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  • #16
    Per https://www.petermac.org/users/assoc-prof-guy-toner:
    "Associate Professor Guy Toner is a Consultant Medical Oncologist at Peter Mac and Associate Professor of Medicine at The University of Melbourne."

    Perhaps contact PeterMac or UofM and ask.

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    • #17
      Thank you . Much appreciated .
      Feeling confused & frustrated . Looking for some advice .

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      • #18
        Also, I noticed you were looking for Dr. Guy Turner not "Toner"

        Dave
        Jan, 1975: Right I/O, followed by RPLND
        Dec, 2009: Left I/O, followed by 3xBEP

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        • #19
          I finally noticed ha . All good , I found him . Thank you .
          Feeling confused & frustrated . Looking for some advice .

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          • #20
            Hi mate,
            I have been reading your story on here over the last few days.
            I am just wondering whether you had made contact with Dr Toner at Peter MacCallum Cancer Centre?
            Dr Toner is my oncologist and I could not speak highly enough of him and his expertise with regards to Testicular Cancer.
            My case is a complex and rare one and I would not be alive without him.
            If you want to chat please feel free to send me a message.
            I also sent you a message and I hope you have consulted with Dr Toner.

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            • #21
              Hey Aussieguy ,
              Do you mind if I PM you & ask a few questions about Dr. Toner
              Feeling confused & frustrated . Looking for some advice .

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              • #22
                Hey Guys ,
                Just a quick check in , maybe some advice .
                Itís being 6 weeks since I finished my BEP , Iíve had my 6 week post chemo AFP 13 , after two years my oncologist has finally said thatís my norm 😁. CT results came back , both enlarged nodes still the exact same size , from when first noticed 7 months ago both below 1cm.
                This is where the fun starts , PET Scan results still showing one node lighting up on the Scan .
                Man Iím so confused & so is my oncologist, my case is going before a group of specialist tomorrow to discuss my case , Iíve also sent a referral letter to Dr. Toner in Melbourne.
                I keep hearing that PET Scans should not be used for non-seminoma , thereís no change in my AFP , no change in size on the CT in 7 months , Iím just worried , could it be a cancer thatís resistive to BEP ? Or just dead tissue ? Oncologist says itís not teratoma as it wouldnít show up on PET Scan .
                Have any of you guys seen a similar case like this before?
                Iím just worried if go back on surveillance and it does end up being something nasty , I could end up in serious trouble?
                Or go ahead with surgery , find out itís dead tissue , Iíve just being thru BEP & Surgery for dead tissue .
                This cancer stuff really plays with your head 😓
                Feeling confused & frustrated . Looking for some advice .

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                • #23
                  Remember Dr E's words you posted on 12/17/17:
                  After that chemo there should be basically a zero chance that you have persistent cancer with such minimal disease. From your description we would just recommend routine follow- up. There are testis cancer experts in Australia. I realize it is a big country but if you wanted a second opinion I would recommend Guy Toner in Melbourne.
                  BEP resistant cancer is pretty rare, ESPECIALLY in low volume disease like what you had when you started chemo. RPLND would be appropriate if you are extremely concerned about a future relapse. But it likely isn't necessary at this point. I wouldn't even worry or think about second line chemo at this point. Please go through with your consult with Dr. Toner, I'm sure he can give you an accurate picture of where you stand and the chances of any relapse.
                  6/5/15: bHCG 27,AFP 8.66, LDH 361, 5.6cm lymph node - Stage IIC
                  6/16/15: Left I/O 85% EC, 10% chorio, 5% yolk sac opinion 2 (mayo) 90% EC, 10% yolk sac
                  7/7/15: bHCG 56, AFP 42, LDH 322
                  7/13/15 - 9/18/15: 4xEP
                  10/1/15: bloodwork normal, ct scan shows 2 lymph nodes 1.0cm
                  10/26/15: 2nd opinion on CT results - lymph nodes normal. Surveillance!
                  4/6/16: 1.7cm X 1.5cm lymph node found with markers normal.
                  4/20/16: RPLND @ IU - teratoma only!
                  9/27/2018 all clears up to this date!

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                  • #24
                    The referral has being sent to Dr. Toner , I need to see him for peace of mind at this stage . Thereís to many scenarios being thrown about with my oncologist, I donít know what to be thinking anymore . Thank you for the reply
                    Feeling confused & frustrated . Looking for some advice .

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                    • #25
                      You have done the right thing requesting the referral to Dr Toner. I saw him about a week ago for my follow-up. I cannot recommend him highly enough. Keep us posted and please feel free to Private Message me with any questions.

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                      • #26
                        Another update , Iím flying to Adelaide to meet their top Urologist for a surgery consultation. It looks like RPLND is the next step for myself . Guys Iím just wondering is there anyway of checking how experienced Dr. Nick Brook is with the RPLND procedure , how many times he has completed the procedure. Iím definitely feeling a little anxious now , but thatís only normal. If itís a means to an end , I can finally get my life back on track , Iím happy enough going ahead with surgery. Just feel like Iíve come so far now , just donít want to leave anything to chance , the lymph nodes donít seem to be going anywhere .
                        Feeling confused & frustrated . Looking for some advice .

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                        • #27
                          Sorry don't know Dr Brook - but hopefully Dr Toner can advise or recommend a surgeon?
                          July 2016 - Left I/O
                          December 2016 - BEPx3
                          All clear for 1 year!

                          My Testicular Cancer Support Kit
                          First Oncologist Visit Checklist
                          Simplify Cancer Podcast

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                          • #28
                            I am not personally familiar with Dr. Brook but you can ask him how many RPLNDs and specifically post-chemo RPLNDs he does a year. The other option would be to ask Dr. Toner who he recommends for the RPLND, I know that his surgeon was incredibly successful in at least one mate on here, whereas the local surgeon could not complete the first RPLND. It is always worth asking and if they don't want to be open and share, well then I personally would look at other options.

                            Mike
                            Oct. 2005 felt lump but waited over 7 months.
                            06.15.06 "You have Cancer"
                            06.26.06 Left I/O
                            06.29.06 Personal Cancer Diagnosis Date: Got my own pathology report from medical records.
                            06.30.06 It's Official - Stage I Seminoma
                            Surveillance...
                            Founded the Testicular Cancer Society
                            6.29.13 Summited Mt. Kilimanjaro for 7th Cancerversary

                            For some reason I do not get notices of private messages on here so please feel free to email me directly at mike@tc-cancer.com if you would like to chat privately so as to avoid any delays.

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