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  • Finished Chemo

    I finished 3 rounds of BEP a few weeks ago. February 8th was the last Bleomycine day to be exact. Now we're waiting until early March for a catscan to check on the tumor. It was a 2cm Non-seminoma in my lymphnode. Does anyone have any stats or anything on how often they can be teratoma vs. how often not? I was in the good response area for chemo. Just looking for anything to calm my nerves until the scan.

  • #2
    Hope someone on the other side can answer your question. Glad you got through the 3 cycles!
    Son Grant
    dx 12/21/16 at age 17

    BEP x3
    Post Chemo CT Scan on 3/28/17 still showed a few nodes over 2 cm
    2nd Post Chemo CT Scan on 4/27/17 showed all nodes still over 2cm
    Post Chemo RPLND 5/8/17: Periaortic Teratoma, Intraaorticaval Teratoma, and Paracaval Teratoma found.
    Grant is enjoying his senior year in High School Cancer Free!

    Comment


    • #3
      Congrats on finishing treatments. If it was me and my node was 2 cm before chemotherapy then I would be planning on it being totally gone and not put much worry into it until I had my CT scan and they told me that I had something to worry about. Try not to think about it (easier said than done) and keep us posted on your results.

      Mike
      Oct. 2005 felt lump but waited over 7 months.
      06.15.06 "You have Cancer"
      06.26.06 Left I/O
      06.29.06 Personal Cancer Diagnosis Date: Got my own pathology report from medical records.
      06.30.06 It's Official - Stage I Seminoma
      Surveillance...
      Founded the Testicular Cancer Society
      6.29.13 Summited Mt. Kilimanjaro for 7th Cancerversary

      Comment


      • #4
        Thanks! This is relieving to read. Honestly, i've been fine since Chemo ended but for some reason today the looming threat of surgery struck a nerve. Not much I can do other than wait though so here I am haha

        Comment


        • #5
          Yeah, I wouldn't get too worked up unless you hear otherwise. Now it isn;t impossible that you may need it but I would be leaning more towards not.

          Mike
          Oct. 2005 felt lump but waited over 7 months.
          06.15.06 "You have Cancer"
          06.26.06 Left I/O
          06.29.06 Personal Cancer Diagnosis Date: Got my own pathology report from medical records.
          06.30.06 It's Official - Stage I Seminoma
          Surveillance...
          Founded the Testicular Cancer Society
          6.29.13 Summited Mt. Kilimanjaro for 7th Cancerversary

          Comment


          • #6
            Based on what guys have reported in here, it's not very common for Non-seminoma to become teratoma.It actually seems pretty rare. It seems more common for teratoma to become something else far more problematic.

            It would not surprise me if down the road they discover that non-seminomas actually cannot "transform" into teratoma, but that some teratoma portion was missed in pathology in those cases where it seemed to happen.

            Just my speculation,

            Dave
            Jan, 1975: Right I/O, followed by RPLND
            Dec, 2009: Left I/O, followed by 3xBEP

            Comment


            • #7
              Congrats on finishing Chemo! That is not an easy walk in the park by any means! Good luck on your CT scan!

              -Eric
              3/25/11 swelled up at Disneyland
              3/29/11 Ultrasound
              4/7/11 Left I/O
              Pathology, immature teratoma 70% Yolk Sac tumor 10% Embryonal Carcinoma 10% and seminoma 10%
              3 Lymph nodes affected
              IIIB
              BEP x 4 5/2/11-7/15/11
              RPLND 8/15/2011 Two nodes Immature teratoma
              9/22/11 ALL CLEAR!!!!
              11/26/11 ALL CLEAR
              2/21/12 ALL CLEAR

              Comment


              • #8
                Welp, I am apparently special. Chemo didn't work so it looks like we're heading towards surgery.

                Comment


                • #9
                  In what way didn't it work? Did your markers drop but you still have a slightly enlarged lymph node so they want to operate to see what it is?

                  Sorry to hear though, really wanted good news for you! I'm sure you'll be okay though, keep strong!
                  24 year old diagnosed 6/11/16
                  Pre/o markers 9/11/16 - HCG 15, AFP 210, LDH 539
                  Pre/o CT Clear
                  Non-seminoma (80% embryonal carcinoma, 10% yolk sac tumour, 5% chorea carcinoma, 5% seminoma)
                  Post-op markers - 14/12/16 - HCG 35, AFP 1050, LDH 430
                  Post-op CT with one enlarged lymph node - 1.5x1cm
                  Borderline stage 2B/3B
                  BEPx3 started 15/12/16 (Borderline BEPx4 - Advise of Dr. E to only do 3 rounds)
                  CT and markers clear - in remission - 28/2/16

                  Comment


                  • #10
                    What did the actual CT results say?
                    Jan, 1975: Right I/O, followed by RPLND
                    Dec, 2009: Left I/O, followed by 3xBEP

                    Comment


                    • #11
                      Not sure. Meeting with Doctor tomorrow. He just said the spot on the CT scan that was there originally is still there. Tumor markers are all normal and have been for quite some time.

                      Comment


                      • #12
                        Could be Teratoma.

                        - Matt
                        March 4th 2014: [AFP = 2.5; bHCG = 6; LDH = 618]
                        March 13th: Left IO 100% Classic Seminoma
                        6.3 x 5.1 x 3.8 cm, no invasion of anything
                        LDH never fully normalized
                        Stage: IS
                        Watchful Waiting
                        May 1st: promoted to Stage IIB with two PET active tumors in the para-aortic lymph nodes 2.5 & 2.4 cm
                        May 12th: started 3xBEP
                        Neupogen during Cycle 2 and 3
                        July 8th: Last Bleo shot of Cycle 3 -- chemo completed !
                        August 4th: Post Chemo CT/PET scan
                        September 4th: Port removed
                        July 8th 2017: 3 YEARS ALL CLEAR !

                        Comment


                        • #13
                          Oh no! Wishing you the best, please update us when you can.
                          Son Grant
                          dx 12/21/16 at age 17

                          BEP x3
                          Post Chemo CT Scan on 3/28/17 still showed a few nodes over 2 cm
                          2nd Post Chemo CT Scan on 4/27/17 showed all nodes still over 2cm
                          Post Chemo RPLND 5/8/17: Periaortic Teratoma, Intraaorticaval Teratoma, and Paracaval Teratoma found.
                          Grant is enjoying his senior year in High School Cancer Free!

                          Comment


                          • #14
                            RPLND is Tomorrow. Not gonna lie. Super nervous.

                            Comment


                            • #15
                              Good luck, you will get through it!
                              6/5/15: bHCG 27,AFP 8.66, LDH 361, 5.6cm lymph node - Stage IIC
                              6/16/15: Left I/O 85% EC, 10% chorio, 5% yolk sac opinion 2 (mayo) 90% EC, 10% yolk sac
                              7/7/15: bHCG 56, AFP 42, LDH 322
                              7/13/15 - 9/18/15: 4xEP
                              10/1/15: bloodwork normal, ct scan shows 2 lymph nodes 1.0cm
                              10/26/15: 2nd opinion on CT results - lymph nodes normal. Surveillance!
                              4/6/16: 1.7cm X 1.5cm lymph node found with markers normal.
                              4/20/16: RPLND @ IU - teratoma only!
                              9/18/2017 all clears up to this date!

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