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  • zig
    started a topic Neulasta questions

    Neulasta questions

    Hi all. My husband starts Cycle 2 of EPx4 this morning. After he got his blood work done, they told him they want him to get a Neulasta shot on Saturday. I don't know much about Neulasta, except that it has the potential for some pretty bad side effects, including significant pain. I have some questions I'm hoping you all can help with.

    I've read that Claritin can help. That's regular Claritin right, not Claritin D? When should you take it, and how often? Are there other over the counter remedies that can help, or are their prescriptions we should be requesting?

    How long does it last -- will one shot last the full cycle?

    What's the difference between Neulasta and Neupogen?

    Should I expect that he'll need extra support after he gets the shot, and for how long thereafter? I have plans to take the kids away for the weekend, and I need to figure out the type of support he may need at home. Last cycle he basically just rested the weekend after chemo -- he felt like crap but he didn't need a lot of help. Now I'm wondering how the Neulasta may complicate things.

    Thanks everyone!

  • dustumor99
    replied
    I started my 2nd round of 4xEP on July 19 and finished the 5 days of chemo on July 23. I received a neulasta shot on the 23rd, and it hit me pretty hard on the 30th. This is my 2nd neulasta shot, I had one during my first round that had just about as much pain, but it seems like it disappeared quicker than the 2nd round.

    For me, it was basically throbbing pain in my lower back and hips, but the pain was so intense that my stomach was contracting with the pulsating pain, to the point my stomach was sore after it was all said and done.

    For me, the intense part of it lasted about 12-14 hours. I didn't take anything, and just tried to sleep (easier said than done). For round 3, I plan on asking the doc for advice and/or prescriptions for pain meds, and do what I can to control the pain. It's definitely uncomfortable.

    I thought neulasta was always more of a delayed effect based on your WBC counts dropping, so surprised some are feeling pain immediately after the shot.

    Also, I did try Claritin both rounds, but I don't think I realized that the effects happen several days after, so I would normally take claritin for 5 days or so after chemo and then stop. That's something I plan on doing differently after round 3.

    Good luck to your husband!

    Leave a comment:


  • Trekga
    replied
    My son never had either during BEP. He was severely Neutropenic (WBC less below 2 a few times) but Dr. E said it was not necessary and his counts would rise by day 22, and they did each cycle.

    Leave a comment:


  • Pwsuba
    replied
    I’ve had nupeogen self injections after my 3rd round of bep back in 2010. I don’t remember any significant side effects (1 injection a day for 5days)

    Upon my relapse when I was given rounds of ep (which was incorrect treatment long story) I had that onpro auto injector twice both times no significant side effects.

    In preparation for HDC w/ SCT after the second round of TiP I received 4 neupogen injections per day while inpatient and 2 a day outpatient for like 34 total. 3rd day inpatient with 4 a day. Everything hurt. Every bone joint everything, this lasted about 48 hours. Then subsided for the rest of the injections.

    I was warned and suggested to take Claritin could’ve helped I won’t ever know.

    Leave a comment:


  • Davepet
    replied
    I think I had both, but never had any pain at all. it does seem to vary by individual.

    Leave a comment:


  • Trudo
    replied
    I also had bone pain for about 48 hours after the injection. I could still get up to eat etc, I just really didn't want to. For the most part I just ate and slept though for those 48 hours and took pain medication. I didn't know about the Claritin until just reading this thread now.

    It was handy to have someone at home to prepare meals etc.

    Not everyone gets side effects, or the same ones it seems.

    Leave a comment:


  • biwi
    replied
    Mine was also mundane. I had it the the last 3 rounds of my 4xEP. I had no side effects from it, no bone pain, no aches. Didn't take any claritin or anything. Just the annoying autoinjector on my belly for 24 hours until after the shot was done.

    Leave a comment:


  • dcalandrelli
    replied
    My experience was pretty mundane. It was annoying having a patch on but I found it didn’t add to the General crappy feeling chemo caused. One thing that could happen is the LDH may shoot up because of it so if it happens don’t worry that’s normal according to my doctors. It went back to normal pretty quickly.

    Leave a comment:


  • eodtech2001
    replied
    Your post is pretty much spot on with what happened to me. First time i was given it right at ViEP. I was sent home no warning no nothing. I was at my cousins football game started to feel tightness in my lower back like i pulled a muscle around 7pm. Got home around 9pm and by then i was done. Spasms where bad the hot tub helped relax me but did not take away the pain. So i did the same thing maxed out my pain meds and rode it out til the morning.

    Leave a comment:


  • JeskiM69
    replied
    Neupogen is typically given over multiple days. I had to self inject it over 3-5 days in the second week of the cycle. I did end up excruciating bone pain that lasted around 12-18 hours. The pain did not start till after I had taken all my shots. I think Neupogen is a quicker acting drug. I think it's affects don't last as long either.....a more "short-term" drug if you will.

    I was told you want to take regular Claritin...not the "D" version. You want to start taking it a few days before you start the Neupogen/Neulasta.

    Of course I was told this after I had gone through it. I was mad as h*ll that they didn't tell me before. I can't say if the Claritin trick will work or not because I didn't do it and cannot compare cycle to cycle.....only what I have heard from others.

    If he does have the pain, then he can take his favorite pain med at it's strongest does and just hunker down (curl up in a ball and go to sleep....like I did) for half the day until the pain goes away.

    Hope that helps.

    - Matt

    Leave a comment:


  • eodtech2001
    replied
    I dont think there is much of a difference between the 2. I have had both and both of them made me hurt. As for claritin im not sure which is used cause i wasnt given either.
    As for how long it last, its not like taking a pain med, its used to boost your system into over production. I know i hurt 48 hrs after tje shot and it felt like every bone in my body was broken. It only lasted a couple of hours. A hot bath helped with the uncontrollablespasms it caused. That was before i had HDC. During HDC i was given the shot everyday and felt nothing or had no side effects because my bone marrow had already been wiped out. So as i said it us used to kick your system into gear

    Leave a comment:

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