Announcement

Announcement Module
Collapse
No announcement yet.

Starting 4 X EP Should I get a Port?

Page Title Module
Move Remove Collapse
X
Conversation Detail Module
Collapse
  • Filter
  • Time
  • Show
Clear All
new posts

  • davewdc
    started a topic Starting 4 X EP Should I get a Port?

    Starting 4 X EP Should I get a Port?

    Hey Guys - 4 years after the original diagnosis of Stage 1A Seminoma and orchidectomy and after 4 years of surveillance the CT and PET scans show relapse and biopsy tomorrow to confirm what they already suspect. My Doc I've seen since the beginning is so confident that she has already scheduled me for 4 cycles of EP starting on 2/6. The nurse says my veins look good, but wonder after 20 infusion days, that will be the case. My research is beginning to show most folks do the port and those that don't might regret? We're also scheduled to go on a 7 day Caribbean cruise the weekend after the 2nd week of treatment. The Doc and Nurse have differing opinions on whether we should try and go. Part of me thinks it's crazy to travel during the treatment, but the other part of me thinks the R and R mid treatment might be good. Thanks for anyone's experience on port vs. intravenous and traveling in the middle of Chemo. Dave

  • Davepet
    replied
    Well, my doc recommended 3xBEP for me & I was 55, I did have shortness of breath during chemo, but recovered nicely afterwards. IMHO, I would not recommend RPLND for a late relapse like this, chemo will attack any TC anywhere, RPLND might miss some micro mets that have moved beyond the field of surgery.

    Dave

    Leave a comment:


  • davewdc
    replied
    Yeah, the relapse sure was a shock. I've kept my Surveillance appointments religiously. Thankful that the guidelines call for CT scan at the 4th year. Biopsy came back today confirming Seminoma Stage 2B. Doc recommended the 4 cycles of EP over the BEPX3 due due to the potential lung toxicity with the bleomycin in "older" patients. I'm 50 - so I followed her advice.

    Leave a comment:


  • RJKD
    replied
    What stage are you now? Stage 2A or 2B? I would recommend RPLND. Although this is only used in trials at the moment for seminomas.

    Leave a comment:


  • S P
    replied
    Good choices all around on port, and skipping the cruise. Honestly, cruise ships, which are notorious for having all sorts of germs and contamination issues are the LAST place someone fighting cancer should be, with a compromised and/or weak immune system. Heck, my wife won't set foot on a cruise ship even normally as she's a germaphobe.

    Sorry to hear about the recurrence after so long, but EPx4 will knock this to the ground. Any reason for EPx4? I personally would do BEPx3 at this point, if I could do it all over again. Lots of long term effects from so much Cisplatin. There seems to be fewer long-term effects from Bleomycin and BEPx3, but water under the bridge at this point. My best advice today is to just do BEPx3 rather than EPx4, unless you have a compelling reason and case for wanting to avoid Bleomycin. Good luck!

    Leave a comment:


  • biwi
    replied
    Good choices! Best of luck! You will enjoy that vacation even more after this!

    Leave a comment:


  • ScotSteve
    replied
    Sorry to read about your relapse. It must have seemed likely you'd managed to escape the main relapse timeframes. It must have been a shock.

    Best wishes with your treatment.

    Steve (seminoma, 1b Oct 2016)

    Leave a comment:


  • davewdc
    replied
    Thanks so much for the feedback everyone! I went ahead and got the port installed this morning while already at the hospital for the biopsy. I've yet to find someone that really regretted getting the the port. Also, we'll skip the cruise in March and go on vacation this summer once treatment is complete. Dave

    Leave a comment:


  • JeskiM69
    replied
    I would nix that cruise. Your immune system will likely be compromised at that point. If you get an infection at that point without medical intervention you could be gone within hours...not trying to scare you...but it's just a reality that comes with this kind of chemo.

    A port is not required but it something to consider. I recommend it, but that is based on my experience. Like some other decisions it's a personal thing...do what you feel us best for you after weighing the pros and cons.

    - Matt

    Leave a comment:


  • Trekga
    replied
    My 17 year old just had a port placed Friday, and 3 xBEP started Friday night. He is thrilled how easy it is to dispense chemo, other meds, and draw blood! He says he does not feel it. His is a Power Port., visible above the skin.

    The crusie would make me nervous if you contracted a bad infection. But if you wear a mask, wash hands, maybe it would be okay?

    Leave a comment:


  • biwi
    replied
    You do not need a port. I did not have one, and the last week pokes were a little annoying but tolerable. A port has its own set of complications. I was an otherwise very healthy 32 y/o with great veins.

    I would not go on your vacation :-(. If that falls on day 14-21 of the first cycle, you will be feeling OK but your immune system is very vulnerable at this point. If you caught something bad being on the ship and needed medical attention pronto you are looking at a life threatening situation with an expensive helicopter ride. Traveling a long way from home to international waters and other countries isn't something I'd do during chemo for both the risk of adequate care, and the risk of nasty bacteria/viruses not found around home. I'd wait at least a month after your final round.

    Leave a comment:

Working...
X