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Anyone stop Bleo part way through BEP x3?

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  • Anyone stop Bleo part way through BEP x3?

    They stopped it at week 4 over some signs of reduced lung function, about ready to start week 3 of EP, it sounds like they are leaning towards just doing that with a CT scan 3 weeks later and depending on that possibly a fourth cycle of EP

  • #2
    Some on here have stopped BEP and moved onto EP. Hoping they chime in soon. Sorry your lung function decreased. Hang in there!!!
    17 year old Grant dx 12/21/16
    pre/o markers 12/21/16- HCG:1065.15,AFP:298.8,LDH:1119
    pre/o CT Scan 12/22/16 normal
    r/o 12/22/16
    Post r/o Elevated Markers with INCREASE 4 weeks post r/o;
    PATHLOGY: mixed maligent germ cell 8.6 x 6.2 x 5.9 cm

    -80% Embryonal, 10% Yolk Sac, 5% Teratoma, 5% Choriocarcinoma w/LVI within Spermatic Cord and invasion into Rete Testis
    2nd CT scan on 1/24/17 3 nodes 2 over 2.5, one over 3.5
    BEP x 3 1/27/17
    Post Chemo CT Scan on 3/28/17 still showed a few nodes over 2 cm
    2nd Post Chemo CT Scan on 4/27/17 showed all nodes still over 2cm
    Post Chemo RPLND 5/8/17: pathlogy Teratoma , 3 large masses removed

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    • #3
      Did you get all the bleo in week4? Normally they go with the 4th round of EP when bleo is stopped, I don't know if I'd be comfortable with any less.

      Dave
      Jan, 1975: Right I/O, followed by RPLND
      Dec, 2009: Left I/O, followed by 3xBEP

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      • #4
        Our son-in-law lost a good bit of lung function, so the onc. wanted to do his last cycle w/ no bleo, and no EP because he was having serious tinnitus. We were very concerned about it.We emailed Dr. Einhorn and gave him the CT report from before chemo. Dr. Einhorn said that in SIL's case, he did not think missing the last 2 bleo would be a problem. SIL took steroids for cough and by the time he finished the steroids, his lung function and hearing were back to normal.Next scan will be early Sept. So far,so good! AND they are expecting their first child in March!!
        I highly recommend that you contact Dr. Einhorn regarding your specific case. He responds quickly and is a very kind man. Good luck!

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        • #5
          I'm new on this site, what's the easiest way to get the contact info for dr. Einhorn?

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          • #6
            leinhorn@iu.edu Good luck! Let us know what he says!

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