoms have been reported.

              Dave
              Jan, 1975: Right I/O, followed by RPLND
              Dec, 2009: Left I/O, followed by 3xBEP

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              • #22
                Well I definitely want to recommend that you get your 2qts of water a day. What a difference in the way I feel during the 5 day stretch of cycle 2, compared to the same point of cycle 1.
                All is good here, I got this. Hope everyone keeps on keeping on.

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                • #23
                  RE: Neupogen

                  I was one of the "lucky" ones to get the bone pain. For me it was pretty bad. I had to use some strong pain killers for a day....the stuff I had left over from the Orchie. Otherwise I was told to take the max dosage of my Advil or something like that.

                  Of course I didn't find till after the fact that they recommend taking Claritin * before * starting Neupogen to counter bone pain. If you try that trick don't use the Claritin OTC....use regular Claritin and start it a couple/few days beforehand..

                  Other than that I just felt crappy in general...nothing that I could put my finger on.

                  - Matt
                  March 4th 2014: [AFP = 2.5; bHCG = 6; LDH = 618]
                  March 13th: Left IO 100% Classic Seminoma
                  6.3 x 5.1 x 3.8 cm, no invasion of anything
                  LDH never fully normalized
                  Stage: IS
                  Watchful Waiting
                  May 1st: promoted to Stage IIB with two PET active tumors in the para-aortic lymph nodes 2.5 & 2.4 cm
                  May 12th: started 3xBEP
                  Neupogen during Cycle 2 and 3
                  July 8th: Last Bleo shot of Cycle 3 -- chemo completed !
                  August 4th: Post Chemo CT/PET scan
                  September 4th: Port removed
                  January 11th 2017: 2 & 1/2 YEARS ALL CLEAR !

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                  • #24
                    So the Claritin definitely helped with the neupogen last week.
                    Officially started 3rd round yesterday. Getting headaches which is new.I
                    Ready to get this over with. Last day is Feb 14th.

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                    • #25
                      Had follow up CT scans and there are no new masses or nodes. The one node that was 4.6cm is now 1.3cm. Tumor markers are negative. More blood work in 2 months, another CT in 3 months, node should continue to shrink. This is the best news I have gotten in quite some time now. Very cool.

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                      • #26
                        Congrats mate!
                        24 year old diagnosed 6/11/16
                        Pre/o markers 9/11/16 - HCG 15, AFP 210, LDH 539
                        Pre/o CT Clear
                        Non-seminoma (80% embryonal carcinoma, 10% yolk sac tumour, 5% chorea carcinoma, 5% seminoma)
                        Post-op markers - 14/12/16 - HCG 35, AFP 1050, LDH 430
                        Post-op CT with one enlarged lymph node - 1.5x1cm
                        Borderline stage 2B/3B
                        BEPx3 started 15/12/16 (Borderline BEPx4 - Advise of Dr. E to only do 3 rounds)
                        CT and markers clear - in remission - 28/2/16

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                        • #27
                          Awesome news, congrats, man!!

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                          • #28
                            Hi Scott

                            Glad to hear that you're doing well. I'm going to be starting my treatment soon and it's always nice to see how others made it through theirs.

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                            • #29
                              SCOTT~ congrats on CT sccan new!!!!
                              17 year old Grant dx 12/21/16
                              pre/o markers 12/21/16- HCG:1065.15,AFP:298.8,LDH:1119
                              pre/o CT Scan 12/22/16 normal
                              r/o 12/22/16
                              Post r/o Elevated Markers with INCREASE 4 weeks post r/o;
                              PATHLOGY: mixed maligent germ cell 8.6 x 6.2 x 5.9 cm

                              -80% Embryonal, 10% Yolk Sac, 5% Teratoma, 5% Choriocarcinoma w/LVI within Spermatic Cord and invasion into Rete Testis
                              2nd CT scan on 1/24/17 3 nodes 2 over 2.5, one over 3.5
                              BEP x 3
                              Tumor markers at start of Cycle 1 1/27/17 HCG 899.68 AFP 50.6
                              Tumor markers at start of Cycle 2 on 2/17/17 HCG 5.96 AFP 10.2
                              Tumor markers start of Cycle 3 on 3/10/17 HCG .6 AFP 3.2
                              POST Chemo CT Scan on 3/28/17 still showed a few nodes over 2 cm

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